Liabilities / Assets
39th percentile
Higher debt load relative to assets than 39% of similar nonprofits.
990 • Fiscal year 2012 • EIN 13-3380237
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
39th percentile
Higher debt load relative to assets than 39% of similar nonprofits.
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on this filing.
Net Margin
Score unavailable
Net margin requires both revenue and expenses on this filing.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
85th percentile
Faster asset growth than 85% of similar nonprofits.
Revenue Growth
Score unavailable
No valid filing value is available for this score.
Assets
Up$20,876,800
Up $3,281,829 (+19%) from 2011
Net Assets
Up$17,597,446
Up $5,121,829 (+41%) from 2011
Liabilities
Down$3,279,354
Down $1,840,000 (-36%) from 2011
Revenue
-
No earlier filing loaded for comparison.
Expenses
Down$3,844,547
Down $2,087,858 (-35%) from 2011
Net Income
-
No earlier filing loaded for comparison.
The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReview | 0 | 1 |
| IRS990/AccountantCompileOrReviewBasis/FinancialStatementSeparate | 0 | X |
| IRS990/AccountsPayableAccruedExpenses/BOY | 0 | 29354 |
| IRS990/AccountsPayableAccruedExpenses/EOY | 0 | 29354 |
| IRS990/ActivitiesConductedPartnership | 0 | 0 |
| IRS990/Activity2/Description | 0 | BASIC AND CLINICAL RESEARCH SUPPORT AT NUMEROUS EDUCATIONAL INSTITUTIONS AND HOSPITALS THROUGHOUT THE UNITED STATES AND WORLD-WIDE AS REPORTED IN ACCOMPANYING SCHEDULE F AND SCHEDULE I. IN ADDITION, THE FOUNDATION PROVIDED FUNDING TO REGIONAL AND NATIONAL PATIENT ORGANIZATIONS GLOBALLY. |
| IRS990/Activity2/Expense | 0 | 1953520 |
| IRS990/Activity2/Grants | 0 | 1006472 |
| IRS990/Activity3/Description | 0 | ENHANCEMENT OF NEWBORN SCREENING PROGRAM FOR PRIMARY IMMUNODEFICIENCY DISEASES TO CALIFORNIA DEPARTMENT OF PUBLIC HEALTH AND NEW YORK STATE DEPARTMENT OF PUBLIC HEALTH FOR SCID NEWBORN SCREENING. |
| IRS990/Activity3/Expense | 0 | 518611 |
| IRS990/ActivityOrMissionDescription | 0 | THE FOUNDATION IS DEDICATED TO THE EARLY DIAGNOSIS, TREATMENT AND ULTIMATE CURE OF PRIMARY IMMUNODEFICIENCY DISEASES. THE FOUNDATION'S PRIMARY MISSION IS SUPPORTING SCIENTIFIC RESEARCH, PHYSICIAN AND PATIENT EDUCATION, AS WELL AS PATIENT SUPPORT FOR THOSE DIAGNOSED WITH A PRIMARY IMMUNODEFICIENCY DISEASE. THE FOUNDATION GENERATES SUPPORT THROUGH CONTRIBUTIONS FROM THE GENERAL PUBLIC AND GOVERNMENT AGENCIES, AS WELL SPONSORING VARIOUS SOCIAL AND EDUCATIONAL FUNDRAISING EVENTS. |
| IRS990/AddressPrincipalOfficerUS/AddressLine1 | 0 | 780 THIRD AVENUE |
| IRS990/AddressPrincipalOfficerUS/City | 0 | NEW YORK |
| IRS990/AddressPrincipalOfficerUS/State | 0 | NY |
| IRS990/AddressPrincipalOfficerUS/ZIPCode | 0 | 10017 |
| IRS990/AllOtherContributions | 0 | 7468868 |
| IRS990/AmendedReturn | 0 | X |
| IRS990/AnnualDisclosureCoveredPersons | 0 | 1 |
| IRS990/AuditCommittee | 0 | 1 |
| IRS990/BenefitsPaidToMembersCY | 0 | 0 |
| IRS990/BenefitsPaidToMembersPriorYear | 0 | 0 |
| IRS990/BsnssRltnshpThruFamilyMember | 0 | 0 |
| IRS990/BsnssRltnshpWithOrganization | 0 | 0 |
| IRS990/CashNonInterestBearing/BOY | 0 | 790154 |
| IRS990/CashNonInterestBearing/EOY | 0 | 1022894 |
| IRS990/ChangesToOrganizingDocs | 0 | 0 |
| IRS990/CollectionsOfArt | 0 | 0 |
| IRS990/CompCurrentOfficersDirectors/Fundraising | 0 | 115871 |
| IRS990/CompCurrentOfficersDirectors/ManagementAndGeneral | 0 | 173807 |
| IRS990/CompCurrentOfficersDirectors/ProgramServices | 0 | 675915 |
| IRS990/CompCurrentOfficersDirectors/Total | 0 | 965593 |
| IRS990/CompensationFromOtherSources | 0 | 0 |
| IRS990/CompensationProcessCEO | 0 | 1 |
| IRS990/CompensationProcessOther | 0 | 1 |
| IRS990/ConferencesMeetings/ManagementAndGeneral | 0 | 31574 |
| IRS990/ConferencesMeetings/ProgramServices | 0 | 143837 |
| IRS990/ConferencesMeetings/Total | 0 | 175411 |
| IRS990/ConflictOfInterestPolicy | 0 | 1 |
| IRS990/ConservationEasements | 0 | 0 |
| IRS990/ConsolidatedAuditFinancialStmt | 0 | 0 |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/AddressLine1 | 0 | 600 MARYLAND AVENUE SUITE 835W |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/City | 0 | WASHINGTON |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/State | 0 | DC |
| IRS990/ContractorCompensation/AddressOfContractor/AddressUS/ZIPCode | 0 | 20024 |
| IRS990/ContractorCompensation/Compensation | 0 | 152430 |
| IRS990/ContractorCompensation/DescriptionOfServices | 0 | GRANTS AND PROGRAM DEVELOPMENT |
| IRS990/ContractorCompensation/NameOfContractor/NameBusiness/BusinessNameLine1 | 0 | CAVAROCCHI RUSCIO DENNIS ASSOCIATES LLC |
| IRS990/ContributionsGrantsCurrentYear | 0 | 7907578 |
| IRS990/ContributionsGrantsPriorYear | 0 | 7081028 |
| IRS990/CreditCounseling | 0 | 0 |
| IRS990/DecisionsSubjectToApproval | 0 | 0 |
| IRS990/DeductibleContributionsOfArt | 0 | 0 |
| IRS990/DeductibleNonCashContributions | 0 | 0 |
| IRS990/DelegationOfManagementDuties | 0 | 0 |
| IRS990/DepreciationDepletion/ManagementAndGeneral | 0 | 64201 |
| IRS990/DepreciationDepletion/Total | 0 | 64201 |
| IRS990/DescribedIn501C3 | 0 | 1 |
| IRS990/Description | 0 | THE ORGANIZATION CONDUCTED PUBLIC SERVICE ADVERTISING CAMPAIGNS DIRECTED TO THE GENERAL PUBLIC TO CREATE PUBLIC AWARENESS, AS WELL AS TO EDUCATE BOTH TREATING PHYSICIANS AND THE GENERAL PUBLIC ABOUT IMMUNODEFICIENCY DISEASES. PHYSICIAN EDUCATION CONSISTED OF SYMPOSIA, CONFERENCES, MEETINGS AND WORKSHOPS. |
| IRS990/DisregardedEntity | 0 | 0 |
| IRS990/DocumentRetentionPolicy | 0 | 1 |
| IRS990/DonorAdvisedFunds | 0 | 0 |
| IRS990/ElectionOfBoardMembers | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiled | 0 | 1 |
| IRS990/ExcessBenefitTransaction | 0 | 0 |
| IRS990/Expense | 0 | 689918 |
| IRS990/FamilyOrBusinessRelationship | 0 | 1 |
| IRS990/FederalGrantAuditRequired | 0 | 0 |
| IRS990/FeesForServicesAccounting/Fundraising | 0 | 2464 |
| IRS990/FeesForServicesAccounting/ManagementAndGeneral | 0 | 2847 |
| IRS990/FeesForServicesAccounting/ProgramServices | 0 | 15934 |
| IRS990/FeesForServicesAccounting/Total | 0 | 21245 |
| IRS990/FeesForServicesLegal/Fundraising | 0 | 493 |
| IRS990/FeesForServicesLegal/ManagementAndGeneral | 0 | 570 |
| IRS990/FeesForServicesLegal/ProgramServices | 0 | 3191 |
| IRS990/FeesForServicesLegal/Total | 0 | 4254 |
| IRS990/FeesForServicesOther/Fundraising | 0 | 8706 |
| IRS990/FeesForServicesOther/ManagementAndGeneral | 0 | 13533 |
| IRS990/FeesForServicesOther/ProgramServices | 0 | 72532 |
| IRS990/FeesForServicesOther/Total | 0 | 94771 |
| IRS990/FollowSFAS117 | 0 | X |
| IRS990/ForeignActivities | 0 | 1 |
| IRS990/ForeignFinancialAccount | 0 | 0 |
| IRS990/ForeignGrants/ProgramServices | 0 | 461775 |
| IRS990/ForeignGrants/Total | 0 | 461775 |
| IRS990/ForeignOffice | 0 | 0 |
| IRS990/Form8282PropertyDisposedOf | 0 | 0 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 0 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 1 | 40.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 2 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 3 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 4 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 5 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 6 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 7 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 8 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 9 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 10 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 11 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 12 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 13 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 14 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 15 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 16 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 17 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 18 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 19 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 20 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 21 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 22 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 23 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 24 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 25 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 26 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 27 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 28 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 29 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 30 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 31 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 32 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 33 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 34 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 35 | 2.00 |
| IRS990/Form990PartVIISectionA/AverageHoursPerWeek | 36 | 40.00 |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 0 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 1 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 2 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 3 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 4 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 5 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 6 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 7 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 8 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 9 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 10 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 11 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 12 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 13 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 14 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 15 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 16 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 17 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 18 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 19 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 20 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 21 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 22 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 23 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 24 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 25 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 26 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 27 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 28 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 29 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 30 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 31 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 32 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 33 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 34 | X |
| IRS990/Form990PartVIISectionA/IndividualTrusteeOrDirector | 35 | X |
| IRS990/Form990PartVIISectionA/KeyEmployee | 0 | X |
| IRS990/Form990PartVIISectionA/NamePerson | 0 | FREDERICK MODELL |
| IRS990/Form990PartVIISectionA/NamePerson | 1 | VICKI MODELL |
| IRS990/Form990PartVIISectionA/NamePerson | 2 | MARILLYN ABRAMS |
| IRS990/Form990PartVIISectionA/NamePerson | 3 | MADALEINE BERLEY ARNOLD PENNER |
| IRS990/Form990PartVIISectionA/NamePerson | 4 | HELEN CHAITMAN ESQ |
| IRS990/Form990PartVIISectionA/NamePerson | 5 | JENNIFER CHAITMAN DVM |
| IRS990/Form990PartVIISectionA/NamePerson | 6 | WILLIAM COHEN |
| IRS990/Form990PartVIISectionA/NamePerson | 7 | BETTINA EMDEN |
| IRS990/Form990PartVIISectionA/NamePerson | 8 | FRANN ERIC FRANCES |
| IRS990/Form990PartVIISectionA/NamePerson | 9 | ROBBIE ALAN FRANKLIN ESQ |
| IRS990/Form990PartVIISectionA/NamePerson | 10 | ALLYSON ALAN GALISHOFF |
| IRS990/Form990PartVIISectionA/NamePerson | 11 | ROBERT GOLDSTEIN MD PHD |
| IRS990/Form990PartVIISectionA/NamePerson | 12 | LAUREINE DAVID GREENBAUM |
| IRS990/Form990PartVIISectionA/NamePerson | 13 | VALERIE ALEX GREENBERG |
| IRS990/Form990PartVIISectionA/NamePerson | 14 | PATRICIA EDWARD GUTMAN |
| IRS990/Form990PartVIISectionA/NamePerson | 15 | JOSEPH HARBERT |
| IRS990/Form990PartVIISectionA/NamePerson | 16 | DONNA HARVEY |
| IRS990/Form990PartVIISectionA/NamePerson | 17 | KIRT HIRSCHHORN MD |
| IRS990/Form990PartVIISectionA/NamePerson | 18 | ROCHELLE HIRSCHHORN MD |
| IRS990/Form990PartVIISectionA/NamePerson | 19 | MITCHELL KONSKER |
| IRS990/Form990PartVIISectionA/NamePerson | 20 | BRENDA GARY LA VIGNA |
| IRS990/Form990PartVIISectionA/NamePerson | 21 | LISA STEVE LAWRENCE |
| IRS990/Form990PartVIISectionA/NamePerson | 22 | DEBBI MAX LEBERSFELD |
| IRS990/Form990PartVIISectionA/NamePerson | 23 | DEBBE LONGO |
| IRS990/Form990PartVIISectionA/NamePerson | 24 | WENDY JONATHAN MECHANIC ESQ |
| IRS990/Form990PartVIISectionA/NamePerson | 25 | SHELBY MODELL |
| IRS990/Form990PartVIISectionA/NamePerson | 26 | CAROL JAMES RANDEL |
| IRS990/Form990PartVIISectionA/NamePerson | 27 | ABY ROSEN |
| IRS990/Form990PartVIISectionA/NamePerson | 28 | LISA STEPHEN SIEGEL |
| IRS990/Form990PartVIISectionA/NamePerson | 29 | WENDY STEPHEN SIEGEL |
| IRS990/Form990PartVIISectionA/NamePerson | 30 | LUCIANA MICHAEL SOLOMAN |
| IRS990/Form990PartVIISectionA/NamePerson | 31 | SUSAN BARRY STEIN MD |
| IRS990/Form990PartVIISectionA/NamePerson | 32 | GALE WALLACH |
| IRS990/Form990PartVIISectionA/NamePerson | 33 | ALLYSON PHILIP M WATERMAN III |
| IRS990/Form990PartVIISectionA/NamePerson | 34 | LISA WILLIAM WEXLER |
| IRS990/Form990PartVIISectionA/NamePerson | 35 | STEVEN WITKOFF |
| IRS990/Form990PartVIISectionA/NamePerson | 36 | VANESSA TENEMBAUM |
| IRS990/Form990PartVIISectionA/Officer | 0 | X |
| IRS990/Form990PartVIISectionA/Officer | 1 | X |
| IRS990/Form990PartVIISectionA/OtherCompensation | 0 | 100000 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 1 | 100000 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 2 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 3 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 4 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 5 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 6 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 7 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 8 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 9 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 10 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 11 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 12 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 13 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 14 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 15 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 16 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 17 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 18 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 19 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 20 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 21 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 22 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 23 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 24 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 25 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 26 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 27 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 28 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 29 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 30 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 31 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 32 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 33 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 34 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 35 | 0 |
| IRS990/Form990PartVIISectionA/OtherCompensation | 36 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 0 | 395000 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 1 | 295000 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 5 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 6 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 7 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 8 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 9 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 10 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 11 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 12 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 13 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 14 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 15 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 16 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 17 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 18 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 19 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 20 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 21 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 22 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 23 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 24 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 25 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 26 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 27 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 28 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 29 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 30 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 31 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 32 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 33 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 34 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 35 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromOrganization | 36 | 157092 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 0 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 1 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 2 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 3 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 4 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 5 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 6 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 7 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 8 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 9 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 10 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 11 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 12 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 13 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 14 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 15 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 16 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 17 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 18 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 19 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 20 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 21 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 22 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 23 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 24 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 25 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 26 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 27 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 28 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 29 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 30 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 31 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 32 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 33 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 34 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 35 | 0 |
| IRS990/Form990PartVIISectionA/ReportableCompFromRelatedOrgs | 36 | 0 |
| IRS990/Form990PartVIISectionA/Title | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionA/Title | 1 | VICE PRESIDENT/SECRETARY |
| IRS990/Form990PartVIISectionA/Title | 2 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 3 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 4 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 5 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 6 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 7 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 8 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 9 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 10 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 11 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 12 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 13 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 14 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 15 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 16 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 17 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 18 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 19 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 20 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 21 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 22 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 23 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 24 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 25 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 26 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 27 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 28 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 29 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 30 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 31 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 32 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 33 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 34 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 35 | BOARD OF DIRECTORS |
| IRS990/Form990PartVIISectionA/Title | 36 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGoverningBody | 0 | 1 |
| IRS990/FormersListed | 0 | 0 |
| IRS990/FSAudited | 0 | 0 |
| IRS990/FundraisingActivities | 0 | 1 |
| IRS990/FundraisingDirectExpenses | 0 | 276651 |
| IRS990/GainOrLoss/Securities | 0 | 702923 |
| IRS990/Gaming | 0 | 0 |
| IRS990/GovernmentGrants | 0 | 438710 |
| IRS990/GrantsAndSimilarAmntsCY | 0 | 1006472 |
| IRS990/GrantsAndSimilarAmntsPriorYear | 0 | 2393399 |
| IRS990/GrantsPayable/BOY | 0 | 5090000 |
| IRS990/GrantsPayable/EOY | 0 | 3250000 |
| IRS990/GrantsToDomesticOrgs/ProgramServices | 0 | 544697 |
| IRS990/GrantsToDomesticOrgs/Total | 0 | 544697 |
| IRS990/GrantsToIndividuals | 0 | 0 |
| IRS990/GrantsToOrganizations | 0 | 1 |
| IRS990/GrantToRelatedPerson | 0 | 0 |
| IRS990/GrossAmountSalesAssets/Securities | 0 | 702923 |
| IRS990/GrossIncomeFundraisingEvents | 0 | 506549 |
| IRS990/GrossReceipts | 0 | 9243027 |
| IRS990/GroupReturnForAffiliates | 0 | 0 |
| IRS990/Hospital | 0 | 0 |
| IRS990/IndependentAuditFinancialStmt | 0 | 1 |
| IRS990/IndoorTanningServices | 0 | 0 |
| IRS990/InfoInScheduleOPartVI | 0 | X |
| IRS990/InfoInScheduleOPartXII | 0 | X |
| IRS990/InvestmentIncomeCurrentYear | 0 | 828900 |
| IRS990/InvestmentIncomePriorYear | 0 | -17346 |
| IRS990/InvestmentIncome/RelatedOrExemptFunctionIncome | 0 | 125977 |
| IRS990/InvestmentIncome/TotalRevenueColumn | 0 | 125977 |
| IRS990/InvestmentInJointVenture | 0 | 0 |
| IRS990/InvestmentsOtherSecurities/BOY | 0 | 9940865 |
| IRS990/InvestmentsOtherSecurities/EOY | 0 | 9929544 |
| IRS990/LandBldgEquipmentAccumDeprec | 0 | 126300 |
| IRS990/LandBuildingsEquipmentBasis | 0 | 377020 |
| IRS990/LandBuildingsEquipmentBasisNet/BOY | 0 | 292091 |
| IRS990/LandBuildingsEquipmentBasisNet/EOY | 0 | 250720 |
| IRS990/LessCostOthBasisSalesExpenses/Securities | 0 | 0 |
| IRS990/LoanToOfficerOrDQP | 0 | 0 |
| IRS990/LobbyingActivities | 0 | 0 |
| IRS990/LocalChapters | 0 | 0 |
| IRS990/MaterialDiversionOrMisuse | 0 | 0 |
| IRS990/MembersOrStockholders | 0 | 0 |
| IRS990/MethodOfAccountingAccrual | 0 | X |
| IRS990/MinutesOfCommittees | 0 | 1 |
| IRS990/MinutesOfGoverningBody | 0 | 1 |
| IRS990/MissionDescription | 0 | THE FOUNDATION IS DEDICATED TO THE EARLY DIAGNOSIS, TREATMENT AND ULTIMATE CURE OF PRIMARY IMMUNODEFICIENCY DISEASES. THE FOUNDATION'S PRIMARY MISSION IS SUPPORTING SCIENTIFIC RESEARCH, PHYSICIAN AND PATIENT EDUCATION, AS WELL AS PATIENT SUPPORT. |
| IRS990/MoreThan5000KToIndividuals | 0 | 0 |
| IRS990/MoreThan5000KToOrganizations | 0 | 1 |
| IRS990/NameOfPrincipalOfficerPerson | 0 | FREDERICK MODELL |
| IRS990/NbrIndependentVotingMembers | 0 | 49 |
| IRS990/NbrVotingGoverningBodyMembers | 0 | 51 |
| IRS990/NbrVotingMembersGoverningBody | 0 | 51 |
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Displayed year
2012 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.