Civic Intelligence

The Jain Foundation Inc

990PF • Fiscal year 2019 • EIN 20-0284800

Jan 01, 2019 to Dec 31, 2019 • Filed on Mar 01, 2021

9706 4th Avenue NESeattle, WA 98115

(425) 882-1492

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

16th percentile

0.00x

Higher debt load relative to assets than 16% of similar nonprofits.

2019 filings • $25M-$50M nonprofits • Source year 2019

Liabilities / Revenue

15th percentile

0.00x

Higher debt load relative to revenue than 15% of similar nonprofits.

2019 filings • $25M-$50M nonprofits • Source year 2019

Net Margin

96th percentile

82%

Higher net margin than 96% of similar nonprofits.

2019 filings • $25M-$50M nonprofits • Source year 2019

Top Officer Pay

36th percentile

$159,908

Higher top officer pay than 36% of similar nonprofits.

Top officer pay equals 0.8% of source-year revenue.

2019 filings • $25M-$50M nonprofits • Source year 2019

Asset Growth

94th percentile

47%

Faster asset growth than 94% of similar nonprofits.

2019 filings • $25M-$50M nonprofits • Annualized from 2018 to 2019

Revenue Growth

98th percentile

564%

Faster revenue growth than 98% of similar nonprofits.

2019 filings • $25M-$50M nonprofits • Annualized from 2018 to 2019

Assets

Up

$31,306,552

Up $10,029,886 (+47%) from 2018

Net Assets

Up

$31,300,085

Up $10,051,861 (+47%) from 2018

Liabilities

Down

$6,467

Down $21,975 (-77%) from 2018

Revenue

Up

$20,037,834

Up $17,020,484 (+564%) from 2018

Expenses

Up

$3,593,105

Up $252,997 (+7.6%) from 2018

Net Income

Up

$16,444,729

Up $16,767,487 (+5195%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $6,576,398Liabilities 2011: $37,2412011Assets 2012: $19,684,932Liabilities 2012: $36,932Net Assets 2012: $19,648,0002012Assets 2013: $21,020,348Liabilities 2013: $24,356Net Assets 2013: $20,995,9922013Assets 2014: $20,192,885Liabilities 2014: $19,619Net Assets 2014: $20,173,2662014Assets 2015: $10,544,551Liabilities 2015: $22,342Net Assets 2015: $10,522,2092015Assets 2016: $22,164,475Liabilities 2016: $29,590Net Assets 2016: $22,134,8852016Assets 2017: $21,794,195Liabilities 2017: $18,744Net Assets 2017: $21,775,4512017Assets 2018: $21,276,666Liabilities 2018: $28,442Net Assets 2018: $21,248,2242018Assets 2019: $31,306,552Liabilities 2019: $6,467Net Assets 2019: $31,300,0852019Assets 2020: $29,100,433Liabilities 2020: $0Net Assets 2020: $29,100,4332020Assets 2021: $28,293,221Liabilities 2021: $7,425Net Assets 2021: $28,285,7962021Assets 2022: $26,504,314Liabilities 2022: $53,404Net Assets 2022: $26,450,9102022Assets 2023: $56,155,902Liabilities 2023: $36,153Net Assets 2023: $56,119,7492023Assets 2024: $51,183,246Liabilities 2024: $68,168Net Assets 2024: $51,115,0782024

Highlighted filing

2019

Assets$31,306,552
Liabilities$6,467
Net Assets$31,300,085

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$40M$20M$0-$20MRevenue 2011: $2,770,600Expenses 2011: $2,060,016Net Income 2011: $710,5842011Expenses 2012: $2,544,4402012Revenue 2013: $5,076,754Expenses 2013: $3,848,214Net Income 2013: $1,228,5402013Revenue 2014: $4,979,296Expenses 2014: $5,802,022Net Income 2014: -$822,7262014Revenue 2015: $4,019,673Expenses 2015: $4,670,454Net Income 2015: -$650,7812015Revenue 2016: $16,480,274Expenses 2016: $4,867,603Net Income 2016: $11,612,6712016Revenue 2017: $4,088,666Expenses 2017: $4,447,900Net Income 2017: -$359,2342017Revenue 2018: $3,017,350Expenses 2018: $3,340,108Net Income 2018: -$322,7582018Revenue 2019: $20,037,834Expenses 2019: $3,593,105Net Income 2019: $16,444,7292019Revenue 2020: $2,502,806Expenses 2020: $3,590,463Net Income 2020: -$1,087,6572020Revenue 2021: $4,573,767Expenses 2021: $4,060,047Net Income 2021: $513,7202021Revenue 2022: $3,316,493Expenses 2022: $4,168,261Net Income 2022: -$851,7682022Revenue 2023: $39,088,672Expenses 2023: $5,211,841Net Income 2023: $33,876,8312023Revenue 2024: $384,162Expenses 2024: $5,388,833Net Income 2024: -$5,004,6712024

Highlighted filing

2019

Revenue$20,037,834
Expenses$3,593,105
Net Income$16,444,729
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Mar 1, 2021
Return Version
2019v5.0
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Doug Albrecht PhDCo-PresidentFT$159,908-$159,908
Laura Rufibach PhDCo-PresidentFT$159,908-$159,908
Akshay JainCEOFT$106,605-$106,605
Ajit JainDirector-$0--
Indrima JainDirector-$0--
Ajay JainDirector-$0--
Filing and Contact Details

Filer

Filer Name
The Jain Foundation Inc
EIN
20-0284800
Phone
4258821492
Address
9706 4th Avenue NE, Seattle, WA 98115

Signing Officer

Name
Laura Rufibach PhD
Title
Co-President
Signed
2021-03-01
Discuss with paid preparer
Yes

Preparer

Firm
Lexington Tax Services
Address
1305 FRANKLIN AVE SUITE 300, GARDEN CITY, NY 11530
Preparer
Mark J Brosnan Esq
Phone
5167395151
Raw XML AppendixShowing 400 of 638 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990PF/StatementsRegardingActyGrp/PersonsWithBooksName/BusinessNameLine1Txt0Laura Rufibach
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IRS990PF/StatementsRegardingActyGrp/WebsiteAddressTxt0https://www.jain-foundation.org/
IRS990PF/SummaryOfDirectChrtblActyGrp/Description1Txt0While the focus of the Jain Foundation is Dysferlinopathy LGMD2B Miyoshi, the resulting scientific advances and collaboration have a broader impact on human health through their relevance to other muscle disorders, degenerative diseases of tissues other than muscle, and normal aging. The Foundation employs a hands-on approach to funding. We closely monitor progress of every project we fund and keep track of results and agreed upon timelines through quarterly detail oriented conference calls with researchers and site visits. We also support internal programs and initiatives. Our goal continues to be to fund all possible approaches to a cure and have the patients diagnosed for when we identify treatment s so they are able to avail themselves of it. Contract Research Organizations: In 2019 we continued working with Contract Research Organizations CROs as an integral part of our therapy development program. CROs are companies that serve the drug development industry and provide specialized
IRS990PF/SummaryOfDirectChrtblActyGrp/Description2Txt0Clinical Trial Readiness and Community Engagement: Dysferlinopathy is very rare. An important goal of the Jain Foundation is to be as clinical trial ready as possible. There are many aspects to being clinical trial ready including patient identification, community engagement and education, and identification of outcome measures. For patient identification we have a patient registry called the Dysferlin Registry that contains 840+ individuals we have determined are confirmed to have dysferlinopathy. In addition, we have a diagnosis pipeline that provides access to multiple types of testing including genetic sequencing, evaluation of dysferlin protein levels, and RNA sequencing. Data from all these analyses help identify and provide a definitive diagnosis to those with dysferlinopathy and helps us be more clinical trial ready. In 2019, thirty individuals went through our diagnostic program and we added 72 new confirmed dysferlinopathy patients to the registry. Community engagement and ed
IRS990PF/SummaryOfDirectChrtblActyGrp/Description3Txt0JF Dysferlin Conference: The Dysferlin Conference brings together scientist and clinicians working to understand and develop a therapy for Dysferlinopathy. Dysferlinopathy is caused by mutations in dysferlin and is characterized by progressive muscle wasting beginning in the late teenage years. The objective of the 8th Dysferlin Conference, that was to be held March 11-14, 2020 in Orlando, FL, was to speed research on dysferlinopathy through the sharing of ideas and research results on dysferlinopathy. By promoting the sharing of ideas and unpublished data between scientists actively working on dysferlin and other relevant therapeutic approaches, scientists can rapidly improve the focus of their research to the most relevant and therapy-oriented areas. During this meeting, Jain Foundation funded researchers were to provide a deep understanding of the mechanism of the disease and present progress in testing therapies. The conference is sponsored and organized by the Jain Foundation but
IRS990PF/SummaryOfDirectChrtblActyGrp/Description4Txt0Tools for Researchers: The Jain Foundation continued to actively identify and fund the development of research tools and resources that are needed to advance research in the dysferlin field. The Foundation is also committed to developing and providing frequently required reagents, the unavailability of which slows down research. In 2016, we began working with researchers to develop antibodies using state of the art technologies at Rockefeller University. This work continued into 2017 and 2018. In addition, we built a library of cell lines that are useful to study the disease. Finally, we continue to maintain large colonies of mice at the custom mouse breeding facility at Jackson Laboratories (Maine, US) for use in dysferlin related research. Information about these resources is disseminated to relevant researchers through e-mails and through the Foundations website. In 2017, we completed the development of several iPS cells from selected patients, carriers and controls that are now pub
IRS990PF/SummaryOfDirectChrtblActyGrp/Expenses1Amt0196973
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IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/FormAndInfoAndMaterialsTxt0See Foundation Website www.jain-foundation.org
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientEmailAddressTxt0See Foundation Website www.jain-foundation.org
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientPersonNm0The Jain Foundation Inc
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientPhoneNum04258821492
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientUSAddress/AddressLine1Txt09706 4th Avenue NE Ste 101
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IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RestrictionsOnAwardsTxt0The explicit goal of the Jain Foundation is to expedite development of a treatment or cure for LGMD2B/Miyoshi. Any proposed project that does not have application to this disease will not be considered.
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/SubmissionDeadlinesTxt0There are no application deadlines
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm0Univof Wisconsin Madison-Dr KSonnem
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm1Newcastle University-Dr Volker
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm2MIT Dr Guarente
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm3Emory Genetics Lab - Dr Hegde Jin
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm4University of Maryland-Dr Robert Bl
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm5Childrens Research Instit Marni Jac
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm6Rockefeller University Drs Chait Ro
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm7Brigham and Women's Hospital Dr Kel
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm8Centre for Advanced Molecular
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm9Univ of British Columbia Dr Bernatc
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm10Wayne State Dr Drescher
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm11Duke University -Dr Bursac
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm12The Ohio State University -Dr Weisl
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm13Children's Medical Research Institu
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm14University of Texas Southwestern Me
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm15Yale University Grants
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm16The Rockefeller University
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm17Emory University
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientPersonNm18New York University - Dr Kang

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$51.2$0.07$51.1$0.38$5.39$5.00
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$56.2$0.04$56.1$39.1$5.21$33.9
2022Detailed filing. Detailed filing data is available for this year.$26.5$0.05$26.5$3.32$4.17$0.85
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$28.3$0.01$28.3$4.57$4.06$0.51
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$29.1$0.00$29.1$2.50$3.59$1.09
2019Detailed filing. Detailed filing data is available for this year.$31.3$0.01$31.3$20.0$3.59$16.4
2018Detailed filing. Detailed filing data is available for this year.$21.3$0.03$21.2$3.02$3.34$0.32
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$21.8$0.02$21.8$4.09$4.45$0.36
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$22.2$0.03$22.1$16.5$4.87$11.6
2015Detailed filing. Detailed filing data is available for this year.$10.5$0.02$10.5$4.02$4.67$0.65
2014Detailed filing. Detailed filing data is available for this year.$20.2$0.02$20.2$4.98$5.80$0.82
2013Detailed filing. Detailed filing data is available for this year.$21.0$0.02$21.0$5.08$3.85$1.23
2012Detailed filing. Detailed filing data is available for this year.$19.7$0.04$19.6$2.54
2011Summary only. Only limited summary data is available for this year.$6.58$0.04$2.77$2.06$0.71