Civic Intelligence

International Myeloma Foundation

990 • Fiscal year 2011 • EIN 95-4296919

Oct 01, 2010 to Sep 30, 2011 • Filed on May 22, 2012

Organization ProfileWWW.MYELOMA.ORG
12650 Riverside Drive No 20691607-3466
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

84th percentile

0.75x

Higher debt load relative to assets than 84% of similar nonprofits.

2011 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2011

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2011

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2011

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2011

Asset Growth

70th percentile

7.9%

Faster asset growth than 70% of similar nonprofits.

2011 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2010 to 2011

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets84th percentile

Assets

Up

$3,607,952

Up $265,486 (+7.9%) from 2010

Net Assets

Down

$912,598

Down $30,055 (-3.2%) from 2010

Liabilities

Up

$2,695,354

Up $295,541 (+12%) from 2010

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Up

$8,688,614

Up $1,127,344 (+15%) from 2010

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth70th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2010: $3,342,466Liabilities 2010: $2,399,813Net Assets 2010: $942,6532010Assets 2011: $3,607,952Liabilities 2011: $2,695,354Net Assets 2011: $912,5982011Assets 2012: $4,336,592Liabilities 2012: $3,294,239Net Assets 2012: $1,042,3532012Assets 2013: $4,706,884Liabilities 2013: $3,555,826Net Assets 2013: $1,151,0582013Assets 2014: $14,174,327Liabilities 2014: $12,503,363Net Assets 2014: $1,670,9642014Assets 2015: $15,667,803Liabilities 2015: $13,794,382Net Assets 2015: $1,873,4212015Assets 2016: $21,865,280Liabilities 2016: $13,446,803Net Assets 2016: $8,418,4772016Assets 2017: $19,253,565Liabilities 2017: $11,171,352Net Assets 2017: $8,082,2132017Assets 2018: $16,649,778Liabilities 2018: $8,647,450Net Assets 2018: $8,002,3282018Assets 2019: $18,014,619Liabilities 2019: $9,119,429Net Assets 2019: $8,895,1902019Assets 2020: $17,557,878Liabilities 2020: $7,994,379Net Assets 2020: $9,563,4992020Assets 2021: $20,383,236Liabilities 2021: $7,552,565Net Assets 2021: $12,830,6712021Assets 2022: $18,463,467Liabilities 2022: $6,761,429Net Assets 2022: $11,702,0382022Assets 2023: $18,245,423Liabilities 2023: $7,727,579Net Assets 2023: $10,517,8442023Assets 2024: $16,882,003Liabilities 2024: $6,629,903Net Assets 2024: $10,252,1002024

Highlighted filing

2011

Assets$3,607,952
Liabilities$2,695,354
Net Assets$912,598
Open 2011 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30M$20M$10M$0-$10MExpenses 2010: $7,561,2702010Expenses 2011: $8,688,6142011Expenses 2012: $8,557,7272012Expenses 2013: $9,104,0942013Revenue 2014: $11,031,927Expenses 2014: $10,512,021Net Income 2014: $519,9062014Revenue 2015: $12,844,967Expenses 2015: $12,642,511Net Income 2015: $202,4562015Revenue 2016: $22,367,091Expenses 2016: $15,822,035Net Income 2016: $6,545,0562016Revenue 2017: $15,689,157Expenses 2017: $16,025,421Net Income 2017: -$336,2642017Revenue 2018: $16,804,022Expenses 2018: $16,883,907Net Income 2018: -$79,8852018Revenue 2019: $20,025,618Expenses 2019: $19,330,926Net Income 2019: $694,6922019Revenue 2020: $14,864,659Expenses 2020: $14,507,444Net Income 2020: $357,2152020Revenue 2021: $17,434,390Expenses 2021: $14,439,887Net Income 2021: $2,994,5032021Revenue 2022: $18,062,675Expenses 2022: $16,819,032Net Income 2022: $1,243,6432022Revenue 2023: $16,745,686Expenses 2023: $18,411,117Net Income 2023: -$1,665,4312023Revenue 2024: $18,983,815Expenses 2024: $20,796,076Net Income 2024: -$1,812,2612024

Highlighted filing

2011

Revenue-
Expenses$8,688,614
Net Income-
Open 2011 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2010 to Sep 30, 2011
Signed
May 22, 2012
Return Version
2010v3.4
Gross Receipts
$9,023,949
Mission and Program Overview

Mission

Dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.

Major Activities

Activity 2
Patient and family seminars: the imf's flagship patient and family seminars present vital information about new treatments, provide one-on-one time with myeloma specialists, and allow participants to share their experiences and gain strength from hearing other people's stories. The top myeloma experts donate their time to our u.s. Patient and family seminars and to the imf patient community because the knowledge gained is vital to patients and their families, empowering them to make intelligent treatment choices.
Activity 3
Education and awareness: myeloma is one of the most prevalent forms of blood cancer, affecting more than 750,000 patients worldwide. Yet, prior to diagnosis, most patients and their families have never heard of myeloma. The imf strives to continue operating as the number one resource for up-to-date disease and treatment information for these new patients and families, as well as for long-term patients and families. The imf also remains dedicated to serving as a valued educational resource for the health care professionals who treat them. Through its free-of-charge publications and email newsletters, the imf empowers patients and their caregivers to join healthcare providers as active decision-making partners, leading to the best possible quality of life for each individual myeloma patient. The imf produces comprehensive but 'user-friendly' information for the entire myeloma community. The imf's publications library includes an extensive catalog of booklets, tip cards, articles, and dvd's, all written, created, and produced by the imf with oversight by its scientific advisory committee. The imf library's broad scope includes information about myeloma treatment options, clinical trials, and quality of life considerations for patients and physicians. Imf publications are provided free of charge, in 16 languages.
Filing and Contact Details

Filer

EIN
95-4296919
Raw XML AppendixShowing 400 of 925 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/Activity2/Description0PATIENT AND FAMILY SEMINARS: THE IMF'S FLAGSHIP PATIENT AND FAMILY SEMINARS PRESENT VITAL INFORMATION ABOUT NEW TREATMENTS, PROVIDE ONE-ON-ONE TIME WITH MYELOMA SPECIALISTS, AND ALLOW PARTICIPANTS TO SHARE THEIR EXPERIENCES AND GAIN STRENGTH FROM HEARING OTHER PEOPLE'S STORIES. THE TOP MYELOMA EXPERTS DONATE THEIR TIME TO OUR U.S. PATIENT AND FAMILY SEMINARS AND TO THE IMF PATIENT COMMUNITY BECAUSE THE KNOWLEDGE GAINED IS VITAL TO PATIENTS AND THEIR FAMILIES, EMPOWERING THEM TO MAKE INTELLIGENT TREATMENT CHOICES.
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IRS990/Activity3/Description0EDUCATION AND AWARENESS: MYELOMA IS ONE OF THE MOST PREVALENT FORMS OF BLOOD CANCER, AFFECTING MORE THAN 750,000 PATIENTS WORLDWIDE. YET, PRIOR TO DIAGNOSIS, MOST PATIENTS AND THEIR FAMILIES HAVE NEVER HEARD OF MYELOMA. THE IMF STRIVES TO CONTINUE OPERATING AS THE NUMBER ONE RESOURCE FOR UP-TO-DATE DISEASE AND TREATMENT INFORMATION FOR THESE NEW PATIENTS AND FAMILIES, AS WELL AS FOR LONG-TERM PATIENTS AND FAMILIES. THE IMF ALSO REMAINS DEDICATED TO SERVING AS A VALUED EDUCATIONAL RESOURCE FOR THE HEALTH CARE PROFESSIONALS WHO TREAT THEM. THROUGH ITS FREE-OF-CHARGE PUBLICATIONS AND EMAIL NEWSLETTERS, THE IMF EMPOWERS PATIENTS AND THEIR CAREGIVERS TO JOIN HEALTHCARE PROVIDERS AS ACTIVE DECISION-MAKING PARTNERS, LEADING TO THE BEST POSSIBLE QUALITY OF LIFE FOR EACH INDIVIDUAL MYELOMA PATIENT. THE IMF PRODUCES COMPREHENSIVE BUT 'USER-FRIENDLY' INFORMATION FOR THE ENTIRE MYELOMA COMMUNITY. THE IMF'S PUBLICATIONS LIBRARY INCLUDES AN EXTENSIVE CATALOG OF BOOKLETS, TIP CARDS, ARTICLES, AND DVD'S, ALL WRITTEN, CREATED, AND PRODUCED BY THE IMF WITH OVERSIGHT BY ITS SCIENTIFIC ADVISORY COMMITTEE. THE IMF LIBRARY'S BROAD SCOPE INCLUDES INFORMATION ABOUT MYELOMA TREATMENT OPTIONS, CLINICAL TRIALS, AND QUALITY OF LIFE CONSIDERATIONS FOR PATIENTS AND PHYSICIANS. IMF PUBLICATIONS ARE PROVIDED FREE OF CHARGE, IN 16 LANGUAGES.
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IRS990/ActivityOrMissionDescription0DEDICATED TO IMPROVING THE QUALITY OF LIFE OF MYELOMA PATIENTS WHILE WORKING TOWARD PREVENTION AND A CURE.
IRS990/ActivityOther/Description0INTERNATIONAL - THE IMF GROWS ITS NETWORK OF HEALTH CARE PROFESSIONALS AROUND THE WORLD. KEY TEAM MEMBERS ORGANIZE PHYSICIAN AS WELL AS PATIENT MEETINGS IN ORDER TO PROVIDE EDUCATION ABOUT THE LATEST DEVELOPMENTS IN THE FIELD OF MULTIPLE MYELOMA.
IRS990/ActivityOther/Description1SUPPORT GROUPS: THROUGH ITS GLOBAL NETWORK OF IMF-ASSISTED SUPPORT GROUPS, THE IMF SEEKS TO ENSURE THAT PATIENTS AND FAMILIES HAVE LOCAL ACCESS TO SUPPORT, INFORMATION, AND A STRONG SENSE OF COMMUNITY.
IRS990/ActivityOther/Description2NURSES - THE IMF NURSE LEADERSHIP BOARD (NLB) WAS FOUNDED IN 2006 WITH THE MISSION OF IMPROVING THE CARE OF MYELOMA PATIENTS AT THE NURSING LEVEL. THE NLB PROVIDES A FORUM FOR ADDRESSING THE NEEDS OF THE MYELOMA NURSING AND PATIENT COMMUNITIES. THE GROUP PROVIDES CONTINUING EDUCATION TO NURSES, AND MEETS SEVERAL TIMES THROUGHOUT THE YEAR, PUBLISHING GUIDELINES TO HELP MYELOMA PATIENTS MAINTAIN THEIR QUALITY OF LIFE WHILE MANAGING THEIR DISEASE.
IRS990/ActivityOther/Description3CLINICAL MEETINGS - IMF TEAM MEMBERS ORGANIZE CLINICAL MEETINGS, BRINGING TOGETHER THE WORLD'S LEADING MYELOMA EXPERTS, TO FORM A COALITION THAT WILL WORK COLLABORATIVELY ON MYELOMA-RELATED PROJECTS AND AVOID DUPLICATION OF EFFORTS AND DILUTION OF VALUABLE RESOURCES BY VARIOUS U.S. MYELOMA COOPERATIVE GROUPS. THE IMF ALSO ATTENDS THE ANNUAL EUROPEAN HEMATOLOGY ASSOCIATION CONFERENCE TO PROMOTE EXCELLENCE IN CLINICAL PRACTICE, RESEARCH AND EDUCATION.
IRS990/ActivityOther/Description4ADVOCACY - THE IMF IS DEDICATED TO CREATING A GLOBAL COMMUNITY THAT SUPPORTS THE WIDE-RANGING NEEDS OF ALL MYELOMA PATIENTS, THEIR FAMILIES, THEIR CAREGIVERS, AND RESEARCHERS WORKING TO COMBAT THE DISEASE. BY ADVOCATING AT THE GOVERNMENT LEVEL, THE IMF REMAINS COMMITTED TO CREATING EFFECTIVE, IMMEDIATE SOLUTIONS WHILE SIMULTANEOUSLY BUILDING AND STRENGTHENING RELATIONSHIPS FOR THE FUTURE.
IRS990/ActivityOther/Description5HOTLINE - THE IMF'S TOLL-FREE HOTLINE PROVIDES LIFE-SAVING AND LIFE-CHANGING MYELOMA TREATMENT AND MANAGEMENT SUPPORT FROM COMPASSIONATE, HIGHLY TRAINED SPECIALISTS. THE HOTLINE COORDINATORS ARE ON THE FRONT-LINE OF AWARENESS OF MYELOMA ISSUES IN THE PATIENT COMMUNITY AND THEY PROVIDE A WEALTH OF INFORMATION ON A WIDE VARIETY OF TOPICS, AS WELL AS PROVIDING EMOTIONAL AND SUPPORTIVE COUNSELING.
IRS990/ActivityOther/Description6WEBSITE - THE IMF WEBSITE CONTINUES TO SERVE AS A TOUCHSTONE FOR EVERYTHING THE IMF HAS TO OFFER. WITH 24-HOUR ACCESS TO THE IMF'S COMPREHENSIVE PUBLICATIONS, VIDEOS, BLOGS, RESEARCH UPDATES, AND THE LATEST COMMUNITY DEVELOPMENTS, IT IS A CRUCIAL RESOURCE FOR PATIENTS, FAMILIES, CAREGIVERS, AND HEALTH CARE PROFESSIONALS THROUGHOUT THE WORLD.
IRS990/ActivityOther/Description7BANK ON A CURE - BOAC IS THE FIRST GLOBAL, MYELOMA-SPECIFIC DNA BANK AND RESEARCH INITIATIVE. BOAC SCIENTISTS ARE POURING OVER THE VAST BANK OF GENETIC INFORMATION THE IMF HAS GATHERED FROM MYELOMA PATIENTS WORLDWIDE TO DETERMINE THEIR COMMON GENETIC FACTORS. BY DISCOVERING THESE PATTERNS, WE WILL BE ABLE TO DEVELOP AND TAILOR BETTER TREATMENT OPTIONS, MINIMIZE ADVERSE EFFECTS OF MEDICATIONS, UNLOCK THE MYSTERIES OF WHAT CAUSES MYELOMA, AND ULTIMATELY FIND MYELOMA'S CURE.
IRS990/ActivityOther/Description8MYELOMA TODAY - MYELOMA TODAY IS A QUARTERLY NEWSLETTER AND THE GO-TO RESOURCE FOR THE MYELOMA COMMUNITY TO LEARN ABOUT THE LATEST ADVANCES IN MYELOMA TREATMENT, RESEARCH AND QUALITY OF LIFE ISSUES. IT IS PROVIDED FREE OF CHARGE.
IRS990/ActivityOther/Description9INFORMATIONAL MAILINGS - THE INFOPACK IS DESIGNED TO GIVE A NEWLY DIAGNOSED PATIENT A COMPREHENSIVE UNDERSTANDING OF MULTIPLE MYELOMA. THE INFO PACK CONTAINS INFORMATIVE MATERIALS FREE OF CHARGE IN 16 LANGUAGES.
IRS990/ActivityOther/Description10PUBLIC RELATIONS - THE IMF WORKS TO MAKE SURE THE FLOW OF INFORMATION IS APPROPRIATELY DISCLOSED BETWEEN THE FOUNDATION AND ITS PUBLIC.
IRS990/ActivityOther/Description11MYELOMA MANAGER AND MYELOMA ADVISOR - THE IMFS MYELOMA MANAGER PERSONAL CARE ASSISTANT IS A COMPUTER PROGRAM THAT TRACKS AN INDIVIDUAL PATIENTS LABORATORY RESULTS, AND DISPLAYS AND PRINTS CHARTS TO SHOW HOW THESE RESULTS CHANGE OVER TIME. THIS IS AN UNPRECEDENTED WAY FOR PATIENTS TO FULLY UNDERSTAND THEIR OWN PERSONAL TRENDS AND ASSESS PROGRESS OVER AN EXTENDED PERIOD, HELPING PATIENTS AND THEIR CAREGIVERS DEAL WITH THE GROWING WEALTH OF INFORMATION AND CONSTANTLY INCREASING COMPLEXITY OF MYELOMA TREATMENT PROGRAMS.
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IRS990/Description0RESEARCH - THE IMF IS A LEADER OF INNOVATIVE, GLOBALLY COLLABORATIVE MYELOMA RESEARCH AS A MEANS OF IMPROVING QUALITY OF LIFE WHILE WORKING TOWARD PREVENTION AND A CURE. THE IMF IS AT THE FOREFRONT AS THE MYELOMA COMMUNITY ENTERS THE ERA OF 'TAILORED TREATMENT' - WITH NEW THERAPIES AND APPROACHES AIMED AT CUSTOMIZING EACH PATIENT'S SPECIFIC NEEDS. THIS WILL LEAD TO AN ERA WHERE MYELOMA WILL BE MANAGED AS A CHRONIC DISEASE RATHER THAN A TERMINAL DIAGNOSIS. THE IMF'S INTERNATIONAL MYELOMA WORKING GROUP (IMWG) CONSISTS OF OVER 150 LEADING MYELOMA RESEARCHERS FROM AROUND THE WORLD. THEY COLLABORATE ON A BROAD RANGE OF TREATMENT ISSUES IN ORDER TO CREATE NEW MYELOMA MANAGEMENT GUIDELINES THAT PROVIDE PATIENTS WITH MORE DURABLE REMISSIONS AND IMPROVED QUALITY OF LIFE. THE IMWG FOCUSES ON TREATMENT PROTOCOLS AND DIAGNOSTIC SYSTEMS, ADDRESSING THE NEEDS OF BOTH MYELOMA PATIENTS AND THE PHYSICIANS WHO TREAT THEM. THIS GROUP IS ALSO DEDICATED TO ASSURING THAT THEIR RESEARCH RESULTS ARE MADE READILY ACCESSIBLE TO ALL PATIENTS, CAREGIVERS, AND MEDICAL PROFESSIONALS, REGARDLESS OF WHERE THEY LIVE OR PRACTICE. THROUGH THE IMF'S RESEARCH GRANT PROGRAM, THE IMF REMAINS AT THE FOREFRONT OF IDENTIFYING, SUPPORTING, AND DEVELOPING THE WORLD'S MOST PROMISING MYELOMA RESEARCH. THIS IMF - SUPPORTED WORK CONTINUES TO LEAD TO FURTHER FUNDING FROM OTHER HIGHLY REGARDED INSTITUTIONS AND MORE THAN 250 PUBLICATIONS IN THE WORLD'S TOP RESEARCH JOURNALS. THE IMF'S GLOBAL CLINICAL TRIALS FORUM WAS CREATED TO ENHANCE THE COLLABORATION AND COOPERATION BETWEEN NATIONAL AND INTERNATIONAL MYELOMA RESEARCH GROUPS IN ORDER TO IMPROVE CLINICAL TRIAL DESIGN AND DATA ACCRUAL.
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IRS990/Form990PartVIISectionA/ReportableCompFromOrganization120
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IRS990/Form990PartVIISectionA/ReportableCompFromOrganization140
IRS990/Form990PartVIISectionA/ReportableCompFromOrganization150
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IRS990/Form990PartVIISectionA/Title2DIRECTOR
IRS990/Form990PartVIISectionA/Title3DIRECTOR
IRS990/Form990PartVIISectionA/Title4DIRECTOR
IRS990/Form990PartVIISectionA/Title5DIRECTOR
IRS990/Form990PartVIISectionA/Title6DIRECTOR
IRS990/Form990PartVIISectionA/Title7DIRECTOR
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IRS990/Form990PartVIISectionA/Title12DIRECTOR
IRS990/Form990PartVIISectionA/Title13DIRECTOR
IRS990/Form990PartVIISectionA/Title14DIRECTOR
IRS990/Form990PartVIISectionA/Title15DIRECTOR
IRS990/Form990PartVIISectionA/Title16DIRECTOR
IRS990/Form990PartVIISectionA/Title17EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionA/Title18STRATEGIC PLANNER
IRS990/Form990PartVIISectionA/Title19PROGRAM DIRECTOR
IRS990/Form990PartVIISectionA/Title20VICE PRESIDENT
IRS990/Form990PartVIISectionA/Title21CHIEF FINANCIAL OFFICER
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IRS990/GrantsAndSimilarAmntsPriorYear0361333
IRS990/GrantsToDomesticOrgs/ProgramServices0458661
IRS990/GrantsToDomesticOrgs/Total0458661
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IRS990/GrantsToOrganizations01
IRS990/GrantToRelatedPerson00
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IRS990/GrossReceipts09023949
IRS990/GroupReturnForAffiliates00
IRS990/Hospital00
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IRS990/OtherExpenses/Description1POSTAGE & SHIPPING
IRS990/OtherExpenses/Description2TELEPHONE
IRS990/OtherExpenses/Description3DUES & SUBSCRIPTIONS
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IRS990/OtherExpenses/ManagementAndGeneral3994
IRS990/OtherExpenses/ManagementAndGeneral42727
IRS990/OtherExpenses/ProgramServices0613434
IRS990/OtherExpenses/ProgramServices1172341
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IRS990/OtherExpenses/ProgramServices40

Document Assets

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Filings

Displayed year

2011 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$3,607,952
Liabilities
$2,695,354
Net assets
$912,598
Revenue
-
Expenses
$8,688,614
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$16.9$6.63$10.3$19.0$20.8$1.81
2023Detailed filing. Detailed filing data is available for this year.$18.2$7.73$10.5$16.7$18.4$1.67
2022Detailed filing. Detailed filing data is available for this year.$18.5$6.76$11.7$18.1$16.8$1.24
2021Detailed filing. Detailed filing data is available for this year.$20.4$7.55$12.8$17.4$14.4$2.99
2020Detailed filing. Detailed filing data is available for this year.$17.6$7.99$9.56$14.9$14.5$0.36
2019Detailed filing. Detailed filing data is available for this year.$18.0$9.12$8.90$20.0$19.3$0.69
2018Detailed filing. Detailed filing data is available for this year.$16.6$8.65$8.00$16.8$16.9$0.08
2017Detailed filing. Detailed filing data is available for this year.$19.3$11.2$8.08$15.7$16.0$0.34
2016Detailed filing. Detailed filing data is available for this year.$21.9$13.4$8.42$22.4$15.8$6.55
2015Detailed filing. Detailed filing data is available for this year.$15.7$13.8$1.87$12.8$12.6$0.20
2014Detailed filing. Detailed filing data is available for this year.$14.2$12.5$1.67$11.0$10.5$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.71$3.56$1.15$9.10
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.34$3.29$1.04$8.56
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.61$2.70$0.91$8.69
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.34$2.40$0.94$7.56