Liabilities / Assets
29th percentile
Higher debt load relative to assets than 29% of similar nonprofits.
990 • Fiscal year 2014 • EIN 13-3128296
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
29th percentile
Higher debt load relative to assets than 29% of similar nonprofits.
Liabilities / Revenue
36th percentile
Higher debt load relative to revenue than 36% of similar nonprofits.
Net Margin
14th percentile
Higher net margin than 14% of similar nonprofits.
Top Officer Pay
53rd percentile
Higher top officer pay than 53% of similar nonprofits.
Top officer pay equals 12.7% of source-year revenue.
Asset Growth
19th percentile
Faster asset growth than 19% of similar nonprofits.
Revenue Growth
20th percentile
Faster revenue growth than 20% of similar nonprofits.
Assets
Down$1,495,215
Down $83,564 (-5.3%) from 2013
Net Assets
Down$1,465,649
Down $101,701 (-6.5%) from 2013
Liabilities
Up$29,566
Up $18,137 (+159%) from 2013
Revenue
Down$538,633
Down $69,814 (-11%) from 2013
Expenses
Up$643,654
Up $7,376 (+1.2%) from 2013
Net Income
Down-$105,021
Down $77,190 (-277%) from 2013
Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $841,302 | $735,464 | ▼ $105,838 |
| Investments Other Securities | $547,861 | $626,558 | ▲ $78,697 |
| Cash and Non-Interest-Bearing Accounts | $169,025 | $111,636 | ▼ $57,389 |
| Accounts Receivable | $19,340 | $16,685 | ▼ $2,655 |
| Prepaid Expenses and Deferred Charges | $1,251 | $3,486 | ▲ $2,235 |
| Inventories for Sale or Use | - | $1,386 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Total Assets | $1,578,779 | $1,495,215 | ▼ $83,564 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $11,429 | $29,566 | ▲ $18,137 |
| Total Liabilities | $11,429 | $29,566 | ▲ $18,137 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,567,300 | $1,465,649 | ▼ $101,651 |
| Temporarily Rstr Net Assets | $50 | - | - |
| Total Net Assets Fund Balance | $1,567,350 | $1,465,649 | ▼ $101,701 |
| Total Liabilities and Net Assets / Fund Balance | $1,578,779 | $1,495,215 | ▼ $83,564 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Jay Peak | Executive Director | FT | $68,500 | $68,500 |
| Name | Title |
|---|---|
| Bruce Cowan | Co- President |
| Jeff Mace | Co-President |
| Marc Krieger | Vice President |
| Debra Signorelli | Board Member |
| Emily Chillino | Board Member |
| Estelle Randolph | Board Member |
| Frederick Shaw | Board Member |
| Gerold Kirschner | Board Member |
| Marilyn Sibley | Board Member |
| Maryann Caliri | Board Member |
| Suzy Ballantyne | Board Member |
| June Bender | Secretary |
| Rosemary Markoff | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $355,092 |
| Salaries, Compensation, and Employee Benefits | $288,562 |
| Total Fundraising Expense | $158,614 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $72,032 | $16,007 | $72,033 | $160,072 |
| Current Officers, Directors, Trustees, and Key Employees | $30,825 | $6,850 | $30,825 | $68,500 |
| Other Employee Benefits | $16,529 | $3,673 | $16,528 | $36,730 |
| All Other Expenses | $17,177 | $11,759 | $5,592 | $34,528 |
| Advertising | $25,228 | $1,402 | $6,968 | $33,598 |
| Fees for Services Other | $9,110 | $14,117 | $1,906 | $25,133 |
| Payroll Taxes | $8,240 | $1,831 | $8,239 | $18,310 |
| Other Expenses | $13,559 | $1,417 | $6,380 | $13,559 |
| Conferences and Meetings | $5,953 | $1,229 | $5,529 | $12,711 |
| Travel | $9,475 | $1,873 | - | $11,348 |
| Office Expenses | $1,379 | $4,144 | $1,058 | $6,581 |
| Pension Plan Contributions | $2,228 | $495 | $2,227 | $4,950 |
| Insurance | $1,329 | $299 | $1,329 | $2,957 |
| Total Functional Expenses | $419,944 | $65,096 | $158,614 | $643,654 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $643,654 |
| Total Expenses per Audited Statements | $643,654 |
| Total Expenses per Form 990 | $643,654 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $429,366 |
| Fundraising Direct Expenses | $81,267 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $407,035 | $407,035 | $73,546 | $333,489 |
| Annual Raffle | $16,707 | $16,707 | $7,721 | $8,986 |
| Total Events | $423,742 | $423,742 | $81,267 | $342,475 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Form 990 and financial statements discussed with executive director and treasurer before filing.”
“Monitors during board meetings”
“Discussed at board meetings”
“Discussed at board meetings”
“All information is available upon request”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 11429 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 29566 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 19340 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 16685 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 6968 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1402 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 25228 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 33598 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 163912 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 5592 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 11759 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 17177 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 34528 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | false |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | JAY PEAK |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6077232239 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 59 FRONT STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BINGHAMTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13905 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 169025 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 111636 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 30825 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 6850 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 30825 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 68500 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 5529 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 1229 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 5953 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 12711 |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 163912 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 12605 |
| IRS990/CYOtherExpensesAmt | 0 | 355092 |
| IRS990/CYOtherRevenueAmt | 0 | 348252 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 13864 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -105021 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 288562 |
| IRS990/CYTotalExpensesAmt | 0 | 643654 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 158614 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 538633 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARDS RESEARCH GRANTS AS WELL AS AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 8 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 200500 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 1906 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 14117 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 9110 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 25133 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DEBRA SIGNORELLI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROSEMARY MARKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JEFF MACE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | BRUCE COWAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ESTELLE RANDOLPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARYANN CALIRI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JUNE BENDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | EMILY CHILLINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MARC KRIEGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | SUZY BALLANTYNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | GEROLD KIRSCHNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | FREDERICK SHAW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | MARILYN SIBLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | JAY PEAK |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 68500 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Co-President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Co- President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 81267 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 429366 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 13 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 619900 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 13 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1329 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 299 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1329 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2957 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 1386 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 12605 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 12605 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 547861 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 626558 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 1 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1567350 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1465649 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 348099 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 348099 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 3320 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1058 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4144 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1379 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 6581 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 16528 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 3673 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 16529 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 36730 |
| IRS990/OtherExpensesGrp/Desc | 0 | FEDERATION ASSESSMENT |
| IRS990/OtherExpensesGrp/Desc | 1 | RESEARCH PLEDGE - RESTRICTED |
| IRS990/OtherExpensesGrp/Desc | 2 | RENT |
| IRS990/OtherExpensesGrp/Desc | 3 | EDUCATIONAL FORUMS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 6380 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1417 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 127125 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 73375 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 6380 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 13559 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 127125 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 73375 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 14177 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 13559 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | miscellaneous |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 153 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 153 |
| IRS990/OtherRevenueTotalAmt | 0 | 153 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 72033 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 16007 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 72032 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 160072 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 8239 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1831 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8240 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 18310 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 2227 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 495 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2228 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 4950 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 1251 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 3486 |
| IRS990/PrincipalOfficerNm | 0 | BRUCE COWAN |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | EDUCATIONAL FORUMS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 13864 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 13864 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNCILING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 180657 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 38787 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 180092 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 13706 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 317210 |
| IRS990/PYOtherRevenueAmt | 0 | 399517 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 15132 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -27831 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 319068 |
| IRS990/PYTotalExpensesAmt | 0 | 636278 |
| IRS990/PYTotalRevenueAmt | 0 | 608447 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -105021 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 841302 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 735464 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 163912 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 180092 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 160457 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 146554 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 191087 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 842102 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 12605 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 13706 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 16389 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 18191 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 20839 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 81730 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 443230 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 505428 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 509368 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 449205 |
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Displayed year
2014 • Form 990Detailed filing. Detailed filing data is available for this year.