Liabilities / Assets
52nd percentile
Higher debt load relative to assets than 52% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
52nd percentile
Higher debt load relative to assets than 52% of similar nonprofits.
Liabilities / Revenue
61st percentile
Higher debt load relative to revenue than 61% of similar nonprofits.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
71st percentile
Higher top officer pay than 71% of similar nonprofits.
Top officer pay equals 13.5% of source-year revenue.
Asset Growth
80th percentile
Faster asset growth than 80% of similar nonprofits.
Revenue Growth
35th percentile
Faster revenue growth than 35% of similar nonprofits.
Assets
Up$1,330,456
Up $204,431 (+18%) from 2017
Net Assets
Up$1,196,823
Up $186,378 (+18%) from 2017
Liabilities
Up$133,633
Up $18,053 (+16%) from 2017
Revenue
Down$795,632
Down $14,249 (-1.8%) from 2017
Expenses
Up$607,455
Up $21,050 (+3.6%) from 2017
Net Income
Down$188,177
Down $35,299 (-16%) from 2017
To support efforts to cure von-hippel-lindau disease; to provide a support network for patients & their families; to educate & inform the public & the medical community on current developments.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $684,374 | $693,690 | ▲ $9,316 |
| Savings and Temporary Cash Investments | $392,003 | $555,076 | ▲ $163,073 |
| Cash and Non-Interest-Bearing Accounts | $25,466 | $55,165 | ▲ $29,699 |
| Prepaid Expenses and Deferred Charges | $17,902 | $17,912 | ▲ $10 |
| Pledges and Grants Receivable | $5,757 | $8,240 | ▲ $2,483 |
| Land, Buildings, and Equipment, Net | $523 | $373 | ▼ $150 |
| Total Assets | $1,126,025 | $1,330,456 | ▲ $204,431 |
| Liabilities | |||
| Grants Payable | $66,667 | $91,667 | ▲ $25,000 |
| Deferred Revenue | $25,862 | $21,252 | ▼ $4,610 |
| Accounts Payable and Accrued Expenses | $23,051 | $20,714 | ▼ $2,337 |
| Total Liabilities | $115,580 | $133,633 | ▲ $18,053 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,005,445 | $1,196,823 | ▲ $191,378 |
| Temporarily Rstr Net Assets | $5,000 | $0 | ▼ $5,000 |
| Total Net Assets Fund Balance | $1,010,445 | $1,196,823 | ▲ $186,378 |
| Total Liabilities and Net Assets / Fund Balance | $1,126,025 | $1,330,456 | ▲ $204,431 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $149 | $3,909 | $4,058 |
| Other Land Buildings | $224 | $525 | $749 |
| Other Securities | $609,813 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Ilene Sussman | Executive Director | FT | $107,105 | $107,105 |
| Name | Title |
|---|---|
| Manuel Greco | President/board Chair |
| Doug Karle | Board Vice Chair/director |
| Anna Waller | Clerk & Director |
| Barbara Correll | Director |
| Bettina Micheli | Director |
| Camron King | Director |
| Emily Billcheck | Director |
| Eric Jonasch Md | Director |
| Gordon Cooke | Director |
| Jennifer Galenkamp | Director |
| Karen Ramsey | Director |
| Mark Pallansch | Director |
| Soniya Sapre | Director |
| Steven Angotti | Director |
| Andrea Rafael | Treasurer & Director |
| Seth Horwitz | Treasurer & Director |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $349,960 |
| Other Expenses | $132,495 |
| Grants and Similar Amounts Paid | $125,000 |
| Total Fundraising Expense | $53,500 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $185,836 | $2,042 | $16,337 | $204,215 |
| Grants to Domestic Individuals | $125,000 | - | - | $125,000 |
| Current Officers, Directors, Trustees, and Key Employees | $100,413 | $1,103 | $8,828 | $110,344 |
| Payroll Taxes | $22,824 | $251 | $2,006 | $25,081 |
| All Other Expenses | $14,992 | $1,334 | $4,328 | $20,654 |
| Occupancy | $16,185 | $176 | $1,231 | $17,592 |
| Fees for Services Other | $12,453 | $89 | $2,097 | $14,639 |
| Other Employee Benefits | $7,740 | - | $2,580 | $10,320 |
| Travel | $3,263 | $6,672 | - | $9,935 |
| Information Technology | $4,826 | $50 | $3,453 | $8,329 |
| Other Expenses | $7,012 | $438 | $231 | $7,681 |
| Fees for Services Accounting | $5,518 | $62 | $620 | $6,200 |
| Fees for Services Legal | $75 | $5,800 | - | $5,875 |
| Insurance | $2,519 | $27 | $192 | $2,738 |
| Depreciation Depletion | $150 | - | - | $150 |
| Total Functional Expenses | $535,756 | $18,199 | $53,500 | $607,455 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $698,263 |
| Expenses per Audited Statements | $607,455 |
| Total Expenses per Form 990 | $607,455 |
| Expenses Not Reported on Form 990 | $90,808 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $49,609 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Annual Meeting & Conference | $228,223 | - | $44,111 | - |
| Constituency Events | $72,678 | - | $5,498 | - |
| Total Events | $339,224 | - | $49,609 | $-49,609 |
“The completed form 990 is provided to the board of directors for review and approval before filing electronically with the internal revenue service.”
“The organization maintains an annual signed disclosure to monitor compliance with its conflict of interest policy.”
“Compensation for the organization's executive director and key employees is part of the budgeting process for the board of directors. Comparability data is used as part of the budget determination process. The board of directors determines the approved budgeted payroll figures annually.”
“The organization makes its governing documents and annual information returns and financial statements available upon request. Additionally, the organization's documents, returns and statements are available on the website of the commonwealth of massachusetts. The organization's form 990 is also available on the guidestar website.”
“Outside services: program service expenses 10,538. Management and general expenses 68. Fundraising expenses 328. Total expenses 10,934. Payroll service fees: program service expenses 1,915. Management and general expenses 21. Fundraising expenses 169. Total expenses 2,105. Grant research consultant: program service expenses 0. Management and general expenses 0. Fundraising expenses 1,600. Total expenses 1,600.”
“Printing & publications: program service expenses 7,138. Management and general expenses 0. Fundraising expenses 42. Total expenses 7,180. Office & miscellaneous: program service expenses 2,375. Management and general expenses 900. Fundraising expenses 822. Total expenses 4,097. State filing fees: program service expenses 0. Management and general expenses 269. Fundraising expenses 3,128. Total expenses 3,397. Telephone: program service expenses 2,463. Management and general expenses 24. Fundraising expenses 236. Total expenses 2,723. Supplies: program service expenses 1,516. Management and general expenses 141. Fundraising expenses 100. Total expenses 1,757. Dues & subscriptions: program service expenses 1,500. Management and general expenses 0. Fundraising expenses 0. Total expenses 1,500.”
“There have been no changes to the audit committee processes.”
“Management has evaluated significant tax positions against criteria established by professional standards and believes there are no such tax positions requiring accounting recognition in the financial statements. Management does not believe its evaluation of tax positions will significantly change within twelve months of june 30, 2018. Any changes in tax positions will be recorded when the ultimate outcome becomes known. The organization's annual information returns are currently subject to examination by taxing authorities for the years ended june 30, 2015 through june 30, 2018.”
“Donated services 14,053. Donated travel 9,295. Donated software 16,701. Donated facilities 1,150.”
“Direct expense of events reported as negative revenues -49,609.”
“Donated services 14,053. Donated travel 9,295. Donated software 16,701. Donated facilities 1,150. Direct expense of events reported as negative revenues 49,609.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 23051 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 20714 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE; TO PROVIDE A SUPPORT NETWORK FOR PATIENTS & THEIR FAMILIES; TO EDUCATE & INFORM THE PUBLIC & THE MEDICAL COMMUNITY ON CURRENT DEVELOPMENTS. |
| IRS990/AllOtherContributionsAmt | 0 | 486284 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 4328 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1334 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 14992 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 20654 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | ILENE SUSSMAN EXEC DIR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6172775667 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1208 VFW PARKWAY 303 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BOSTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 021324344 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 25466 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 55165 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 8828 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 1103 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 100413 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 110344 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 339224 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 825508 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 125000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 13391 |
| IRS990/CYOtherExpensesAmt | 0 | 132495 |
| IRS990/CYOtherRevenueAmt | 0 | -48146 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 4879 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 188177 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 349960 |
| IRS990/CYTotalExpensesAmt | 0 | 607455 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 53500 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 795632 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 25862 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 21252 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 150 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 150 |
| IRS990/Desc | 0 | THE VHL ALLIANCE PROVIDES A QUARTERLY NEWSLETTER, ON-LINE SERVICES, TELEPHONE OUTREACH AND OTHER SERVICES FOR VHL PATIENTS & FAMILY MEMBERS TO BE ABLE TO COMMUNICATE CURRENT VHL RESEARCH & MEDICAL INFORMATION. THE VHL ALLIANCE ALSO PROVIDES EDUCATIONAL MATERIAL INCLUDING PATIENT HANDBOOKS AND BROCHURES ON LIVING WITH VHL DISEASE, THE VHL ALLIANCE ALSO HOLDS MEDICAL/RESEARCH SYMPOSIUMS, AN ANNUAL CONFERENCES & RECURRING SEMINARS, AND MAINTAINS EDUCATION & RESEARCH PROGRAMS SUCH AS THE TISSUE BANK AND THE CENTRAL VHL DATABASE. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 535756 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 620 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 62 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 5518 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 6200 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 5800 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 75 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 5875 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2097 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 89 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 12453 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 14639 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MANUEL GRECO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DOUG KARLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ANDREA RAFAEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | SETH HORWITZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ANNA WALLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SONIYA SAPRE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | GORDON COOKE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | BARBARA CORRELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ERIC JONASCH MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | BETTINA MICHELI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | MARK PALLANSCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | KAREN RAMSEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | CAMRON KING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | JENNIFER GALENKAMP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | EMILY BILLCHECK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | STEVEN ANGOTTI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | ILENE SUSSMAN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 107105 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD VICE CHAIR/DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER & DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER & DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | CLERK & DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1993 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 339224 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 49609 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 627 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 17 |
| IRS990/GrantAmt | 0 | 125000 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 66667 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 91667 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 125000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 125000 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 1017257 |
| IRS990/GrossReceiptsAmt | 0 | 1861871 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 16 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 3453 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 50 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 4826 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 8329 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 192 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 27 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2519 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2738 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 12764 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 12764 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 684374 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 693690 |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 4434 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 523 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 373 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 4807 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 1016630 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 1 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION, AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1010445 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1196823 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 627 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 627 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -49609 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -49609 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -1799 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 1231 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 176 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 16185 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 17592 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 2580 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 7740 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 10320 |
| IRS990/OtherExpensesGrp/Desc | 0 | OUTREACH, WEBINARS & SU |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK CHARGES |
| IRS990/OtherExpensesGrp/Desc | 2 | PUBLIC RELATIONS |
| IRS990/OtherExpensesGrp/Desc | 3 | POSTAGE & SHIPPING |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 11462 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 135 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 231 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 152 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 438 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 17212 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 561 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 9177 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 7012 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 17212 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 12175 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 9315 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 7681 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1463 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 1463 |
| IRS990/OtherRevenueTotalAmt | 0 | 1463 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 16337 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 2042 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 185836 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 204215 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2006 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 251 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 22824 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 25081 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 5757 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 8240 |
| IRS990/PoliciesReferenceChaptersInd | 0 | 1 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 17902 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 17912 |
| IRS990/PrincipalOfficerNm | 0 | SETH HORWITZ |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 511120 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCES |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | PAMPHLET SALES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 4366 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 513 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 4366 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 513 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 858983 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 125000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 5569 |
| IRS990/PYOtherExpensesAmt | 0 | 176440 |
| IRS990/PYOtherRevenueAmt | 0 | -75858 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 21187 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 223476 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 284965 |
| IRS990/PYTotalExpensesAmt | 0 | 586405 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 809881 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 188177 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 1 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 6342 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 392003 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 555076 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 10000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 24000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 20000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 20342 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 20242 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 94584 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | MISCELLANEOUS REVENUE - 2013 AMOUNT: $ 450. 2014 AMOUNT: $ 1,400. 2015 AMOUNT: $ 2,025. 2016 AMOUNT: $ 1,725. 2017 AMOUNT: $ 1,462. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | SCHEDULE A, PART III, LINE 12, EXPLANATION OF OTHER INCOME: |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 825508 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 853983 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 649068 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 664845 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 509535 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 3502939 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 12764 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 5685 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 5037 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 5562 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4168 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 33216 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 4879 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 21187 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 66254 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 7616 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 14766 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 114702 |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.