Civic Intelligence

Vhl Alliance Inc.

990 • Fiscal year 2019 • EIN 04-3180414

Jul 01, 2018 to Jun 30, 2019 • Filed on Oct 23, 2019

Organization ProfileWWW.VHL.ORG

View Organization Page

1208 Vfw Parkway No 303Boston, MA 02132-4344

(617) 277-5667

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

59th percentile

0.14x

Higher debt load relative to assets than 59% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

68th percentile

0.24x

Higher debt load relative to revenue than 68% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

78th percentile

21%

Higher net margin than 78% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

73rd percentile

$111,298

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 11.2% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

83rd percentile

25%

Faster asset growth than 83% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

78th percentile

24%

Faster revenue growth than 78% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$1,658,126

Up $327,670 (+25%) from 2018

Net Assets

Up

$1,418,950

Up $222,127 (+19%) from 2018

Liabilities

Up

$239,176

Up $105,543 (+79%) from 2018

Revenue And Expenses
Liabilities / Revenue68th percentileNet Margin78th percentile

Revenue

Up

$990,158

Up $194,526 (+24%) from 2018

Expenses

Up

$782,772

Up $175,317 (+29%) from 2018

Net Income

Up

$207,386

Up $19,209 (+10%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth83rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $188,868Liabilities 2010: $57,744Net Assets 2010: $131,1242010Assets 2011: $203,062Liabilities 2011: $55,356Net Assets 2011: $147,7062011Assets 2012: $180,510Liabilities 2012: $5,442Net Assets 2012: $175,0682012Assets 2013: $352,458Liabilities 2013: $7,156Net Assets 2013: $345,3022013Assets 2014: $568,485Liabilities 2014: $6,311Net Assets 2014: $562,1742014Assets 2015: $803,076Liabilities 2015: $56,729Net Assets 2015: $746,3472015Assets 2016: $887,147Liabilities 2016: $100,325Net Assets 2016: $786,8222016Assets 2017: $1,126,025Liabilities 2017: $115,580Net Assets 2017: $1,010,4452017Assets 2018: $1,330,456Liabilities 2018: $133,633Net Assets 2018: $1,196,8232018Assets 2019: $1,658,126Liabilities 2019: $239,176Net Assets 2019: $1,418,9502019Assets 2020: $1,739,757Liabilities 2020: $475,415Net Assets 2020: $1,264,3422020Assets 2021: $2,138,238Liabilities 2021: $547,747Net Assets 2021: $1,590,4912021Assets 2022: $2,201,865Liabilities 2022: $517,836Net Assets 2022: $1,684,0292022Assets 2023: $1,871,941Liabilities 2023: $357,980Net Assets 2023: $1,513,9612023Assets 2024: $2,316,168Liabilities 2024: $222,617Net Assets 2024: $2,093,5512024Assets 2025: $2,563,651Liabilities 2025: $326,368Net Assets 2025: $2,237,2832025

Highlighted filing

2019

Assets$1,658,126
Liabilities$239,176
Net Assets$1,418,950
Open 2019 Filing

Operations Trend

Revenue Growth78th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2010: $286,109Expenses 2010: $260,624Net Income 2010: $25,4852010Expenses 2011: $247,4212011Expenses 2012: $235,8302012Revenue 2013: $406,156Expenses 2013: $236,247Net Income 2013: $169,9092013Revenue 2014: $528,600Expenses 2014: $311,729Net Income 2014: $216,8712014Revenue 2015: $679,499Expenses 2015: $493,972Net Income 2015: $185,5272015Revenue 2016: $737,441Expenses 2016: $695,492Net Income 2016: $41,9492016Revenue 2017: $809,881Expenses 2017: $586,405Net Income 2017: $223,4762017Revenue 2018: $795,632Expenses 2018: $607,455Net Income 2018: $188,1772018Revenue 2019: $990,158Expenses 2019: $782,772Net Income 2019: $207,3862019Revenue 2020: $611,951Expenses 2020: $766,559Net Income 2020: -$154,6082020Revenue 2021: $1,146,815Expenses 2021: $820,666Net Income 2021: $326,1492021Revenue 2022: $1,073,740Expenses 2022: $980,202Net Income 2022: $93,5382022Revenue 2023: $949,933Expenses 2023: $1,124,446Net Income 2023: -$174,5132023Revenue 2024: $1,537,754Expenses 2024: $962,808Net Income 2024: $574,9462024Revenue 2025: $1,175,753Expenses 2025: $1,030,955Net Income 2025: $144,7982025

Highlighted filing

2019

Revenue$990,158
Expenses$782,772
Net Income$207,386
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2018 to Jun 30, 2019
Signed
Oct 23, 2019
Return Version
2018v3.1
Gross Receipts
$2,347,070
Mission and Program Overview

Mission

To support efforts to cure von-hippel-lindau disease; to provide a support network for patients & their families; to educate & inform the public & the medical community on current developments.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$693,690$980,484▲ $286,794
Investments in Publicly Traded Securities-$452,866-
Savings and Temporary Cash Investments$555,076$159,353▼ $395,723
Cash and Non-Interest-Bearing Accounts$55,165$42,014▼ $13,151
Pledges and Grants Receivable$8,240$13,583▲ $5,343
Prepaid Expenses and Deferred Charges$17,912$9,145▼ $8,767
Land, Buildings, and Equipment, Net$373$681▲ $308
Total Assets$1,330,456$1,658,126▲ $327,670
Liabilities
Grants Payable$91,667$216,667▲ $125,000
Accounts Payable and Accrued Expenses$20,714$20,771▲ $57
Deferred Revenue$21,252$1,181▼ $20,071
Other Liabilities$0$557▲ $557
Total Liabilities$133,633$239,176▲ $105,543
Net Assets / Fund Balance
Unrestricted Net Assets$1,196,823$1,393,950▲ $197,127
Temporarily Rstr Net Assets-$25,000-
Total Net Assets Fund Balance$1,196,823$1,418,950▲ $222,127
Total Liabilities and Net Assets / Fund Balance$1,330,456$1,658,126▲ $327,670

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$681$4,635$5,316
Other Securities$524,564--
Compensation and Service Providers
Top Officer Pay73rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Ilene SussmanExecutive DirectorFT$111,298$111,298

Board Members and Trustees

NameTitle
Doug KarlePresident/board Chair
Camron KingBoard Vice Chair/director
Anna WallerDirector
Barbara CorrellDirector
Connie Rath EdDirector
Deanna WickizerDirector
Emily BillcheckDirector
Eric Jonasch MdDirector
Gordon CookeDirector
Jennifer GalenkampDirector
Julie Woodruff MdDirector
Mark PallanschDirector
Soniya SapreDirector
Stacy Lloyd MphDirector
Steven Angotti JdDirector
Jane BeasleySecretary & Director
Seth HorwitzTreasurer & Director
Revenue and Support

Revenue Composition

Contributions and Grants
$935,533
Program Service Revenue
$60,957
Investment Income
$8,685
Other Revenue
$-15,017
All Other Contributions
$710,976
Change in Net Assets
$207,386

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,007,704
Revenue Not Reported on Financial Statements
$-17,546
Revenue Not Reported on Form 990
$88,490
Other Revenue Adjustments
$-17,546
Total Revenue per Audited Statements
$1,096,194
Total Revenue per Form 990
$990,158
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$343,325
Grants and Similar Amounts Paid$275,000
Other Expenses$164,447
Total Fundraising Expense$57,803
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$275,000--$275,000
Other Salaries and Wages$177,044$1,946$15,564$194,554
Current Officers, Directors, Trustees, and Key Employees$102,393$1,125$9,001$112,519
All Other Expenses$17,419$2,904$5,908$26,231
Payroll Taxes$23,452$258$2,062$25,772
Conferences and Meetings$24,922--$24,922
Occupancy$16,702$184$1,468$18,354
Travel$11,713$79$5,523$17,315
Fees for Services Other$8,494$4,829$596$13,919
Other Employee Benefits$7,860-$2,620$10,480
Other Expenses$7,507$403$7,789$7,507
Fees for Services Accounting$5,785$65$650$6,500
Fees for Services Legal--$5,800$5,800
Insurance$2,612--$2,612
Information Technology-$-257$822$565
Depreciation Depletion$201--$201
Total Functional Expenses$713,433$11,536$57,803$782,772

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$874,067
Expenses per Audited Statements$782,772
Total Expenses per Form 990$782,772
Expenses Not Reported on Form 990$91,295
Expenses Not Reported on Financial Statements$0
International Activity

International Summary

Offices
0
Employees
0
Spending
$100,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaResearch Grant to Recipient Located in Region-00$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$17,546
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Meeting & Conference$86,174-$17,546-
Constituency Events$82,652---
Total Events$224,557-$17,546$-17,546
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Withholdings$557
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The completed form 990 is provided to the board of directors for review and approval before filing electronically with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“The organization maintains an annual signed disclosure to monitor compliance with its conflict of interest policy.”

Form 990, Part VI, Section B, Line 15

“Compensation for the organization's executive director and key employees is part of the budgeting process for the board of directors. Comparability data is used as part of the budget determination process. The board of directors determines the approved budgeted payroll figures annually.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents and annual information returns and financial statements available upon request. Additionally, the organization's documents, returns and statements are available on the website of the commonwealth of massachusetts. The organization's form 990 is also available on the guidestar website.”

Filing and Contact Details

Filer

Filer Name
Vhl Alliance Inc
EIN
04-3180414
Phone
6172775667
Address
1208 VFW PARKWAY NO 303, BOSTON, MA 02132-4344

Signing Officer

Name
Seth Horwitz
Title
Treasurer
Phone
6172775667
Signed
2019-10-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Seth Horwitz
Formed
1993
Legal Domicile
Ma
Voting Board Members
18
Independent Board Members
17
Employees
5
Volunteers
125

Preparer

Firm
Finer & Finer
Address
12 LORI LANE, RANDOLPH, MA 02368-5241
Preparer
Ronald M Finer CPA
Phone
7819616884
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Outside services: program service expenses 6,602. Management and general expenses 4,808. Fundraising expenses 430. Total expenses 11,840. Payroll service fees: program service expenses 1,892. Management and general expenses 21. Fundraising expenses 166. Total expenses 2,079.”

Form 990, Part IX, Line 24E

“Public relations: program service expenses 3,848. Management and general expenses 5. Fundraising expenses 1,961. Total expenses 5,814. Postage & shipping: program service expenses 4,150. Management and general expenses 690. Fundraising expenses 128. Total expenses 4,968. Filing fees: program service expenses 0. Management and general expenses 269. Fundraising expenses 3,276. Total expenses 3,545. Program supplies: program service expenses 1,337. Management and general expenses 1,433. Fundraising expenses 118. Total expenses 2,888. Telephone: program service expenses 2,372. Management and general expenses 281. Fundraising expenses 205. Total expenses 2,858. Patient registry: program service expenses 2,267. Management and general expenses 0. Fundraising expenses 0. Total expenses 2,267. Miscellaneous: program service expenses 1,920. Management and general expenses 18. Fundraising expenses 220. Total expenses 2,158. Dues & subscriptions: program service expenses 1,525. Management and general expenses 208. Fundraising expenses 0. Total expenses 1,733.”

Form 990, Part XII, Line 2C

“There have been no changes to the audit committee processes.”

Financial Statement Notes

PART X, LINE 2:

“Management has evaluated significant tax positions against criteria established by professional standards and believes there are no such tax positions requiring accounting recognition in the financial statements. Management does not believe its evaluation of tax positions will significantly change within twelve months of june 30, 2019. Any changes in tax positions will be recorded when the ultimate outcome becomes known. The organization's annual information returns are currently subject to examination by taxing authorities for the years ended june 30, 2016 through june 30, 2019.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Donated services 51,609. Donated travel 4,727. Donated software 15,931. Donated constituency event costs 1,482.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Direct expense of events reported as negative revenues -17,546.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Donated constituency event costs 1,482. Donated services 51,609. Donated travel 4,727. Donated software 15,931. Direct expense of events reported as negative revenues 17,546.”

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IRS990/Desc0THE VHL ALLIANCE PROVIDES A QUARTERLY NEWSLETTER, ON-LINE SERVICES, TELEPHONE OUTREACH AND OTHER SERVICES FOR VHL PATIENTS & FAMILY MEMBERS TO BE ABLE TO COMMUNICATE CURRENT VHL RESEARCH & MEDICAL INFORMATION. THE VHL ALLIANCE ALSO PROVIDES EDUCATIONAL MATERIAL INCLUDING PATIENT HANDBOOKS AND BROCHURES ON LIVING WITH VHL DISEASE, THE VHL ALLIANCE ALSO HOLDS MEDICAL/RESEARCH SYMPOSIUMS, AN ANNUAL CONFERENCES & RECURRING SEMINARS, AND MAINTAINS EDUCATION & RESEARCH PROGRAMS SUCH AS THE TISSUE BANK AND THE CENTRAL VHL DATABASE.
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IRS990/Form990PartVIISectionAGrp/PersonNm17ILENE SUSSMAN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17111298
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT/BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD VICE CHAIR/DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY & DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER & DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01993
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0224557
IRS990/FundraisingDirectExpensesAmt017546
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt0-10292
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantAmt0275000
IRS990/GrantsPayableGrp/BOYAmt091667
IRS990/GrantsPayableGrp/EOYAmt0216667
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0275000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0275000
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01329074
IRS990/GrossReceiptsAmt02347070
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0822
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0-257
IRS990/InformationTechnologyGrp/TotalAmt0565
IRS990/InsuranceGrp/ProgramServicesAmt02612
IRS990/InsuranceGrp/TotalAmt02612
IRS990/InvestmentIncomeGrp/ExclusionAmt018977
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt018977
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0693690
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0980484
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0452866
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt04635
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0373
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0681
IRS990/LandBldgEquipCostOrOtherBssAmt05316
IRS990/LegalDomicileStateCd0MA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01339366
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION, AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE.
IRS990/MoreThan5000KToIndividualsInd01
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01196823
IRS990/NetAssetsOrFundBalancesEOYAmt01418950
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-10292
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-10292
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-17546
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-17546
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt014741
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt01468
IRS990/OccupancyGrp/ManagementAndGeneralAmt0184
IRS990/OccupancyGrp/ProgramServicesAmt016702
IRS990/OccupancyGrp/TotalAmt018354
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02620
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt07860
IRS990/OtherEmployeeBenefitsGrp/TotalAmt010480
IRS990/OtherExpensesGrp/Desc0OUTREACH, WEBINARS & SU
IRS990/OtherExpensesGrp/Desc1PRINTING & REPRODUCTION
IRS990/OtherExpensesGrp/Desc2BANK CHARGES
IRS990/OtherExpensesGrp/Desc3SOFTWARE COSTS
IRS990/OtherExpensesGrp/FundraisingAmt07789
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0403
IRS990/OtherExpensesGrp/ProgramServicesAmt019447
IRS990/OtherExpensesGrp/ProgramServicesAmt112808
IRS990/OtherExpensesGrp/ProgramServicesAmt274
IRS990/OtherExpensesGrp/ProgramServicesAmt37507
IRS990/OtherExpensesGrp/TotalAmt019447
IRS990/OtherExpensesGrp/TotalAmt113211
IRS990/OtherExpensesGrp/TotalAmt27863
IRS990/OtherExpensesGrp/TotalAmt37507
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt0557
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt02529
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt02529
IRS990/OtherRevenueTotalAmt02529
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt015564
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt01946
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0177044
IRS990/OtherSalariesAndWagesGrp/TotalAmt0194554
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt02062
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0258
IRS990/PayrollTaxesGrp/ProgramServicesAmt023452
IRS990/PayrollTaxesGrp/TotalAmt025772
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt08240
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt013583
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt017912
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt09145
IRS990/PrincipalOfficerNm0SETH HORWITZ
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0624100
IRS990/ProgramServiceRevenueGrp/BusinessCd1511120
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCES & SYMPOSIA
IRS990/ProgramServiceRevenueGrp/Desc1PAMPHLET SALES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt060150
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1807
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt060150
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1807
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0825508
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0125000
IRS990/PYInvestmentIncomeAmt013391
IRS990/PYOtherExpensesAmt0132495
IRS990/PYOtherRevenueAmt0-48146
IRS990/PYProgramServiceRevenueAmt04879
IRS990/PYRevenuesLessExpensesAmt0188177
IRS990/PYSalariesCompEmpBnftPaidAmt0349960
IRS990/PYTotalExpensesAmt0607455
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0795632
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0207386
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt063486
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0555076
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0159353
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt0220000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt010000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt024000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt020000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt020342
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt0294342
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISCELLANEOUS REVENUE - 2014 AMOUNT: $ 1,400. 2015 AMOUNT: $ 2,025. 2016 AMOUNT: $ 1,725. 2017 AMOUNT: $ 1,462. 2018 AMOUNT: $ 2,529.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART III, LINE 12, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0935533
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0825508
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0853983
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0649068
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0664845
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt03928937
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt018977
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt012764
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt05685
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt05037
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt05562
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt048025
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt060957
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt04879
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt021187

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,658,126
Liabilities
$239,176
Net assets
$1,418,950
Revenue
$990,158
Expenses
$782,772
Net income
$207,386
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$2.56$0.33$2.24$1.18$1.03$0.14
2024Detailed filing. Detailed filing data is available for this year.$2.32$0.22$2.09$1.54$0.96$0.57
2023Detailed filing. Detailed filing data is available for this year.$1.87$0.36$1.51$0.95$1.12$0.17
2022Detailed filing. Detailed filing data is available for this year.$2.20$0.52$1.68$1.07$0.98$0.09
2021Detailed filing. Detailed filing data is available for this year.$2.14$0.55$1.59$1.15$0.82$0.33
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.74$0.48$1.26$0.61$0.77$0.15
2019Detailed filing. Detailed filing data is available for this year.$1.66$0.24$1.42$0.99$0.78$0.21
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.33$0.13$1.20$0.80$0.61$0.19
2017Detailed filing. Detailed filing data is available for this year.$1.13$0.12$1.01$0.81$0.59$0.22
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.89$0.10$0.79$0.74$0.70$0.04
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.80$0.06$0.75$0.68$0.49$0.19
2014Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.57$0.01$0.56$0.53$0.31$0.22
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.01$0.35$0.41$0.24$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.18$0.01$0.18$0.24
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.06$0.15$0.25
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.19$0.06$0.13$0.29$0.26$0.03