Liabilities / Assets
69th percentile
Higher debt load relative to assets than 69% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
69th percentile
Higher debt load relative to assets than 69% of similar nonprofits.
Liabilities / Revenue
83rd percentile
Higher debt load relative to revenue than 83% of similar nonprofits.
Net Margin
13th percentile
Higher net margin than 13% of similar nonprofits.
Top Officer Pay
37th percentile
Higher top officer pay than 37% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
48th percentile
Faster asset growth than 48% of similar nonprofits.
Revenue Growth
12th percentile
Faster revenue growth than 12% of similar nonprofits.
Assets
Up$1,739,757
Up $81,631 (+4.9%) from 2019
Net Assets
Down$1,264,342
Down $154,608 (-11%) from 2019
Liabilities
Up$475,415
Up $236,239 (+99%) from 2019
Revenue
Down$611,951
Down $378,207 (-38%) from 2019
Expenses
Down$766,559
Down $16,213 (-2.1%) from 2019
Net Income
Down-$154,608
Down $361,994 (-175%) from 2019
To support efforts to cure von-hippel-lindau disease; to provide a support network for patients & their families; to educate & inform the public & the medical community on current developments.
To support efforts to cure von-hippel-lindau disease: to provide a support network for patients & their families: to educate & inform the public & the medical community on current developments.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $159,353 | $1,441,768 | ▲ $1,282,415 |
| Investments Other Securities | $980,484 | - | - |
| Investments in Publicly Traded Securities | $452,866 | $240,681 | ▼ $212,185 |
| Cash and Non-Interest-Bearing Accounts | $42,014 | $40,173 | ▼ $1,841 |
| Prepaid Expenses and Deferred Charges | $9,145 | $17,135 | ▲ $7,990 |
| Pledges and Grants Receivable | $13,583 | $0 | ▼ $13,583 |
| Land, Buildings, and Equipment, Net | $681 | $0 | ▼ $681 |
| Total Assets | $1,658,126 | $1,739,757 | ▲ $81,631 |
| Liabilities | |||
| Grants Payable | $216,667 | $358,333 | ▲ $141,666 |
| Other Liabilities | $557 | $71,259 | ▲ $70,702 |
| Deferred Revenue | $1,181 | $43,976 | ▲ $42,795 |
| Accounts Payable and Accrued Expenses | $20,771 | $1,847 | ▼ $18,924 |
| Total Liabilities | $239,176 | $475,415 | ▲ $236,239 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,393,950 | $1,264,342 | ▼ $129,608 |
| Net Assets With Donor Restrictions | $25,000 | $0 | ▼ $25,000 |
| Total Net Assets Fund Balance | $1,418,950 | $1,264,342 | ▼ $154,608 |
| Total Liabilities and Net Assets / Fund Balance | $1,658,126 | $1,739,757 | ▲ $81,631 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $0 | $5,316 | $5,316 |
| Name | Title |
|---|---|
| Doug Karle | President/board Chair |
| Camron King | Board Vice Chair/director |
| Anna Waller | Director |
| Barbara Correll | Director |
| Connie Rath Ed | Director |
| Eric Jonasch Md | Director |
| Gordon Cooke | Director |
| Jennifer Galenkamp | Director |
| Julie Woodruff Jd | Director |
| Kevin Nichols | Director |
| Mark Pallansch | Director |
| Prashant Kudva | Director |
| Soniya Sapre | Director |
| Stacy Lloyd Mph | Director |
| Emily Billcheck | Secretary & Director |
| Seth Horwitz | Treasurer & Director |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $342,929 |
| Grants and Similar Amounts Paid | $316,667 |
| Other Expenses | $106,963 |
| Total Fundraising Expense | $43,232 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $179,825 | $981 | $13,961 | $194,767 |
| Grants to Domestic Individuals | $166,667 | - | - | $166,667 |
| Foreign Grants | $150,000 | - | - | $150,000 |
| Current Officers, Directors, Trustees, and Key Employees | $110,552 | $1,128 | $1,128 | $112,808 |
| Payroll Taxes | $22,835 | $251 | $2,008 | $25,094 |
| All Other Expenses | $16,116 | $2,666 | $5,701 | $24,483 |
| Occupancy | $17,644 | $194 | $1,551 | $19,389 |
| Other Employee Benefits | $7,695 | - | $2,565 | $10,260 |
| Information Technology | $7,492 | $-256 | $820 | $8,056 |
| Travel | $5,035 | $35 | $2,374 | $7,444 |
| Fees for Services Accounting | $5,785 | $65 | $650 | $6,500 |
| Fees for Services Legal | - | - | $5,800 | $5,800 |
| Other Expenses | $2,468 | $2,645 | $218 | $5,331 |
| Office Expenses | $3,924 | $37 | $450 | $4,411 |
| Insurance | $2,623 | $29 | $231 | $2,883 |
| Depreciation Depletion | $681 | - | - | $681 |
| Total Functional Expenses | $715,552 | $7,775 | $43,232 | $766,559 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $806,309 |
| Expenses per Audited Statements | $767,631 |
| Total Expenses per Form 990 | $766,559 |
| Expenses Not Reported on Form 990 | $38,678 |
| Expenses Not Reported on Financial Statements | $-1,072 |
| Other Expense Adjustments | $-1,072 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| France | Research Grant to Recipient Located in Region | - | 0 | 0 | $150,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $1,072 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Constituency | $95,611 | - | - | - |
| Coevents | $9,415 | - | $544 | - |
| Total Events | $124,353 | - | $1,072 | $-1,072 |
| Liability | Amount |
|---|---|
| Refundble Advance, Ppp Loan | $71,259 |
“The completed form 990 is provided to the board of directors for review and approval before filing electronically with the internal revenue service.”
“The organization maintains an annual signed disclosure to monitor compliance with its conflict of interest policy.”
“Compensation for the organization's executive director and key employees is part of the budgeting process for the board of directors. Comparability data is used as part of the budget determination process. The board of directors determines the approved budgeted payroll figures annually.”
“The organization makes its governing documents and annual information returns and financial statements available upon request. Additionally, the organization's documents, returns and statements are available on the website of the commonwealth of massachusetts. The organization's form 990 is also available on the guidestar website.”
“Management has evaluated significant tax positions against criteria established by profesional standards and believes there are no such tax positions requiring accounting recognition in the financial statements. Management does not believe its evaluation of tax position will significantly change within twelve months of june 30, 2020. Any changes in tax positions will be recorded when the ultimate outcome becomes known. The organization's annual information returns are currently subject to examination by taxing authorities for the years ended june 30, 2017 thorugh june 30, 2020.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 20771 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 1847 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE: TO PROVIDE A SUPPORT NETWORK FOR PATIENTS & THEIR FAMILIES: TO EDUCATE & INFORM THE PUBLIC & THE MEDICAL COMMUNITY ON CURRENT DEVELOPMENTS. |
| IRS990/AllOtherContributionsAmt | 0 | 422235 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 5701 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2666 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 16116 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 24483 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | ILENE SUSSMAN EXEC DIR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6172775667 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1208 VFW PARKWAY 303 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BOSTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 021324344 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 42014 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 40173 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 1128 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 1128 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 110552 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 112808 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 124353 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 546588 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 316667 |
| IRS990/CYInvestmentIncomeAmt | 0 | 22294 |
| IRS990/CYOtherExpensesAmt | 0 | 106963 |
| IRS990/CYOtherRevenueAmt | 0 | -372 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 43441 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -154608 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 342929 |
| IRS990/CYTotalExpensesAmt | 0 | 766559 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 43232 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 611951 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 1181 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 43976 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 681 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 681 |
| IRS990/Desc | 0 | THE VHL ALLIANCE PROVIDES A QUARTERLY NEWSLETTER, ON-LINE SERVICES, TELEPHONE OUTREACH AND OTHER SERVICES FOR VHL PATIENTS & FAMILY MEMBERS TO BE ABLE TO COMMUNICATE CURRENT VHL RESEARCH & MEDICAL INFORMATION. THE VHL ALLIANCE ALSO PROVIDES EDUCATIONAL MATERIAL INCLUDING PATIENT HANDBOOKS AND BROCHURES ON LIVING WITH VHL DISEASE, THE VHL ALLIANCE ALSO HOLDS MEDICAL/RESEARCH SYMPOSIUMS, AN ANNUAL CONFERENCES & RECURRING SEMINARS, AND MAINTAINS EDUCATION & RESEARCH PROGRAMS SUCH AS THE TISSUE BANK AND THE CENTRAL VHL DATABASE. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 25000 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 715552 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 650 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 65 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 5785 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 6500 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 5800 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 5800 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 150000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 150000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ANNA WALLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BARBARA CORRELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | CAMRON KING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CONNIE RATH ED |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DOUG KARLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | EMILY BILLCHECK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | ERIC JONASCH MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | GORDON COOKE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | JENNIFER GALENKAMP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JULIE WOODRUFF JD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | MARK PALLANSCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | PRASHANT KUDVA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | SETH HORWITZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | SONIYA SAPRE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | STACY LLOYD MPH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | KEVIN NICHOLS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD VICE CHAIR/DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | PRESIDENT/BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | SECRETARY & DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | TREASURER & DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1993 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 124353 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 1072 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 17 |
| IRS990/GrantAmt | 0 | 316667 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 216667 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 358333 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 166667 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 166667 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 613023 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 16 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 820 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | -256 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 7492 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 8056 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 231 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 29 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2623 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2883 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 22294 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 22294 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 980484 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 452866 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 240681 |
| IRS990/IRPDocumentCnt | 0 | 1 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 5316 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 681 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 5316 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 1 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 1 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1418950 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1264342 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -1072 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -1072 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1393950 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1264342 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 1551 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 194 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 17644 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 19389 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 450 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 37 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 3924 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4411 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 2565 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 7695 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 10260 |
| IRS990/OtherExpensesGrp/Desc | 0 | PRINTING & REPRODUCTION |
| IRS990/OtherExpensesGrp/Desc | 1 | OUTREACH, WEBINARS & SU |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK CHARGES |
| IRS990/OtherExpensesGrp/Desc | 3 | PROGRAM SUPPLIES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 267 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 5508 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 218 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2645 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 8490 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 7667 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 53 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 2468 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 8757 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 7667 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 5561 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 5331 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 557 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 71259 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 700 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 700 |
| IRS990/OtherRevenueTotalAmt | 0 | 700 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 13961 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 981 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 179825 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 194767 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2008 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 251 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 22835 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 25094 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 13583 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliciesReferenceChaptersInd | 0 | 1 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 9145 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 17135 |
| IRS990/PrincipalOfficerNm | 0 | SETH HORWITZ |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 511120 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCES & SYMPOSIA |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | PAMPHLET SALES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 42972 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 469 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 42972 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 469 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 935533 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 275000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 8685 |
| IRS990/PYOtherExpensesAmt | 0 | 164447 |
| IRS990/PYOtherRevenueAmt | 0 | -15017 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 60957 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 207386 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 343325 |
| IRS990/PYTotalExpensesAmt | 0 | 782772 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 990158 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -154608 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 44141 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 159353 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 1441768 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 45000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 220000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 10000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 24000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 20000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 319000 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | MISCELLANEOUS REVENUE - 2015 AMOUNT: $ 2,025. 2016 AMOUNT: $ 1,725. 2017 AMOUNT: $ 1,462. 2018 AMOUNT: $ 2,529. 2019 AMOUNT: $ 700. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | SCHEDULE A, PART III, LINE 12, EXPLANATION OF OTHER INCOME: |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 546588 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 935533 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 825508 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 853983 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 649068 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 3810680 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 22294 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 18977 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 12764 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 5685 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5037 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 64757 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 43441 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 60957 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 4879 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 21187 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 66254 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 196718 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 22294 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 18977 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 12764 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 5685 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 5037 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 64757 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.01590 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.01160 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 700 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 2529 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1462 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.