Prader-Willi California Foundation

“The organization provides a copy of the form 990 to all members of its governing body before filing the form. It is the policy of the Prader-Willi California Foundation that tax Form 990 shall be reviewed by the Board of Directors prior to submitting the Form to the IRS in the following manner: Prader-Willi California Foundation's Finance Committee initially reviews the Form 990. Questions and/or any issues regarding clarification are asked of the Accounting Firm that prepared the Form. As soon as the Finance Committee believes the Form 990 is ready to be presented to the Board of Directors, it provides a copy to each Board member via mail or PDF format. The Board of Directors, as a whole, discusses the Form 990 and, by majority vote, returns it to the Accounting Firm with additional questions or clarification, or authorizes that it be submitted to the IRS. If changes are made after clarifications, they will review and then forward as outlined.”

“At the first Annual meeting of the Board of Directors, the Executive Director provides the overview of the Foundation's Conflict of Interest Policy and distributes the Conflict of Interest form to each board member. The forms are signed by each member and collected by the Director.”

“How does the organization make its governing documents, conflict of interest policy, and financial statements available to the public? Upon request and these items are also posted on our website.”

“The organization surveys salaries for executive director in comparable size organizations. The board reviews the various salaries and makes a determination as to the level of salary for the executive director on an annual basis.”

“Prior period adjustment Due to adjusting beginning inventory amount.”

“Mission statement: individuals with prader-willi syndrome (pws) should have the opportunity to pursue their hopes and dreams to the full extent of their talents and capabilities. The success of people with pws depends greatly upon the knowledge and support of the community around them. The organization provides individuals with pws, their families, and professionals with a state network of information, advocacy and support services.”

“Educational Programs: PWCF held the Annual State Conference which provided critical education to parents, teachers, physicians, and professional care providers. A concurrent Youth & Adult Conference served children and adults with PWS and worked with their siblings. PWCF produced a PWS Behavior Management Training session and a School IEP Training Program. Throughout California PWCF provided dozens of educational in-service trainings to both School Staff and Residential Staff/providers in group homes. PWCF produced quarterly newsletters containing educational articles, research studies, recruitment and support opportunities, as well as other valuable information. Additionally, DVDs, books, and other educational materials were distributed. Families were given information about research participation opportunities.”

“Support & Advocacy Programs: PWCF's Prader-Willi Syndrome Camp is the only medically-specialized camp in the State of California that exclusively serves persons with PWS. This year we served 59 campers ranging in age from 8-65 years. PWCF supported three PWS Clinics throughout the state that treated hundreds of children and adults with PWS. We sponsored a Family Fun Day at a specialized gym for kids with disabilities to help families network and feel less isolated as they had fun. We facilitated Support Groups throughout CA, wrote letters of advocacy, and accompanied parents to school meetings and Regional Center meetings and Hearings with family members. We maintained a PWS Medical Crisis Line, the only one in the country that operates 24/7. We collaborated with and supported the work of the national Prader-Willi Syndrome Association (USA).”