Civic Intelligence

International Myeloma Foundation

EIN 95-4296919 • 501(c)3 • Studio City, CA

Profile

Dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.

4400 Coldwater Canyon Ave Suite 3Studio City, CA 91604

www.myeloma.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

69th percentile

0.39x

Higher debt load relative to assets than 69% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

61st percentile

0.35x

Higher debt load relative to revenue than 61% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

18th percentile

-9.5%

Higher net margin than 18% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

13th percentile

-7.5%

Faster asset growth than 13% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

63rd percentile

13%

Faster revenue growth than 63% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets69th percentile

Assets

Down

$16,882,003

Down $1,363,420 (-7.5%) from 2023

Liabilities

Down

$6,629,903

Down $1,097,676 (-14%) from 2023

Net Assets

Down

$10,252,100

Down $265,744 (-2.5%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin18th percentile

Revenue

Up

$18,983,815

Up $2,238,129 (+13%) from 2023

Expenses

Up

$20,796,076

Up $2,384,959 (+13%) from 2023

Net Income

Down

-$1,812,261

Down $146,830 (-8.8%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth13th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$30M$20M$10M$0Assets 2010: $3,342,466Liabilities 2010: $2,399,813Net Assets 2010: $942,6532010Assets 2011: $3,607,952Liabilities 2011: $2,695,354Net Assets 2011: $912,5982011Assets 2012: $4,336,592Liabilities 2012: $3,294,239Net Assets 2012: $1,042,3532012Assets 2013: $4,706,884Liabilities 2013: $3,555,826Net Assets 2013: $1,151,0582013Assets 2014: $14,174,327Liabilities 2014: $12,503,363Net Assets 2014: $1,670,9642014Assets 2015: $15,667,803Liabilities 2015: $13,794,382Net Assets 2015: $1,873,4212015Assets 2016: $21,865,280Liabilities 2016: $13,446,803Net Assets 2016: $8,418,4772016Assets 2017: $19,253,565Liabilities 2017: $11,171,352Net Assets 2017: $8,082,2132017Assets 2018: $16,649,778Liabilities 2018: $8,647,450Net Assets 2018: $8,002,3282018Assets 2019: $18,014,619Liabilities 2019: $9,119,429Net Assets 2019: $8,895,1902019Assets 2020: $17,557,878Liabilities 2020: $7,994,379Net Assets 2020: $9,563,4992020Assets 2021: $20,383,236Liabilities 2021: $7,552,565Net Assets 2021: $12,830,6712021Assets 2022: $18,463,467Liabilities 2022: $6,761,429Net Assets 2022: $11,702,0382022Assets 2023: $18,245,423Liabilities 2023: $7,727,579Net Assets 2023: $10,517,8442023Assets 2024: $16,882,003Liabilities 2024: $6,629,903Net Assets 2024: $10,252,1002024

Highlighted filing

2024

Assets$16,882,003
Liabilities$6,629,903
Net Assets$10,252,100
Open 2024 Filing

Operations Trend

Revenue Growth63rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$30M$20M$10M$0-$10MExpenses 2010: $7,561,2702010Expenses 2011: $8,688,6142011Expenses 2012: $8,557,7272012Expenses 2013: $9,104,0942013Revenue 2014: $11,031,927Expenses 2014: $10,512,021Net Income 2014: $519,9062014Revenue 2015: $12,844,967Expenses 2015: $12,642,511Net Income 2015: $202,4562015Revenue 2016: $22,367,091Expenses 2016: $15,822,035Net Income 2016: $6,545,0562016Revenue 2017: $15,689,157Expenses 2017: $16,025,421Net Income 2017: -$336,2642017Revenue 2018: $16,804,022Expenses 2018: $16,883,907Net Income 2018: -$79,8852018Revenue 2019: $20,025,618Expenses 2019: $19,330,926Net Income 2019: $694,6922019Revenue 2020: $14,864,659Expenses 2020: $14,507,444Net Income 2020: $357,2152020Revenue 2021: $17,434,390Expenses 2021: $14,439,887Net Income 2021: $2,994,5032021Revenue 2022: $18,062,675Expenses 2022: $16,819,032Net Income 2022: $1,243,6432022Revenue 2023: $16,745,686Expenses 2023: $18,411,117Net Income 2023: -$1,665,4312023Revenue 2024: $18,983,815Expenses 2024: $20,796,076Net Income 2024: -$1,812,2612024

Highlighted filing

2024

Revenue$18,983,815
Expenses$20,796,076
Net Income-$1,812,261
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$16,882,003
Liabilities
$6,629,903
Net assets
$10,252,100
Revenue
$18,983,815
Expenses
$20,796,076
Net income
-$1,812,261
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$16.9$6.63$10.3$19.0$20.8$1.81
2023Detailed filing. Detailed filing data is available for this year.$18.2$7.73$10.5$16.7$18.4$1.67
2022Detailed filing. Detailed filing data is available for this year.$18.5$6.76$11.7$18.1$16.8$1.24
2021Detailed filing. Detailed filing data is available for this year.$20.4$7.55$12.8$17.4$14.4$2.99
2020Detailed filing. Detailed filing data is available for this year.$17.6$7.99$9.56$14.9$14.5$0.36
2019Detailed filing. Detailed filing data is available for this year.$18.0$9.12$8.90$20.0$19.3$0.69
2018Detailed filing. Detailed filing data is available for this year.$16.6$8.65$8.00$16.8$16.9$0.08
2017Detailed filing. Detailed filing data is available for this year.$19.3$11.2$8.08$15.7$16.0$0.34
2016Detailed filing. Detailed filing data is available for this year.$21.9$13.4$8.42$22.4$15.8$6.55
2015Detailed filing. Detailed filing data is available for this year.$15.7$13.8$1.87$12.8$12.6$0.20
2014Detailed filing. Detailed filing data is available for this year.$14.2$12.5$1.67$11.0$10.5$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.71$3.56$1.15$9.10
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.34$3.29$1.04$8.56
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.61$2.70$0.91$8.69
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.34$2.40$0.94$7.56
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2023 to Sep 30, 2024
Signed
May 23, 2025
Return Version
2023v6.0
Gross Receipts
$19,392,622
Mission and Program Overview

Mission

Dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,304,632$9,619,308▲ $314,676
Savings and Temporary Cash Investments$5,256,864$3,022,384▼ $2,234,480
Accounts Receivable$1,206,327$1,292,900▲ $86,573
Land, Buildings, and Equipment, Net$413,258$958,745▲ $545,487
Prepaid Expenses and Deferred Charges$730,170$737,852▲ $7,682
Cash and Non-Interest-Bearing Accounts$525,034$362,211▼ $162,823
Intangible Assets$72,187$58,039▼ $14,148
Total Assets$18,245,423$16,882,003▼ $1,363,420
Other Assets Total$736,951$830,564▲ $93,613
Liabilities
Deferred Revenue$4,443,378$3,207,010▼ $1,236,368
Accounts Payable and Accrued Expenses$2,487,370$2,537,767▲ $50,397
Other Liabilities$796,831$885,126▲ $88,295
Total Liabilities$7,727,579$6,629,903▼ $1,097,676
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$10,308,157$9,929,684▼ $378,473
Net Assets With Donor Restrictions$209,687$322,416▲ $112,729
Total Net Assets Fund Balance$10,517,844$10,252,100▼ $265,744
Total Liabilities and Net Assets / Fund Balance$18,245,423$16,882,003▼ $1,363,420

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$481,553$692,541$1,174,094
Other Land Buildings$459,923$240,484$700,407
Leasehold Improvements$17,269$1,486$18,755
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joseph MikhaelChief Medical OfficerFT$448,562$29,845$478,407
Yelak BiruCEO, President, DirectorFT$430,000$20,698$450,698
Diane MoranSenior Vice President - Business Relationship ManaFT$432,784$15,830$448,614
Diane MoranSenior Vice President - Business Rel-$407,784$40,830$448,614
Dr Brian DurieChief Scientific Officer-former DirectorFT$430,000$3,096$433,096
Susan DurieDirector of Global Patient Empowerment-former DirectorFT$362,646$27,940$390,586
Susan DurieDirector of Global Patient Empowerme-$362,646$27,940$390,586
Jennifer ScarneChief Financial OfficerFT$283,260$42,101$325,361
Lisa PaikExecutive Vice President - Research & OperationsFT$275,225$26,338$301,563
Lisa PaikExecutive Vice President - Research-$265,225$36,338$301,563
Peter AntonVice President, MarketingFT$225,894$31,563$257,457
Robin TuohyVice President, Patient SupportFT$172,062$40,074$212,136

Board Members and Trustees

NameTitle
Dr Vincent RajkumarChairman
Andrew Kuzneski IiiDirector
Benson KleinDirector
Charles NewmanDirector
Christine BattistiniDirector
Dr Heinz LudwigDirector
E Michael ScottDirector
George T HayumDirector
JOHN O'DWYERDirector
Jason KatzDirector
Loraine BoyleDirector
Martine EliasDirector
Matthew RobinsonDirector
Poornima ParameswaranDirector
Sanjay SinghDirector

Highest Paid Contractors

ContractorServicesLocationCompensation
Mimi Choon-quinonesInternational Advocacy, Access, Policy,8605 LEXINGTON PLACE, Wexford, PA 15090, Sz$230,004
Dan NavidInternational Global StrategySIRA SILA 20/46 SOI 97, Hua Hin, Th$208,000
Michelle FaberGrant Support And Program Management-$121,000
Revenue and Support

Revenue Composition

Contributions and Grants
$18,582,456
Program Service Revenue
$18,667
Investment Income
$382,692
Other Revenue
$0
All Other Contributions
$18,282,120
Change in Net Assets
$-1,812,261

Audited Revenue Reconciliation

Revenue per Audited Statements
$18,983,815
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$1,546,517
Total Revenue per Audited Statements
$20,530,332
Total Revenue per Form 990
$18,983,815
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$12,139,842
Salaries, Compensation, and Employee Benefits$8,427,567
Total Fundraising Expense$1,385,727
Grants and Similar Amounts Paid$228,667
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$6,170,253$584,672$509,958$7,264,883
Conferences and Meetings$3,300,965$80,365$281,239$3,662,569
Fees for Services Other$1,184,108$4,930$25,133$1,214,171
Current Officers, Directors, Trustees, and Key Employees$987,498$93,572$81,614$1,162,684
Travel$958,680$15,833$99,549$1,074,062
Office Expenses$403,032$92,013$36,022$531,067
Information Technology$213,186$20,231$14,554$247,971
Fees for Services Legal$226,518$10,633$8,846$245,997
Occupancy$121,500$46,002$30,290$197,792
Insurance$165,076$14,170$8,230$187,476
Depreciation Depletion$153,333$6,729$6,438$166,500
Grants to Domestic Orgs$163,333--$163,333
Other Expenses$77,051$4,756$5,719$87,526
Foreign Grants$65,334--$65,334
Fees for Services Accounting$55,378$5,531$4,020$64,929
All Other Expenses$18,895$1,759$1,483$22,137
Total Functional Expenses$18,419,053$991,296$1,385,727$20,796,076

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$20,796,076
Total Expenses per Audited Statements$20,796,076
Total Expenses per Form 990$20,796,076
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
New York Weill Cornell Medical Center Fund IncNew York, NYIrc Sec 501(c)(3)Characterizing the Role and Targeting of the Histone Methyltransferase Setd2 in Multiple Myeloma.$53,333
The General Hospital CorporationBoston, MAIrc Sec 501(c)(3)ADVANCING SPINAL STABILITY IN MULTIPLE MYELOMA: A PREDICTIVE BIOMECHANICAL SIMULATION APPROACH.$33,333
Trustees of Boston UniversityBoston, MAIrc Sec 501(c)(3)Defining a Molecular Signature of Cardiotoxicity in Systemic Immunoglobin Light Chain Amyloidosis.$33,333
Case Western Reserve UniversityCleveland, OHIrc Sec 501(c)(3)Deciphering the Epigenomic Mechanisms of Transformation From Benign Monoclonal Gammapathies to Symptomatic Multiple Myeloma.$26,667
Dana Farber Cancer InstituteBoston, MAIrc Sec 501(c)(3)Tuning the Innate Immune Multiple Myeloma Microenvironment by Modulating Irf4$16,667

International Summary

Offices
2
Employees
2
Spending
$4,641,663

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServicesAwarded Research Grants, Conducted Research Projects, Conducted Research Conference, an Awards Ceremony, Patient and Physician Education.11$2,961,977
East Asia and the PacificProgram ServicesConducted Research Projects, Conducted Research Conference, Patient and Physician Education.11$1,155,609
North America - CanadaProgram ServicesConducted Patient & Family Seminars.00$373,622
Middle East - IsrealProgram ServicesConducted Research Projects, Patient Education.00$127,522
Central & South AmericaProgram ServicesAwarded Grants.00$13,457
AfricaProgram ServicesGraphic Design and Layout Services.00$9,476
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$408,807
Fundraising Gross Income$408,807
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$709,143$408,807$408,807$0
Total Events$709,143$408,807$408,807$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$837,089
Annuity Pymt Liability$48,037
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Susie durie, founder and director of global patient initiatives and dr. Brian durie, chairman of the board and chief scientific officer are husband and wife.”

Form 990, Part VI, Section B, Line 11B

“A copy of the form 990 is provided to the finance committee of the board for review prior to filing the tax return.”

Form 990, Part VI, Section B, Line 12C

“This procedure is performed annually at the organization's board of directors retreat.”

Form 990, Part VI, Section B, Line 15

“For key employees, a review of comparable compensation data is reviewed by the finance committee. Members of the finance committee approve of the compensation package and would not have a conflict of interest with respect to the compensation arrangement issue. The decision is discussed and recorded in the executive commitee and finance committee board of director meeting minutes.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy and financial statements of the organization are available on the organization's website, and upon request. These documents have been provided to a third party website "charity navigator: your guide to intelligent giving."”

Filing and Contact Details

Filer

Filer Name
International Myeloma Foundation
EIN
95-4296919
Phone
8184877455
Address
4400 COLDWATER CANYON AVE SUITE 3, STUDIO CITY, CA 91604

Signing Officer

Name
Diane Moran
Title
Interim CEO
Phone
8184877455
Signed
2025-05-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diane Moran
Formed
1990
Legal Domicile
CA
Voting Board Members
16
Independent Board Members
16
Employees
57
Volunteers
14

Preparer

Firm
Gursey Schneider Llp
Address
2121 AVENUE OF THE STARS SUITE 1300, LOS ANGELES, CA 90067
Preparer
Naz Afshar
Phone
3105520960
Supplemental Narrative

Additional Explanations

Part XII, Line 2C

“The audit oversight committee has not changed its process since the prior year.”

Financial Statement Notes

PART X, LINE 2:

“Management has analyzed the tax positions taken by the entity and has concluded that as of september 30, 2024, there were no uncertain tax positions taken or expected to be taken. Accordingly, no interest or penalties related to uncertain tax positions were accrued in the accompanying financial statements. The entity is subject to audits by taxing jurisdictions, however, no audits for any tax periods are currently in progress. Management believes that the entity is no longer subject to income tax examinations for years ended on or prior to september 30, 2021 under federal and california tax jurisdictions.”

Raw XML AppendixShowing 400 of 981 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0DEDICATED TO IMPROVING THE QUALITY OF LIFE OF MYELOMA PATIENTS WHILE WORKING TOWARD PREVENTION AND A CURE.
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IRS990/Desc0RESEARCH - THE INTERNATIONAL MYELOMA FOUNDATION (IMF) IS THE LEADER IN GLOBALLY COLLABORATIVE MYELOMA RESEARCH. IMF SUPPORTS LAB-BASED RESEARCH AND HAS AWARDED OVER 156 GRANTS TO TOP JUNIOR AND SENIOR RESEARCH SCIENTISTS SINCE 1995. IN ADDITION, IMF BRINGS TOGETHER THE WORLD'S LEADING EXPERTS IN THE MOST SUCCESSFUL AND UNIQUE WAY THROUGH THE INTERNATIONAL MYELOMA WORKING GROUP, WHICH IS PUBLISHING IN PRESTIGIOUS MEDICAL JOURNALS, CHARTING THE COURSE TO A CURE, MENTORING THE NEXT GENERATION OF INNOVATIVE INVESTIGATORS, AND IMPROVING LIVES THROUGH BETTER CARE. IT IS CONSIDERED THE MOST PRESTIGIOUS ORGANIZATION FOR MYELOMA RESEARCHERS GLOBALLY. THE BLACK SWAN RESEARCH INITIATIVE IS A MULTINATIONAL CONSORTIUM OF LEADING MYELOMA EXPERTS WHO ARE HARNESSING NEW TECHNOLOGIES AND THE LATEST MYELOMA TREATMENTS TO FIND A PATHWAY TO A CURE. THE BLACK SWAN RESEARCH STRATEGY CAPITALIZES ON THE AVAILABILITY OF POTENT NOVEL THERAPIES AND THE ADVENT OF ULTRA-SENSITIVE TESTS TO MEASURE EXACTLY WHEN AND HOW THOSE THERAPIES ARE WORKING IN PATIENTS. THE BLACK SWAN RESEARCH INITIATIVE IS DEDICATED TO DEVELOPING NEW CURATIVE THERAPIES FOR MYELOMA.
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IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO, PRESIDENT, DIRECTOR
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