Liabilities / Assets
12th percentile
Higher debt load relative to assets than 12% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
12th percentile
Higher debt load relative to assets than 12% of similar nonprofits.
Liabilities / Revenue
11th percentile
Higher debt load relative to revenue than 11% of similar nonprofits.
Net Margin
8th percentile
Higher net margin than 8% of similar nonprofits.
Top Officer Pay
41st percentile
Higher top officer pay than 41% of similar nonprofits.
Top officer pay equals 3.1% of source-year revenue.
Asset Growth
14th percentile
Faster asset growth than 14% of similar nonprofits.
Revenue Growth
80th percentile
Faster revenue growth than 80% of similar nonprofits.
Assets
Down$27,086,351
Down $1,324,192 (-4.7%) from 2022
Net Assets
Down$26,829,916
Down $1,269,969 (-4.5%) from 2022
Liabilities
Down$256,435
Down $54,223 (-17%) from 2022
Revenue
Up$7,357,938
Up $1,606,570 (+28%) from 2022
Expenses
Up$10,247,154
Up $1,241,538 (+14%) from 2022
Net Income
Up-$2,889,216
Up $365,032 (+11%) from 2022
Cure duchenne is a not-for-profit organization dedicated to coordinating and funding research necessary to find a cure for duchenne muscular dystrophy, increasing public awareness for duchenne muscular dystrophy, and improving their care and health.
Coordinating and funding research necessary to find a cure for duchenne muscular dystrophy. As well as, improving the care and health of duchenne muscular distrophy patients.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Program Related | $19,514,869 | $24,150,054 | ▲ $4,635,185 |
| Cash and Non-Interest-Bearing Accounts | $8,410,921 | $2,539,794 | ▼ $5,871,127 |
| Land, Buildings, and Equipment, Net | $16,220 | $9,732 | ▼ $6,488 |
| Total Assets | $28,210,389 | $27,086,351 | ▼ $1,124,038 |
| Other Assets Total | $268,379 | $386,771 | ▲ $118,392 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $36,108 | $137,002 | ▲ $100,894 |
| Other Liabilities | $7,588 | $76,964 | ▲ $69,376 |
| Deferred Revenue | $66,808 | $42,469 | ▼ $24,339 |
| Total Liabilities | $110,504 | $256,435 | ▲ $145,931 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $28,099,885 | $26,829,916 | ▼ $1,269,969 |
| Total Net Assets Fund Balance | $28,099,885 | $26,829,916 | ▼ $1,269,969 |
| Total Liabilities and Net Assets / Fund Balance | $28,210,389 | $27,086,351 | ▼ $1,124,038 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $9,732 | $27,605 | $37,337 |
| Investment Program Related Org | $24,150,054 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Lianna Orlando | Vice President of Research | FT | $225,000 | $225,000 |
| Michael Kelly | Chief Scientific Officer | FT | $225,000 | $225,000 |
| Heather Medlin | Director of Clinical Development | FT | $220,141 | $220,141 |
| Ryan Meardon | Former VP of Donor Relations | FT | $183,333 | $183,333 |
| Andrea Pike | Director of Marketing | FT | $175,000 | $175,000 |
| Kathlene Balisy | Finance Director | FT | $175,000 | $175,000 |
| Monica Utley | Director of Programs | FT | $170,353 | $170,353 |
| Emilie Perkins | Director of Communications | FT | $166,267 | $166,267 |
| Debra Miller | President & CEO | FT | $151,304 | $151,304 |
| Kent Mora | Former Chief of Staff | FT | $151,051 | $151,051 |
| Name | Title |
|---|---|
| Bob Smith | Director |
| Christopher Finazzo | Director |
| Dana White | Director |
| David Macinnis | Director |
| Diane Kemple | Director |
| Jeffrey Goffman | Director |
| Martin Lehr | Director |
| Peter Strelow | Director |
| Ryan Williams | Director |
| Tim Sullivan | Director |
| Tj Farnsworth | Director |
| Paul Miller | Secretary |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Trinds LLC | Program Services | 6425 LIVING SPACES 2ND FLOOR, Pittsburgh, PA 15206 | $339,986 |
| Stars & Stripe Children Foundation | Event Services | 8149 SPECTRUM, Irvine, CA 92618 | $252,000 |
| Mobility Works | Medical Device Services | 560 BOSTON PROVIDENCE TRNPK, Norwood, MA 02062 | $182,590 |
| Dmh Napa Valley LLC | Consulting Company | 108 RANDOLPH ST B, Napa, CA 94559 | $174,068 |
| Brand Amp LLC | Marketing | 1945 PLACENTIA AVENUE BLG C, Costa Mesa, CA 92627 | $150,779 |
| Line Item | Amount |
|---|---|
| Other Expenses | $5,069,243 |
| Salaries, Compensation, and Employee Benefits | $4,682,911 |
| Total Fundraising Expense | $1,106,226 |
| Grants and Similar Amounts Paid | $495,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $2,380,782 | $14,255 | $168,086 | $2,563,123 |
| Other Salaries and Wages | $854,951 | $313,509 | $372,066 | $1,540,526 |
| Travel | $286,734 | $78,129 | $175,413 | $540,276 |
| Grants to Domestic Orgs | $495,000 | - | - | $495,000 |
| Fees for Services Legal | $310,570 | $6,195 | $61,049 | $377,814 |
| Payroll Taxes | $237,522 | $19,252 | $54,421 | $311,195 |
| Other Employee Benefits | $212,139 | $2,681 | $53,247 | $268,067 |
| All Other Expenses | $103,901 | $33,225 | $95,311 | $232,437 |
| Occupancy | $161,157 | $3,293 | $11,444 | $175,894 |
| Information Technology | $123,898 | $20,874 | $11,003 | $155,775 |
| Other Expenses | $130,007 | $160,412 | $23,632 | $130,007 |
| Conferences and Meetings | $60,256 | $23,809 | $41,871 | $125,936 |
| Advertising | $79,241 | $125 | $5,606 | $84,972 |
| Fees for Services Accounting | $41,255 | $13,752 | $13,752 | $68,759 |
| Fees for Services Other | $1,098 | $4,222 | $15,414 | $20,734 |
| Insurance | $5,551 | $2,039 | $1,558 | $9,148 |
| Depreciation Depletion | - | $6,488 | - | $6,488 |
| Office Expenses | - | $542 | - | $542 |
| Total Functional Expenses | $8,370,237 | $770,691 | $1,106,226 | $10,247,154 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $10,516,661 |
| Expenses per Audited Statements | $10,247,154 |
| Total Expenses per Form 990 | $10,247,154 |
| Expenses Not Reported on Form 990 | $269,507 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Neurology and Neuro Care Center | Denton, TX | - | Education/ Outreach/ Researcheducation/ Outreach/ Research | $300,000 |
| THE BRIGHAM AND WOMEN'S HOSPITAL INC | Boston, MA | - | Education/ Outreach/ Research | $155,000 |
| Analysis Group | Boston, MA | - | Education/ Outreach/ Research | $40,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $4,731,548 |
| Fundraising Direct Expenses | $2,794,166 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fundraiser - 2023 Mjm Event | $1,114,700 | $1,114,700 | $72,995 | $1,041,705 |
| Fundraiser-newport Beach Gala | $960,095 | $935,095 | $571,998 | $363,097 |
| Total Events | $4,862,180 | $4,731,548 | $2,794,166 | $1,937,382 |
| Liability | Amount |
|---|---|
| Pension Payable | $76,964 |
“Debra and paul miller have a family relationship.”
“Form 990 will be available to all the board members to review prior to filing at the regularly scheduled board meetings. However, a limited number of board members will review the entire form 990 prior to filing.”
“The board of directors are required to review and sign the conflict of interest policy at least annually. The board member must inform the rest of the board if a conflict arises or if it exists.”
“Compensation of top management and officers of the organization are reviewed by independent legal counsel and submitted to the board members for approval.”
“The organziation's audited financial statements and form 990 are available to the public via the guidestar usa inc website.”
“2020 & 2021 employee retention credit 241,434.”
“Employee retention credit received in 2023 241,434.”
“Rent expense reduction due to right of use adjustment 269,507.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 36108 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 137002 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. AS WELL AS, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 5606 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 125 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 79241 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 84972 |
| IRS990/AllOtherContributionsAmt | 0 | 4359147 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 95311 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 33225 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 103901 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 232437 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | DEBRA MILLER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9498722552 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 100 BAYVIEW CIRCLE 5600 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEWPORT BEACH |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 92660 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 8410921 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 2539794 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 7 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 168086 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 14255 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 2380782 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 2563123 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 41871 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 23809 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 60256 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 125936 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 1 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 339986 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 252000 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 182590 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 3 | 174068 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 4 | 150779 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 6425 LIVING SPACES 2ND FLOOR |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 8149 SPECTRUM |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 560 BOSTON PROVIDENCE TRNPK |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 3 | 108 RANDOLPH ST B |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 4 | 1945 PLACENTIA AVENUE BLG C |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | PITTSBURGH |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | IRVINE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | NORWOOD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 3 | NAPA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 4 | COSTA MESA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | CA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | MA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 3 | CA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 4 | CA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 15206 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 92618 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 02062 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 3 | 94559 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 4 | 92627 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | TRINDS LLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | STARS & STRIPE CHILDREN FOUNDATION |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | MOBILITY WORKS |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 3 | DMH NAPA VALLEY LLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 4 | BRAND AMP LLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | PROGRAM SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | EVENT SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | MEDICAL DEVICE SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 3 | CONSULTING COMPANY |
| IRS990/ContractorCompensationGrp/ServicesDesc | 4 | MARKETING |
| IRS990/ContriRptFundraisingEventAmt | 0 | 130632 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 4489779 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 495000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 549583 |
| IRS990/CYOtherExpensesAmt | 0 | 5069243 |
| IRS990/CYOtherRevenueAmt | 0 | 2318576 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -2889216 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 4682911 |
| IRS990/CYTotalExpensesAmt | 0 | 10247154 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 1106226 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 7357938 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | 0 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 66808 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 42469 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 6488 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 6488 |
| IRS990/Desc | 0 | CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. SINCE CURE DUCHENNE WAS ORGANIZED, THE ORGANZIATIO HAS BEEN VERY INSTRUMENTAL IN HAVING SEVERAL DRUGS APPROVED BY THE FDA FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 1 |
| IRS990/DistributionToDonorInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 35 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 8370237 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 13752 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 13752 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 41255 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 68759 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 61049 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 6195 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 310570 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 377814 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 15414 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 4222 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 1098 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 20734 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form1098CFiledInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form8899Filedind | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 20 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 21 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | PAUL MILLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DEBRA MILLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JEFFREY GOFFMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | PETER STRELOW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DAVID MACINNIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DANA WHITE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | RYAN WILLIAMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MARTIN LEHR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | TJ FARNSWORTH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | DIANE KEMPLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | CHRISTOPHER FINAZZO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | TIM SULLIVAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | BOB SMITH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | KATHLENE BALISY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | LIANNA ORLANDO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | MICHAEL KELLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | HEATHER MEDLIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | ANDREA PIKE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | MONICA UTLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | EMILIE PERKINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | KENT MORA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | RYAN MEARDON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 151304 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 175000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 225000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 225000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 220141 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 175000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 170353 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 166267 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 151051 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 183333 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT & CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | FINANCE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | VICE PRESIDENT OF RESEARCH |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | CHIEF SCIENTIFIC OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR OF CLINICAL DEVELOPMENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR OF MARKETING |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR OF PROGRAMS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR OF COMMUNICATIONS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | FORMER CHIEF OF STAFF |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | FORMER VP OF DONOR RELATIONS |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2003 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 1 |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 130632 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 2794166 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 4731548 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 186333 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 13 |
| IRS990/GrantAmt | 0 | 495000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 495000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 495000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 6783677 |
| IRS990/GrossReceiptsAmt | 0 | 16749448 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 13 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 19 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 11003 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 20874 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 123898 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 155775 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1558 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2039 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 5551 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 9148 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 363250 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 363250 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 19514869 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 24150054 |
| IRS990/IRPDocumentCnt | 0 | 74 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 27605 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 16220 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 9732 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 37337 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 6597344 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS AND COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 28099885 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 26829916 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 186333 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 186333 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 1937382 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 1937382 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 1377813 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 28099885 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 26829916 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 11444 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3293 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 161157 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 175894 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 542 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 542 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 268379 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 386771 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 241434 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 53247 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2681 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 212139 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 268067 |
| IRS990/OtherExpensesGrp/Desc | 0 | OUTSIDE SERVICES |
| IRS990/OtherExpensesGrp/Desc | 1 | PUBLIC RELATIONS |
| IRS990/OtherExpensesGrp/Desc | 2 | OFFICE SUPPLIES |
| IRS990/OtherExpensesGrp/Desc | 3 | RESEARCH EXPENSE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2353 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 23632 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 67889 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 160412 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 2336910 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 464766 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 84499 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 130007 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 2407152 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 464766 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 268543 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 130007 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 7588 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 76964 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 541700 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 1 | 541700 |
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Displayed year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.