Liabilities / Assets
60th percentile
Higher debt load relative to assets than 60% of similar nonprofits.
EIN 04-3180414 • 501(c)3 • Boston, MA
Profile
The vhl alliance is dedicated to research, education and support to improve awareness, diagnosis, treatment and quality of life for those affected by vhl disease.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
60th percentile
Higher debt load relative to assets than 60% of similar nonprofits.
Liabilities / Revenue
72nd percentile
Higher debt load relative to revenue than 72% of similar nonprofits.
Net Margin
64th percentile
Higher net margin than 64% of similar nonprofits.
Top Officer Pay
40th percentile
Higher top officer pay than 40% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
67th percentile
Faster asset growth than 67% of similar nonprofits.
Revenue Growth
13th percentile
Faster revenue growth than 13% of similar nonprofits.
Assets
Up$2,563,651
Up $247,483 (+11%) from 2024
Liabilities
Up$326,368
Up $103,751 (+47%) from 2024
Net Assets
Up$2,237,283
Up $143,732 (+6.9%) from 2024
Revenue
Down$1,175,753
Down $362,001 (-24%) from 2024
Expenses
Up$1,030,955
Up $68,147 (+7.1%) from 2024
Net Income
Down$144,798
Down $430,148 (-75%) from 2024
Most recent year
2025 • Form 990Detailed filing. Detailed filing data is available for this year.
To support efforts to cure von-hippel-lindau disease; to provide a support network for patients & their families; to educate & inform the public & the medical community on current developments.
To support efforts to cure von-hippel-lindau disease: to provide a support network for patients & their families: to educate & inform the public & the medical community on current developments.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $1,785,180 | $1,937,225 | ▲ $152,045 |
| Savings and Temporary Cash Investments | $456,141 | $580,487 | ▲ $124,346 |
| Cash and Non-Interest-Bearing Accounts | $62,085 | $31,304 | ▼ $30,781 |
| Prepaid Expenses and Deferred Charges | $12,762 | $14,635 | ▲ $1,873 |
| Total Assets | $2,316,168 | $2,563,651 | ▲ $247,483 |
| Liabilities | |||
| Grants Payable | $208,333 | $150,000 | ▼ $58,333 |
| Other Liabilities | $0 | $100,000 | ▲ $100,000 |
| Accounts Payable and Accrued Expenses | $10,319 | $39,968 | ▲ $29,649 |
| Deferred Revenue | $3,965 | $36,400 | ▲ $32,435 |
| Total Liabilities | $222,617 | $326,368 | ▲ $103,751 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,743,551 | $1,937,283 | ▲ $193,732 |
| Net Assets With Donor Restrictions | $350,000 | $300,000 | ▼ $50,000 |
| Total Net Assets Fund Balance | $2,093,551 | $2,237,283 | ▲ $143,732 |
| Total Liabilities and Net Assets / Fund Balance | $2,316,168 | $2,563,651 | ▲ $247,483 |
| Name | Title |
|---|---|
| William Engel | Chair |
| Kwame Garrett Price | Vice Chair |
| Cary Schwanitz | Director |
| Daffodil Baez | Director |
| Daniel Batten | Director |
| John Josey | Director |
| Lee Willer Spector | Director |
| Michael Van Loon | Director |
| Othon Iliopoulos Md Phd | Director |
| Prashant Kudva | Director |
| Rohan Nirody | Director |
| Ruhee Dere | Director |
| Stacy Yates | Director |
| Jacqueline Zarro | Secretary |
| Seth Horwitz | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $525,012 |
| Other Expenses | $405,943 |
| Total Fundraising Expense | $135,689 |
| Grants and Similar Amounts Paid | $100,000 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $250,444 | $51,430 | $71,250 | $373,124 |
| Current Officers, Directors, Trustees, and Key Employees | $76,386 | $15,686 | $21,731 | $113,803 |
| Foreign Grants | $100,000 | - | - | $100,000 |
| All Other Expenses | $18,737 | $16,011 | $6,249 | $40,997 |
| Payroll Taxes | $25,353 | $5,202 | $7,530 | $38,085 |
| Travel | $36,053 | $824 | $1,106 | $37,983 |
| Other Expenses | $16,319 | $9,706 | $1,248 | $16,319 |
| Fees for Services Accounting | $10,885 | $1,555 | $3,110 | $15,550 |
| Information Technology | $8,953 | $473 | $1,715 | $11,141 |
| Office Expenses | $9,992 | $198 | $207 | $10,397 |
| Fees for Services Legal | $215 | $275 | $6,700 | $7,190 |
| Insurance | $2,673 | $382 | $764 | $3,819 |
| Fees for Services Other | - | $459 | $990 | $1,449 |
| Occupancy | $988 | $211 | $211 | $1,410 |
| Total Functional Expenses | $792,854 | $102,412 | $135,689 | $1,030,955 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,032,869 |
| Expenses per Audited Statements | $1,030,955 |
| Total Expenses per Form 990 | $1,030,955 |
| Expenses Not Reported on Form 990 | $1,914 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Liability | Amount |
|---|---|
| Refundable Advance | $100,000 |
“The completed form 990 is provided to the board of directors for review and approval before filing electronically with the internal revenue service.”
“The organization maintains an annual signed disclosure to monitor compliance with its conflict of interest policy.”
“Compensation for the organization's executive director and key employees is part of the budgeting process for the board of directors. Comparability data is used as part of the budget determination process. The board of directors determines the approved budgeted payroll figures annually.”
“The organization makes its governing documents and annual information returns and financial statements available upon request. Additionally, the organization's documents, returns and statements are available on the website of the commonwealth of massachusetts. The organization's form 990 is also available on the guidestar website.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 10319 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 39968 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE: TO PROVIDE A SUPPORT NETWORK FOR PATIENTS & THEIR FAMILIES: TO EDUCATE & INFORM THE PUBLIC & THE MEDICAL COMMUNITY ON CURRENT DEVELOPMENTS. |
| IRS990/AllOtherContributionsAmt | 0 | 1066511 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 6249 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 16011 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 18737 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 40997 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | JANET THOMPSON EXEC DIR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8007674845 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 844682 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BOSTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 022844682 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 62085 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 31304 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 21731 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 15686 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 76386 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 113803 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1066511 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 100000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 104473 |
| IRS990/CYOtherExpensesAmt | 0 | 405943 |
| IRS990/CYOtherRevenueAmt | 0 | 4769 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 144798 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 525012 |
| IRS990/CYTotalExpensesAmt | 0 | 1030955 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 135689 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1175753 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 3965 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 36400 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THE VHL ALLIANCE IS THE LARGEST PRIVATE FUNDER OF VHL RESEARCH WORLDWIDE, WE INVEST CRUCIAL CAPITAL INTO PEER-REVIEWED SCIENCE, DIRECTLY FUELING THE WORK OF LEADING VHL SCIENTISTS TO FIND BETTER TREATMENTS AND A CURE. WE BRING THE VHL COMMUNITY TOGETHER BY HOSTING SYMPOSIUMS AND IN-PERSON EVENTS THAT UNITE FAMILIES AND THE MEDICAL PROFESSIONALS WHO TREAT THEM, FOSTERING A COLLABORATIVE APPROACH TO HEALTH AND DISCOVERY. WE PROVIDE VITAL, EXPERTLY DESIGNED EDUCATIONAL TOOLS THAT GIVE PATIENTS AND FAMILIES THE KNOWLEDGE THEY NEED TO CONFIDENTLY ADVOCATE FOR THE BEST POSSIBLE VHL CARE. WE SUPPORT AND CERTIFY A NETWORK OF MORE THAN 40 VHL CLINICAL CARE CENTERS, ENSURING THAT THE HIGHEST QUALITY, COMPREHENSIVE VHL CARE IS ACCESSIBLE THROUGHOUT THE COUNTRY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 350000 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 300000 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 6 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 792854 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 3110 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 1555 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 10885 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 15550 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 6700 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 275 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 215 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 7190 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 990 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 459 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 1449 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 100000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 100000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | WILLIAM ENGEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KWAME GARRETT PRICE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DAFFODIL BAEZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | STACY YATES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ROHAN NIRODY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MICHAEL VAN LOON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DANIEL BATTEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CARY SCHWANITZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | JACQUELINE ZARRO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | PRASHANT KUDVA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | LEE WILLER SPECTOR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | OTHON ILIOPOULOS MD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | JOHN JOSEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | SETH HORWITZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | RUHEE DERE |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1993 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 15 |
| IRS990/GrantAmt | 0 | 100000 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 208333 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 150000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1175753 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 1715 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 473 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 8953 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 11141 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 764 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 382 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2673 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3819 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 104473 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 104473 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1785180 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1937225 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 1 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 2093551 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 2237283 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -1066 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1743551 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1937283 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 211 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 211 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 988 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 1410 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 207 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 198 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 9992 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 10397 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | OUTSIDE SERVICES |
| IRS990/OtherExpensesGrp/Desc | 1 | PUBLIC RELATIONS |
| IRS990/OtherExpensesGrp/Desc | 2 | OUTREACH, WEBINARS & SU |
| IRS990/OtherExpensesGrp/Desc | 3 | PRINTING & REPRODUCTION |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 12878 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1248 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 9706 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 103101 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 102374 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 30381 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 16319 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 125685 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 103622 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 30381 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 16319 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 100000 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 4769 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 4769 |
| IRS990/OtherRevenueTotalAmt | 0 | 4769 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 71250 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 51430 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 250444 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 373124 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 7530 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 5202 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 25353 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 38085 |
| IRS990/PoliciesReferenceChaptersInd | 0 | 1 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 12762 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 14635 |
| IRS990/PrincipalOfficerNm | 0 | SETH HORWITZ |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1234173 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 150000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 97272 |
| IRS990/PYOtherExpensesAmt | 0 | 391389 |
| IRS990/PYOtherRevenueAmt | 0 | 8919 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 197390 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 574946 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 421419 |
| IRS990/PYTotalExpensesAmt | 0 | 962808 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1537754 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 144798 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 4769 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 456141 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 580487 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 195283 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 615100 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 60000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 870383 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | MISCELLANEOUS REVENUE - 2020 AMOUNT: $ 72,001. 2021 AMOUNT: $ 2,672. 2022 AMOUNT: $ 395. 2023 AMOUNT: $ 8,919. 2024 AMOUNT: $ 4,769. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | SCHEDULE A, PART III, LINE 12, EXPLANATION OF OTHER INCOME: |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1066511 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1234173 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 849284 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1020221 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1011833 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 5182022 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 103407 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 101916 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 62233 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3556 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4166 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 275278 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 197390 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 42466 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 42085 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 58815 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 340756 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 103407 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 101916 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 62233 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 3556 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 4166 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 275278 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.04680 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.03650 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 4769 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 8919 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 395 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2672 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 72001 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 88756 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.65330 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.74830 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 3845868 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 678054 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 938856 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 60000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 1676910 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 482771 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 323756 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 806527 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1066511 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1431563 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 891750 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1062306 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1070648 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 5522778 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 1174687 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 1542398 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 954378 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 1068534 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1146815 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 5886812 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
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