Civic Intelligence

The Jain Foundation Inc

990PF • Fiscal year 2017 • EIN 20-0284800

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 06, 2018

Organization Profile
9725 Third Avenue NESeattle, WA 98115

(425) 882-1492

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

16th percentile

0.00x

Higher debt load relative to assets than 16% of similar nonprofits.

2017 filings • $10M-$25M nonprofits • Source year 2017

Liabilities / Revenue

16th percentile

0.00x

Higher debt load relative to revenue than 16% of similar nonprofits.

2017 filings • $10M-$25M nonprofits • Source year 2017

Net Margin

18th percentile

-8.8%

Higher net margin than 18% of similar nonprofits.

2017 filings • $10M-$25M nonprofits • Source year 2017

Top Officer Pay

45th percentile

$135,771

Higher top officer pay than 45% of similar nonprofits.

Top officer pay equals 3.3% of source-year revenue.

2017 filings • $10M-$25M nonprofits • Source year 2017

Asset Growth

24th percentile

-1.7%

Faster asset growth than 24% of similar nonprofits.

2017 filings • $10M-$25M nonprofits • Annualized from 2016 to 2017

Revenue Growth

2nd percentile

-75%

Faster revenue growth than 2% of similar nonprofits.

2017 filings • $10M-$25M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets16th percentile

Assets

Down

$21,794,195

Down $370,280 (-1.7%) from 2016

Net Assets

Down

$21,775,451

Down $359,434 (-1.6%) from 2016

Liabilities

Down

$18,744

Down $10,846 (-37%) from 2016

Revenue And Expenses
Liabilities / Revenue16th percentileNet Margin18th percentile

Revenue

Down

$4,088,666

Down $12,391,608 (-75%) from 2016

Expenses

Down

$4,447,900

Down $419,703 (-8.6%) from 2016

Net Income

Down

-$359,234

Down $11,971,905 (-103%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth24th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $6,576,398Liabilities 2011: $37,2412011Assets 2012: $19,684,932Liabilities 2012: $36,932Net Assets 2012: $19,648,0002012Assets 2013: $21,020,348Liabilities 2013: $24,356Net Assets 2013: $20,995,9922013Assets 2014: $20,192,885Liabilities 2014: $19,619Net Assets 2014: $20,173,2662014Assets 2015: $10,544,551Liabilities 2015: $22,342Net Assets 2015: $10,522,2092015Assets 2016: $22,164,475Liabilities 2016: $29,590Net Assets 2016: $22,134,8852016Assets 2017: $21,794,195Liabilities 2017: $18,744Net Assets 2017: $21,775,4512017Assets 2018: $21,276,666Liabilities 2018: $28,442Net Assets 2018: $21,248,2242018Assets 2019: $31,306,552Liabilities 2019: $6,467Net Assets 2019: $31,300,0852019Assets 2020: $29,100,433Liabilities 2020: $0Net Assets 2020: $29,100,4332020Assets 2021: $28,293,221Liabilities 2021: $7,425Net Assets 2021: $28,285,7962021Assets 2022: $26,504,314Liabilities 2022: $53,404Net Assets 2022: $26,450,9102022Assets 2023: $56,155,902Liabilities 2023: $36,153Net Assets 2023: $56,119,7492023Assets 2024: $51,183,246Liabilities 2024: $68,168Net Assets 2024: $51,115,0782024

Highlighted filing

2017

Assets$21,794,195
Liabilities$18,744
Net Assets$21,775,451
Open 2017 Filing

Operations Trend

Revenue Growth2nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$40M$20M$0-$20MRevenue 2011: $2,770,600Expenses 2011: $2,060,016Net Income 2011: $710,5842011Expenses 2012: $2,544,4402012Revenue 2013: $5,076,754Expenses 2013: $3,848,214Net Income 2013: $1,228,5402013Revenue 2014: $4,979,296Expenses 2014: $5,802,022Net Income 2014: -$822,7262014Revenue 2015: $4,019,673Expenses 2015: $4,670,454Net Income 2015: -$650,7812015Revenue 2016: $16,480,274Expenses 2016: $4,867,603Net Income 2016: $11,612,6712016Revenue 2017: $4,088,666Expenses 2017: $4,447,900Net Income 2017: -$359,2342017Revenue 2018: $3,017,350Expenses 2018: $3,340,108Net Income 2018: -$322,7582018Revenue 2019: $20,037,834Expenses 2019: $3,593,105Net Income 2019: $16,444,7292019Revenue 2020: $2,502,806Expenses 2020: $3,590,463Net Income 2020: -$1,087,6572020Revenue 2021: $4,573,767Expenses 2021: $4,060,047Net Income 2021: $513,7202021Revenue 2022: $3,316,493Expenses 2022: $4,168,261Net Income 2022: -$851,7682022Revenue 2023: $39,088,672Expenses 2023: $5,211,841Net Income 2023: $33,876,8312023Revenue 2024: $384,162Expenses 2024: $5,388,833Net Income 2024: -$5,004,6712024

Highlighted filing

2017

Revenue$4,088,666
Expenses$4,447,900
Net Income-$359,234
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 6, 2018
Return Version
2017v2.2
Compensation and Service Providers
Top Officer Pay45th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Laura Rufibach PhDCo-PresidentFT$123,271$12,500$135,771
Doug Albrecht PhDCo-PresidentFT$121,415$12,500$133,915
Dr Plavi MittalPres. 1/17-4/17FT$61,500$5,167$66,667
Akshay JainCEOFT$12,500$12,500$25,000
Ajit JainDirector-$0--
Indrima JainDirector-$0--
Ajay JainDirector-$0--
Filing and Contact Details

Filer

Filer Name
The Jain Foundation Inc
EIN
20-0284800
Phone
4258821492
Address
9725 Third Avenue NE, Seattle, WA 98115

Signing Officer

Name
Laura Rufibach PhD
Title
Co-President
Signed
2018-11-06
Discuss with paid preparer
Yes

Preparer

Firm
Lexington Tax Services
Address
1325 FRANKLIN AVE STE 335, GARDEN CITY, NY 11530-1604
Preparer
Lorraine S Boss Esq
Phone
5167395151
Raw XML AppendixShowing 400 of 700 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm0Dr Plavi Mittal
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm1Ajit Jain
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm2Indrima Jain
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm3Akshay Jain
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm4Ajay Jain
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm5Doug Albrecht PhD
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm6Laura Rufibach PhD
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IRS990PF/StatementsRegardingActyGrp/PersonsWithBooksName/BusinessNameLine1Txt0Laura Rufibach
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IRS990PF/StatementsRegardingActyGrp/WebsiteAddressTxt0https://www.jain-foundation.org/
IRS990PF/SummaryOfDirectChrtblActyGrp/Description1Txt0While the focus of the Jain Foundation is LGMD2B, the resulting scientific advances and collaboration have a broader impact on human health through their relevance to other muscle disorders, degenerative diseases of tissues other than muscle, and normal aging. The Foundation is hands on in its approach to funding. We closely monitor progress of every project we fund and keep track of results and agreed upon timelines through quarterly detail oriented conference calls with researchers and site visits. Our goal continues to be to fund all possible approaches to a cure and have the patients diagnosed for when we identify treatment(s) so they are able to avail themselves of it. Contract Research Organizations: In 2017 we continued working with Contract Research Organizations (CROs) as an integral part of our therapy development program. CROs are companies that serve the drug development industry and provide specialized knowledge and infrastructure focused on drug discovery, such as robotic
IRS990PF/SummaryOfDirectChrtblActyGrp/Description2Txt0Patient Recruitment and Diagnosis: LGMD2B is very rare. An important goal of the Foundation is to identify LGMD2B patients worldwide. The rarity of the disease, the lack of knowledge regarding the need for genetic analysis on the part of both the patients and physicians, and the high cost of genetic analysis has made this process laborious and costly. In 2014 we launched a diagnosis program using new low cost sequencing technology to diagnose not just our specific disease but 34 other similar diseases all at once. Consequently, we have also led the development of a consortium of family foundations that are all interested in finding their patients through our program. This program reduced the price of diagnosing each patient by 60% and we found 4 times more LGMD2B patients in the same amount of time. This particular diagnostic program ended in August 2017. In this program more than 2300 individuals with some form of muscular dystrophy were evaluated during the program and 32% (~759) rec
IRS990PF/SummaryOfDirectChrtblActyGrp/Description3Txt0Clinical Outcome Study: Clinical trials frequently fail because testable outcomes are not well defined and are not sensitive enough to measure a small benefit from the treatment or drug being delivered. To find measurable outcomes for dysferlinopathy so that we can become trial ready, we launched a Clinical Outcome Study (COS) in late 2012. While the Jain Foundation is funding the bulk of the study through a grant to Dr. Bushby and Dr. Volker Straub, Newcastle, UK and a grant for the statistical analysis of the data to Dr. Jacobs at CNMC, Washington, DC, the Jain Foundation continues to lead and manage the study on a daily basis. COS is running at 15 centers (in the US, Europe, Japan and Australia) and involves the analysis of approximately 200 individuals suffering from dysferlinopathy. The study involves 6-8 clinic visits over 3-5 years for each patient. Each visit includes medical, physiotherapy, and MRI/MRS assessments, as well as the collection of biological samples for banking. T
IRS990PF/SummaryOfDirectChrtblActyGrp/Description4Txt0Tools for Researchers: The Jain Foundation continued to actively identify and fund the development of research tools and resources that are needed to advance research in the dysferlin field. The Foundation is also committed to developing and providing frequently required reagents, the unavailability of which slows down research. In 2016, we began working with researchers to develop antibodies using state of the art technologies at Rockefeller University. This work continued into 2017. In addition, we built a library of cell lines that are useful to study the disease. Finally, we continue to maintain large colonies of mice at the custom mouse breeding facility at Jackson Laboratories (Maine, US) for use in dysferlin related research. Information about these resources is disseminated to relevant researchers through e-mails and through the Foundations website. In 2017, we completed the development of several iPS cells from selected patients, carriers and controls that are now publicly ava
IRS990PF/SummaryOfDirectChrtblActyGrp/Expenses1Amt0775361
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IRS990PF/SummaryOfDirectChrtblActyGrp/Expenses4Amt0376075
IRS990PF/SumOfProgramRelatedInvstGrp/Description1Txt0Program Related Investment in Myonexus Therapeutics for the purposes of facilitating the development and commercial availability of treatments and cures for LGMDs
IRS990PF/SumOfProgramRelatedInvstGrp/Expenses1Amt0200000
IRS990PF/SumOfProgramRelatedInvstGrp/TotalAmt0200000
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/FormAndInfoAndMaterialsTxt0See Foundation Website www.jain-foundation.org
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientEmailAddressTxt0See Foundation Website www.jain-foundation.org
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientPersonNm0The Jain Foundation Inc
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientPhoneNum04258821492
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientUSAddress/AddressLine1Txt09725 Third Avenue NE Ste 204
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientUSAddress/CityNm0Seatlle
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IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientUSAddress/ZIPCd098115
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RestrictionsOnAwardsTxt0The explicit goal of the Jain Foundation is to expedite development of a treatment or cure for LGMD2B/Miyoshi. Any proposed project that does not have application to this disease will not be considered.
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/SubmissionDeadlinesTxt0There are no application deadlines
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt2Natural History Project - Clinical Outcome Study
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt5Scientific Research Grant
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt7General Support
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt12Scientific Research Grant
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt13Scientific Research Grant
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt14Scientific Research Grant
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt15Scientific Research Grant
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt16Scientific Research Grant
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/GrantOrContributionPurposeTxt17IRS Approved Scholarship
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientBusinessName/BusinessNameLine1Txt0Dr Michele Calos Stanford University
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientForeignAddress/AddressLine1Txt4Via Del Fosso di Fiorano 64
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientForeignAddress/CityNm0New Castle upon
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientForeignAddress/ProvinceOrStateNm2Maharashtra
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientForeignAddress/ProvinceOrStateNm3British Columbia

Document Assets

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Filings

Displayed year

2017 • Form 990PFDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$21,794,195
Liabilities
$18,744
Net assets
$21,775,451
Revenue
$4,088,666
Expenses
$4,447,900
Net income
-$359,234
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$51.2$0.07$51.1$0.38$5.39$5.00
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$56.2$0.04$56.1$39.1$5.21$33.9
2022Detailed filing. Detailed filing data is available for this year.$26.5$0.05$26.5$3.32$4.17$0.85
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$28.3$0.01$28.3$4.57$4.06$0.51
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$29.1$0.00$29.1$2.50$3.59$1.09
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.3$0.01$31.3$20.0$3.59$16.4
2018Detailed filing. Detailed filing data is available for this year.$21.3$0.03$21.2$3.02$3.34$0.32
2017Detailed filing. Detailed filing data is available for this year.$21.8$0.02$21.8$4.09$4.45$0.36
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$22.2$0.03$22.1$16.5$4.87$11.6
2015Detailed filing. Detailed filing data is available for this year.$10.5$0.02$10.5$4.02$4.67$0.65
2014Detailed filing. Detailed filing data is available for this year.$20.2$0.02$20.2$4.98$5.80$0.82
2013Detailed filing. Detailed filing data is available for this year.$21.0$0.02$21.0$5.08$3.85$1.23
2012Detailed filing. Detailed filing data is available for this year.$19.7$0.04$19.6$2.54
2011Summary only. Only limited summary data is available for this year.$6.58$0.04$2.77$2.06$0.71