Civic Intelligence

Prader-Willi California Foundation

990 • Fiscal year 2019 • EIN 95-3480752

Jan 01, 2019 to Dec 31, 2019 • Filed on Oct 16, 2020

Organization ProfileWWW.PWCF.ORG
1855 First AvenueSan Diego, CA 92101

(310) 372-5053

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.00x

Higher debt load relative to assets than 29% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

31st percentile

0.00x

Higher debt load relative to revenue than 31% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

74th percentile

17%

Higher net margin than 74% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

72nd percentile

$61,000

Higher top officer pay than 72% of similar nonprofits.

Top officer pay equals 25.8% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

73rd percentile

16%

Faster asset growth than 73% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

75th percentile

24%

Faster revenue growth than 75% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets29th percentile

Assets

Up

$761,815

Up $106,564 (+16%) from 2018

Net Assets

Up

$761,406

Up $108,831 (+17%) from 2018

Liabilities

Down

$409

Down $2,267 (-85%) from 2018

Revenue And Expenses
Liabilities / Revenue31st percentileNet Margin74th percentile

Revenue

Up

$236,253

Up $46,316 (+24%) from 2018

Expenses

Down

$195,681

Down $22,036 (-10%) from 2018

Net Income

Up

$40,572

Up $68,352 (+246%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth73rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2010: $931,803Liabilities 2010: $0Net Assets 2010: $931,8032010Assets 2011: $896,870Liabilities 2011: $0Net Assets 2011: $896,8702011Assets 2012: $917,290Liabilities 2012: $0Net Assets 2012: $917,2902012Assets 2013: $903,113Liabilities 2013: $0Net Assets 2013: $903,1132013Assets 2014: $932,432Liabilities 2014: $0Net Assets 2014: $932,4322014Assets 2015: $842,168Liabilities 2015: $0Net Assets 2015: $842,1682015Assets 2016: $796,327Liabilities 2016: $675Net Assets 2016: $795,6522016Assets 2017: $758,641Liabilities 2017: $3,512Net Assets 2017: $755,1292017Assets 2018: $655,251Liabilities 2018: $2,676Net Assets 2018: $652,5752018Assets 2019: $761,815Liabilities 2019: $409Net Assets 2019: $761,4062019Assets 2020: $789,926Liabilities 2020: $16,826Net Assets 2020: $773,1002020Assets 2021: $859,227Liabilities 2021: $720Net Assets 2021: $858,5072021Assets 2022: $779,154Liabilities 2022: $4,028Net Assets 2022: $775,1262022Assets 2023: $849,895Liabilities 2023: $26,511Net Assets 2023: $823,3842023Assets 2024: $833,365Liabilities 2024: $4,112Net Assets 2024: $829,2532024

Highlighted filing

2019

Assets$761,815
Liabilities$409
Net Assets$761,406
Open 2019 Filing

Operations Trend

Revenue Growth75th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KExpenses 2010: $142,8022010Revenue 2011: $172,282Expenses 2011: $207,966Net Income 2011: -$35,6842011Expenses 2012: $218,7852012Revenue 2013: $180,131Expenses 2013: $206,384Net Income 2013: -$26,2532013Revenue 2014: $298,556Expenses 2014: $253,401Net Income 2014: $45,1552014Revenue 2015: $227,923Expenses 2015: $290,686Net Income 2015: -$62,7632015Revenue 2016: $248,453Expenses 2016: $341,478Net Income 2016: -$93,0252016Revenue 2017: $252,317Expenses 2017: $322,668Net Income 2017: -$70,3512017Revenue 2018: $189,937Expenses 2018: $217,717Net Income 2018: -$27,7802018Revenue 2019: $236,253Expenses 2019: $195,681Net Income 2019: $40,5722019Revenue 2020: $156,112Expenses 2020: $153,659Net Income 2020: $2,4532020Revenue 2021: $192,753Expenses 2021: $149,991Net Income 2021: $42,7622021Revenue 2022: $195,438Expenses 2022: $194,390Net Income 2022: $1,0482022Revenue 2023: $189,452Expenses 2023: $197,996Net Income 2023: -$8,5442023Revenue 2024: $217,023Expenses 2024: $210,730Net Income 2024: $6,2932024

Highlighted filing

2019

Revenue$236,253
Expenses$195,681
Net Income$40,572
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Oct 16, 2020
Return Version
2019v5.0
Gross Receipts
$335,299
Mission and Program Overview

Mission

Individuals with prader-willi syndrome (pws) should have the opportunity to pursue their hopes and dreams to the full extent of their talents and capabilities. The success of people with pws depends greatly upon the knowledge and support of the community around them. The organization provides individuals with pws, their families, and professionals with a state network of information, advocacy and support services.

To provide individuals with prader-willi syndrome, their families, and professionals with a state network of information, advocacy and support services.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$591,028$631,590▲ $40,562
Savings and Temporary Cash Investments$20,460$64,799▲ $44,339
Cash and Non-Interest-Bearing Accounts$35,685$61,330▲ $25,645
Inventories for Sale or Use$2,564$2,564→ $0
Accounts Receivable-$112-
Prepaid Expenses and Deferred Charges$4,114$20▼ $4,094
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Total Assets$655,251$761,815▲ $106,564
Other Assets Total$1,400$1,400→ $0
Liabilities
Accounts Payable and Accrued Expenses$2,676$409▼ $2,267
Total Liabilities$2,676$409▼ $2,267
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$652,575$761,406▲ $108,831
Total Net Assets Fund Balance$652,575$761,406▲ $108,831
Total Liabilities and Net Assets / Fund Balance$655,251$761,815▲ $106,564

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$960$960
Compensation and Service Providers
Top Officer Pay72nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Emily DameExecutive DirectorFT$61,000$61,000

Board Members and Trustees

NameTitle
Diane KavrellPresident
Daniela Rubin PhdVice President
Christopher Patay EsqDirector
Derek Pamukoff PhdDirector
Jamie BurnsDirector
Kristen AmarasekeraDirector
Rodney DongDirector
Roger GoatcherDirector
Venkat ParuchuruDirector
Wendy YoungSecretary
Nisha MehtaTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$159,426
Program Service Revenue
$55,184
Investment Income
$20,170
Other Revenue
$1,473
All Other Contributions
$143,909
Change in Net Assets
$40,572
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$92,171
Salaries, Compensation, and Employee Benefits$91,031
Grants and Similar Amounts Paid$12,479
Total Fundraising Expense$171
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$45,750$15,250-$61,000
Other Salaries and Wages$15,184$5,061-$20,245
Occupancy$13,777$5,041-$18,818
Grants to Domestic Orgs$11,579--$11,579
Payroll Taxes$5,899$1,967-$7,866
Fees for Service Investment Mgmnt Fees-$7,652-$7,652
Travel$4,517$1,505-$6,022
Office Expenses-$5,097-$5,097
Insurance-$3,188-$3,188
Fees for Services Accounting-$2,000-$2,000
Other Employee Benefits$1,440$480-$1,920
Other Expenses$3,400$961-$961
Grants to Domestic Individuals$900--$900
All Other Expenses-$686-$686
Fees for Services Other-$342-$342
Advertising--$171$171
Total Functional Expenses$146,280$49,230$171$195,681
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Rady Childrens Hospital FounSan Diego, CA-For PWS Clinic at Rady Children's H$8,432
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The organization provides a copy of the form 990 to all members of itsgoverning body before filing the form. It is the policy of theprader-willi california foundation that tax form 990 shall be reviewed bythe board of directors prior to submitting the form to the irs in thefollowing manner: prader-willi california foundation's finance committeeinitially reviews the form 990. Questions and/or any issues regardingclarification are asked of the accounting firm that prepared the form.as soon as the finance committee believes the form 990 is ready to bepresented to the board of directors, it provides a copy to each boardmember via mail or pdf format. The board of directors, as a whole,discusses the form 990 and, by majority vote, returns it to theaccounting firm with additional questions or clarification, or authorizesthat it be submitted to the irs. If changes are made afterclarifications, they will review and then forward as outlined.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The organization surveys salaries for executive director in comparable size organizations. The board reviews the various salaries and makes a determination as to the level of salary for the executive director on an annual basis. The board then approves the compensation.”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“The organization surveys salaries for officers in comparable size organizations. The board reviews the various salaries and makes a determination as to the level of salary for the executive director on an annual basis. The board then approves the compensation.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Upon request, and these items are also posted on our website.”

Filing and Contact Details

Filer

Filer Name
Prader-willi California Foundation
EIN
95-3480752
Phone
3103725053
Address
1855 FIRST AVENUE, SAN DIEGO, CA 92101

Signing Officer

Name
Nisha Mehta
Title
Treasurer
Signed
2020-10-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Emily Dame
Formed
1979
Legal Domicile
CA
Voting Board Members
11
Independent Board Members
11
Employees
3
Volunteers
12

Preparer

Firm
Pacific Coast CPAs
Address
25909 Pala Ste 140, Mission Viejo, CA 92691
Preparer
Julia Past CPA
Phone
9499169500
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IRS990/MissionDesc0INDIVIDUALS WITH PRADER-WILLI SYNDROME (PWS) SHOULD HAVE THE OPPORTUNITY TO PURSUE THEIR HOPES AND DREAMS TO THE FULL EXTENT OF THEIR TALENTS AND CAPABILITIES. THE SUCCESS OF PEOPLE WITH PWS DEPENDS GREATLY UPON THE KNOWLEDGE AND SUPPORT OF THE COMMUNITY AROUND THEM. THE ORGANIZATION PROVIDES INDIVIDUALS WITH PWS, THEIR FAMILIES, AND PROFESSIONALS WITH A STATE NETWORK OF INFORMATION, ADVOCACY AND SUPPORT SERVICES.
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt01920
IRS990/OtherExpensesGrp/Desc0AWARENESS PROGRAM EXPENSE
IRS990/OtherExpensesGrp/Desc1EDUCATIONAL PROGRAM EXPENSE
IRS990/OtherExpensesGrp/Desc2SUPPORT & ADVOCACY PROGRAM
IRS990/OtherExpensesGrp/Desc3Continuing Education
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0961
IRS990/OtherExpensesGrp/ProgramServicesAmt026087
IRS990/OtherExpensesGrp/ProgramServicesAmt117747
IRS990/OtherExpensesGrp/ProgramServicesAmt23400
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IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01967
IRS990/PayrollTaxesGrp/ProgramServicesAmt05899
IRS990/PayrollTaxesGrp/TotalAmt07866
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
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IRS990/PrincipalOfficerNm0Emily Dame
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IRS990/ProgramServiceRevenueGrp/Desc0EDUCATION
IRS990/ProgramServiceRevenueGrp/Desc1SUPPORT & ADVOCACY - CAMP
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt054832
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1352
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt054832
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1352
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATIONAL PROGRAMS - PWCF HELD OUR ANNUAL STATE CONFERENCE AND PROVIDED CRITICAL EDUCATION TO PARENTS, TEACHERS, PHYSICIANS, AND OTHER PROFESSIONAL CARE PROVIDERS. A CONCURRENT YOUTH & ADULT CONFERENCE SERVED CHILDREN AND ADULTS WITH PWS AND THEIR SIBLINGS. WE PRODUCED A PWS BEHAVIOR MANAGEMENT TRAINING SERIES AND A SCHOOL IEP EDUCATION TRAINING PROGRAM, PROVIDED DOZENS OF EDUCATIONAL IN-SERVICE TRAINING SESSIONS TO GROUP HOME PROVIDERS THROUGHOUT CALIFORNIA. PWCF PRODUCED FOUR QUARTERLY NEWSLETTERS THAT CONTAINED EDUCATIONAL ARTICLES, RESEARCH STUDIES AND SUBJECT RECRUITMENT OPPORTUNITIES, SUPPORT OPPORTUNITIES, AND OTHER VALUABLE INFORMATION. WE DISTRIBUTED EDUCATIONAL DVDS, BOOKS, AND OTHER EDUCATIONAL MATERIALS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt046602
IRS990/ProgSrvcAccomActy3Grp/Desc0SUPPORT & ADVOCACY PROGRAMS - PWCF'S PRADER-WILLI SYNDROME CAMP IS THE ONLY MEDICALLY - SPECIALIZED CAMP IN THE STATE OF CALIFORNIA THAT EXCLUSIVELY SERVES PERSONS WITH PWS. SERVED 59 CAMPERS RANGING IN AGE FROM 8 65 YEARS, PROVIDED CRITICAL RESPITE TO EACH CAMPER'S FAMILY MEMBERS OR CARE PROVIDERS. PWCF SUPPORTED THREE PWS CLINICS THROUGHOUT THE STATE TREATING HUNDREDS OF CHILDREN AND ADULTS WITH PWS. PWCF FACILITATED SUPPORT GROUPS, WROTE LETTERS OF ADVOCACY, AND ACCOMPANIED PARENTS AND FAMILY MEMBERS TO SCHOOL MEETINGS, REGIONAL CENTER MEETINGS, AND HEARINGS. EACH OF THESE PROGRAMS SERVED TO PROVIDE FAMILIES WITH NETWORKING AND SUPPORT OPPORTUNITIES SO THEY FEEL LESS ISOLATED AND MORE CONNECTED WITH OTHER PWS FAMILIES AND PROFESSIONALS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt044735
IRS990/ProgSrvcAccomActy3Grp/GrantAmt012480
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0130543
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt03188
IRS990/PYInvestmentIncomeAmt035280
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0122946
IRS990/PYOtherRevenueAmt09278
IRS990/PYProgramServiceRevenueAmt014836
IRS990/PYRevenuesLessExpensesAmt0-27780
IRS990/PYSalariesCompEmpBnftPaidAmt091583
IRS990/PYTotalExpensesAmt0217717
IRS990/PYTotalRevenueAmt0189937
IRS990/QuidProQuoContributionsInd0false
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IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt040572
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt020460
IRS990/SavingsAndTempCashInvstGrp/EOYAmt064799
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0172624
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0183794
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0165006
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$761,815
Liabilities
$409
Net assets
$761,406
Revenue
$236,253
Expenses
$195,681
Net income
$40,572
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.33$0.04$8.29$2.17$2.11$0.06
2023Summary only. Only limited summary data is available for this year.$8.50$0.27$8.23$1.89$1.98$0.09
2022Summary only. Only limited summary data is available for this year.$7.79$0.04$7.75$1.95$1.94$0.01
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.59$0.01$8.59$1.93$1.50$0.43
2020Summary only. Only limited summary data is available for this year.$7.90$0.17$7.73$1.56$1.54$0.02
2019Detailed filing. Detailed filing data is available for this year.$7.62$0.00$7.61$2.36$1.96$0.41
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.55$0.03$6.53$1.90$2.18$0.28
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.59$0.04$7.55$2.52$3.23$0.70
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.96$0.01$7.96$2.48$3.41$0.93
2015Detailed filing. Detailed filing data is available for this year.$8.42$0.00$8.42$2.28$2.91$0.63
2014Detailed filing. Detailed filing data is available for this year.$9.32$0.00$9.32$2.99$2.53$0.45
2013Summary only. Only limited summary data is available for this year.$9.03$0.00$9.03$1.80$2.06$0.26
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.17$0.00$9.17$2.19
2011Summary only. Only limited summary data is available for this year.$8.97$0.00$8.97$1.72$2.08$0.36
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.32$0.00$9.32$1.43