Civic Intelligence

The Jain Foundation Inc

EIN 20-0284800 • Seattle, WA

9706 4th Avenue NE 101Seattle, WA 98115
Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

17th percentile

0.00x

Higher debt load relative to assets than 17% of similar nonprofits.

$50M-$100M nonprofits • Source year 2024

Liabilities / Revenue

42nd percentile

0.18x

Higher debt load relative to revenue than 42% of similar nonprofits.

$50M-$100M nonprofits • Source year 2024

Net Margin

1st percentile

-1303%

Higher net margin than 1% of similar nonprofits.

$50M-$100M nonprofits • Source year 2024

Top Officer Pay

36th percentile

$211,003

Higher top officer pay than 36% of similar nonprofits.

Top officer pay equals 54.9% of source-year revenue.

$50M-$100M nonprofits • Source year 2024

Asset Growth

8th percentile

-8.9%

Faster asset growth than 8% of similar nonprofits.

$50M-$100M nonprofits • Annualized from 2023 to 2024

Revenue Growth

1st percentile

-99%

Faster revenue growth than 1% of similar nonprofits.

$50M-$100M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets17th percentile

Assets

Down

$51,183,246

Down $4,972,656 (-8.9%) from 2023

Liabilities

Up

$68,168

Up $32,015 (+89%) from 2023

Net Assets

Down

$51,115,078

Down $5,004,671 (-8.9%) from 2023

Operations
Liabilities / Revenue42nd percentileNet Margin1st percentile

Revenue

Down

$384,162

Down $38,704,510 (-99%) from 2023

Expenses

Up

$5,388,833

Up $176,992 (+3.4%) from 2023

Net Income

Down

-$5,004,671

Down $38,881,502 (-115%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth8th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$60M$40M$20M$0Assets 2011: $6,576,398Liabilities 2011: $37,2412011Assets 2012: $19,684,932Liabilities 2012: $36,932Net Assets 2012: $19,648,0002012Assets 2013: $21,020,348Liabilities 2013: $24,356Net Assets 2013: $20,995,9922013Assets 2014: $20,192,885Liabilities 2014: $19,619Net Assets 2014: $20,173,2662014Assets 2015: $10,544,551Liabilities 2015: $22,342Net Assets 2015: $10,522,2092015Assets 2016: $22,164,475Liabilities 2016: $29,590Net Assets 2016: $22,134,8852016Assets 2017: $21,794,195Liabilities 2017: $18,744Net Assets 2017: $21,775,4512017Assets 2018: $21,276,666Liabilities 2018: $28,442Net Assets 2018: $21,248,2242018Assets 2019: $31,306,552Liabilities 2019: $6,467Net Assets 2019: $31,300,0852019Assets 2020: $29,100,433Liabilities 2020: $0Net Assets 2020: $29,100,4332020Assets 2021: $28,293,221Liabilities 2021: $7,425Net Assets 2021: $28,285,7962021Assets 2022: $26,504,314Liabilities 2022: $53,404Net Assets 2022: $26,450,9102022Assets 2023: $56,155,902Liabilities 2023: $36,153Net Assets 2023: $56,119,7492023Assets 2024: $51,183,246Liabilities 2024: $68,168Net Assets 2024: $51,115,0782024

Highlighted filing

2024

Assets$51,183,246
Liabilities$68,168
Net Assets$51,115,078
Open 2024 Filing

Operations Trend

Revenue Growth1st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$40M$20M$0-$20MRevenue 2011: $2,770,600Expenses 2011: $2,060,016Net Income 2011: $710,5842011Expenses 2012: $2,544,4402012Revenue 2013: $5,076,754Expenses 2013: $3,848,214Net Income 2013: $1,228,5402013Revenue 2014: $4,979,296Expenses 2014: $5,802,022Net Income 2014: -$822,7262014Revenue 2015: $4,019,673Expenses 2015: $4,670,454Net Income 2015: -$650,7812015Revenue 2016: $16,480,274Expenses 2016: $4,867,603Net Income 2016: $11,612,6712016Revenue 2017: $4,088,666Expenses 2017: $4,447,900Net Income 2017: -$359,2342017Revenue 2018: $3,017,350Expenses 2018: $3,340,108Net Income 2018: -$322,7582018Revenue 2019: $20,037,834Expenses 2019: $3,593,105Net Income 2019: $16,444,7292019Revenue 2020: $2,502,806Expenses 2020: $3,590,463Net Income 2020: -$1,087,6572020Revenue 2021: $4,573,767Expenses 2021: $4,060,047Net Income 2021: $513,7202021Revenue 2022: $3,316,493Expenses 2022: $4,168,261Net Income 2022: -$851,7682022Revenue 2023: $39,088,672Expenses 2023: $5,211,841Net Income 2023: $33,876,8312023Revenue 2024: $384,162Expenses 2024: $5,388,833Net Income 2024: -$5,004,6712024

Highlighted filing

2024

Revenue$384,162
Expenses$5,388,833
Net Income-$5,004,671
Open 2024 Filing

Filings

Most recent year

2024 • Form 990PFDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$51,183,246
Liabilities
$68,168
Net assets
$51,115,078
Revenue
$384,162
Expenses
$5,388,833
Net income
-$5,004,671
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$51.2$0.07$51.1$0.38$5.39$5.00
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$56.2$0.04$56.1$39.1$5.21$33.9
2022Detailed filing. Detailed filing data is available for this year.$26.5$0.05$26.5$3.32$4.17$0.85
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$28.3$0.01$28.3$4.57$4.06$0.51
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$29.1$0.00$29.1$2.50$3.59$1.09
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.3$0.01$31.3$20.0$3.59$16.4
2018Detailed filing. Detailed filing data is available for this year.$21.3$0.03$21.2$3.02$3.34$0.32
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$21.8$0.02$21.8$4.09$4.45$0.36
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$22.2$0.03$22.1$16.5$4.87$11.6
2015Detailed filing. Detailed filing data is available for this year.$10.5$0.02$10.5$4.02$4.67$0.65
2014Detailed filing. Detailed filing data is available for this year.$20.2$0.02$20.2$4.98$5.80$0.82
2013Detailed filing. Detailed filing data is available for this year.$21.0$0.02$21.0$5.08$3.85$1.23
2012Detailed filing. Detailed filing data is available for this year.$19.7$0.04$19.6$2.54
2011Summary only. Only limited summary data is available for this year.$6.58$0.04$2.77$2.06$0.71
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 3, 2025
Return Version
2024v5.2
Compensation and Service Providers
Top Officer Pay36th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
ASHKAY JAINCEOFT$211,003-$211,003
DOUG ALBRECHT PHDCo-PresidentFT$202,782-$202,782
LAURA RUFIBACHCo-PresidentFT$202,782-$202,782
AJIT JAINDirector-$0--
INDRIMA JAINDirector-$0--
Filing and Contact Details

Filer

Filer Name
The Jain Foundation Inc
EIN
20-0284800
Phone
4258821492
Address
9706 4TH AVENUE NE 101, SEATTLE, WA 98115

Signing Officer

Name
Laura Rufibach
Title
Co-president
Signed
2025-11-03
Discuss with paid preparer
Yes

Preparer

Firm
Piccirillo Lamont & Giammarese LLP
Address
181 W Main Street Suite 101, Babylon, NY 11702
Preparer
Carol a Zoeller CPA
Phone
6313762300
Raw XML AppendixShowing 400 of 589 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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AccountingFeesSchedule/AccountingFeesDetail/NetInvestmentIncomeAmt00
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IRS990PF/AnalysisIncomeProducingActyGrp/IntOnSavAndTempCashInvstGrp/ExclusionCd014
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IRS990PF/AnalysisOfRevenueAndExpenses/ContriPaidRevAndExpnssAmt03436865
IRS990PF/AnalysisOfRevenueAndExpenses/ExcessRevenueOverExpensesAmt0-5004671
IRS990PF/AnalysisOfRevenueAndExpenses/InterestOnSavNetInvstIncmAmt0384162
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IRS990PF/AnalysisOfRevenueAndExpenses/ScheduleBNotRequiredInd0X
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IRS990PF/AnalysisOfRevenueAndExpenses/TravConfMeetingRevAndExpnssAmt0240974
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IRS990PF/DistributableAmountGrp/MinimumInvestmentReturnAmt04477260
IRS990PF/DistributableAmountGrp/TaxBasedOnInvestmentIncomeAmt04460
IRS990PF/DistributableAmountGrp/TotalTaxAmt04460
IRS990PF/ExciseTaxBasedOnInvstIncmGrp/AppliedToESTaxAmt010673
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IRS990PF/FMVAssetsEOYAmt093069116
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IRS990PF/Form990PFBalanceSheetsGrp/OrganizationFollowsFASB117Ind0X
IRS990PF/Form990PFBalanceSheetsGrp/OtherAssetsBOYAmt01410
IRS990PF/Form990PFBalanceSheetsGrp/OtherAssetsEOYAmt01410
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IRS990PF/Form990PFBalanceSheetsGrp/PrepaidExpensesBOYAmt081250
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm0AJIT JAIN
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm1INDRIMA JAIN
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm2ASHKAY JAIN
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm3DOUG ALBRECHT PHD
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm4LAURA RUFIBACH
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt1Director
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt1ISLAND DRIVE
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt2ISLAND DRIVE
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IRS990PF/SummaryOfDirectChrtblActyGrp/Description1Txt0While the focus of the Jain Foundation is Dysferlinopathy (LGMD2B/R2/Miyoshi Myopathy1), the resulting scientific advances and collaborations that we make have a broader impact on human health through their relevance to other muscle disorders, degenerative diseases, and normal aging. The Foundation takes a hands-on approach to funding. We closely monitor the progress of every project we fund and keep track of results and shifting timelines through quarterly conference calls with researchers and site visits. We also support internal programs and initiatives. Our goal is to fund all possible approaches to a cure and help with patient diagnosis to ensure that treatments reach those who need them.
IRS990PF/SummaryOfDirectChrtblActyGrp/Description2Txt0Clinical Trial readiness and Community Engagement ($246,298): Dysferlinopathy is very rare. An important goal of the Jain Foundation is to prepare the dysferlinopathy patient community for clinical trials. There are many aspects to being clinical trial ready, including patient identification, community engagement, patient education, and identification of outcome measures. For patient identification we have a patient registry called the Dysferlin Registry that contains 1200+ individuals verified to have dysferlinopathy. In addition, we have a diagnosis pipeline that provides access to genetic testing for those who need it and ensures that barriers to genetic testing dont prevent people with dysferlinopathy from accessing the Dysferlin Registry. In 2024, we added ~ 80+ dysferlinopathy patients to the registry. Community engagement and education includes interactions with the patient community, clinicians, LGMD advocacy groups, Industry and the FDA. Our patient education and engagement ef
IRS990PF/SummaryOfDirectChrtblActyGrp/Description3Txt0Tools for Researchers ($257,622): As a recognized leader in the field, we continue to receive queries and help researchers access reagents such as antibodies and cell lines that are required for their research. In addition, we actively identify and fund the development of research tools and resources needed to advance the dysferlin field. The Jain Foundation is committed to developing and providing frequently required reagents, the availability of which helps accelerate research. We contributed dysferlin DNA to public repositories and have helped companies develop antibodies to dysferlin so that they can be easily obtained. We built a library of cell lines that are useful to study dysferlin deficiency. In 2024, we continued to maintain large colonies of mice at the custom mouse breeding facility at Jackson Laboratories (USA) and Ozgene ARC (Australia) for use in dysferlin research. Information about these resources is disseminated to researchers through e-mails and through the Foundati
IRS990PF/SummaryOfDirectChrtblActyGrp/Description4Txt0Dysferlin Conference ($275,104): The 2025 Dysferlin Conference brought together over 100 scientists, clinicians, industry leaders, advocacy, and patients working to understand and develop a therapy for Dysferlinopathy. The objective of the 2025 Dysferlin Conference, that was held May 8-11, 2024 in Houston, TX, was to speed research on dysferlinopathy through the sharing of ideas and research results on dysferlinopathy. By promoting the sharing of ideas and unpublished data between scientists actively working on dysferlin, scientists can rapidly improve the focus of their research to the most relevant and therapy-oriented areas. During this meeting, all those in attendance gained a deeper understanding of the mechanism of the disease and learned about the progress in testing therapies from the 40+ talks and 24 posters. The conference was sponsored and organized solely by the Jain Foundation
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IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/FormAndInfoAndMaterialsTxt0SEE FOUNDATION WEBSITE JAIN-FOUNDATION.ORG
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RecipientEmailAddressTxt0[email protected]
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IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/RestrictionsOnAwardsTxt0THE EXPLICIT GOAL OF THE JAIN FOUNDATION IS TO EXPEDITE DEVELOPMENT OF A TREATMENT OR CURE FOR LGMD2B/MIYOSHI. ANY PROPOSED PROJECT THAT DOES NOT HAVE APPLICATION TO THIS DISEASE WILL NOT BE CONSIDERED.
IRS990PF/SupplementaryInformationGrp/ApplicationSubmissionInfoGrp/SubmissionDeadlinesTxt0THERE ARE NO SUBMISSION DEADLINES.
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientRelationshipTxt6NONE
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientRelationshipTxt7NONE
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientRelationshipTxt8NONE
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientRelationshipTxt9NONE
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientRelationshipTxt10NONE
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientRelationshipTxt11NONE
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientRelationshipTxt12NONE

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