Civic Intelligence

Cure Duchenne

990 • Fiscal year 2014 • EIN 20-0299958

Jan 01, 2014 to Dec 31, 2014 • Filed on Jul 23, 2015

1400 Quail Street No 110Newport Beach, CA 92660

(949) 872-2552

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

16th percentile

0.01x

Higher debt load relative to assets than 16% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Liabilities / Revenue

12th percentile

0.02x

Higher debt load relative to revenue than 12% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Net Margin

94th percentile

62%

Higher net margin than 94% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Top Officer Pay

73rd percentile

$180,000

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 4.4% of source-year revenue.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2014

Asset Growth

98th percentile

154%

Faster asset growth than 98% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2013 to 2014

Revenue Growth

95th percentile

116%

Faster revenue growth than 95% of similar nonprofits.

2014 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2013 to 2014

Assets

Up

$7,112,452

Up $4,308,897 (+154%) from 2013

Net Assets

Up

$7,043,058

Up $4,280,401 (+155%) from 2013

Liabilities

Up

$69,394

Up $28,496 (+70%) from 2013

Revenue

Up

$4,052,797

Up $2,177,494 (+116%) from 2013

Expenses

Down

$1,546,811

Down $409,602 (-21%) from 2013

Net Income

Up

$2,505,986

Up $2,587,096 (+3190%) from 2013

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2010: $2,393,224Liabilities 2010: $44,019Net Assets 2010: $2,349,2052010Assets 2011: $2,419,665Liabilities 2011: $109,931Net Assets 2011: $2,309,7342011Assets 2012: $2,121,132Liabilities 2012: $30,078Net Assets 2012: $2,091,0542012Assets 2013: $2,803,555Liabilities 2013: $40,898Net Assets 2013: $2,762,6572013Assets 2014: $7,112,452Liabilities 2014: $69,394Net Assets 2014: $7,043,0582014Assets 2015: $6,440,098Liabilities 2015: $165,805Net Assets 2015: $6,274,2932015Assets 2016: $5,890,732Liabilities 2016: $1,031,882Net Assets 2016: $4,858,8502016Assets 2017: $6,196,389Liabilities 2017: $22,157Net Assets 2017: $6,174,2322017Assets 2018: $6,797,553Liabilities 2018: $81,849Net Assets 2018: $6,715,7042018Assets 2019: $29,774,719Liabilities 2019: $558,721Net Assets 2019: $29,215,9982019Assets 2020: $40,900,297Liabilities 2020: $442,149Net Assets 2020: $40,458,1482020Assets 2021: $33,154,912Liabilities 2021: $309,658Net Assets 2021: $32,845,2542021Assets 2022: $28,410,543Liabilities 2022: $310,658Net Assets 2022: $28,099,8852022Assets 2023: $27,086,351Liabilities 2023: $256,435Net Assets 2023: $26,829,9162023Assets 2024: $30,906,923Liabilities 2024: $247,864Net Assets 2024: $30,659,0592024

Highlighted filing

2014

Assets$7,112,452
Liabilities$69,394
Net Assets$7,043,058

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MRevenue 2010: $1,306,461Expenses 2010: $952,618Net Income 2010: $353,8432010Revenue 2011: $1,524,567Expenses 2011: $1,564,038Net Income 2011: -$39,4712011Revenue 2012: $1,769,444Expenses 2012: $1,988,523Net Income 2012: -$219,0792012Revenue 2013: $1,875,303Expenses 2013: $1,956,413Net Income 2013: -$81,1102013Revenue 2014: $4,052,797Expenses 2014: $1,546,811Net Income 2014: $2,505,9862014Revenue 2015: $1,902,106Expenses 2015: $2,518,144Net Income 2015: -$616,0382015Revenue 2016: $2,050,636Expenses 2016: $3,255,183Net Income 2016: -$1,204,5472016Revenue 2017: $2,985,008Expenses 2017: $2,592,407Net Income 2017: $392,6012017Revenue 2018: $4,813,344Expenses 2018: $4,314,793Net Income 2018: $498,5512018Revenue 2019: $27,520,354Expenses 2019: $4,978,057Net Income 2019: $22,542,2972019Revenue 2020: $5,329,712Expenses 2020: $5,957,804Net Income 2020: -$628,0922020Revenue 2021: $5,442,219Expenses 2021: $7,605,386Net Income 2021: -$2,163,1672021Revenue 2022: $5,751,368Expenses 2022: $9,005,616Net Income 2022: -$3,254,2482022Revenue 2023: $7,357,938Expenses 2023: $10,247,154Net Income 2023: -$2,889,2162023Revenue 2024: $3,941,885Expenses 2024: $9,167,617Net Income 2024: -$5,225,7322024

Highlighted filing

2014

Revenue$4,052,797
Expenses$1,546,811
Net Income$2,505,986
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Jul 23, 2015
Return Version
2014v5.0
Gross Receipts
$4,957,483
Mission and Program Overview

Mission

Cure duchenne is a not-for-profit organization dedicated to coordinating and funding research necessary to find a cure for duchenne muscular dystrophy, increasing public awareness for duchenne muscular dystrophy, and improving their care and health.

Coordinating and funding research necessary to find a cure for duchenne muscular dystrophy. Also, improving the care and health of duchenne muscular distrophy patients.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$1,574,388$4,230,218▲ $2,655,830
Savings and Temporary Cash Investments$290,943$1,991,777▲ $1,700,834
Other Notes and Loans Receivable, Net$626,568$649,130▲ $22,562
Cash and Non-Interest-Bearing Accounts$205,083$238,548▲ $33,465
Land, Buildings, and Equipment, Net$1,078$691▼ $387
Intangible Assets$131$56▼ $75
Total Assets$2,700,223$7,112,452▲ $4,412,229
Other Assets Total$2,032$2,032→ $0
Liabilities
Other Liabilities$46,422$69,394▲ $22,972
Total Liabilities$46,422$69,394▲ $22,972
Net Assets / Fund Balance
Unrestricted Net Assets$2,653,801$7,043,058▲ $4,389,257
Total Net Assets Fund Balance$2,653,801$7,043,058▲ $4,389,257
Total Liabilities and Net Assets / Fund Balance$2,700,223$7,112,452▲ $4,412,229

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$691$16,372$17,063
Other Securities$1,208,055--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Debra MillerPresidentFT$120,000$60,000$180,000
Michael G KellyChief Scientific OfficerFT$168,384-$168,384
Karen E HarleyVice-presidentFT$120,000-$120,000
Andrew HoyerSenior Director of DevelopmentFT$111,000-$111,000

Board Members and Trustees

NameTitle
Elaine WuDirector
Evonne SepsisDirector
George BlankDirector
Jeffrey GoffmanDirector
Kevin DorseyDirector
Ron PhilipDirector
Ryan WilliamsDirector
Tj FarnsworthDirector
Tom ScrantonDirector
Paul MillerSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
AnonymousFundraising9140 IRVINE CENTER DRIVE, Irvine, CA 92618$146,823
Revenue and Support

Revenue Composition

Contributions and Grants
$1,320,395
Program Service Revenue
$0
Investment Income
$2,534,631
Other Revenue
$197,771
All Other Contributions
$3,968
Change in Net Assets
$2,505,986

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,052,797
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$1,883,270
Total Revenue per Audited Statements
$5,936,067
Total Revenue per Form 990
$4,052,797
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$706,800
Salaries, Compensation, and Employee Benefits$675,017
Total Fundraising Expense$223,039
Grants and Similar Amounts Paid$164,994
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$534,384-$45,000$579,384
Grants to Domestic Orgs$162,494--$162,494
Travel$80,528$193$22,037$102,758
Insurance$44,874$840$14,047$59,761
Fees for Services Legal$50,804$4,885$2,072$57,761
Other Salaries and Wages-$22,916$29,279$52,195
Occupancy$22,203$10,958$12,234$45,395
Payroll Taxes$20,167$3,851$19,420$43,438
Fees for Services Accounting-$33,535-$33,535
Information Technology$18,270$5,556$7,856$31,682
All Other Expenses$5,483$9,129$3,820$18,432
Office Expenses$7,417$4,096$204$11,717
Other Expenses$94$1,912$7,426$9,432
Foreign Grants$2,500--$2,500
Advertising$2,324$100-$2,424
Depreciation Depletion-$462-$462
Total Functional Expenses$1,188,023$135,749$223,039$1,546,811

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,546,811
Total Expenses per Audited Statements$1,546,811
Total Expenses per Form 990$1,546,811
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
NATIONWIDE CHILDREN'S HOSPITALColumbus, OH-Education / Outreach / Research$134,300
Efficacy of Duchenne Trials Co Susan WardCambridge, MA-Education / Outreach / Research$12,500
CHILDREN'S RESEARCH INSTITUTEWashington, DC-Education / Outreach / Research$8,700
Other Miscellaneous GrantsNewport Beach, CA-Education / Outreach / Research$6,994

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$673,149
Fundraising Direct Expenses$475,378
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Getzlaf Golf Tournament$301,544$251,544$154,161$97,383
Fundraiser-newport Beach Gala$362,799$244,549$105,758$138,791
Total Events$1,989,576$673,149$475,378$197,771
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Expenses$55,952
Credit Card Payable$13,442
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Debra and paul miller have a family relationship.

Form 990, Part VI, Section B, Line 11

Form 990 will be available to the board to review prior to filing at the regularly schedule board meetings. However, a limited number of board members will review the entire form 990 prior to filing.

Form 990, Part VI, Section B, Line 12C

The board of directors are required to review and sign the conflict of interest policy at least annually. The board member must inform the rest of the board if a conflict arises or if it exists.

Form 990, Part VI, Section B, Line 15

Compensation of top management and officers of the organization are reviewed by independent legal counsel and submitted to the board members for approval.

Form 990, Part VI, Section C, Line 19

The organziation's audited financial statements and form 990 are available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Cure Duchenne
EIN
20-0299958
Phone
9498722552
Address
1400 QUAIL STREET NO 110, NEWPORT BEACH, CA 92660

Signing Officer

Name
Debra Miller
Title
President
Phone
9498722552
Signed
2015-07-23

Organization Details

Principal Officer
Debra Miller
Formed
2003
Legal Domicile
CA
Voting Board Members
11
Independent Board Members
11
Employees
6
Volunteers
0

Preparer

Firm
John S Balisy & Company
Address
23792 ROCKFIELD BLVD STE 140, LAKE FOREST, CA 92630
Preparer
John S Balisy Company
Phone
9495407519
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D, Other Program Services

Cure duchenne made two separate investments in prosensa holdings, n.v., a privately held company located in the netherlands. In november 2004, cure duchenne invested $336,250. In december 2006, a portion of a non-interest bearing loan in the amount of $485,425 was converted to equity common shares. See balance sheet and footnote no. 1. The funds contributed by cure duchenne are restricted for research to finding a cure for duchenne muscular dystrophy. The organization monitors prosensa's research activities to ensure proper utilization of the contributed funds. The equity interest may provide the organization with addtional capital in the future to fund other research projects for duchenne muscular dystrophy. In 2013, prosena holding, n.v. Became a publicily traded company listed on the nasdaq. As such, the value reflected on the balance sheet at december 31, 2013 is carried at market value. During 2014, prosena holdings, n.v. Was purchased by biomarin pharmacueticals, inc. Biomarin has decided to de-list prosena holding, n.v. From the nasdaq and will be purchasing back all of prosena holding, n.v's outstanding stock. The value reflected on the balance sheet at december 31, 2014 is carried at cost of $17.75 per share, which is the agreed upon price between biomarin pharmaceutical and prosena holding, n.v. For prosena's outstanding stock.

FOOTNOTE NO. 1 IN RE: INVESTMENT IN PROSENA HOLDINGS, N.V.

The organization made two separate investments in prosensa holdings, n.v., a privately held company located in the netherlands. In november 2004, cure duchenne invested $336,250. In december 2006, a portion of a non-interest bearing loan in the amount of $485,425 was converted to equity common shares. These contributed funds are restricted for use in research directly related to finding a cure for duchenne muscular dystrophy. Cure duchenne's board monitors prosensa's research activities and authorizes release of additional funds to prosensa for further research as objectives are met by prosensa. Cure duchenne received a equity interest in prosensa for the contributions. The equity interest enables cure duchenne to monitor prosensa's research efforts to finding a cure for duchenne muscular dystrophy. Additionally, the equity interest in prosensa may provide cure duchenne with additional capital in the future to fund other research projects for duchenne muscular dystrophy. In 2013, prosena holding, n.v. Became a publicily traded company listed on the nasdaq. As such, the value reflected on the balance sheet at december 31, 2013 is carried at market value. During 2014, prosena holdings, n.v. Was purchased by biomarin pharmacueticals, inc. Biomarin has decided to de-list prosena holding, n.v. From the nasdaq and will be purchasing back all of prosena holding, n.v's outstanding stock. The value reflected on the balance sheet at december 31, 2014 is carried at cost of $17.75 per share, which is the agreed upon price between biomarin pharmaceutical and prosena holding, n.v. For prosena holding's outstanding stock.

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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11120000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12168384
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13111000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/TitleTxt0SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11VICE-PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt12CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt13SENIOR DIRECTOR OF DEVELOPMENT
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd00
IRS990/FundraisingAmt01316427
IRS990/FundraisingDirectExpensesAmt0475378
IRS990/FundraisingGrossIncomeAmt0673149
IRS990/GainOrLossGrp/SecuritiesAmt02512037
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantAmt0164994
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0162494
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0162494
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt02941345
IRS990/GrossReceiptsAmt04957483
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt07856
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt05556
IRS990/InformationTechnologyGrp/ProgramServicesAmt018270
IRS990/InformationTechnologyGrp/TotalAmt031682
IRS990/InsuranceGrp/FundraisingAmt014047
IRS990/InsuranceGrp/ManagementAndGeneralAmt0840
IRS990/InsuranceGrp/ProgramServicesAmt044874
IRS990/InsuranceGrp/TotalAmt059761
IRS990/IntangibleAssetsGrp/BOYAmt0131
IRS990/IntangibleAssetsGrp/EOYAmt056
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt022594
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt022594
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt01574388
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt04230218
IRS990/IRPDocumentCnt054
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt016372
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01078
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0691
IRS990/LandBldgEquipCostOrOtherBssAmt017063
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0429308
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0CURE DUCHENNE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH DUCHENNE MUSCULAR DYSTROPHY PATIENTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt02653801
IRS990/NetAssetsOrFundBalancesEOYAmt07043058
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt02512037
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt02512037
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0197771
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0197771
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt01883271
IRS990/NoncashContributionsAmt03968
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt012234
IRS990/OccupancyGrp/ManagementAndGeneralAmt010958
IRS990/OccupancyGrp/ProgramServicesAmt022203
IRS990/OccupancyGrp/TotalAmt045395
IRS990/OfficeExpensesGrp/FundraisingAmt0204
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt04096
IRS990/OfficeExpensesGrp/ProgramServicesAmt07417
IRS990/OfficeExpensesGrp/TotalAmt011717
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt02032
IRS990/OtherAssetsTotalGrp/EOYAmt02032
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0OUTSIDE CONTRACT SERVIC
IRS990/OtherExpensesGrp/Desc1BANK & CREDIT CARD CHAR
IRS990/OtherExpensesGrp/Desc2PRINTING & REPRODUCTION
IRS990/OtherExpensesGrp/Desc3POSTAGE & DELIVERY EXPE
IRS990/OtherExpensesGrp/FundraisingAmt037773
IRS990/OtherExpensesGrp/FundraisingAmt113915
IRS990/OtherExpensesGrp/FundraisingAmt27956
IRS990/OtherExpensesGrp/FundraisingAmt37426
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt030988
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12392
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt23936
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt31912
IRS990/OtherExpensesGrp/ProgramServicesAmt0234151
IRS990/OtherExpensesGrp/ProgramServicesAmt1602
IRS990/OtherExpensesGrp/ProgramServicesAmt21728
IRS990/OtherExpensesGrp/ProgramServicesAmt394
IRS990/OtherExpensesGrp/TotalAmt0302912
IRS990/OtherExpensesGrp/TotalAmt116909
IRS990/OtherExpensesGrp/TotalAmt213620
IRS990/OtherExpensesGrp/TotalAmt39432
IRS990/OtherLiabilitiesGrp/BOYAmt046422
IRS990/OtherLiabilitiesGrp/EOYAmt069394
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt029279
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt022916
IRS990/OtherSalariesAndWagesGrp/TotalAmt052195
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt0626568
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt0649130
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt019420
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03851
IRS990/PayrollTaxesGrp/ProgramServicesAmt020167
IRS990/PayrollTaxesGrp/TotalAmt043438
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0DEBRA MILLER
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01457692
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0467653
IRS990/PYInvestmentIncomeAmt041362
IRS990/PYOtherExpensesAmt0799037
IRS990/PYOtherRevenueAmt0376249
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-81110
IRS990/PYSalariesCompEmpBnftPaidAmt0689723
IRS990/PYTotalExpensesAmt01956413
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01875303
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt02505986
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0290943
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01991777
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01993544
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02346536
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt02386942
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01271672
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01258555
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt09257249
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt022594
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt041362
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt038984
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt034789
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt034789
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0172518
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.98170
IRS990ScheduleA/PublicSupportPY170Pct00.98160
IRS990ScheduleA/PublicSupportTotal170Amt09257249
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01993544
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt02346536
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt02386942
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01271672
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01258555
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt09257249
IRS990ScheduleA/TotalSupportAmt09429767
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01546811
IRS990ScheduleD/NetUnrealizedGainsInvstAmt01883270
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt0691
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt016372
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt017063
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt013442
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt155952
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CREDIT CARD PAYABLE
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1ACCRUED EXPENSES
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt03022163
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt11208055
IRS990ScheduleD/OtherSecuritiesGrp/Desc0INVESTMENT IN PROSENSA HOLDINGS, N.V. (SEE FOOTNOTE 1)
IRS990ScheduleD/OtherSecuritiesGrp/Desc1INVESTMENTS HELD
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd1F
IRS990ScheduleD/RevenueNotReportedAmt01883270
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt04052797
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0691
IRS990ScheduleD/TotalBookValueSecuritiesAmt04230218
IRS990ScheduleD/TotalExpensesPerForm990Amt01546811
IRS990ScheduleD/TotalLiabilityAmt069394
IRS990ScheduleD/TotalRevenuePerForm990Amt04052797
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt05936067
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01546811
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinutationTotalEmployeeCnt00
IRS990ScheduleF/ContinutationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$30.9$0.25$30.7$3.94$9.17$5.23
2023Detailed filing. Detailed filing data is available for this year.$27.1$0.26$26.8$7.36$10.2$2.89
2022Detailed filing. Detailed filing data is available for this year.$28.4$0.31$28.1$5.75$9.01$3.25
2021Detailed filing. Detailed filing data is available for this year.$33.2$0.31$32.8$5.44$7.61$2.16
2020Detailed filing. Detailed filing data is available for this year.$40.9$0.44$40.5$5.33$5.96$0.63
2019Detailed filing. Detailed filing data is available for this year.$29.8$0.56$29.2$27.5$4.98$22.5
2018Detailed filing. Detailed filing data is available for this year.$6.80$0.08$6.72$4.81$4.31$0.50
2017Detailed filing. Detailed filing data is available for this year.$6.20$0.02$6.17$2.99$2.59$0.39
2016Detailed filing. Detailed filing data is available for this year.$5.89$1.03$4.86$2.05$3.26$1.20
2015Detailed filing. Detailed filing data is available for this year.$6.44$0.17$6.27$1.90$2.52$0.62
2014Detailed filing. Detailed filing data is available for this year.$7.11$0.07$7.04$4.05$1.55$2.51
2013Summary only. Only limited summary data is available for this year.$2.80$0.04$2.76$1.88$1.96$0.08
2012Summary only. Only limited summary data is available for this year.$2.12$0.03$2.09$1.77$1.99$0.22
2011Summary only. Only limited summary data is available for this year.$2.42$0.11$2.31$1.52$1.56$0.04
2010Summary only. Only limited summary data is available for this year.$2.39$0.04$2.35$1.31$0.95$0.35