Civic Intelligence

Spinal Muscular Atrophy Foundation

EIN 01-0759380 • Jackson, WY

970 W Broadway Ste E Pmb 140Jackson, WY 83001
Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

25th percentile

0.08x

Higher debt load relative to assets than 25% of similar nonprofits.

NTEE B • $50M-$100M nonprofits • Source year 2024

Liabilities / Revenue

23rd percentile

0.20x

Higher debt load relative to revenue than 23% of similar nonprofits.

NTEE B • $50M-$100M nonprofits • Source year 2024

Net Margin

96th percentile

76%

Higher net margin than 96% of similar nonprofits.

NTEE B • $50M-$100M nonprofits • Source year 2024

Top Officer Pay

13th percentile

$0

Higher top officer pay than 13% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

NTEE B • $50M-$100M nonprofits • Source year 2024

Asset Growth

92nd percentile

49%

Faster asset growth than 92% of similar nonprofits.

NTEE B • $50M-$100M nonprofits • Annualized from 2023 to 2024

Revenue Growth

92nd percentile

56%

Faster revenue growth than 92% of similar nonprofits.

NTEE B • $50M-$100M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets25th percentile

Assets

Up

$50,173,258

Up $16,481,269 (+49%) from 2023

Liabilities

Up

$3,857,685

Up $1,636,414 (+74%) from 2023

Net Assets

Up

$46,315,573

Up $14,844,855 (+47%) from 2023

Operations
Liabilities / Revenue23rd percentileNet Margin96th percentile

Revenue

Up

$19,527,538

Up $7,019,788 (+56%) from 2023

Expenses

Up

$4,733,792

Up $1,092,264 (+30%) from 2023

Net Income

Up

$14,793,746

Up $5,927,524 (+67%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth92nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$60M$40M$20M$0-$20MAssets 2011: $1,645,297Liabilities 2011: $736,6412011Assets 2012: $1,161,449Liabilities 2012: $477,3362012Assets 2013: $1,058,832Liabilities 2013: $804,6522013Assets 2014: $1,428,536Liabilities 2014: $1,038,346Net Assets 2014: $390,1902014Assets 2015: $859,156Liabilities 2015: $961,447Net Assets 2015: -$102,2912015Assets 2016: $3,939,116Liabilities 2016: $1,936,109Net Assets 2016: $2,003,0072016Assets 2017: $1,962,334Liabilities 2017: $453,447Net Assets 2017: $1,508,8872017Assets 2018: $3,030,276Liabilities 2018: $446,983Net Assets 2018: $2,583,2932018Assets 2019: $1,535,980Liabilities 2019: $121,318Net Assets 2019: $1,414,6622019Assets 2020: $3,647,681Liabilities 2020: $1,422,901Net Assets 2020: $2,224,7802020Assets 2021: $2,033,752Liabilities 2021: $856,198Net Assets 2021: $1,177,5542021Assets 2022: $24,079,888Liabilities 2022: $1,521,979Net Assets 2022: $22,557,9092022Assets 2023: $33,691,989Liabilities 2023: $2,221,271Net Assets 2023: $31,470,7182023Assets 2024: $50,173,258Liabilities 2024: $3,857,685Net Assets 2024: $46,315,5732024

Highlighted filing

2024

Assets$50,173,258
Liabilities$3,857,685
Net Assets$46,315,573
Open 2024 Filing

Operations Trend

Revenue Growth92nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$30M$20M$10M$0-$10MRevenue 2011: $3,617,537Expenses 2011: $11,260,308Net Income 2011: -$7,642,7712011Revenue 2012: $3,367,981Expenses 2012: $3,644,248Net Income 2012: -$276,2672012Revenue 2013: $3,265,295Expenses 2013: $3,751,016Net Income 2013: -$485,7212013Revenue 2014: $3,439,546Expenses 2014: $3,366,084Net Income 2014: $73,4622014Revenue 2015: $5,485,088Expenses 2015: $6,034,553Net Income 2015: -$549,4652015Revenue 2016: $6,473,033Expenses 2016: $4,464,395Net Income 2016: $2,008,6382016Revenue 2017: $1,663,877Expenses 2017: $2,157,997Net Income 2017: -$494,1202017Revenue 2018: $5,171,229Expenses 2018: $4,096,823Net Income 2018: $1,074,4062018Revenue 2019: $192,934Expenses 2019: $1,361,565Net Income 2019: -$1,168,6312019Revenue 2020: $3,420,578Expenses 2020: $2,607,545Net Income 2020: $813,0332020Revenue 2021: $123,312Expenses 2021: $1,172,774Net Income 2021: -$1,049,4622021Revenue 2022: $25,419,539Expenses 2022: $4,039,863Net Income 2022: $21,379,6762022Revenue 2023: $12,507,750Expenses 2023: $3,641,528Net Income 2023: $8,866,2222023Revenue 2024: $19,527,538Expenses 2024: $4,733,792Net Income 2024: $14,793,7462024

Highlighted filing

2024

Revenue$19,527,538
Expenses$4,733,792
Net Income$14,793,746
Open 2024 Filing

Filings

Most recent year

2024 • Form 990PFDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$50,173,258
Liabilities
$3,857,685
Net assets
$46,315,573
Revenue
$19,527,538
Expenses
$4,733,792
Net income
$14,793,746
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$50.2$3.86$46.3$19.5$4.73$14.8
2023Detailed filing. Detailed filing data is available for this year.$33.7$2.22$31.5$12.5$3.64$8.87
2022Detailed filing. Detailed filing data is available for this year.$24.1$1.52$22.6$25.4$4.04$21.4
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.03$0.86$1.18$0.12$1.17$1.05
2020Detailed filing. Detailed filing data is available for this year.$3.65$1.42$2.22$3.42$2.61$0.81
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.54$0.12$1.41$0.19$1.36$1.17
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.45$2.58$5.17$4.10$1.07
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.96$0.45$1.51$1.66$2.16$0.49
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.94$1.94$2.00$6.47$4.46$2.01
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.86$0.96$0.10$5.49$6.03$0.55
2014Detailed filing. Detailed filing data is available for this year.$1.43$1.04$0.39$3.44$3.37$0.07
2013Summary only. Only limited summary data is available for this year.$1.06$0.80$3.27$3.75$0.49
2012Summary only. Only limited summary data is available for this year.$1.16$0.48$3.37$3.64$0.28
2011Summary only. Only limited summary data is available for this year.$1.65$0.74$3.62$11.3$7.64
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Compensation and Service Providers
Top Officer Pay13th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
DINAKAR SINGHBoard Chairman-$0--
DOUGLAS COLE MDDirector-$0--
GERALD FISCHBACH MDDirector-$0--
ANDREW KNIGHTDirector-$0--
JONATHAN LEFFDirector-$0--
HELEN MEATESDirector-$0--
STEPHEN MIKITA ESQDirector-$0--
JULI OH ESQTreasurer-$0--
SIMON PRISK ESQDirector-$0--
STORY LANDISDirector-$0--
LOREN ENGPresidentPT$0--
Grants and Assistance

Foundation Grants and Related Investments

TypeRecipientPurposeStatusLocationAmount
Paid GrantJOHN HOPKINS UNIVERSITYCHARACTERIZATION OF GENE EXPRESSION IN MOTOR NEURONS IN SMAPCBALTIMORE, MD, US$238,814
Paid GrantSWISS FEDERAL TECHNOLOGY INSTITUTE OF LAUSANNETESTING OF MITOCHONDRIAL MODULATORS IN SMA MODELSGOVLAUSANNE, SZ$218,006
Paid GrantSTANFORD UNIVERSITYGENERATION OF SPINAL CORD MOTOR NEURONS FROM PLURIPOTENT CELLSPCPALO ALTO, CA, US$207,000
Paid GrantUNIVERSITY OF FLORIDACHARACTERIZATION OF MUSCLE ENVIRONMENT IN SMAPCGAINESVILLE, FL, US$197,907
Paid GrantSTANFORD UNIVERSITYOVERSIGHT ON THE STANFORD-SMA FOUNDATION REGENERATIVE MEDICINE PROGRAM PROJECTSPCPALO ALTO, CA, US$167,825
Paid GrantUNIVERSITY OF EDINBURGHCHARACTERIZATION OF NEUROMUSCULAR JUNCTIONS IN SMAPCEDINBURGH, UK$141,212
Paid GrantSTANFORD UNIVERSITYCHARACTERIZATION OF NEURON-GLIAL-IMMUNE CELL INTERACTIONS IN SMAPCPALO ALTO, CA, US$117,494
Paid GrantBOSTON CHILDREN'S HOSPITALTESTING THERAPEUTICS THAT PROMOTE NEURON GROWTH IN SMA MODELSPCBOSTON, MA, US$98,571
Paid GrantSTANFORD UNIVERSITYCHARACTERIZATION OF MUSCLE IN SMA PATIENTSPCPALO ALTO, CA, US$69,000
Paid GrantSTANFORD UNIVERSITYDEVELOPMENT OF NONINVASIVE GENE EDITING METHODSPCPALO ALTO, CA, US$33,460
Paid GrantMUSCULAR DISTROPHY ASSOCIATIONSUPPORT OF MUSCLE REGENERATION SUMMIT WITH KEY MUSCLE EXPERTSPCCHICAGO, IL, US$2,500
Filing and Contact Details

Filer

Filer Name
Spinal Muscular Atrophy Foundation
EIN
01-0759380
Phone
6462537100
Address
970 W BROADWAY STE E PMB 140, JACKSON, WY 83001

Signing Officer

Name
Dinakar Singh
Title
Board Chairman
Phone
6462537100
Signed
2025-11-17
Discuss with paid preparer
Yes

Preparer

Firm
PKF O'CONNOR DAVIES ADVISORY LLC
Address
245 PARK AVENUE 12TH FLOOR, NEW YORK, NY 10167
Preparer
Michael R Koenecke CPA
Phone
2122862600
Raw XML AppendixShowing 400 of 743 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
AccountingFeesSchedule/AccountingFeesDetail/AdjustedNetIncomeAmt00
AccountingFeesSchedule/AccountingFeesDetail/Amt041976
AccountingFeesSchedule/AccountingFeesDetail/CategoryTxt0AUDIT AND TAX PREPERATION
AccountingFeesSchedule/AccountingFeesDetail/DisbursementsCharitablePrpsAmt031580
AccountingFeesSchedule/AccountingFeesDetail/NetInvestmentIncomeAmt00
GeneralExplanationAttachment/GeneralExplanationGrp/FormAndLineReferenceDesc0FORM 990-PF; PAGE 7; PART VIII-A; LINE 1
GeneralExplanationAttachment/GeneralExplanationGrp/MediumExplanationTxt01 DIRECT RESEARCH ACTIVITIES - $50,904 - THE SMA FOUNDATION MAINTAINS AN ACTIVE RESEARCH PROGRAM IN SPINAL MUSCULAR ATROPHY IN ORDER TO ACOMPLISH ITS PRIMARY MISSION TO ACCELERATE THE DEVELOPMENT OF A TREATMENT FOR SMA. THESE STUDIES ARE CONDUCTED THROUGH CONTRACT SERVICES WITH INDUSTRY ACADEMIC AND PARTNERS. FOUNDATION STAFF ANALYZE THE RESULTS, PUBLISH THE FINDINGS IN SCIENTIFIC JOURNALS AND PRESENT THEM AT SCEINTIFIC CONFERENCES. ALL RESEARCH TOOLS, EG, ANIMAL MODELS, ESSAYS, AND DATA THAT ARE GENERATED BY THE FOUNDATION'S OWN INTERNAL RESEARCH, ARE MADE AVAILABLE TO THE GENERAL PUBLIC AND/OR THE SCEINTIFC COMMUNITY AT MINIMAL TO NO COST. THE LATER INCLUDES THE ENTIRE DATASET OF THE BIOMAKERS FOR SMA STUDY, A MAJOR STUDY LOOKING FOR BIOCHEMICAL CORRELATES OF THE DISEASE THAT CAN BE USED TO EVALUATE AND ACCELERATE CLINICAL TRIALS. 2 EDUCATIONAL - MATERIALS & RESEARCH FINDINGS - $782,338 - FOR PATIENTS AND THEIR FAMILIES, SMA FOUNDATION PROVIDES GENERAL MATTERIALS ON SMA AND SMA BIOLOGY, DOCUMENTS DESCRIBING STANDARDS OF CARE, MATERIALS RELATED TO THE CURRENT STATE OF THERAPEUTICS. MOST OF THESE MATERIALS ARE PREPARED BY THE FOUNDATIONS STAFF FOR RESEARCH SCIENTISTS, THE FOUNDATION PREPARES SUMMARIES OF RESEARCH FINDINGS AND USEFUL TOOLS FOR SMA RESEARCHERS. THE FOUNDATION ALSO PREPARES AND DISTRIBUTES RECENT NEWS RELATED TO SMA VIA THE FOUNDATION'S MAILING LISTS IN ORDER TO ENSURE THAT NEW INFORMATION ON SMA IS RAPIDLY DISSEMINATED TO THE COMMUNITY. IN ADDITION, THE FOUNDATION PROVIDES INFORMATION ON THE STATE OF SMA RESEARCH TO PATIENTS AND THEIR FAMILIES THAT CALL SMA FOUNDATION. 3 EDUCATIONAL - WEBSITE - $39,382 - THE SMA FOUNDATION MAINTAINS A WEBSITE WITH GENERAL INFORMATION ABOUT THE FOUNDATIONS RESEARCH PROGRAM AND EDUCATIONAL MATERIALS TARGETED TO BOTH PATIENTS AND THEIR FAMILIES AND TO RESEARCHERS. THE FOUNDATION WEBSITE IS CONSTANTLY UPDATED BY THE STAFF FOR FURTHER INFORMATION. SEE WWW.SMAFOUNDATION.ORG. TOTAL EXPIENSES FOR DIRECT ACTIVITIES $872,624.
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/CompensationHighestPaidEmplGrp/TitleTxt2DIRECTOR OF STRAT. &
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/PersonNm10LOREN ENG
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt2DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt3DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt4DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt5DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt6DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt7TREASURER
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt8DIRECTOR
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt10PRESIDENT
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt5970 W BROADWAY STE E PMB 140
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IRS990PF/StatementsRegardingActyGrp/TaxReimbursedAmt00
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IRS990PF/SummaryOfDirectChrtblActyGrp/Description1Txt0SEE STATEMENT 9
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IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt0OVERSIGHT ON THE STANFORD-SMA FOUNDATION REGENERATIVE MEDICINE PROGRAM PROJECTS
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt1CHARACTERIZATION OF NEURON-GLIAL-IMMUNE CELL INTERACTIONS IN SMA
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt2CHARACTERIZATION OF MUSCLE ENVIRONMENT IN SMA
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt3CHARACTERIZATION OF NEUROMUSCULAR JUNCTIONS IN SMA
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt4TESTING THERAPEUTICS THAT PROMOTE NEURON GROWTH IN SMA MODELS
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt5CHARACTERIZATION OF GENE EXPRESSION IN MOTOR NEURONS IN SMA
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt6TESTING EFFECTS OF SPINAL CORD STIMULATION IN SMA PATIENTS
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt7TESTING SATELLITE CELL REPLACEMENT IN SMA MODELS
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt8DEVELOPMENT OF BIOMATERIALS TO REGENERATE MUSCLE AND MOTOR NEURONS
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/GrantOrContributionPurposeTxt9TESTING OF MITOCHONDRIAL MODULATORS IN SMA MODELS
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt0STANFORD UNIVERSITY
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt1STANFORD UNIVERSITY
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt2UNIVERSITY OF FLORIDA
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt3UNIVERSITY OF EDINBURGH
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt4BOSTON CHILDREN'S HOSPITAL
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt5JOHN HOPKINS UNIVERSITY
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt6UNIVERSITY OF PITTSBURGH
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt7HARVARD UNIVERSITY
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt8HARVARD UNIVERSITY
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientBusinessName/BusinessNameLine1Txt9SWISS FEDERAL TECHNOLOGY INSTITUTE OF LAUSANNE
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/AddressLine1Txt0UNIVERSITY OF EDINBURGH QUEENS
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/AddressLine1Txt1BATIMENT CE 3316 STATION 1
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/AddressLine2Txt0MEDICAL RESEARCH INSTITUTE 47 LITTL
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/CountryCd0UK
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/CountryCd1SZ
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/ForeignPostalCd0EH16 4UU
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/ForeignPostalCd11015
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/ProvinceOrStateNm0EDINBURGH
IRS990PF/SupplementaryInformationGrp/GrantOrContriApprvForFutGrp/RecipientForeignAddress/ProvinceOrStateNm1LAUSANNE

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