Liabilities / Assets
96th percentile
Higher debt load relative to assets than 96% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
96th percentile
Higher debt load relative to assets than 96% of similar nonprofits.
Liabilities / Revenue
76th percentile
Higher debt load relative to revenue than 76% of similar nonprofits.
Net Margin
13th percentile
Higher net margin than 13% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 5.3% of source-year revenue.
Asset Growth
1st percentile
Faster asset growth than 1% of similar nonprofits.
Revenue Growth
25th percentile
Faster revenue growth than 25% of similar nonprofits.
Assets
Down$2,000,729
Down $1,858,246 (-48%) from 2018
Net Assets
Down-$514,438
Down $768,113 (-303%) from 2018
Liabilities
Down$2,515,167
Down $1,090,133 (-30%) from 2018
Revenue
Down$3,840,925
Down $266,299 (-6.5%) from 2018
Expenses
Up$4,609,038
Up $428,090 (+10%) from 2018
Net Income
Down-$768,113
Down $694,389 (-942%) from 2018
To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.
Working towards an understanding and treatments for amyotrophic lateral sclerosis.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,228,257 | $1,100,625 | ▼ $127,632 |
| Savings and Temporary Cash Investments | $2,244,572 | $730,804 | ▼ $1,513,768 |
| Investments in Publicly Traded Securities | $169,934 | - | - |
| Prepaid Expenses and Deferred Charges | $166,614 | $97,664 | ▼ $68,950 |
| Pledges and Grants Receivable | $40,552 | $56,938 | ▲ $16,386 |
| Land, Buildings, and Equipment, Net | $0 | $0 | → $0 |
| Total Assets | $3,858,975 | $2,000,729 | ▼ $1,858,246 |
| Other Assets Total | $9,046 | $14,698 | ▲ $5,652 |
| Liabilities | |||
| Grants Payable | $3,223,385 | $2,218,169 | ▼ $1,005,216 |
| Deferred Revenue | $377,750 | $260,000 | ▼ $117,750 |
| Accounts Payable and Accrued Expenses | $4,165 | $36,998 | ▲ $32,833 |
| Total Liabilities | $3,605,300 | $2,515,167 | ▼ $1,090,133 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | - | $67,322 | - |
| Unrestricted Net Assets | $253,675 | $-581,760 | ▼ $835,435 |
| Total Net Assets Fund Balance | $253,675 | $-514,438 | ▼ $768,113 |
| Total Liabilities and Net Assets / Fund Balance | $3,858,975 | $2,000,729 | ▼ $1,858,246 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $0 | $429,311 | $429,311 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Valerie Estess | Vice President | FT | $181,193 | $20,839 | $202,032 |
| Meredith Estess Hulbert | President | FT | $181,139 | $18,990 | $200,129 |
| Name | Title |
|---|---|
| Debbie Wilpon | Co-chair |
| Robert S Kaplan | Co-chair |
| Arthur Fraser | Director |
| Bonnie Verbitsky | Director |
| Chad Cascarilla | Director |
| Christine Taylor | Director |
| Daniel Kellison | Director |
| Darci Carlton | Director |
| David L Jaffe | Director |
| Debra Wasserman | Director |
| F Jonathan Dracos | Director |
| Gena Fajgenbaum Combs | Director |
| Jack Merrill | Director |
| Lawrence Tarica | Director |
| Marcie Fleck | Director |
| Martha Mccully | Director |
| Michael Berman | Director |
| Nancy Jarecki | Director |
| Peter J Hulbert | Director |
| Regina Kulik Scully | Director |
| Rob Burnett | Director |
| Rob Morrow | Director |
| Simon Halls | Director |
| Stacey Griffith | Director |
| Staci Kirchhoff | Director |
| Sue Leibman | Director |
| Aimee David | Director - Until 12/31/18 |
| Harriet Abramson | Director - Until 12/31/18 |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $3,027,681 |
| Other Expenses | $807,037 |
| Salaries, Compensation, and Employee Benefits | $774,320 |
| Total Fundraising Expense | $168,373 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $3,027,681 | - | - | $3,027,681 |
| Current Officers, Directors, Trustees, and Key Employees | $301,067 | $19,956 | $26,029 | $347,052 |
| Other Salaries and Wages | $189,027 | $110,402 | $11,095 | $310,524 |
| Fees for Services Other | $234,939 | $9,355 | - | $244,294 |
| Conferences and Meetings | $78,688 | $2,199 | $28,926 | $109,813 |
| Other Employee Benefits | $53,859 | $14,325 | $4,080 | $72,264 |
| Office Expenses | $37,399 | $9,947 | $2,833 | $50,179 |
| Fees for Services Accounting | - | $49,348 | - | $49,348 |
| Occupancy | $36,030 | $9,583 | $2,729 | $48,342 |
| Payroll Taxes | $33,151 | $8,818 | $2,511 | $44,480 |
| All Other Expenses | $15,488 | $17,187 | $8,077 | $40,752 |
| Fees for Services Legal | $28,950 | $1,050 | - | $30,000 |
| Other Expenses | $7,504 | $469 | $1,407 | $9,380 |
| Total Functional Expenses | $4,183,845 | $256,820 | $168,373 | $4,609,038 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $4,609,038 |
| Total Expenses per Audited Statements | $4,518,889 |
| Expenses per Audited Statements | $4,409,038 |
| Expenses Not Reported on Financial Statements | $200,000 |
| Other Expense Adjustments | $200,000 |
| Expenses Not Reported on Form 990 | $109,851 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Columbia University | New York, NY | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $2,342,896 |
| Ny Structural Biology Center | New York, NY | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $525,000 |
| University of Pennsylvania | Philadelphia, PA | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $79,535 |
| The Salk Institute | La Jolla, CA | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $78,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $1,009,957 |
| Fundraising Gross Income | $900,106 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Hope Gala | $1,019,430 | $270,100 | $105,118 | $164,982 |
| Annual Gala | $1,129,208 | $237,553 | $96,879 | $140,674 |
| Total Events | $3,258,879 | $900,106 | $1,009,957 | $-109,851 |
“Meredith estess hulbert, president and valerie estess, vice president are sisters and compensated as employees. Meredith estess hulbert, president, and peter j. Hulbert, director are married.”
“The president and controller review the form 990 for reasonableness by comparing the data on the form 990 to the audited financial statements and the information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.”
“The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.”
“The compensation of the president and director of research is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously.”
“The organization makes its form 990 and audited financial statements available on its website and other media such as guidestar. The governing documents and conflict of interest policy are available upon request.”
“The organization did not change its oversight process or selection process during the tax year.”
“The organization is is a not-for-profit organization and has been recognized by the internal revenue service ("irs") as exempt from federal income taxes under internal revenue code ("irc") section 501(a) as described in irc section 501(c)(3). Accordingly, no provision for income taxes has been made in the accompanying financial statements. The organization is annually required to file a return of organization exempt from income tax (form 990) with the irs. In addition, the entity is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. The organization has determined that it is not subject to unrelated business income tax. The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board accounting standards codification ("fasb asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements.”
“Special event costs 109,851.”
“Grants recovered 200,000.”
“Special event costs 109,851.”
“Grants recovered 200,000.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 4165 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 36998 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | WORKING TOWARDS AN UNDERSTANDING AND TREATMENTS FOR AMYOTROPHIC LATERAL SCLEROSIS. |
| IRS990/AllOtherContributionsAmt | 0 | 1391449 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 8077 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 17187 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 15488 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 40752 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2124207382 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 801 RIVERSIDE DRIVE SUITE 6G |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10032 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1228257 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1100625 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 26029 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 19956 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 301067 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 347052 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 28926 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 2199 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 78688 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 109813 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 2358773 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 3750222 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 3027681 |
| IRS990/CYInvestmentIncomeAmt | 0 | 554 |
| IRS990/CYOtherExpensesAmt | 0 | 807037 |
| IRS990/CYOtherRevenueAmt | 0 | 90149 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -768113 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 774320 |
| IRS990/CYTotalExpensesAmt | 0 | 4609038 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 168373 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3840925 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 377750 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 260000 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | GRANTS AND RESEARCH - FUNDING FOR SCIENTIFIC MEDICAL RESEARCH TO FIND TREATMENTS AND ULTIMATELY A CURE FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS) AN ULTIMATELY FATAL MOTOR NEURON DISEASE BY PROMOTING COLLABORATION AND INFORMATION SHARING AMONG RESEARCHERS FOR ALL RELATED DISEASES SUCH AS PARKINSON'S AND MULTIPLE SCLEROSIS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 3615954 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 49348 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 49348 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 1050 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 28950 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 30000 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 9355 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 234939 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 244294 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 20 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 21 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 22 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 23 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 24 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 25 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 26 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 27 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 28 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 29 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 19 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 20 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 21 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 22 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 23 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 24 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 25 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 26 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 27 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 28 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 29 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 18990 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 20839 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 29 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | HARRIET ABRAMSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROB BURNETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MICHAEL BERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DARCI CARLTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CHAD CASCARILLA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | GENA FAJGENBAUM COMBS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | AIMEE DAVID |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | F JONATHAN DRACOS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MEREDITH ESTESS HULBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | VALERIE ESTESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | MARCIE FLECK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ARTHUR FRASER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | STACEY GRIFFITH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | SIMON HALLS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | PETER J HULBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | DAVID L JAFFE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | NANCY JARECKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | ROBERT S KAPLAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | DANIEL KELLISON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | STACI KIRCHHOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | SUE LEIBMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | MARTHA MCCULLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | JACK MERRILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | ROB MORROW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | REGINA KULIK SCULLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 25 | LAWRENCE TARICA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 26 | CHRISTINE TAYLOR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 27 | DEBBIE WILPON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 28 | DEBRA WASSERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 29 | BONNIE VERBITSKY |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 181139 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 181193 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 29 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 29 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR - UNTIL 12/31/18 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR - UNTIL 12/31/18 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | CO-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 27 | CO-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 28 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 29 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1998 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 2358773 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 1009957 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 900106 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -4867 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 28 |
| IRS990/GrantAmt | 0 | 3027681 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 3223385 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 2218169 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 3027681 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 3027681 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 174494 |
| IRS990/GrossReceiptsAmt | 0 | 5030243 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 25 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 5421 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 5421 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 169934 |
| IRS990/IRPDocumentCnt | 0 | 32 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 429311 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 429311 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 179361 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 253675 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | -514438 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -4867 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -4867 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -109851 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -109851 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 4773 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2729 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 9583 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 36030 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 48342 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 2833 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 9947 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 37399 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 50179 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 9046 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 14698 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 4080 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 14325 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 53859 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 72264 |
| IRS990/OtherExpensesGrp/Desc | 0 | PRINTING, PUBLICATIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | NEWSLETTER |
| IRS990/OtherExpensesGrp/Desc | 2 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 3 | POSTAGE AND SHIPPING |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 70591 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 8904 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 1191 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 1407 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4181 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 469 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 110415 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 13928 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 15719 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 7504 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 181006 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 22832 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 21091 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 9380 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.