Civic Intelligence

Spinal Muscular Atrophy Foundation

990PF • Fiscal year 2017 • EIN 01-0759380

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 07, 2018

Organization Profile
888 Seventh Avenue No 400New York, NY 10019

(646) 253-7100

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.23x

Higher debt load relative to assets than 61% of similar nonprofits.

2017 filings • NTEE B • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

72nd percentile

0.27x

Higher debt load relative to revenue than 72% of similar nonprofits.

2017 filings • NTEE B • $1M-$5M nonprofits • Source year 2017

Net Margin

5th percentile

-30%

Higher net margin than 5% of similar nonprofits.

2017 filings • NTEE B • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

33rd percentile

$0

Higher top officer pay than 33% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • NTEE B • $1M-$5M nonprofits • Source year 2017

Asset Growth

2nd percentile

-50%

Faster asset growth than 2% of similar nonprofits.

2017 filings • NTEE B • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

1st percentile

-74%

Faster revenue growth than 1% of similar nonprofits.

2017 filings • NTEE B • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets61st percentile

Assets

Down

$1,962,334

Down $1,976,782 (-50%) from 2016

Net Assets

Down

$1,508,887

Down $494,120 (-25%) from 2016

Liabilities

Down

$453,447

Down $1,482,662 (-77%) from 2016

Revenue And Expenses
Liabilities / Revenue72nd percentileNet Margin5th percentile

Revenue

Down

$1,663,877

Down $4,809,156 (-74%) from 2016

Expenses

Down

$2,157,997

Down $2,306,398 (-52%) from 2016

Net Income

Down

-$494,120

Down $2,502,758 (-125%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0-$20MAssets 2011: $1,645,297Liabilities 2011: $736,6412011Assets 2012: $1,161,449Liabilities 2012: $477,3362012Assets 2013: $1,058,832Liabilities 2013: $804,6522013Assets 2014: $1,428,536Liabilities 2014: $1,038,346Net Assets 2014: $390,1902014Assets 2015: $859,156Liabilities 2015: $961,447Net Assets 2015: -$102,2912015Assets 2016: $3,939,116Liabilities 2016: $1,936,109Net Assets 2016: $2,003,0072016Assets 2017: $1,962,334Liabilities 2017: $453,447Net Assets 2017: $1,508,8872017Assets 2018: $3,030,276Liabilities 2018: $446,983Net Assets 2018: $2,583,2932018Assets 2019: $1,535,980Liabilities 2019: $121,318Net Assets 2019: $1,414,6622019Assets 2020: $3,647,681Liabilities 2020: $1,422,901Net Assets 2020: $2,224,7802020Assets 2021: $2,033,752Liabilities 2021: $856,198Net Assets 2021: $1,177,5542021Assets 2022: $24,079,888Liabilities 2022: $1,521,979Net Assets 2022: $22,557,9092022Assets 2023: $33,691,989Liabilities 2023: $2,221,271Net Assets 2023: $31,470,7182023Assets 2024: $50,173,258Liabilities 2024: $3,857,685Net Assets 2024: $46,315,5732024

Highlighted filing

2017

Assets$1,962,334
Liabilities$453,447
Net Assets$1,508,887
Open 2017 Filing

Operations Trend

Revenue Growth1st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MRevenue 2011: $3,617,537Expenses 2011: $11,260,308Net Income 2011: -$7,642,7712011Revenue 2012: $3,367,981Expenses 2012: $3,644,248Net Income 2012: -$276,2672012Revenue 2013: $3,265,295Expenses 2013: $3,751,016Net Income 2013: -$485,7212013Revenue 2014: $3,439,546Expenses 2014: $3,366,084Net Income 2014: $73,4622014Revenue 2015: $5,485,088Expenses 2015: $6,034,553Net Income 2015: -$549,4652015Revenue 2016: $6,473,033Expenses 2016: $4,464,395Net Income 2016: $2,008,6382016Revenue 2017: $1,663,877Expenses 2017: $2,157,997Net Income 2017: -$494,1202017Revenue 2018: $5,171,229Expenses 2018: $4,096,823Net Income 2018: $1,074,4062018Revenue 2019: $192,934Expenses 2019: $1,361,565Net Income 2019: -$1,168,6312019Revenue 2020: $3,420,578Expenses 2020: $2,607,545Net Income 2020: $813,0332020Revenue 2021: $123,312Expenses 2021: $1,172,774Net Income 2021: -$1,049,4622021Revenue 2022: $25,419,539Expenses 2022: $4,039,863Net Income 2022: $21,379,6762022Revenue 2023: $12,507,750Expenses 2023: $3,641,528Net Income 2023: $8,866,2222023Revenue 2024: $19,527,538Expenses 2024: $4,733,792Net Income 2024: $14,793,7462024

Highlighted filing

2017

Revenue$1,663,877
Expenses$2,157,997
Net Income-$494,120
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 7, 2018
Return Version
2017v2.3
Compensation and Service Providers
Top Officer Pay33rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
DINAKAR SINGHBoard Chairman-$0--
DOUGLAS COLE MDDirector-$0--
GERALD FISCHBACH MDDirector-$0--
ANDREW KNIGHTDirector-$0--
JONATHAN LEFFDirector-$0--
HELEN MEATESDirector-$0--
STEPHEN MIKITA ESQDirector-$0--
JULI OH ESQDirector-$0--
SIMON PRISK ESQDirector-$0--
STORY LANDISDirector-$0--
LOREN ENGPresidentPT$0--
DAVID WEIL ESQTreasurer-$0--
Filing and Contact Details

Filer

Filer Name
Spinal Muscular Atrophy Foundation
EIN
01-0759380
Phone
6462537100
Address
888 SEVENTH AVENUE NO 400, NEW YORK, NY 10019

Signing Officer

Name
Dinakar Singh
Title
Board Chairman
Phone
6462537100
Signed
2018-11-07
Discuss with paid preparer
Yes

Preparer

Firm
PKF O'CONNOR DAVIES LLP
Address
665 FIFTH AVENUE, NEW YORK, NY 10022
Preparer
Joseph L Ali CPA
Phone
2122862600
Raw XML AppendixShowing 400 of 709 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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AccountingFeesSchedule/AccountingFeesDetail/CategoryTxt0ACCOUNTING, AUDITING, AND TAX
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GeneralExplanationAttachment/GeneralExplanationGrp/FormAndLineReferenceDesc0FORM 990-PF; PAGE 9; PART XIII; LINE 7
GeneralExplanationAttachment/GeneralExplanationGrp/FormAndLineReferenceDesc1FORM 990-PF; PAGE 7; PART IX-A; LINE 1
GeneralExplanationAttachment/GeneralExplanationGrp/MediumExplanationTxt0ELECTION TO TREAT UNUSED PRIOR YEARS CORPUS DISTRIBUTIONS AS CURRENTYEAR CORPUS DISTRIBUTIONSTHE FOUNDATION RECEIVED CONTRIBUTIONS FROM NONOPERATING PRIVATEFOUNDATIONS WHICH IT EXPENSED OR REDISTRIBUTED. THE FOUNDATION ISELECTING TO TREAT THE $100,000 NOT AS A QUALIFYING DISTRIBUTION BUT AS ADISTRIBUTION OUT OF CORPUS.PURSUANT TO IRS REG. 53.4942(A)-3(C)(2)(IV), THE FOUNDATION HEREBYELECTS TO TREAT, AS A CURRENT CORPUS DISTRIBUTION, THE FOLLOWING UNUSEDPRIOR TAX YEARS' DISTRIBUTIONS THAT WERE TREATED AS CORPUSDISTRIBUTIONS UNDER IRS REG. 53.4942(A)-3(D)(1)(III) IN SUCH PRIOR TAXYEARS:TAX YEAR - 2012, AMOUNT - $100,000
GeneralExplanationAttachment/GeneralExplanationGrp/MediumExplanationTxt11 DIRECT RESEARCH ACTIVITIES $69,730 THE SMA FOUNDATION MAINTAINS AN ACTIVE RESEARCH PROGRAM IN SPINAL MUSCULAR ATROPHY IN ORDER TO ACCOMPLISH ITS PRIMARY MISSION TO ACCELERATE THE DEVELOPMENT OF A TREATMENT FOR SMA. THESE STUDIES ARE CONDUCTED THROUGH CONTRACT SERVICES WITH INDUSTRY AND ACADEMIC PARTNERS. FOUNDATION STAFF ANALYZE THE RESULTS, PUBLISH THE FINDINGS IN SCIENTIFIC JOURNALS AND PRESENT THEM AT SCEINTIFIC CONFERENCES. ALL RESEARCH TOOLS, EG, ANIMAL MODELS, ASSAYS, AND DATA THAT ARE GENERATED BY THE FOUNDATION'S OWN INTERNAL RESEARCH, ARE MADE AVAILABLE TO THE GENERAL PUBLIC AND/OR THE SCIENTIFIC COMMUNITY AT MINIMAL TO NO COST. THE LATER INCLUDES THE ENTIRE DATASET OF THE BIOMARKERS FOR SMA STUDY, A MAJOR STUDY LOOKING FOR BIOCHEMICAL CORRELATES OF THE DISEASE THAT CAN BE USED TO EVALUATE AND ACCELERATE CLINICAL TRIALS. THE SMA FOUNDATION FILED A PATENT APPLICATION FOR THE BIOMARKER DATA, IN ORDER TO ENSURE THAT THESE BIOMARKERS WOULD REMAIN OPEN AND ACCESSIBLE TO THE ENTIRE RESEARCH COMMUNITY. MEMBERS OF THE STAFF DEVOTED TIME TO SERVING ON COMMITIEES IN SERVICE OF SMA RESEARCH, E G THE INTERNATIONAL COORDINATING COMMITIEE FOR SMA TASK FORCES ON OUTCOME MEASURES AND STANDARDS OF CARE. THE ICC IS A VOLUNTARY ORGANIZATION ESTABLISHED TO BRING TOGETHER INTERNATIONAL GROUPS WORKING ON SMA FOR THE PURPOSES OF ESTABLISHING STANDARDS FOR COORDINATING CLINICAL TRIALS. MEMBERS OF THE STAFF ALSO PARTICIPATE IN ADVISORY PANELS FOR VARIOUS GOVERNMENT AGENCIES AND NON-PROFIT ORGANIZATIONS. 2 EDUCATIONAL - MATERIALS & RESEARCH FINDINGS $446,347 FOR PATIENTS AND THEIR FAMILIES, SMA FOUNDATION PROVIDES GENERAL MATTERIALS ON SMA AND SMA BIOLOGY, DOCUMENTS DESCRIBING STANDARDS OF CARE, MATERIALS RELATED TO THE CURRENT STATE OF THERAPEUTICS. MOST OF THESE MATERIALS ARE PREPARED BY THE FOUNDATIONS STAFF FOR RESEARCH SCIENTISTS, THE FOUNDATION PREPARES SUMMARIES OF RESEARCH FINDINGS AND USEFUL TOOLS FOR SMA RESEARCHERS. THE FOUNDATION ALSO PREPARES AND DISTRIBUTES RECENT NEWS RELATED TO SMA VIA THE FOUNDATION'S MAILING LISTS IN ORDER TO ENSURE THAT NEW INFORMATION ON SMA IS RAPIDLY DISSEMINATED TO THE COMMUNITY IN ADDITION, THE FOUNDATION PROVIDES INFORMATION ON THE STATE OF SMA RESEARCH TO PATIENTS AND THEIR FAMILIES THAT CALL SMA FOUNDATION. 3 EDUCATIONAL - WEBSITE $22,546 THE SMA FOUNDATION MAINTAINS A WEBSITE WITH GENERAL INFORMATION ABOUT THE FOUNDATIONS RESEARCH PROGRAM AND EDUCATIONAL MATERIALS TARGETED TO BOTH PATIENTS AND THEIR FAMILIES AND TO RESEARCHERS. THE FOUNDATION WIEBSITE IS CONSTANTLY UPDATED BY THE STAFF FOR FURTHER INFORMATION. SEE WWW SMAFOUNDATION.ORG. TOTAL EXPIENSES FOR DIRECT ACTIVITIES $538,623.
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/CompensationHighestPaidEmplGrp/TitleTxt0CHIEF SCIENTIFIC OFF
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/CompensationHighestPaidEmplGrp/TitleTxt2DIRECTOR OF STRAT &
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/CompensationHighestPaidEmplGrp/TitleTxt3ASSOCIATE DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/CompensationHighestPaidEmplGrp/TitleTxt4OFFICE MANAGER
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/CompensationOfHghstPdCntrctGrp/ServiceTypeTxt0MEDICAL RESEARCH
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt1DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt2DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt3DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt4DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt5DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt6DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt7DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt8DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt9DIRECTOR
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt10PRESIDENT
IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/TitleTxt11TREASURER
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt4888 SEVENTH AVENUE SUITE 400
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IRS990PF/OfficerDirTrstKeyEmplInfoGrp/OfficerDirTrstKeyEmplGrp/USAddress/AddressLine1Txt7888 SEVENTH AVENUE SUITE 400
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IRS990PF/StatementsRegardingActy4720Grp/BusinessHoldingsInd00
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IRS990PF/StatementsRegardingActy4720Grp/GrantsToIndividualsInd00
IRS990PF/StatementsRegardingActy4720Grp/GrantsToOrganizationsInd00
IRS990PF/StatementsRegardingActy4720Grp/InfluenceElectionInd00
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IRS990PF/StatementsRegardingActy4720Grp/NoncharitablePurposeInd00
IRS990PF/StatementsRegardingActy4720Grp/PayCompDisqualifiedPrsnInd01
IRS990PF/StatementsRegardingActy4720Grp/PaymentToGovernmentOfficialInd00
IRS990PF/StatementsRegardingActy4720Grp/PayPremiumsPrsnlBnftCntrctInd00
IRS990PF/StatementsRegardingActy4720Grp/ProhibitedTaxShelterTransInd00
IRS990PF/StatementsRegardingActy4720Grp/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990PF/StatementsRegardingActy4720Grp/SaleOrExchDisqualifiedPrsnInd00
IRS990PF/StatementsRegardingActy4720Grp/TransferAstDisqualifiedPrsnInd00
IRS990PF/StatementsRegardingActy4720Grp/UncorrectedPriorActsInd00
IRS990PF/StatementsRegardingActy4720Grp/UncorrectedPYJeopardyInvstInd00
IRS990PF/StatementsRegardingActy4720Grp/UndistributedIncomePYInd00
IRS990PF/StatementsRegardingActyGrp/ActivitiesNotPreviouslyRptInd00
IRS990PF/StatementsRegardingActyGrp/AtLeast5000InAssetsInd01
IRS990PF/StatementsRegardingActyGrp/ChangesToArticlesOrBylawsInd00
IRS990PF/StatementsRegardingActyGrp/ComplyWithPublicInspRqrInd01
IRS990PF/StatementsRegardingActyGrp/DonorAdvisedFundInd00
IRS990PF/StatementsRegardingActyGrp/ForeignAccountsQuestionInd00

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Filings

Displayed year

2017 • Form 990PFDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,962,334
Liabilities
$453,447
Net assets
$1,508,887
Revenue
$1,663,877
Expenses
$2,157,997
Net income
-$494,120
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$50.2$3.86$46.3$19.5$4.73$14.8
2023Detailed filing. Detailed filing data is available for this year.$33.7$2.22$31.5$12.5$3.64$8.87
2022Detailed filing. Detailed filing data is available for this year.$24.1$1.52$22.6$25.4$4.04$21.4
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.03$0.86$1.18$0.12$1.17$1.05
2020Detailed filing. Detailed filing data is available for this year.$3.65$1.42$2.22$3.42$2.61$0.81
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.54$0.12$1.41$0.19$1.36$1.17
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.45$2.58$5.17$4.10$1.07
2017Detailed filing. Detailed filing data is available for this year.$1.96$0.45$1.51$1.66$2.16$0.49
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.94$1.94$2.00$6.47$4.46$2.01
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.86$0.96$0.10$5.49$6.03$0.55
2014Detailed filing. Detailed filing data is available for this year.$1.43$1.04$0.39$3.44$3.37$0.07
2013Summary only. Only limited summary data is available for this year.$1.06$0.80$3.27$3.75$0.49
2012Summary only. Only limited summary data is available for this year.$1.16$0.48$3.37$3.64$0.28
2011Summary only. Only limited summary data is available for this year.$1.65$0.74$3.62$11.3$7.64