Civic Intelligence

Spinal Muscular Atrophy Foundation

990PF • Fiscal year 2022 • EIN 01-0759380

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 15, 2023

Organization Profile
970 W Broadway Ste E Pmb 140Jackson, WY 83001

(646) 253-7100

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.06x

Higher debt load relative to assets than 29% of similar nonprofits.

2022 filings • NTEE B • $25M-$50M nonprofits • Source year 2022

Liabilities / Revenue

20th percentile

0.06x

Higher debt load relative to revenue than 20% of similar nonprofits.

2022 filings • NTEE B • $25M-$50M nonprofits • Source year 2022

Net Margin

95th percentile

84%

Higher net margin than 95% of similar nonprofits.

2022 filings • NTEE B • $25M-$50M nonprofits • Source year 2022

Top Officer Pay

19th percentile

$0

Higher top officer pay than 19% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • NTEE B • $25M-$50M nonprofits • Source year 2022

Asset Growth

97th percentile

1084%

Faster asset growth than 97% of similar nonprofits.

2022 filings • NTEE B • $25M-$50M nonprofits • Annualized from 2021 to 2022

Revenue Growth

99th percentile

20514%

Faster revenue growth than 99% of similar nonprofits.

2022 filings • NTEE B • $25M-$50M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets29th percentile

Assets

Up

$24,079,888

Up $22,046,136 (+1084%) from 2021

Net Assets

Up

$22,557,909

Up $21,380,355 (+1816%) from 2021

Liabilities

Up

$1,521,979

Up $665,781 (+78%) from 2021

Revenue And Expenses
Liabilities / Revenue20th percentileNet Margin95th percentile

Revenue

Up

$25,419,539

Up $25,296,227 (+20514%) from 2021

Expenses

Up

$4,039,863

Up $2,867,089 (+244%) from 2021

Net Income

Up

$21,379,676

Up $22,429,138 (+2137%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth97th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0-$20MAssets 2011: $1,645,297Liabilities 2011: $736,6412011Assets 2012: $1,161,449Liabilities 2012: $477,3362012Assets 2013: $1,058,832Liabilities 2013: $804,6522013Assets 2014: $1,428,536Liabilities 2014: $1,038,346Net Assets 2014: $390,1902014Assets 2015: $859,156Liabilities 2015: $961,447Net Assets 2015: -$102,2912015Assets 2016: $3,939,116Liabilities 2016: $1,936,109Net Assets 2016: $2,003,0072016Assets 2017: $1,962,334Liabilities 2017: $453,447Net Assets 2017: $1,508,8872017Assets 2018: $3,030,276Liabilities 2018: $446,983Net Assets 2018: $2,583,2932018Assets 2019: $1,535,980Liabilities 2019: $121,318Net Assets 2019: $1,414,6622019Assets 2020: $3,647,681Liabilities 2020: $1,422,901Net Assets 2020: $2,224,7802020Assets 2021: $2,033,752Liabilities 2021: $856,198Net Assets 2021: $1,177,5542021Assets 2022: $24,079,888Liabilities 2022: $1,521,979Net Assets 2022: $22,557,9092022Assets 2023: $33,691,989Liabilities 2023: $2,221,271Net Assets 2023: $31,470,7182023Assets 2024: $50,173,258Liabilities 2024: $3,857,685Net Assets 2024: $46,315,5732024

Highlighted filing

2022

Assets$24,079,888
Liabilities$1,521,979
Net Assets$22,557,909
Open 2022 Filing

Operations Trend

Revenue Growth99th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MRevenue 2011: $3,617,537Expenses 2011: $11,260,308Net Income 2011: -$7,642,7712011Revenue 2012: $3,367,981Expenses 2012: $3,644,248Net Income 2012: -$276,2672012Revenue 2013: $3,265,295Expenses 2013: $3,751,016Net Income 2013: -$485,7212013Revenue 2014: $3,439,546Expenses 2014: $3,366,084Net Income 2014: $73,4622014Revenue 2015: $5,485,088Expenses 2015: $6,034,553Net Income 2015: -$549,4652015Revenue 2016: $6,473,033Expenses 2016: $4,464,395Net Income 2016: $2,008,6382016Revenue 2017: $1,663,877Expenses 2017: $2,157,997Net Income 2017: -$494,1202017Revenue 2018: $5,171,229Expenses 2018: $4,096,823Net Income 2018: $1,074,4062018Revenue 2019: $192,934Expenses 2019: $1,361,565Net Income 2019: -$1,168,6312019Revenue 2020: $3,420,578Expenses 2020: $2,607,545Net Income 2020: $813,0332020Revenue 2021: $123,312Expenses 2021: $1,172,774Net Income 2021: -$1,049,4622021Revenue 2022: $25,419,539Expenses 2022: $4,039,863Net Income 2022: $21,379,6762022Revenue 2023: $12,507,750Expenses 2023: $3,641,528Net Income 2023: $8,866,2222023Revenue 2024: $19,527,538Expenses 2024: $4,733,792Net Income 2024: $14,793,7462024

Highlighted filing

2022

Revenue$25,419,539
Expenses$4,039,863
Net Income$21,379,676
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 15, 2023
Return Version
2022v5.0
Compensation and Service Providers
Top Officer Pay19th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
DINAKAR SINGHBoard Chairman-$0--
DOUGLAS COLE MDDirector-$0--
GERALD FISCHBACH MDDirector-$0--
ANDREW KNIGHTDirector-$0--
JONATHAN LEFFDirector-$0--
HELEN MEATESDirector-$0--
STEPHEN MIKITA ESQDirector-$0--
JULI OH ESQTreasurer-$0--
SIMON PRISK ESQDirector-$0--
STORY LANDISDirector-$0--
LOREN ENGPresidentPT$0--
Filing and Contact Details

Filer

Filer Name
Spinal Muscular Atrophy Foundation
EIN
01-0759380
Phone
6462537100
Address
970 W BROADWAY STE E PMB 140, JACKSON, WY 83001

Signing Officer

Name
Dinakar Singh
Title
Board Chairman
Phone
6462537100
Signed
2023-11-15
Discuss with paid preparer
Yes

Preparer

Firm
PKF O'CONNOR DAVIES ADVISORY LLC
Address
245 PARK AVENUE 12TH FLOOR, NEW YORK, NY 10167
Preparer
Joseph L Ali CPA
Phone
2122862600
Raw XML AppendixShowing 400 of 608 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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GeneralExplanationAttachment/GeneralExplanationGrp/FormAndLineReferenceDesc0FORM 990-PF; PAGE 7; PART VIII-A; LINE 1
GeneralExplanationAttachment/GeneralExplanationGrp/MediumExplanationTxt01 EDUCATIONAL - MATERIALS & RESEARCH FINDINGS $1,082,136 - FOR PATIENTS AND THEIR FAMILIES, SMA FOUNDATION PROVIDES GENERAL MATTERIALS ON SMA AND SMA BIOLOGY, DOCUMENTS DESCRIBING STANDARDS OF CARE, MATERIALS RELATED TO THE CURRENT STATE OF THERAPEUTICS. MOST OF THESE MATERIALS ARE PREPARED BY THE FOUNDATIONS STAFF FOR RESEARCH SCIENTISTS, THE FOUNDATION PREPARES SUMMARIES OF RESEARCH FINDINGS AND USEFUL TOOLS FOR SMA RESEARCHERS. THE FOUNDATION ALSO PREPARES AND DISTRIBUTES RECENT NEWS RELATED TO SMA VIA THE FOUNDATION'S MAILING LISTS IN ORDER TO ENSURE THAT NEW INFORMATION ON SMA IS RAPIDLY DISSEMINATED TO THE COMMUNITY IN ADDITION, THE FOUNDATION PROVIDES INFORMATION ON THE STATE OF SMA RESEARCH TO PATIENTS AND THEIR FAMILIES THAT CALL SMA FOUNDATION. 2 EDUCATIONAL - WEBSITE $48,954 THE SMA FOUNDATION MAINTAINS A WEBSITE WITH GENERAL INFORMATION ABOUT THE FOUNDATIONS RESEARCH PROGRAM AND EDUCATIONAL MATERIALS TARGETED TO BOTH PATIENTS AND THEIR FAMILIES AND TO RESEARCHERS. THE FOUNDATION WIEBSITE IS CONSTANTLY UPDATED BY THE STAFF FOR FURTHER INFORMATION. SEE WWW.SMAFOUNDATION.ORG. TOTAL EXPENSES FOR DIRECT ACTIVITIES $1,131,090.
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/CompensationHighestPaidEmplGrp/TitleTxt2DIRECTOR OF STRAT. &
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt3DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt4DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt5DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt6DIRECTOR
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt7970 W BROADWAY STE E PMB 140
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt8970 W BROADWAY STE E PMB 140
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt9970 W BROADWAY STE E PMB 140
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt10970 W BROADWAY STE E PMB 140
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IRS990PF/StatementsRegardingActy4720Grp/BusinessHoldingsInd00
IRS990PF/StatementsRegardingActy4720Grp/FurnGoodsDisqualifiedPrsnInd01
IRS990PF/StatementsRegardingActy4720Grp/GrantsToIndividualsInd00
IRS990PF/StatementsRegardingActy4720Grp/GrantsToOrganizationsInd00
IRS990PF/StatementsRegardingActy4720Grp/InfluenceElectionInd00
IRS990PF/StatementsRegardingActy4720Grp/InfluenceLegislationInd00
IRS990PF/StatementsRegardingActy4720Grp/JeopardyInvestmentsInd00
IRS990PF/StatementsRegardingActy4720Grp/NoncharitablePurposeInd00
IRS990PF/StatementsRegardingActy4720Grp/PayCompDisqualifiedPrsnInd01
IRS990PF/StatementsRegardingActy4720Grp/PaymentToGovernmentOfficialInd00
IRS990PF/StatementsRegardingActy4720Grp/PayPremiumsPrsnlBnftCntrctInd00
IRS990PF/StatementsRegardingActy4720Grp/ProhibitedTaxShelterTransInd00
IRS990PF/StatementsRegardingActy4720Grp/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990PF/StatementsRegardingActy4720Grp/SaleOrExchDisqualifiedPrsnInd00
IRS990PF/StatementsRegardingActy4720Grp/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990PF/StatementsRegardingActy4720Grp/TransferAstDisqualifiedPrsnInd00
IRS990PF/StatementsRegardingActy4720Grp/UncorrectedPriorActsInd00
IRS990PF/StatementsRegardingActy4720Grp/UncorrectedPYJeopardyInvstInd00
IRS990PF/StatementsRegardingActy4720Grp/UndistributedIncomePYInd00
IRS990PF/StatementsRegardingActyGrp/ActivitiesNotPreviouslyRptInd00
IRS990PF/StatementsRegardingActyGrp/AtLeast5000InAssetsInd01
IRS990PF/StatementsRegardingActyGrp/ChangesToArticlesOrBylawsInd00
IRS990PF/StatementsRegardingActyGrp/ComplyWithPublicInspRqrInd01
IRS990PF/StatementsRegardingActyGrp/DonorAdvisedFundInd00
IRS990PF/StatementsRegardingActyGrp/ForeignAccountsQuestionInd00
IRS990PF/StatementsRegardingActyGrp/Form1120POLFiledInd00
IRS990PF/StatementsRegardingActyGrp/Form990PFFiledWithAttyGenInd01
IRS990PF/StatementsRegardingActyGrp/LegislativePoliticalActyInd00
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IRS990PF/StatementsRegardingActyGrp/LocationOfBooksUSAddress/CityNm0JACKSON
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IRS990PF/StatementsRegardingActyGrp/MoreThan100SpentInd00
IRS990PF/StatementsRegardingActyGrp/NewSubstantialContributorsInd00
IRS990PF/StatementsRegardingActyGrp/OrganizationDissolvedEtcInd00
IRS990PF/StatementsRegardingActyGrp/OrgReportOrRegisterStateCd0CA
IRS990PF/StatementsRegardingActyGrp/OrgReportOrRegisterStateCd1CT
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IRS990PF/StatementsRegardingActyGrp/OrgReportOrRegisterStateCd3MN
IRS990PF/StatementsRegardingActyGrp/OrgReportOrRegisterStateCd4NJ
IRS990PF/StatementsRegardingActyGrp/OrgReportOrRegisterStateCd5NY
IRS990PF/StatementsRegardingActyGrp/OwnControlledEntityInd00
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IRS990PF/StatementsRegardingActyGrp/PrivateOperatingFoundationInd00
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IRS990PF/StatementsRegardingActyGrp/Section4955OrganizationTaxAmt00
IRS990PF/StatementsRegardingActyGrp/Section508eRqrSatisfiedInd01
IRS990PF/StatementsRegardingActyGrp/TaxReimbursedAmt00
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IRS990PF/StatementsRegardingActyGrp/WebsiteAddressTxt0WWW.SMAFOUNDATION.ORG
IRS990PF/SummaryOfDirectChrtblActyGrp/Description1Txt0SEE STATEMENT 9
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IRS990PF/SumOfProgramRelatedInvstGrp/TotalAmt00
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientFoundationStatusTxt0PC
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IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientUSAddress/AddressLine2Txt0WELCH ROAD
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientUSAddress/CityNm0PALO ALTO
IRS990PF/SupplementaryInformationGrp/GrantOrContributionPdDurYrGrp/RecipientUSAddress/StateAbbreviationCd0CA
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IRS990PF/SupplementaryInformationGrp/OnlyContriToPreselectedInd0X
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IRS990PF/SupplementaryInformationGrp/TotalGrantOrContriPdDurYrAmt0653689

Document Assets

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Filings

Displayed year

2022 • Form 990PFDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$24,079,888
Liabilities
$1,521,979
Net assets
$22,557,909
Revenue
$25,419,539
Expenses
$4,039,863
Net income
$21,379,676
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$50.2$3.86$46.3$19.5$4.73$14.8
2023Detailed filing. Detailed filing data is available for this year.$33.7$2.22$31.5$12.5$3.64$8.87
2022Detailed filing. Detailed filing data is available for this year.$24.1$1.52$22.6$25.4$4.04$21.4
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.03$0.86$1.18$0.12$1.17$1.05
2020Detailed filing. Detailed filing data is available for this year.$3.65$1.42$2.22$3.42$2.61$0.81
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.54$0.12$1.41$0.19$1.36$1.17
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.45$2.58$5.17$4.10$1.07
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.96$0.45$1.51$1.66$2.16$0.49
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.94$1.94$2.00$6.47$4.46$2.01
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.86$0.96$0.10$5.49$6.03$0.55
2014Detailed filing. Detailed filing data is available for this year.$1.43$1.04$0.39$3.44$3.37$0.07
2013Summary only. Only limited summary data is available for this year.$1.06$0.80$3.27$3.75$0.49
2012Summary only. Only limited summary data is available for this year.$1.16$0.48$3.37$3.64$0.28
2011Summary only. Only limited summary data is available for this year.$1.65$0.74$3.62$11.3$7.64