Civic Intelligence

Scleroderma Foundation Tri-State Inc Chapter

990 • Fiscal year 2013 • EIN 13-3128296

Jan 01, 2013 to Dec 31, 2013 • Filed on May 15, 2014

Organization ProfileWWW.SCLERODERMA.ORG/TRISTATE
59 Front StreetBinghamton, NY 13905

(607) 723-2239

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

22nd percentile

0.01x

Higher debt load relative to assets than 22% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Liabilities / Revenue

25th percentile

0.02x

Higher debt load relative to revenue than 25% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Net Margin

28th percentile

-4.6%

Higher net margin than 28% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Top Officer Pay

58th percentile

$68,000

Higher top officer pay than 58% of similar nonprofits.

Top officer pay equals 11.2% of source-year revenue.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Asset Growth

35th percentile

-1.5%

Faster asset growth than 35% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2012 to 2013

Revenue Growth

43rd percentile

1.1%

Faster revenue growth than 43% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2012 to 2013

Balance Sheet
Liabilities / Assets22nd percentile

Assets

Down

$1,578,779

Down $24,271 (-1.5%) from 2012

Net Assets

Down

$1,567,350

Down $35,700 (-2.2%) from 2012

Liabilities

Up

$11,429

Up $11,429 from 2012

Revenue And Expenses
Liabilities / Revenue25th percentileNet Margin28th percentile

Revenue

Up

$608,447

Up $6,545 (+1.1%) from 2012

Expenses

Up

$636,278

Up $40,511 (+6.8%) from 2012

Net Income

Down

-$27,831

Down $33,966 (-554%) from 2012

Historical Trend

Balance Sheet Trend

Asset Growth35th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $1,593,350Liabilities 2011: $0Net Assets 2011: $1,593,3502011Assets 2012: $1,603,050Liabilities 2012: $0Net Assets 2012: $1,603,0502012Assets 2013: $1,578,779Liabilities 2013: $11,429Net Assets 2013: $1,567,3502013Assets 2014: $1,495,215Liabilities 2014: $29,566Net Assets 2014: $1,465,6492014Assets 2015: $1,417,646Liabilities 2015: $26,822Net Assets 2015: $1,390,8242015Assets 2016: $1,234,049Liabilities 2016: $14,984Net Assets 2016: $1,219,0652016Assets 2017: $1,081,343Liabilities 2017: $94,529Net Assets 2017: $986,8142017Assets 2018: $850,014Liabilities 2018: $12,092Net Assets 2018: $837,9222018Assets 2019: $991,330Liabilities 2019: $13,219Net Assets 2019: $978,1112019Assets 2020: $951,447Liabilities 2020: $11,815Net Assets 2020: $939,6322020Assets 2021: $974,224Liabilities 2021: $40,459Net Assets 2021: $933,7652021Assets 2022: $893,042Liabilities 2022: $13,401Net Assets 2022: $879,6412022Assets 2023: $809,750Liabilities 2023: $0Net Assets 2023: $809,7502023Assets 2024: $0Net Assets 2024: $02024

Highlighted filing

2013

Assets$1,578,779
Liabilities$11,429
Net Assets$1,567,350
Open 2013 Filing

Operations Trend

Revenue Growth43rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500K-$1.0MRevenue 2011: $520,950Expenses 2011: $494,301Net Income 2011: $26,6492011Revenue 2012: $601,902Expenses 2012: $595,767Net Income 2012: $6,1352012Revenue 2013: $608,447Expenses 2013: $636,278Net Income 2013: -$27,8312013Revenue 2014: $538,633Expenses 2014: $643,654Net Income 2014: -$105,0212014Revenue 2015: $531,021Expenses 2015: $605,705Net Income 2015: -$74,6842015Revenue 2016: $494,004Expenses 2016: $666,920Net Income 2016: -$172,9162016Revenue 2017: $462,472Expenses 2017: $693,855Net Income 2017: -$231,3832017Revenue 2018: $436,873Expenses 2018: $556,047Net Income 2018: -$119,1742018Revenue 2019: $442,869Expenses 2019: $359,417Net Income 2019: $83,4522019Revenue 2020: $339,573Expenses 2020: $426,086Net Income 2020: -$86,5132020Revenue 2021: $314,907Expenses 2021: $365,037Net Income 2021: -$50,1302021Revenue 2022: $254,697Expenses 2022: $182,278Net Income 2022: $72,4192022Revenue 2023: $13,837Expenses 2023: $177,457Net Income 2023: -$163,6202023Revenue 2024: $1,672Expenses 2024: $813,470Net Income 2024: -$811,7982024

Highlighted filing

2013

Revenue$608,447
Expenses$636,278
Net Income-$27,831
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 15, 2014
Return Version
2013v3.1
Gross Receipts
$700,226
Mission and Program Overview

Mission

Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$900,549$841,302▼ $59,247
Investments Other Securities$505,342$547,861▲ $42,519
Cash and Non-Interest-Bearing Accounts$190,611$169,025▼ $21,586
Accounts Receivable-$19,340-
Prepaid Expenses and Deferred Charges$6,548$1,251▼ $5,297
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$1,603,050$1,578,779▼ $24,271
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses-$11,429-
Total Liabilities$0$11,429▲ $11,429
Net Assets / Fund Balance
Unrestricted Net Assets$1,544,732$1,567,300▲ $22,568
Temporarily Rstr Net Assets$58,318$50▼ $58,268
Total Net Assets Fund Balance$1,603,050$1,567,350▼ $35,700
Total Liabilities and Net Assets / Fund Balance$1,603,050$1,578,779▼ $24,271
Compensation and Service Providers
Top Officer Pay58th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Jay PeakExecutive DirectorFT$68,000$68,000

Board Members and Trustees

NameTitle
Jeff MacePresident
Bruce CowanVice President
Andrea GoldsteinBoard Member
Debra SignorelliBoard Member
Emily ChillinoBoard Member
Estelle RandolphBoard Member
Frederick ShawBoard Member
Gerold KirschnerBoard Member
Joan WeickBoard Member
Marc KriegerBoard Member
Maryann CaliriBoard Member
Patricia WaszmerBoard Member
Suzy BallantyneBoard Member
June BenderSecretary
Rosemary MarkoffTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$180,092
Program Service Revenue
$15,132
Investment Income
$13,706
Other Revenue
$399,517
All Other Contributions
$180,092
Change in Net Assets
$-27,831

Audited Revenue Reconciliation

Revenue per Audited Statements
$608,447
Total Revenue per Audited Statements
$608,447
Total Revenue per Form 990
$608,447
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$319,068
Other Expenses$317,210
Total Fundraising Expense$161,632
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$82,035$18,230$82,035$182,300
Current Officers, Directors, Trustees, and Key Employees$30,600$6,800$30,600$68,000
Other Employee Benefits$19,576$4,350$19,577$43,503
Advertising$24,416$1,533$7,441$33,390
All Other Expenses$20,784$7,899$1,300$29,983
Payroll Taxes$8,802$1,956$8,803$19,561
Fees for Services Other$6,513$5,427$1,672$13,612
Other Expenses$6,089$1,943$2,160$10,192
Office Expenses$1,824$6,279$1,523$9,626
Conferences and Meetings$3,600$735$3,307$7,642
Pension Plan Contributions$2,567$570$2,567$5,704
Travel$4,766$102-$4,868
Insurance$647$1,644$647$2,938
Total Functional Expenses$403,375$71,271$161,632$636,278

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$636,278
Total Expenses per Audited Statements$636,278
Total Expenses per Form 990$636,278
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$490,296
Fundraising Direct Expenses$91,779
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$434,693$434,693$76,534$358,159
Event 2$19,058$19,058$6,094$12,964
Total Events$490,296$490,296$91,779$398,517
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“Form 990 and financial statements discussed with executive director and treasurer before filing.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Monitors during board meetings”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Discussed at board meetings”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“Discussed at board meetings”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“All information is available upon request”

Filing and Contact Details

Filer

EIN
13-3128296
Phone
6077232239

Signing Officer

Name
Jeff Mace
Title
President
Signed
2014-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jeff Mace
Formed
1981
Legal Domicile
Ny
Voting Board Members
15
Independent Board Members
15
Employees
8
Volunteers
100

Preparer

Preparer
Janeen F Sutryk
Phone
6077299373
Raw XML AppendixShowing 400 of 574 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt011429
IRS990/AccountsReceivableGrp/EOYAmt019340
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS.
IRS990/AdvertisingGrp/FundraisingAmt07441
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01533
IRS990/AdvertisingGrp/ProgramServicesAmt024416
IRS990/AdvertisingGrp/TotalAmt033390
IRS990/AllAffiliatesIncludedInd0false
IRS990/AllOtherContributionsAmt0180092
IRS990/AllOtherExpensesGrp/FundraisingAmt01300
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt07899
IRS990/AllOtherExpensesGrp/ProgramServicesAmt020784
IRS990/AllOtherExpensesGrp/TotalAmt029983
IRS990/AnnualDisclosureCoveredPrsnInd0false
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0JAY PEAK
IRS990/BooksInCareOfDetail/PhoneNum06077232239
IRS990/BooksInCareOfDetail/USAddress/AddressLine1059 FRONT STREET
IRS990/BooksInCareOfDetail/USAddress/City0BINGHAMTON
IRS990/BooksInCareOfDetail/USAddress/State0NY
IRS990/BooksInCareOfDetail/USAddress/ZIPCode013905
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0190611
IRS990/CashNonInterestBearingGrp/EOYAmt0169025
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt030600
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt06800
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt030600
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt068000
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConferencesMeetingsGrp/FundraisingAmt03307
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt0735
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt03600
IRS990/ConferencesMeetingsGrp/TotalAmt07642
IRS990/ConflictOfInterestPolicyInd0false
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0180092
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt013706
IRS990/CYOtherExpensesAmt0317210
IRS990/CYOtherRevenueAmt0399517
IRS990/CYProgramServiceRevenueAmt015132
IRS990/CYRevenuesLessExpensesAmt0-27831
IRS990/CYSalariesCompEmpBnftPaidAmt0319068
IRS990/CYTotalExpensesAmt0636278
IRS990/CYTotalFundraisingExpenseAmt0161632
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0608447
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARDS RESEARCH GRANTS AS WELL AS AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt08
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExcessBusinessHoldingsInd0false
IRS990/ExpenseAmt0191156
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/TotalAmt00
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/FundraisingAmt01672
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt05427
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt06513
IRS990/FeesForServicesOtherGrp/TotalAmt013612
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt130.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt150.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt02.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt210.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt45.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt95.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt132.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt142.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/PersonNm0DEBRA SIGNORELLI
IRS990/Form990PartVIISectionAGrp/PersonNm1JOAN WEICK
IRS990/Form990PartVIISectionAGrp/PersonNm2ROSEMARY MARKOFF
IRS990/Form990PartVIISectionAGrp/PersonNm3JEFF MACE
IRS990/Form990PartVIISectionAGrp/PersonNm4BRUCE COWAN
IRS990/Form990PartVIISectionAGrp/PersonNm5ANDREA GOLDSTEIN
IRS990/Form990PartVIISectionAGrp/PersonNm6ESTELLE RANDOLPH
IRS990/Form990PartVIISectionAGrp/PersonNm7PATRICIA WASZMER
IRS990/Form990PartVIISectionAGrp/PersonNm8MARYANN CALIRI
IRS990/Form990PartVIISectionAGrp/PersonNm9JUNE BENDER
IRS990/Form990PartVIISectionAGrp/PersonNm10EMILY CHILLINO
IRS990/Form990PartVIISectionAGrp/PersonNm11MARC KRIEGER
IRS990/Form990PartVIISectionAGrp/PersonNm12SUZY BALLANTYNE
IRS990/Form990PartVIISectionAGrp/PersonNm13GEROLD KIRSCHNER
IRS990/Form990PartVIISectionAGrp/PersonNm14FREDERICK SHAW
IRS990/Form990PartVIISectionAGrp/PersonNm15JAY PEAK
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1568000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/Form990TFiledInd0false
IRS990/FormationYr01981
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingDirectExpensesAmt091779
IRS990/FundraisingGrossIncomeAmt0490296
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0700226
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/FundraisingAmt0647
IRS990/InsuranceGrp/ManagementAndGeneralAmt01644
IRS990/InsuranceGrp/ProgramServicesAmt0647
IRS990/InsuranceGrp/TotalAmt02938
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt013706
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt013706
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0505342
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0547861
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LegalDomicileStateCd0NY
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0true
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt01603050
IRS990/NetAssetsOrFundBalancesEOYAmt01567350
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0398517
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0398517
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-7869
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt01523
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06279
IRS990/OfficeExpensesGrp/ProgramServicesAmt01824
IRS990/OfficeExpensesGrp/TotalAmt09626
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt019577
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt04350
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt019576
IRS990/OtherEmployeeBenefitsGrp/TotalAmt043503
IRS990/OtherExpensesGrp/Desc0FEDERATION ASSESSMENT
IRS990/OtherExpensesGrp/Desc1RESEARCH PLEDGE - RESTRICTED
IRS990/OtherExpensesGrp/Desc2RENT
IRS990/OtherExpensesGrp/Desc3Postage and Shipping
IRS990/OtherExpensesGrp/FundraisingAmt02160
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt013803
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11943
IRS990/OtherExpensesGrp/ProgramServicesAmt0139276
IRS990/OtherExpensesGrp/ProgramServicesAmt151880
IRS990/OtherExpensesGrp/ProgramServicesAmt26089
IRS990/OtherExpensesGrp/TotalAmt0139276
IRS990/OtherExpensesGrp/TotalAmt151880
IRS990/OtherExpensesGrp/TotalAmt213803
IRS990/OtherExpensesGrp/TotalAmt310192
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0miscellaneous
IRS990/OtherRevenueMiscGrp/ExclusionAmt01000
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01000
IRS990/OtherRevenueTotalAmt01000
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt082035
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt018230
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt082035
IRS990/OtherSalariesAndWagesGrp/TotalAmt0182300
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt08803
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01956
IRS990/PayrollTaxesGrp/ProgramServicesAmt08802
IRS990/PayrollTaxesGrp/TotalAmt019561
IRS990/PensionPlanContributionsGrp/FundraisingAmt02567
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0570
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt02567
IRS990/PensionPlanContributionsGrp/TotalAmt05704
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliciesReferenceChaptersInd0true
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt06548
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01251
IRS990/PrincipalOfficerNm0JEFF MACE
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0EDUCATIONAL FORUMS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt015132
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt015132
IRS990/ProgSrvcAccomActy2Grp/Desc0PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNCILING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0177829
IRS990/ProgSrvcAccomActy3Grp/Desc0PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt034390
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0160457
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt015414
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0303119
IRS990/PYOtherRevenueAmt0426031
IRS990/PYRevenuesLessExpensesAmt06135
IRS990/PYSalariesCompEmpBnftPaidAmt0292648
IRS990/PYTotalExpensesAmt0595767
IRS990/PYTotalRevenueAmt0601902
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-27831
IRS990/RegularMonitoringEnfrcInd0false
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0true
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0900549
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0841302
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0180092
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0160457
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0146554
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0191087

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,578,779
Liabilities
$11,429
Net assets
$1,567,350
Revenue
$608,447
Expenses
$636,278
Net income
-$27,831
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.81$0.81
2023Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.01$0.18$0.16
2022Detailed filing. Detailed filing data is available for this year.$0.89$0.01$0.88$0.25$0.18$0.07
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.97$0.04$0.93$0.31$0.37$0.05
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.95$0.01$0.94$0.34$0.43$0.09
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.99$0.01$0.98$0.44$0.36$0.08
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.85$0.01$0.84$0.44$0.56$0.12
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.08$0.09$0.99$0.46$0.69$0.23
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.01$1.22$0.49$0.67$0.17
2015Detailed filing. Detailed filing data is available for this year.$1.42$0.03$1.39$0.53$0.61$0.07
2014Detailed filing. Detailed filing data is available for this year.$1.50$0.03$1.47$0.54$0.64$0.11
2013Detailed filing. Detailed filing data is available for this year.$1.58$0.01$1.57$0.61$0.64$0.03
2012Summary only. Only limited summary data is available for this year.$1.60$0.00$1.60$0.60$0.60$0.01
2011Summary only. Only limited summary data is available for this year.$1.59$0.00$1.59$0.52$0.49$0.03
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2013 filings • 501(c)3 • $1M-$5M nonprofits