Civic Intelligence

The Jeffrey Modell Foundation Inc

EIN 13-3380237 • 501(c)3 • New York, NY

View Organization Page

Profile

The foundation is dedicated to the early diagnosis, treatment and ultimate cure of primary immunodeficiency diseases. The foundation's primary mission is supporting scientific research, physician and patient education, as well as patient support for those diagnosed with a primary immunodeficiency disease. The foundation generates support through contributions from the general public and government agencies, as well as sponsoring various social and educational fundraising events.

780 Third AvenueNew York, NY 10017

www.info4pi.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

41st percentile

0.14x

Higher debt load relative to assets than 41% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Liabilities / Revenue

69th percentile

0.61x

Higher debt load relative to revenue than 69% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Net Margin

61st percentile

9.2%

Higher net margin than 61% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

62nd percentile

9.1%

Faster asset growth than 62% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2022 to 2024

Revenue Growth

51st percentile

7.6%

Faster revenue growth than 51% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets41st percentile

Assets

Up

$46,039,860

Up $3,117,945 (+7.3%) from 2023

Liabilities

Up

$6,267,167

Up $377,841 (+6.4%) from 2023

Net Assets

Up

$39,772,693

Up $2,740,104 (+7.4%) from 2023

Operations
Liabilities / Revenue69th percentileNet Margin61st percentile

Revenue

Up

$10,208,043

Up $605,594 (+6.3%) from 2023

Expenses

Up

$9,266,854

Up $1,906,565 (+26%) from 2023

Net Income

Down

$941,189

Down $1,300,971 (-58%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth62nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$60M$40M$20M$0Assets 2010: $21,827,969Liabilities 2010: $6,702,744Net Assets 2010: $15,125,2252010Assets 2011: $17,594,971Liabilities 2011: $5,119,354Net Assets 2011: $12,475,6172011Assets 2012: $20,876,800Liabilities 2012: $3,279,354Net Assets 2012: $17,597,4462012Assets 2013: $22,197,479Liabilities 2013: $3,315,114Net Assets 2013: $18,882,3652013Assets 2014: $18,851,910Liabilities 2014: $2,835,290Net Assets 2014: $16,016,6202014Assets 2015: $23,024,399Liabilities 2015: $4,949,853Net Assets 2015: $18,074,5462015Assets 2016: $22,157,166Liabilities 2016: $1,278,353Net Assets 2016: $20,878,8132016Assets 2017: $26,635,079Liabilities 2017: $528,353Net Assets 2017: $26,106,7262017Assets 2018: $25,321,596Liabilities 2018: $0Net Assets 2018: $25,321,5962018Assets 2019: $29,605,614Liabilities 2019: $0Net Assets 2019: $29,605,6142019Assets 2020: $34,942,139Liabilities 2020: $0Net Assets 2020: $34,942,1392020Assets 2021: $36,072,018Liabilities 2021: $238,486Net Assets 2021: $35,833,5322021Assets 2022: $38,647,183Liabilities 2022: $6,301,208Net Assets 2022: $32,345,9752022Assets 2023: $42,921,915Liabilities 2023: $5,889,326Net Assets 2023: $37,032,5892023Assets 2024: $46,039,860Liabilities 2024: $6,267,167Net Assets 2024: $39,772,6932024

Highlighted filing

2024

Assets$46,039,860
Liabilities$6,267,167
Net Assets$39,772,693
Open 2024 Filing

Operations Trend

Revenue Growth51st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $8,107,8132010Expenses 2011: $5,932,4052011Expenses 2012: $3,844,5472012Revenue 2013: $7,754,730Expenses 2013: $6,469,811Net Income 2013: $1,284,9192013Revenue 2014: $5,915,910Expenses 2014: $6,419,391Net Income 2014: -$503,4812014Revenue 2015: $9,035,805Expenses 2015: $6,218,770Net Income 2015: $2,817,0352015Revenue 2016: $9,626,921Expenses 2016: $6,822,653Net Income 2016: $2,804,2682016Revenue 2017: $11,580,429Expenses 2017: $6,352,516Net Income 2017: $5,227,9132017Revenue 2018: $7,432,855Expenses 2018: $7,031,074Net Income 2018: $401,7812018Revenue 2019: $9,251,111Expenses 2019: $6,494,579Net Income 2019: $2,756,5322019Revenue 2020: $10,094,863Expenses 2020: $4,758,338Net Income 2020: $5,336,5252020Revenue 2021: $6,146,213Expenses 2021: $5,254,820Net Income 2021: $891,3932021Revenue 2022: $8,819,209Expenses 2022: $5,875,800Net Income 2022: $2,943,4092022Revenue 2023: $9,602,449Expenses 2023: $7,360,289Net Income 2023: $2,242,1602023Revenue 2024: $10,208,043Expenses 2024: $9,266,854Net Income 2024: $941,1892024

Highlighted filing

2024

Revenue$10,208,043
Expenses$9,266,854
Net Income$941,189
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$46,039,860
Liabilities
$6,267,167
Net assets
$39,772,693
Revenue
$10,208,043
Expenses
$9,266,854
Net income
$941,189
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$46.0$6.27$39.8$10.2$9.27$0.94
2023Detailed filing. Detailed filing data is available for this year.$42.9$5.89$37.0$9.60$7.36$2.24
2022Detailed filing. Detailed filing data is available for this year.$38.6$6.30$32.3$8.82$5.88$2.94
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$36.1$0.24$35.8$6.15$5.25$0.89
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$34.9$0.00$34.9$10.1$4.76$5.34
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$29.6$0.00$29.6$9.25$6.49$2.76
2018Detailed filing. Detailed filing data is available for this year.$25.3$0.00$25.3$7.43$7.03$0.40
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$26.6$0.53$26.1$11.6$6.35$5.23
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$22.2$1.28$20.9$9.63$6.82$2.80
2015Detailed filing. Detailed filing data is available for this year.$23.0$4.95$18.1$9.04$6.22$2.82
2014Detailed filing. Detailed filing data is available for this year.$18.9$2.84$16.0$5.92$6.42$0.50
2013Detailed filing. Detailed filing data is available for this year.$22.2$3.32$18.9$7.75$6.47$1.28
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$20.9$3.28$17.6$3.84
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$17.6$5.12$12.5$5.93
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$21.8$6.70$15.1$8.11
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2023 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 4, 2024
Return Version
2023v5.1
Gross Receipts
$11,900,335
Mission and Program Overview

Mission

The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$21,493,898$25,662,690▲ $4,168,792
Cash and Non-Interest-Bearing Accounts$9,148,035$10,350,828▲ $1,202,793
Pledges and Grants Receivable$102,076$15,270▼ $86,806
Land, Buildings, and Equipment, Net$18,428$13,033▼ $5,395
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$38,647,183$42,921,915▲ $4,274,732
Other Assets Total$7,884,746$6,880,094▼ $1,004,652
Liabilities
Other Liabilities$6,287,563$5,865,681▼ $421,882
Accounts Payable and Accrued Expenses$13,645$13,645→ $0
Deferred Revenue-$10,000-
Total Liabilities$6,301,208$5,889,326▼ $411,882
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$32,345,975$37,032,589▲ $4,686,614
Total Net Assets Fund Balance$32,345,975$37,032,589▲ $4,686,614
Total Liabilities and Net Assets / Fund Balance$38,647,183$42,921,915▲ $4,274,732

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings-$176,446$176,446
Equipment$13,033$114,766$127,799
Leasehold Improvements-$120,158$120,158
Other Assets Org$83,509--
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Frederick ModellPresidentFT$406,346$406,346
Vanessa TenembaumExecutive DirectorFT$298,371$298,371
Vanessa Tenembaum--$298,371$298,371
Jessica QuinnScientific DirectorFT$176,948$176,948
Roger DavillaChief Financial OfficerFT$176,371$176,371
Roger DavillaExecutive Director-$176,371$176,371
Christopher SimsDirectorFT$176,179$176,179
Christopher SimsChief Financial Officer-$176,179$176,179

Board Members and Trustees

NameTitle
Allyson Alan GalishoffDirector
Bettina EmdenDirector
Brenda Gary LavignaDirector
Carol James RandelDirector
Debbe Longo StroutDirector
Debbi Max LebersfeldDirector
Faisal KhalidDirector
Felice AxelrodDirector
Frann Eric FrancisDirector
Gene ManheimDirector
Greg SmithDirector
Hassan AhmedDirector
Helen Chaitman EsqDirector
Jason ShumanDirector
Jennifer Chaitman DvmDirector
Jodi PuliceDirector
Jonathan Mechanic EsqDirector
Lisa Stephen LawrenceDirector
Lisa Stephen ShumanDirector
Lisa William WexlerDirector
Luciana Michael SolomonDirector
Lynn ManheimDirector
Michael DavidsonDirector
Robbie Alan FranklinesqDirector
Ryan G SmithDirector
Susan Barry Stein MdDirector
Wendy LevineDirector
Taylor Smith-
Ron SnyderOverseer

Highest Paid Contractors

ContractorServicesLocationCompensation
Invitae CorporationSchedule AttachedPO BOX 24132, Pasadena, CA 91185$316,795
Hq Creative LLCSchedule Attached490 WEST END AVENUE SUITE 5C, New York, NY 10025$295,915
Elevare Consulting Group LLCSchedule Attached14865 WINWARD LANE, Naples, FL 34114$276,661
The Causeway AgencySchedule Attached21 CHARLES STREET SUITE 201, Westport, CT 06880$230,525
Cavarocchi Ruscio Dennis Associates LLCSchedule Attached600 MARYLAND AVENUE SUITE 835W, washington, DC 20024$171,000
Revenue and Support

Revenue Composition

Contributions and Grants
$9,078,111
Program Service Revenue
$0
Investment Income
$524,338
Other Revenue
$0
All Other Contributions
$6,078,111
Change in Net Assets
$2,242,160

Audited Revenue Reconciliation

Revenue per Audited Statements
$9,602,449
Revenue Not Reported on Form 990
$35,640,351
Total Revenue per Audited Statements
$45,242,800
Total Revenue per Form 990
$9,602,449
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,299,877
Grants and Similar Amounts Paid$2,094,727
Salaries, Compensation, and Employee Benefits$1,965,685
Total Fundraising Expense$259,118
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$1,098,451$74,053$61,711$1,234,215
Grants to Domestic Orgs$1,083,904--$1,083,904
Foreign Grants$1,010,823--$1,010,823
Occupancy$906,941$48,241-$955,182
Conferences and Meetings$737,757$52,472$41,447$831,676
Other Salaries and Wages$650,850$44,056$36,564$731,470
Information Technology$135,964$14,315$9,544$159,823
Other Expenses$84,712$17,600$61,200$145,912
Fees for Services Legal$35,446$82,708-$118,154
All Other Expenses$45,073$3,039$2,706$50,818
Travel$42,711$3,359$1,920$47,990
Depreciation Depletion$5,396--$5,396
Total Functional Expenses$6,723,857$377,314$259,118$7,360,289

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$40,559,792
Expenses Not Reported on Form 990$33,199,503
Expenses per Audited Statements$7,360,289
Total Expenses per Form 990$7,360,289
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Ucla Foundation-geffen SchoolLos Angeles, CA-Research$107,544
Childrens Hosp-philadelphiaPhiladelphia, PA-Research$103,000
New York UniversityNew York, NY-Research$100,000
Columbia UniversityNew York, NY-Research$81,000
Individual Small GrantsNew York, NY-Research$66,760
Boston Childrens HospitalBoston, MA-Reserach$50,000
Childrens Hosp of ColoradoAurora, CO-Research$50,000
Lurie Childrens HospitalChicago, IL-Research$50,000
Texas Childrens HospitalHouston, TX-Research$50,000
Washington Univer-st LouisSt Louis, MO-Research$40,000
University of South FloridaTampa, FL-Research$33,600
All Childrens HospitalSt Petersburg, FL-Research$25,000
Baylor College of MedicineHouston, TX-Research$25,000
Childrens Natl Medical CtrWashington, DC-Research$25,000
Duke Univ School of MedDurham, NC-Research$25,000
Medical Univ- South CarolinaCharleston, SC-Research$25,000
Nationwide Childrens HospColumbus, OH-Research$25,000
Regents of Uc IrvineIrvine, CA-Research$25,000
Saint Louis UniversitySt Louis, MO-Research$25,000
Seattle Childrens ResearchSeattle, WA-Research$25,000
St Louis Childrens HospSt Louis, MO-Research$25,000
Univ of Texas Sw Med CtrDallas, TX-Research$25,000
Univ of VirginiaCharlottesville, VA-Research$25,000
University of PittburghPittsburgh, PA-Research$25,000
University of San DiegoSan Diego, CA-Research$15,000
Harvard Immunology Phd ProgBoston, MA-Research$12,000

International Summary

Spending
$1,010,873

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
ItalyProgram ServicesDiagnostic Research00$100,000
SpainProgram ServicesDiagnostic Research00$100,000
GermanyProgram ServicesDiagnostic Research00$75,000
PeruProgram ServicesDiagnostic Research00$66,600
IsraelProgram ServicesDiagnostic Research00$63,370
NetherlandsProgram ServicesDiagnostic Research00$58,750
United KingdomProgram ServicesDiagnostic Research00$55,000
BrazilProgram ServicesDiagnostic Research00$50,000
AustriaProgram ServicesDiagnostic Research00$45,000
CanadaProgram ServicesDiagnostic Research00$41,500
ArgentinaProgram ServicesDiagnostic Research00$30,040
PolandProgram ServicesDiagnostic Research00$30,000
UgandaProgram ServicesDiagnostic Research00$30,000
ColumbiaProgram ServicesDiagnostic Services00$30,000
BelgiumProgram ServicesDiagnostic Research00$25,000
ChileProgram ServicesDiagnostic Research00$25,000
FranceProgram ServicesDiagnostic Research00$25,000
JapanProgram ServicesDiagnostic Research00$25,000
AustraliaProgram ServicesDiagnostic Research00$25,000
SwedenProgram ServicesDiagnostic Research00$25,000
MexicoProgram ServicesDiagnostic Research00$25,000
Czech RepublicProgram ServicesDiagnostic Research00$22,500
RomaniaProgram ServicesDiagnostic Research00$13,900
TunisiaProgram ServicesDiagnostic Services00$12,500
IndiaProgram ServicesDiagnostic Research00$11,713
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$5,865,681
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The president and financial officer review the form 990 with the preparer”

Form 990, Part VI, Section B, Line 12C

“Every matter is reviewed initially by the executive director. After review, each matter is further reviewed by the foundation's officers. Upon this level of review, any remaining issues are brought to the attention of outside independent advisors.”

Form 990, Part VI, Section B, Line 15A

“The foundation utilizes comparability studies as a guideline for determining compensation based on services performed.”

Form 990, Part VI, Section C, Line 19

“The conflict of interest policy as well as the accountability and transparency policy, whistleblower policy and records retention policy are posted on the foundation's web-site.”

Filing and Contact Details

Filer

Filer Name
The Jeffrey Modell Foundation Inc
EIN
13-3380237
Phone
2128190200
Address
780 THIRD AVENUE, NEW YORK, NY 10017

Signing Officer

Name
Frederick Modell
Title
President
Signed
2024-11-04
Discuss with paid preparer
Yes

Organization Details

Formed
1986
Legal Domicile
Ny
Voting Board Members
41
Independent Board Members
41
Employees
12

Preparer

Firm
Adeptus Advisors LLC
Address
244 WEST 54TH STREET 9TH FLOOR, NEW YORK, NY 10019
Preparer
Lawrence S Gitlitz
Phone
2127588050
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The audited financial statements are reviewed by management”

Statement Note 1

“Form 990 - Page 8, Section B - Description of ServicesCavarocchi,Ruscio, Dennis Associates, LLCNon-Government Advocacy for Education and Awareness ProgramsThe Causeway Agency - Media Placement and Monitoring of Public Service Advertising ProgramInvitae Corporation - Clinical Diagnostic LaboratoryHQ Creative, LLC - Creative and Marketing FirmElevare Consulting Group, LLC - Destination/Meeting planner focused on Rare Diseases”

Financial Statement Notes

Part X : FIN48 Footnote

“Part x, line 1:the foundation recognizes the effect of tax positions only when they are more likely than not to be sustained. At december 31, 2022, the foundation did not have any unrecognized tax benefits or liabilities. The foundation operates in the united states and in state and local jurisdictions, and the previous three years remain subject to examination by tax authorities. There are presently no ongoing tax examinations.”

Raw XML AppendixShowing 400 of 1,198 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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