Civic Intelligence

The Jeffrey Modell Foundation Inc

990 • Fiscal year 2017 • EIN 13-3380237

Jan 01, 2017 to Dec 31, 2017 • Filed on Aug 29, 2018

Organization ProfileWWW.INFO4PI.ORG

View Organization Page

780 Third AvenueNew York, NY 10017

(212) 819-0200

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

15th percentile

0.02x

Higher debt load relative to assets than 15% of similar nonprofits.

2017 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2017

Liabilities / Revenue

11th percentile

0.05x

Higher debt load relative to revenue than 11% of similar nonprofits.

2017 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2017

Net Margin

90th percentile

45%

Higher net margin than 90% of similar nonprofits.

2017 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2017

Top Officer Pay

83rd percentile

$495,000

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 4.3% of source-year revenue.

2017 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2017

Asset Growth

86th percentile

20%

Faster asset growth than 86% of similar nonprofits.

2017 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2016 to 2017

Revenue Growth

77th percentile

20%

Faster revenue growth than 77% of similar nonprofits.

2017 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets15th percentile

Assets

Up

$26,635,079

Up $4,477,913 (+20%) from 2016

Net Assets

Up

$26,106,726

Up $5,227,913 (+25%) from 2016

Liabilities

Down

$528,353

Down $750,000 (-59%) from 2016

Revenue And Expenses
Liabilities / Revenue11th percentileNet Margin90th percentile

Revenue

Up

$11,580,429

Up $1,953,508 (+20%) from 2016

Expenses

Down

$6,352,516

Down $470,137 (-6.9%) from 2016

Net Income

Up

$5,227,913

Up $2,423,645 (+86%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth86th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2010: $21,827,969Liabilities 2010: $6,702,744Net Assets 2010: $15,125,2252010Assets 2011: $17,594,971Liabilities 2011: $5,119,354Net Assets 2011: $12,475,6172011Assets 2012: $20,876,800Liabilities 2012: $3,279,354Net Assets 2012: $17,597,4462012Assets 2013: $22,197,479Liabilities 2013: $3,315,114Net Assets 2013: $18,882,3652013Assets 2014: $18,851,910Liabilities 2014: $2,835,290Net Assets 2014: $16,016,6202014Assets 2015: $23,024,399Liabilities 2015: $4,949,853Net Assets 2015: $18,074,5462015Assets 2016: $22,157,166Liabilities 2016: $1,278,353Net Assets 2016: $20,878,8132016Assets 2017: $26,635,079Liabilities 2017: $528,353Net Assets 2017: $26,106,7262017Assets 2018: $25,321,596Liabilities 2018: $0Net Assets 2018: $25,321,5962018Assets 2019: $29,605,614Liabilities 2019: $0Net Assets 2019: $29,605,6142019Assets 2020: $34,942,139Liabilities 2020: $0Net Assets 2020: $34,942,1392020Assets 2021: $36,072,018Liabilities 2021: $238,486Net Assets 2021: $35,833,5322021Assets 2022: $38,647,183Liabilities 2022: $6,301,208Net Assets 2022: $32,345,9752022Assets 2023: $42,921,915Liabilities 2023: $5,889,326Net Assets 2023: $37,032,5892023Assets 2024: $46,039,860Liabilities 2024: $6,267,167Net Assets 2024: $39,772,6932024

Highlighted filing

2017

Assets$26,635,079
Liabilities$528,353
Net Assets$26,106,726
Open 2017 Filing

Operations Trend

Revenue Growth77th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $8,107,8132010Expenses 2011: $5,932,4052011Expenses 2012: $3,844,5472012Revenue 2013: $7,754,730Expenses 2013: $6,469,811Net Income 2013: $1,284,9192013Revenue 2014: $5,915,910Expenses 2014: $6,419,391Net Income 2014: -$503,4812014Revenue 2015: $9,035,805Expenses 2015: $6,218,770Net Income 2015: $2,817,0352015Revenue 2016: $9,626,921Expenses 2016: $6,822,653Net Income 2016: $2,804,2682016Revenue 2017: $11,580,429Expenses 2017: $6,352,516Net Income 2017: $5,227,9132017Revenue 2018: $7,432,855Expenses 2018: $7,031,074Net Income 2018: $401,7812018Revenue 2019: $9,251,111Expenses 2019: $6,494,579Net Income 2019: $2,756,5322019Revenue 2020: $10,094,863Expenses 2020: $4,758,338Net Income 2020: $5,336,5252020Revenue 2021: $6,146,213Expenses 2021: $5,254,820Net Income 2021: $891,3932021Revenue 2022: $8,819,209Expenses 2022: $5,875,800Net Income 2022: $2,943,4092022Revenue 2023: $9,602,449Expenses 2023: $7,360,289Net Income 2023: $2,242,1602023Revenue 2024: $10,208,043Expenses 2024: $9,266,854Net Income 2024: $941,1892024

Highlighted filing

2017

Revenue$11,580,429
Expenses$6,352,516
Net Income$5,227,913
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Aug 29, 2018
Return Version
2017v2.2
Gross Receipts
$13,973,677
Mission and Program Overview

Mission

The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$11,156,069$13,880,637▲ $2,724,568
Cash and Non-Interest-Bearing Accounts$4,934,222$5,192,141▲ $257,919
Accounts Receivable$4,264,900$5,098,064▲ $833,164
Pledges and Grants Receivable-$921,500-
Land, Buildings, and Equipment, Net$37,693$18,846▼ $18,847
Savings and Temporary Cash Investments-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$22,157,166$26,635,079▲ $4,477,913
Other Assets Total$1,764,282$1,523,891▼ $240,391
Liabilities
Grants Payable$1,278,353$528,353▼ $750,000
Total Liabilities$1,278,353$528,353▼ $750,000
Net Assets / Fund Balance
Unrestricted Net Assets$20,878,813$26,106,726▲ $5,227,913
Total Net Assets Fund Balance$20,878,813$26,106,726▲ $5,227,913
Total Liabilities and Net Assets / Fund Balance$22,157,166$26,635,079▲ $4,477,913

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$5,024$171,022$176,046
Leasehold Improvements$13,446$106,712$120,158
Equipment$376$92,808$93,184
Other Assets Org$1,523,891--
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Frederick ModellPresidentFT$495,000$495,000
Vicki ModellVice PresidentFT$395,000$395,000
Vanessa TenembaumExecutive DirectorFT$201,018$201,018
Jo Ann FortunatoChief Financial OfficerFT$160,775$160,775
Jessica QuinnScientific DirectorFT$121,829$121,829

Board Members and Trustees

NameTitle
Aby RosenDirector
Allyson Alan GalishoffDirector
Allyson Philip WatermanDirector
Arnold PennerDirector
Bettina EmdenDirector
Brenda Gary LavignaDirector
Carol James RandelDirector
Debbe LongoDirector
Debbi Max LebersfeldDirector
Donna HarveyDirector
Felice AxelrodDirector
Frann Eric FrancisDirector
Greg SmithDirector
Hassan AhmedDirector
Helen Chaitman EsqDirector
Jason ShumanDirector
Jennifer Chaitman DvmDirector
Jodi PuliceDirector
Kurt Hirschhorn MdDirector
Laureine David GreenbaumDirector
Lisa Stephen LawrenceDirector
Lisa Stephen ShumanDirector
Lisa William WexlerDirector
Luciana Michael SolomonDirector
Madaleine BerleyDirector
Marillyn AbramsDirector
Mitchell KonskerDirector
Patricia Edward GutmanDirector
Robbie Alan FranklinesqDirector
Rochelle Hirschhorn MdDirector
Ryan G SmithDirector
Shelby ModellDirector
Steven WitkoffDirector
Susan Barry Stein MdDirector
Taylor SmithDirector
Wendy Jonathan Mechanic EsqDirector
Wendy Stephen SiegelDirector
Faisal KhalidOverseer

Highest Paid Contractors

ContractorServicesLocationCompensation
Do Something Film LLCSchedule Attached237 6TH AVENUE, Venice, CA 90291$900,000
Cavarocchi Ruscio Dennis Associates LLCSchedule Attached600 MARYLAND AVENUE SUITE 835W, washington, DC 20024$170,950
The Causeway AgencySchedule Attached21 CHARLES STREET SUITE 201, Westport, CT 06880$123,982
Adviolan Consulting LLCSchedule Attached83 ROWLEY DRIVE, Stonington, CT 06378$61,200
Hq Creative LLCSchedule Attached37-18 NORTHERN BLVD SUITE 414, Long Island City, NY 11101$22,760
Revenue and Support

Revenue Composition

Contributions and Grants
$10,277,108
Program Service Revenue
$0
Investment Income
$1,302,936
Other Revenue
$385
All Other Contributions
$7,355,608
Change in Net Assets
$5,227,913

Audited Revenue Reconciliation

Revenue per Audited Statements
$11,580,429
Revenue Not Reported on Form 990
$81,636,092
Total Revenue per Audited Statements
$93,216,521
Total Revenue per Form 990
$11,580,429
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,782,859
Grants and Similar Amounts Paid$1,976,205
Salaries, Compensation, and Employee Benefits$1,593,452
Total Fundraising Expense$284,933
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$920,327$260,988$192,307$1,373,622
Foreign Grants$1,179,222--$1,179,222
Conferences and Meetings$1,059,584--$1,059,584
Grants to Domestic Orgs$796,983--$796,983
Occupancy$294,531$9,400$9,400$313,331
Other Salaries and Wages$131,608$37,322$27,500$196,430
Information Technology$101,950$24,759$18,934$145,643
All Other Expenses$107,412$12,815$5,210$125,437
Other Expenses$82,651$20,072$15,349$118,072
Fees for Services Accounting$25,725$6,248$4,777$36,750
Fees for Services Other$16,888$4,101$3,136$24,125
Pension Plan Contributions$15,678$4,446$3,276$23,400
Depreciation Depletion$13,192$3,204$2,450$18,846
Travel$11,552$2,806$2,145$16,503
Fees for Services Legal$2,421$588$449$3,458
Total Functional Expenses$5,680,834$386,749$284,933$6,352,516

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$87,988,608
Expenses Not Reported on Form 990$81,636,092
Expenses per Audited Statements$6,352,516
Total Expenses per Form 990$6,352,516
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Baylor College of MedicineHouston, TX-Research$178,644
Seattle Childrens HospitalSeattle, WA-Research$95,481
Boston Childrens HospitalBoston, MA-Reserach$75,000
Univ of CA - San FranciscoSan Francisco, CA-Research$74,500
Childrens Natl Medical CtrWashington, DC-Research$60,000
Cincinnati Childrens HospitalCincinnati, OH-Research$50,000
Saint Louis UniversitySt Louis, MO-Research$32,500
Childrens Hospital of LaLos Angeles, CA-Reserach$25,000
Johns Hopkins Childrens CtrBaltimore, MD-Research$25,000
Mayo Clinic FoundationRochester, MN-Research$25,000
Medical College of WisconsinMilwaukee, WI-Research$25,000
Ucla Foundation-geffen SchoolLos Angeles, CA-Research$25,000
Univ Hosprainbow BabiesCleveland, OH-Research$25,000
Univ of Cal - IrvineIrvine, CA-Research$25,000
University of MiamiMiami, FL-Research$25,000
Individual Small GrantsNew York, NY-Research$18,358
Harvard Medical SchoolBoston, MA-Research$11,500

International Summary

Spending
$1,152,970

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
IsraelProgram ServicesDiagnostic Research00$127,500
United KingdomProgram ServicesDiagnostic Research00$75,000
ItalyProgram ServicesDiagnostic Research00$75,000
SpainProgram ServicesDiagnostic Research00$68,750
BrazilProgram ServicesDiagnostic Research00$55,920
BelgiumProgram ServicesDiagnostic Research00$50,000
PeruProgram ServicesDiagnostic Research00$50,000
PolandProgram ServicesDiagnostic Research00$50,000
AustraliaProgram ServicesDiagnostic Research00$50,000
Boznia & HerzegovinaProgram ServicesDiagnostic Research00$45,000
The NetherlandsProgram ServicesDiagnostic Research00$31,250
ArgentinaProgram ServicesDiagnostic Research00$25,000
ColombiaProgram ServicesDiagnostic Research00$25,000
ChileProgram ServicesDiagnostic Research00$25,000
CanadaProgram ServicesDiagnostic Research00$25,000
FranceProgram ServicesDiagnostic Research00$25,000
JapanProgram ServicesDiagnostic Research00$25,000
MexicoProgram ServicesDiagnostic Research00$25,000
SwedenProgram ServicesDiagnostic Research00$25,000
ChinaProgram ServicesDiagnostic Research00$25,000
UgandaProgram ServicesDiagnostic Research00$24,550
AustriaProgram ServicesDiagnostic Research00$22,500
BulgariaProgram ServicesDiagnostic Research00$22,500
Czech RepublicProgram ServicesDiagnostic Research00$22,500
NorwayProgram ServicesDiagnostic Research00$22,500
BelarusProgram ServicesDiagnostic Research00$22,500
CroatiaProgram ServicesDiagnostic Research00$22,500
SloveniaProgram ServicesDiagnostic Research00$22,500
Slovak RepublicProgram ServicesDiagnostic Research00$22,500
UkraineProgram ServicesDiagnostic Research00$20,000
EgyptProgram ServicesDiagnostic Research00$12,500
TunisiaProgram ServicesDiagnostic Research00$12,500
AzerbaijanProgram ServicesDiagnostic Research00$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$11,043
Fundraising Direct Expenses$10,658
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“Officer's frederick modell & vicki modell are husband and wife. Vicki modell is the daughter of director marillyn abrams.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The president and financial officer review the form 990 with the preparer”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Every matter is reviewed initially by the executive director. After review, each matter is further reviewed by the foundation's officers. Upon this level of review, any remaining issues are brought to the attention of outside independent advisors.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The foundation utilizes comparability studies as a guideline for determining compensation based on services performed.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The conflict of interest policy as well as the accountability and transparency policy, whistleblower policy and records retention policy are posted on the foundation's web-site.”

Filing and Contact Details

Filer

Filer Name
The Jeffrey Modell Foundation Inc
EIN
13-3380237
Phone
2128190200
Address
780 THIRD AVENUE, NEW YORK, NY 10017

Signing Officer

Name
Frederick Modell
Title
President
Signed
2018-08-29
Discuss with paid preparer
Yes

Organization Details

Formed
1986
Legal Domicile
Ny
Voting Board Members
51
Independent Board Members
49
Employees
14

Preparer

Firm
Adeptus Partners LLC
Address
6 EAST 45TH STREET 10TH FLOOR, NEW YORK, NY 10017
Preparer
Lawrence S Gitlitz
Phone
2127588050
Supplemental Narrative

Additional Explanations

Client Note 1

“Client Note 1 - Form 990 - Page 8, Section B - Description of ServicesCavarocchi,Ruscio, Dennis Associates, LLCNon-Government Advocacy for Education and Awareness ProgramsThe Causeway Agency - Media Placement and Monitoring of Public Service Advertising ProgramHQ Creative, LLC- Creative Development of Public Service Advertising MaterialsDo Something Film, LLC- Development, Production, and Distribution of Full Legnth Documentary Film to Provide Physician, Patient and Public Education and Awareness of Primary Immunodeficiency Diseases, GloballyAdviolan Consulting, LLCOutreach to Funding Partners in order to Provide Support for Research, Education and Awareness Programs”

Form 990, Part XII, Line 2: Change of Oversight or Selection Process

“The audited financial statements are reviewed by management”

Financial Statement Notes

Part X : FIN48 Footnote

“Part x, line 1:the foundation recognizes the effect of tax positions only when they are more likely than not to be sustained. At december 31, 2016, the foundation did not have any unrecognized tax benefits or liabilities. The foundation operates in the united states and in state and local jurisdictions, and the previous three years remain subject to examination by tax authorities. There are presently no ongoing tax examinations.”

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

“SPECIAL EVENTS $10658”

Part XII, Line 2D: Other expenses and losses per audited F/S

“SPECIAL EVENTS $10658”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$26,635,079
Liabilities
$528,353
Net assets
$26,106,726
Revenue
$11,580,429
Expenses
$6,352,516
Net income
$5,227,913
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$46.0$6.27$39.8$10.2$9.27$0.94
2023Detailed filing. Detailed filing data is available for this year.$42.9$5.89$37.0$9.60$7.36$2.24
2022Detailed filing. Detailed filing data is available for this year.$38.6$6.30$32.3$8.82$5.88$2.94
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$36.1$0.24$35.8$6.15$5.25$0.89
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$34.9$0.00$34.9$10.1$4.76$5.34
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$29.6$0.00$29.6$9.25$6.49$2.76
2018Detailed filing. Detailed filing data is available for this year.$25.3$0.00$25.3$7.43$7.03$0.40
2017Detailed filing. Detailed filing data is available for this year.$26.6$0.53$26.1$11.6$6.35$5.23
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$22.2$1.28$20.9$9.63$6.82$2.80
2015Detailed filing. Detailed filing data is available for this year.$23.0$4.95$18.1$9.04$6.22$2.82
2014Detailed filing. Detailed filing data is available for this year.$18.9$2.84$16.0$5.92$6.42$0.50
2013Detailed filing. Detailed filing data is available for this year.$22.2$3.32$18.9$7.75$6.47$1.28
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$20.9$3.28$17.6$3.84
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$17.6$5.12$12.5$5.93
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$21.8$6.70$15.1$8.11