Liabilities / Assets
55th percentile
Higher debt load relative to assets than 55% of similar nonprofits.
990 • Fiscal year 2021 • EIN 13-3128296
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
55th percentile
Higher debt load relative to assets than 55% of similar nonprofits.
Liabilities / Revenue
67th percentile
Higher debt load relative to revenue than 67% of similar nonprofits.
Net Margin
14th percentile
Higher net margin than 14% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
35th percentile
Faster asset growth than 35% of similar nonprofits.
Revenue Growth
26th percentile
Faster revenue growth than 26% of similar nonprofits.
Assets
Up$974,224
Up $22,777 (+2.4%) from 2020
Net Assets
Down$933,765
Down $5,867 (-0.6%) from 2020
Liabilities
Up$40,459
Up $28,644 (+242%) from 2020
Revenue
Down$314,907
Down $24,666 (-7.3%) from 2020
Expenses
Down$365,037
Down $61,049 (-14%) from 2020
Net Income
Up-$50,130
Up $36,383 (+42%) from 2020
Education and support to people with scleroderma; stimulate and support research designed to identify cause and cure; enhance public awareness.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $544,749 | $780,673 | ▲ $235,924 |
| Savings and Temporary Cash Investments | $330,591 | $117,440 | ▼ $213,151 |
| Cash and Non-Interest-Bearing Accounts | $39,699 | $48,750 | ▲ $9,051 |
| Accounts Receivable | $35,847 | $26,916 | ▼ $8,931 |
| Prepaid Expenses and Deferred Charges | $445 | $445 | → $0 |
| Land, Buildings, and Equipment, Net | $116 | $0 | ▼ $116 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $951,447 | $974,224 | ▲ $22,777 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Unsecured Notes Loans Payable | - | $34,427 | - |
| Accounts Payable and Accrued Expenses | $11,815 | $6,032 | ▼ $5,783 |
| Total Liabilities | $11,815 | $40,459 | ▲ $28,644 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $939,632 | $933,765 | ▼ $5,867 |
| Total Net Assets Fund Balance | $939,632 | $933,765 | ▼ $5,867 |
| Total Liabilities and Net Assets / Fund Balance | $951,447 | $974,224 | ▲ $22,777 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | - | $3,019 | $3,019 |
| Other Land Buildings | - | $1,749 | $1,749 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2021 | $498,143 | - | ▲ $85,319 | - | $579,998 |
| 2020 | $444,765 | - | ▲ $56,227 | - | $498,143 |
| 2019 | $382,146 | - | ▲ $65,302 | - | $444,765 |
| 2018 | - | $408,615 | ▼ $24,623 | - | $382,146 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Bruce Cowan | Former Executive Director | FT | $43,077 | $43,077 |
| Name | Title |
|---|---|
| Marc Krieger | President |
| Amy Gietzen | Board Member |
| Carla Gage | Board Member |
| Frederick Shaw | Board Member |
| Jonathan Schorr | Board Member |
| Mary Contadino | Board Member |
| Estelle Randolph | Ex Officio Mbr |
| Marilyn Sibley | Secretary |
| Rosemary Markoff | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $197,277 |
| Other Expenses | $167,760 |
| Total Fundraising Expense | $104,635 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $52,065 | $11,570 | $52,066 | $115,701 |
| Payments to Affiliates | $101,688 | - | - | $101,688 |
| Current Officers, Directors, Trustees, and Key Employees | $19,385 | $4,308 | $19,384 | $43,077 |
| Other Employee Benefits | $9,019 | $2,004 | $9,019 | $20,042 |
| Fees for Services Other | $3,676 | $13,134 | $3,076 | $19,886 |
| Occupancy | $7,745 | $1,722 | $7,745 | $17,212 |
| Payroll Taxes | $7,045 | $1,566 | $7,045 | $15,656 |
| All Other Expenses | $1,532 | $2,489 | $1,454 | $5,475 |
| Pension Plan Contributions | $1,260 | $280 | $1,261 | $2,801 |
| Insurance | $984 | $219 | $983 | $2,186 |
| Conferences and Meetings | $895 | $379 | $895 | $2,169 |
| Other Expenses | $2,149 | $323 | $1,452 | $2,149 |
| Office Expenses | $241 | $1,041 | $241 | $1,523 |
| Travel | - | $491 | - | $491 |
| Depreciation Depletion | - | $116 | - | $116 |
| Total Functional Expenses | $214,578 | $45,824 | $104,635 | $365,037 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $132,600 |
| Fundraising Direct Expenses | $4,639 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $132,600 | $132,600 | $4,639 | $127,961 |
| Total Events | $132,600 | $132,600 | $4,639 | $127,961 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Form 990 and financial statements discussed with executive director and treasurer before filing.”
“A written conflict of interest policy is established which describes andprohibits transactions and/or relationships which might be construed as aconflict of interest. Board members must sign off on the conflict ofinterest policy on an annual basis.”
“Discussed at board meetings”
“Discussed at board meetings”
“All information is available upon request”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 11815 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 6032 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 35847 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 26916 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 151004 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1454 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2489 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 1532 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 5475 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | CARLA GAGE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6077232239 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 59 FRONT STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BINGHAMTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13905 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 39699 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 48750 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 19384 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 4308 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 19385 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 43077 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 895 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 379 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 895 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2169 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 151004 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 34352 |
| IRS990/CYOtherExpensesAmt | 0 | 167760 |
| IRS990/CYOtherRevenueAmt | 0 | 129551 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -50130 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 197277 |
| IRS990/CYTotalExpensesAmt | 0 | 365037 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 104635 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 314907 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 116 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 116 |
| IRS990/Desc | 0 | PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNSELING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | true |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 108241 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 3076 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 13134 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 3676 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 19886 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BRUCE COWAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JONATHAN SCHORR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ROSEMARY MARKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ESTELLE RANDOLPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | AMY GIETZEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARILYN SIBLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MARY CONTADINO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MARC KRIEGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | CARLA GAGE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | FREDERICK SHAW |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 43077 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | FORMER EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | EX OFFICIO MBR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Board Member |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Board Member |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1981 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 4639 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 132600 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 20696 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 147792 |
| IRS990/GrossReceiptsAmt | 0 | 446642 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 983 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 219 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 984 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2186 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentExpenseAmt | 0 | -5022 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 13656 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 13656 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 544749 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 780673 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 4768 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 116 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4768 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 127096 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 939632 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 933765 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 20696 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 20696 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 127961 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 127961 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 49285 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 939632 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 933765 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7745 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1722 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 7745 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 17212 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 241 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1041 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 241 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 1523 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 9019 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2004 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 9019 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 20042 |
| IRS990/OtherExpensesGrp/Desc | 0 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 1 | Postage and Shipping |
| IRS990/OtherExpensesGrp/Desc | 2 | UTILITIES |
| IRS990/OtherExpensesGrp/Desc | 3 | SUPPORT GROUPS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 14 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1452 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3387 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2795 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 323 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 3456 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 1986 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1452 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 2149 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 6857 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 4781 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3227 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2149 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 452000 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MERCHANDISE |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1590 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 1590 |
| IRS990/OtherRevenueTotalAmt | 0 | 1590 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 52066 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 11570 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 52065 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 115701 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt | 0 | 101688 |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 101688 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 7045 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1566 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 7045 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 15656 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1261 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 280 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 1260 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 2801 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 445 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 445 |
| IRS990/PrincipalOfficerNm | 0 | MARC KRIEGER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARD RESEARCH GRANTS AS WELL AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 101688 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 4649 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 190822 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 10762 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 228061 |
| IRS990/PYOtherRevenueAmt | 0 | 137989 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -86513 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 198025 |
| IRS990/PYTotalExpensesAmt | 0 | 426086 |
| IRS990/PYTotalRevenueAmt | 0 | 339573 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -50130 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 330591 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 117440 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 151004 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 153907 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 178862 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 169183 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 145674 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 798630 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 13656 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 11485 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 12485 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 7291 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 13239 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 58156 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 134190 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 148970 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 309295 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 315598 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 376902 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1284955 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 13656 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 11485 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 12485 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 7291 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 13239 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 58156 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.02670 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.02350 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 37147 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 283 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 37430 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.95610 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.96140 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2083585 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 285194 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 302877 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 488157 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 484781 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 522576 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2083585 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 298850 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 351509 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.