Civic Intelligence

Scleroderma Foundation Tri-State Inc Chapter

990 • Fiscal year 2014 • EIN 13-3128296

Jan 01, 2014 to Dec 31, 2014 • Filed on Jul 24, 2015

59 Front StreetBinghamton, NY 13905

(607) 723-2239

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.02x

Higher debt load relative to assets than 29% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

36th percentile

0.05x

Higher debt load relative to revenue than 36% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

14th percentile

-19%

Higher net margin than 14% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

53rd percentile

$68,500

Higher top officer pay than 53% of similar nonprofits.

Top officer pay equals 12.7% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

19th percentile

-5.3%

Faster asset growth than 19% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

20th percentile

-11%

Faster revenue growth than 20% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Assets

Down

$1,495,215

Down $83,564 (-5.3%) from 2013

Net Assets

Down

$1,465,649

Down $101,701 (-6.5%) from 2013

Liabilities

Up

$29,566

Up $18,137 (+159%) from 2013

Revenue

Down

$538,633

Down $69,814 (-11%) from 2013

Expenses

Up

$643,654

Up $7,376 (+1.2%) from 2013

Net Income

Down

-$105,021

Down $77,190 (-277%) from 2013

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $1,593,350Liabilities 2011: $0Net Assets 2011: $1,593,3502011Assets 2012: $1,603,050Liabilities 2012: $0Net Assets 2012: $1,603,0502012Assets 2013: $1,578,779Liabilities 2013: $11,429Net Assets 2013: $1,567,3502013Assets 2014: $1,495,215Liabilities 2014: $29,566Net Assets 2014: $1,465,6492014Assets 2015: $1,417,646Liabilities 2015: $26,822Net Assets 2015: $1,390,8242015Assets 2016: $1,234,049Liabilities 2016: $14,984Net Assets 2016: $1,219,0652016Assets 2017: $1,081,343Liabilities 2017: $94,529Net Assets 2017: $986,8142017Assets 2018: $850,014Liabilities 2018: $12,092Net Assets 2018: $837,9222018Assets 2019: $991,330Liabilities 2019: $13,219Net Assets 2019: $978,1112019Assets 2020: $951,447Liabilities 2020: $11,815Net Assets 2020: $939,6322020Assets 2021: $974,224Liabilities 2021: $40,459Net Assets 2021: $933,7652021Assets 2022: $893,042Liabilities 2022: $13,401Net Assets 2022: $879,6412022Assets 2023: $809,750Liabilities 2023: $0Net Assets 2023: $809,7502023Assets 2024: $0Net Assets 2024: $02024

Highlighted filing

2014

Assets$1,495,215
Liabilities$29,566
Net Assets$1,465,649

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500K-$1.0MRevenue 2011: $520,950Expenses 2011: $494,301Net Income 2011: $26,6492011Revenue 2012: $601,902Expenses 2012: $595,767Net Income 2012: $6,1352012Revenue 2013: $608,447Expenses 2013: $636,278Net Income 2013: -$27,8312013Revenue 2014: $538,633Expenses 2014: $643,654Net Income 2014: -$105,0212014Revenue 2015: $531,021Expenses 2015: $605,705Net Income 2015: -$74,6842015Revenue 2016: $494,004Expenses 2016: $666,920Net Income 2016: -$172,9162016Revenue 2017: $462,472Expenses 2017: $693,855Net Income 2017: -$231,3832017Revenue 2018: $436,873Expenses 2018: $556,047Net Income 2018: -$119,1742018Revenue 2019: $442,869Expenses 2019: $359,417Net Income 2019: $83,4522019Revenue 2020: $339,573Expenses 2020: $426,086Net Income 2020: -$86,5132020Revenue 2021: $314,907Expenses 2021: $365,037Net Income 2021: -$50,1302021Revenue 2022: $254,697Expenses 2022: $182,278Net Income 2022: $72,4192022Revenue 2023: $13,837Expenses 2023: $177,457Net Income 2023: -$163,6202023Revenue 2024: $1,672Expenses 2024: $813,470Net Income 2024: -$811,7982024

Highlighted filing

2014

Revenue$538,633
Expenses$643,654
Net Income-$105,021
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Jul 24, 2015
Return Version
2014v5.0
Gross Receipts
$619,900
Mission and Program Overview

Mission

Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$841,302$735,464▼ $105,838
Investments Other Securities$547,861$626,558▲ $78,697
Cash and Non-Interest-Bearing Accounts$169,025$111,636▼ $57,389
Accounts Receivable$19,340$16,685▼ $2,655
Prepaid Expenses and Deferred Charges$1,251$3,486▲ $2,235
Inventories for Sale or Use-$1,386-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Total Assets$1,578,779$1,495,215▼ $83,564
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$11,429$29,566▲ $18,137
Total Liabilities$11,429$29,566▲ $18,137
Net Assets / Fund Balance
Unrestricted Net Assets$1,567,300$1,465,649▼ $101,651
Temporarily Rstr Net Assets$50--
Total Net Assets Fund Balance$1,567,350$1,465,649▼ $101,701
Total Liabilities and Net Assets / Fund Balance$1,578,779$1,495,215▼ $83,564
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Jay PeakExecutive DirectorFT$68,500$68,500

Board Members and Trustees

NameTitle
Bruce CowanCo- President
Jeff MaceCo-President
Marc KriegerVice President
Debra SignorelliBoard Member
Emily ChillinoBoard Member
Estelle RandolphBoard Member
Frederick ShawBoard Member
Gerold KirschnerBoard Member
Marilyn SibleyBoard Member
Maryann CaliriBoard Member
Suzy BallantyneBoard Member
June BenderSecretary
Rosemary MarkoffTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$163,912
Program Service Revenue
$13,864
Investment Income
$12,605
Other Revenue
$348,252
All Other Contributions
$163,912
Change in Net Assets
$-105,021

Audited Revenue Reconciliation

Revenue per Audited Statements
$538,633
Total Revenue per Audited Statements
$538,633
Total Revenue per Form 990
$538,633
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$355,092
Salaries, Compensation, and Employee Benefits$288,562
Total Fundraising Expense$158,614
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$72,032$16,007$72,033$160,072
Current Officers, Directors, Trustees, and Key Employees$30,825$6,850$30,825$68,500
Other Employee Benefits$16,529$3,673$16,528$36,730
All Other Expenses$17,177$11,759$5,592$34,528
Advertising$25,228$1,402$6,968$33,598
Fees for Services Other$9,110$14,117$1,906$25,133
Payroll Taxes$8,240$1,831$8,239$18,310
Other Expenses$13,559$1,417$6,380$13,559
Conferences and Meetings$5,953$1,229$5,529$12,711
Travel$9,475$1,873-$11,348
Office Expenses$1,379$4,144$1,058$6,581
Pension Plan Contributions$2,228$495$2,227$4,950
Insurance$1,329$299$1,329$2,957
Total Functional Expenses$419,944$65,096$158,614$643,654

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$643,654
Total Expenses per Audited Statements$643,654
Total Expenses per Form 990$643,654
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$429,366
Fundraising Direct Expenses$81,267
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walks$407,035$407,035$73,546$333,489
Annual Raffle$16,707$16,707$7,721$8,986
Total Events$423,742$423,742$81,267$342,475
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

Form 990 and financial statements discussed with executive director and treasurer before filing.

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

Monitors during board meetings

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

Discussed at board meetings

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

Discussed at board meetings

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

All information is available upon request

Filing and Contact Details

Filer

Filer Name
Scleroderma Foundation
EIN
13-3128296
Phone
6077232239
Address
59 FRONT STREET, BINGHAMTON, NY 13905

Signing Officer

Name
Bruce Cowan
Title
President
Signed
2015-07-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Bruce Cowan
Formed
1981
Legal Domicile
Ny
Voting Board Members
13
Independent Board Members
13
Employees
8
Volunteers
350

Preparer

Firm
Piaker & Lyons PC
Address
PO Box 1330, Binghamton, NY 13902-1330
Preparer
Janeen F Sutryk
Phone
6077299373
Raw XML AppendixShowing 400 of 561 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt011429
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt029566
IRS990/AccountsReceivableGrp/BOYAmt019340
IRS990/AccountsReceivableGrp/EOYAmt016685
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS.
IRS990/AdvertisingGrp/FundraisingAmt06968
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01402
IRS990/AdvertisingGrp/ProgramServicesAmt025228
IRS990/AdvertisingGrp/TotalAmt033598
IRS990/AllAffiliatesIncludedInd0false
IRS990/AllOtherContributionsAmt0163912
IRS990/AllOtherExpensesGrp/FundraisingAmt05592
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt011759
IRS990/AllOtherExpensesGrp/ProgramServicesAmt017177
IRS990/AllOtherExpensesGrp/TotalAmt034528
IRS990/AnnualDisclosureCoveredPrsnInd0false
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0JAY PEAK
IRS990/BooksInCareOfDetail/PhoneNum06077232239
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt059 FRONT STREET
IRS990/BooksInCareOfDetail/USAddress/CityNm0BINGHAMTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NY
IRS990/BooksInCareOfDetail/USAddress/ZIPCd013905
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0169025
IRS990/CashNonInterestBearingGrp/EOYAmt0111636
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt030825
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt06850
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt030825
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt068500
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConferencesMeetingsGrp/FundraisingAmt05529
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt01229
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt05953
IRS990/ConferencesMeetingsGrp/TotalAmt012711
IRS990/ConflictOfInterestPolicyInd0false
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0163912
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt012605
IRS990/CYOtherExpensesAmt0355092
IRS990/CYOtherRevenueAmt0348252
IRS990/CYProgramServiceRevenueAmt013864
IRS990/CYRevenuesLessExpensesAmt0-105021
IRS990/CYSalariesCompEmpBnftPaidAmt0288562
IRS990/CYTotalExpensesAmt0643654
IRS990/CYTotalFundraisingExpenseAmt0158614
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0538633
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARDS RESEARCH GRANTS AS WELL AS AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt08
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExpenseAmt0200500
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/TotalAmt00
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/FundraisingAmt01906
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt014117
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt09110
IRS990/FeesForServicesOtherGrp/TotalAmt025133
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt130.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt02.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt65.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1340.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/PersonNm0DEBRA SIGNORELLI
IRS990/Form990PartVIISectionAGrp/PersonNm1ROSEMARY MARKOFF
IRS990/Form990PartVIISectionAGrp/PersonNm2JEFF MACE
IRS990/Form990PartVIISectionAGrp/PersonNm3BRUCE COWAN
IRS990/Form990PartVIISectionAGrp/PersonNm4ESTELLE RANDOLPH
IRS990/Form990PartVIISectionAGrp/PersonNm5MARYANN CALIRI
IRS990/Form990PartVIISectionAGrp/PersonNm6JUNE BENDER
IRS990/Form990PartVIISectionAGrp/PersonNm7EMILY CHILLINO
IRS990/Form990PartVIISectionAGrp/PersonNm8MARC KRIEGER
IRS990/Form990PartVIISectionAGrp/PersonNm9SUZY BALLANTYNE
IRS990/Form990PartVIISectionAGrp/PersonNm10GEROLD KIRSCHNER
IRS990/Form990PartVIISectionAGrp/PersonNm11FREDERICK SHAW
IRS990/Form990PartVIISectionAGrp/PersonNm12MARILYN SIBLEY
IRS990/Form990PartVIISectionAGrp/PersonNm13JAY PEAK
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1368500
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/TitleTxt0Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt1Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt2Co-President
IRS990/Form990PartVIISectionAGrp/TitleTxt3Co- President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt5Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt6Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt7Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt8Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt9Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt10Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt11Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt12Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt13EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/Form990TFiledInd0false
IRS990/FormationYr01981
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingDirectExpensesAmt081267
IRS990/FundraisingGrossIncomeAmt0429366
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0619900
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt013
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/FundraisingAmt01329
IRS990/InsuranceGrp/ManagementAndGeneralAmt0299
IRS990/InsuranceGrp/ProgramServicesAmt01329
IRS990/InsuranceGrp/TotalAmt02957
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt01386
IRS990/InvestmentIncomeGrp/ExclusionAmt012605
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt012605
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0547861
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0626558
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LegalDomicileStateCd0NY
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0true
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt01567350
IRS990/NetAssetsOrFundBalancesEOYAmt01465649
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0348099
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0348099
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt03320
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt01058
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt04144
IRS990/OfficeExpensesGrp/ProgramServicesAmt01379
IRS990/OfficeExpensesGrp/TotalAmt06581
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt016528
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03673
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt016529
IRS990/OtherEmployeeBenefitsGrp/TotalAmt036730
IRS990/OtherExpensesGrp/Desc0FEDERATION ASSESSMENT
IRS990/OtherExpensesGrp/Desc1RESEARCH PLEDGE - RESTRICTED
IRS990/OtherExpensesGrp/Desc2RENT
IRS990/OtherExpensesGrp/Desc3EDUCATIONAL FORUMS
IRS990/OtherExpensesGrp/FundraisingAmt06380
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01417
IRS990/OtherExpensesGrp/ProgramServicesAmt0127125
IRS990/OtherExpensesGrp/ProgramServicesAmt173375
IRS990/OtherExpensesGrp/ProgramServicesAmt26380
IRS990/OtherExpensesGrp/ProgramServicesAmt313559
IRS990/OtherExpensesGrp/TotalAmt0127125
IRS990/OtherExpensesGrp/TotalAmt173375
IRS990/OtherExpensesGrp/TotalAmt214177
IRS990/OtherExpensesGrp/TotalAmt313559
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0miscellaneous
IRS990/OtherRevenueMiscGrp/ExclusionAmt0153
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0153
IRS990/OtherRevenueTotalAmt0153
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt072033
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt016007
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt072032
IRS990/OtherSalariesAndWagesGrp/TotalAmt0160072
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt08239
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01831
IRS990/PayrollTaxesGrp/ProgramServicesAmt08240
IRS990/PayrollTaxesGrp/TotalAmt018310
IRS990/PensionPlanContributionsGrp/FundraisingAmt02227
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0495
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt02228
IRS990/PensionPlanContributionsGrp/TotalAmt04950
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliciesReferenceChaptersInd0true
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01251
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03486
IRS990/PrincipalOfficerNm0BRUCE COWAN
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0EDUCATIONAL FORUMS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt013864
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt013864
IRS990/ProgSrvcAccomActy2Grp/Desc0PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNCILING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0180657
IRS990/ProgSrvcAccomActy3Grp/Desc0PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt038787
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0180092
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt013706
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0317210
IRS990/PYOtherRevenueAmt0399517
IRS990/PYProgramServiceRevenueAmt015132
IRS990/PYRevenuesLessExpensesAmt0-27831
IRS990/PYSalariesCompEmpBnftPaidAmt0319068
IRS990/PYTotalExpensesAmt0636278
IRS990/PYTotalRevenueAmt0608447
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-105021
IRS990/RegularMonitoringEnfrcInd0false
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0true
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0841302
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0735464
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0163912
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0180092
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0160457
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0146554
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0191087
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0842102
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt012605
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt013706
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt016389
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt018191
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt020839
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt081730
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0443230
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0505428
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0509368
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0449205

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.81$0.81
2023Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.01$0.18$0.16
2022Detailed filing. Detailed filing data is available for this year.$0.89$0.01$0.88$0.25$0.18$0.07
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.97$0.04$0.93$0.31$0.37$0.05
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.95$0.01$0.94$0.34$0.43$0.09
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.99$0.01$0.98$0.44$0.36$0.08
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.85$0.01$0.84$0.44$0.56$0.12
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.08$0.09$0.99$0.46$0.69$0.23
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.01$1.22$0.49$0.67$0.17
2015Detailed filing. Detailed filing data is available for this year.$1.42$0.03$1.39$0.53$0.61$0.07
2014Detailed filing. Detailed filing data is available for this year.$1.50$0.03$1.47$0.54$0.64$0.11
2013Detailed filing. Detailed filing data is available for this year.$1.58$0.01$1.57$0.61$0.64$0.03
2012Summary only. Only limited summary data is available for this year.$1.60$0.00$1.60$0.60$0.60$0.01
2011Summary only. Only limited summary data is available for this year.$1.59$0.00$1.59$0.52$0.49$0.03