Civic Intelligence

The Bleeding Disorder Foundation of Washington

990 • Fiscal year 2017 • EIN 91-6068857

Jan 01, 2017 to Dec 31, 2017 • Filed on Oct 12, 2018

9639 Firdale AvenueEdmonds, WA 98020

(206) 533-1660

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

71st percentile

0.04x

Higher debt load relative to assets than 71% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

73rd percentile

0.03x

Higher debt load relative to revenue than 73% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

52nd percentile

4.3%

Higher net margin than 52% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

97th percentile

$86,644

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 20.1% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

53rd percentile

3.9%

Faster asset growth than 53% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

68th percentile

15%

Faster revenue growth than 68% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Assets

Up

$369,457

Up $13,876 (+3.9%) from 2016

Net Assets

Up

$355,112

Up $18,415 (+5.5%) from 2016

Liabilities

Down

$14,345

Down $4,539 (-24%) from 2016

Revenue

Up

$430,916

Up $56,989 (+15%) from 2016

Expenses

Up

$412,501

Up $5,618 (+1.4%) from 2016

Net Income

Up

$18,415

Up $51,371 (+156%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $126,864Liabilities 2011: $1,0882011Assets 2012: $212,168Liabilities 2012: $3,118Net Assets 2012: $209,0502012Assets 2013: $264,477Liabilities 2013: $28,366Net Assets 2013: $236,1112013Assets 2014: $442,214Liabilities 2014: $22,504Net Assets 2014: $419,7102014Assets 2015: $388,267Liabilities 2015: $18,614Net Assets 2015: $369,6532015Assets 2016: $355,581Liabilities 2016: $18,884Net Assets 2016: $336,6972016Assets 2017: $369,457Liabilities 2017: $14,345Net Assets 2017: $355,1122017Assets 2018: $512,662Liabilities 2018: $9,918Net Assets 2018: $502,7442018Assets 2019: $604,266Liabilities 2019: $21,789Net Assets 2019: $582,4772019Assets 2020: $823,099Liabilities 2020: $76,556Net Assets 2020: $746,5432020Assets 2021: $766,503Liabilities 2021: $60,152Net Assets 2021: $706,3512021Assets 2022: $603,485Liabilities 2022: $11,311Net Assets 2022: $592,1742022Assets 2023: $413,904Liabilities 2023: $15,581Net Assets 2023: $398,3232023Assets 2024: $256,878Liabilities 2024: $16,497Net Assets 2024: $240,3812024

Highlighted filing

2017

Assets$369,457
Liabilities$14,345
Net Assets$355,112

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2011: $199,922Expenses 2011: $224,948Net Income 2011: -$25,0262011Revenue 2012: $293,637Expenses 2012: $228,989Net Income 2012: $64,6482012Revenue 2013: $356,869Expenses 2013: $290,078Net Income 2013: $66,7912013Revenue 2014: $572,343Expenses 2014: $388,744Net Income 2014: $183,5992014Revenue 2015: $365,179Expenses 2015: $415,236Net Income 2015: -$50,0572015Revenue 2016: $373,927Expenses 2016: $406,883Net Income 2016: -$32,9562016Revenue 2017: $430,916Expenses 2017: $412,501Net Income 2017: $18,4152017Revenue 2018: $573,266Expenses 2018: $433,482Net Income 2018: $139,7842018Revenue 2019: $547,671Expenses 2019: $467,938Net Income 2019: $79,7332019Revenue 2020: $553,736Expenses 2020: $390,642Net Income 2020: $163,0942020Revenue 2021: $446,212Expenses 2021: $437,679Net Income 2021: $8,5332021Revenue 2022: $493,323Expenses 2022: $506,639Net Income 2022: -$13,3162022Revenue 2023: $376,812Expenses 2023: $570,663Net Income 2023: -$193,8512023Revenue 2024: $374,037Expenses 2024: $522,065Net Income 2024: -$148,0282024

Highlighted filing

2017

Revenue$430,916
Expenses$412,501
Net Income$18,415
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Oct 12, 2018
Return Version
2017v2.2
Gross Receipts
$447,087
Mission and Program Overview

Mission

The Bleeding Disorder Foundation of Washington (BDFW) empowers and advocates for people affected by the challenges of hemophilia, Von Willebrand disease, and other bleeding disorders, while supporting research for a cure.

Advocate for access to care for those living with bleeding disorders. With bleeding disorders being one of the most expensive medical conditions to manage, access to care continues to be a challenge.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$121,475$179,830▲ $58,355
Pledges and Grants Receivable$94,000$100,000▲ $6,000
Savings and Temporary Cash Investments$136,840$86,840▼ $50,000
Prepaid Expenses and Deferred Charges$3,266$2,787▼ $479
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$355,581$369,457▲ $13,876
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$18,884$14,345▼ $4,539
Total Liabilities$18,884$14,345▼ $4,539
Net Assets / Fund Balance
Unrestricted Net Assets$203,250$221,665▲ $18,415
Temporarily Rstr Net Assets$127,947$127,947→ $0
Permanently Rstr Net Assets$5,500$5,500→ $0
Total Net Assets Fund Balance$336,697$355,112▲ $18,415
Total Liabilities and Net Assets / Fund Balance$355,581$369,457▲ $13,876

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$5,783---$5,783
2016$5,777-▲ $6-$5,783
2015$5,766-▲ $11-$5,777
2014$5,754-▲ $12-$5,766
2013$5,737-▲ $17-$5,754
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Stephanie SimpsonExecutive DirectorFT$79,455$7,189$86,644

Board Members and Trustees

NameTitle
Heidi ForresterPresident
Eric ValpeyVice President
Alison YenaBoard Member
Allie RitceyBoard Member
Chris BucholzBoard Member
Danielle MacomberBoard Member
Genesis AvalosBoard Member
Jessica WhittakerBoard Member
Katie DawdyBoard Member
Nicollete EtsellSecretary
Michael BirminghamTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$423,529
Program Service Revenue
$293
Investment Income
$0
Other Revenue
$7,094
All Other Contributions
$392,998
Change in Net Assets
$18,415
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$223,797
Other Expenses$188,704
Total Fundraising Expense$66,189
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$71,297$8,790$29,107$109,194
Current Officers, Directors, Trustees, and Key Employees$68,448$10,398$7,798$86,644
Fees for Services Lobbying$25,000--$25,000
Payroll Taxes$11,069$923$2,767$14,759
Other Employee Benefits$8,645$962$3,593$13,200
Occupancy$8,015$1,098$1,604$10,717
Travel$7,507--$7,507
Advertising$2,792$234$3,888$6,914
Other Expenses$30,103$5,959$15,118$5,959
Insurance$3,879$517$776$5,172
Fees for Services Accounting-$3,929-$3,929
All Other Expenses$2,778-$1,000$3,778
Fees for Services Other$3,250--$3,250
Information Technology$1,749$404$538$2,691
Conferences and Meetings$2,512--$2,512
Fees for Services Management-$1,602-$1,602
Total Functional Expenses$309,966$36,346$66,189$412,501
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$16,171
Fundraising Gross Income$9,765
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Trivia$40,296$9,765$1,424$8,341
Total Events$40,296$9,765$16,171$-6,406
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 6: Explanation of Classes of Members or Shareholder

The members elect the governing board and are given the opportunity to approve and provide feedback on major decisions including new members, the executive team, and the annual report.

Form 990, Part VI, Line 7A: How Members or Shareholders Elect Governing Body

Members at large vote to approve board members.

Form 990, Part VI, Line 7B: Describe Decisions of Governing Body Approval by Members or Shareholders

Each member shall be entitled to one vote upon each issue submitted to the members by the Board.

Form 990, Part VI, Line 11B: Form 990 Review Process

The Form 990 is provided to board members.

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

The Executive Committee reviews the compensation of the Executive Director at the end of each year using comparable salaries in the Snohomish County area.

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

Governing documents and financial statements are made available to the public upon request.

Filing and Contact Details

Filer

Filer Name
The Bleeding Disorder Foundation
EIN
91-6068857
Phone
2065331660
Address
9639 Firdale Avenue, Edmonds, WA 98020

Signing Officer

Name
Katie Dawdy
Title
Current President
Signed
2018-10-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stephanie Simpson
Formed
1989
Legal Domicile
Wa
Voting Board Members
9
Independent Board Members
9
Employees
4
Volunteers
100

Preparer

Firm
Jones & Associates PLLC CPAS
Address
1701 NE 104th Street, Seattle, WA 98125-7646
Preparer
Judy C Jones CPA
Phone
2065255170
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

OTHER PROGRAM SERVICES 4: Constituent services consist of a medical assistance program and management and support services. The medical assistance program provides financial assistance to individuals that are experiencing financial hardship but have medical needs such as help with travel and/or lodging for medical appointments, medical equipment that is not covered by insurance and assistance for families while a child is in the hospital. Constituent management and support services provide professional staff assistance to members of the community to help them manage the challenges of their chronic condition including insurance navigation, schooling options, managing stress and personal advocacy for their healthcare needs.

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

Endowment funds are held in certificates of deposit and once accumulated earnings reach a suitable amount, are used for supporting and education surrounding bleeding disorder related programs.

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IRS990/InsuranceGrp/FundraisingAmt0776
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IRS990/MissionDesc0The Bleeding Disorder Foundation of Washington (BDFW) empowers and advocates for people affected by the challenges of hemophilia, Von Willebrand disease, and other bleeding disorders, while supporting research for a cure.
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IRS990/OtherExpensesGrp/Desc1Purchased Services
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IRS990/OtherExpensesGrp/ProgramServicesAmt130103
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IRS990/OtherExpensesGrp/TotalAmt131633
IRS990/OtherExpensesGrp/TotalAmt215118
IRS990/OtherExpensesGrp/TotalAmt35959
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IRS990/OtherRevenueMiscGrp/Desc0Mailing Advertising
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IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt19500
IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt04000
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IRS990/OtherSalariesAndWagesGrp/FundraisingAmt029107
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IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt02767
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0923
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IRS990/PrincipalOfficerNm0Stephanie Simpson
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IRS990/ProgSrvcAccomActy2Grp/Desc0Advocacy: The Bleeding Disorder Foundation of Washington advocates for access to medical care and products for those with bleeding disorders. On average, 40% of the bleeding disorder community receive their medical care through state or federally funded insurance programs. Access to medical care is critical for individuals with bleeding disorders.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt069432
IRS990/ProgSrvcAccomActy3Grp/Desc0Educational Outreach: Educational outreach is a key component of the Bleeding Disorder of Washington mission. Due to the rarity of bleeding disorders, educational seminars are challenging to come across. The Bleeding Disorder of Washington educational programs in 2017 provided information on over 30 topics including: emergency management, going to school with a bleeding disorder, sibling issues, insurance challenges, affordable care act implications, physical therapy, how to be active, and many more. Our educational events reach all demographics of the community from the newly diagnosed, to the older population. In addition, we provide educational events on both the east and west side of the mountains to ensure all those with bleeding disorders have the opportunity to receive the critical information they need.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt065093
IRS990/ProhibitedTaxShelterTransInd0false
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IRS990/PYOtherExpensesAmt0184973
IRS990/PYOtherRevenueAmt05960
IRS990/PYProgramServiceRevenueAmt01300
IRS990/PYRevenuesLessExpensesAmt0-32956
IRS990/PYSalariesCompEmpBnftPaidAmt0221910
IRS990/PYTotalExpensesAmt0406883
IRS990/PYTotalRevenueAmt0373927
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IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt011766

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.57$0.16$2.40$3.74$5.22$1.48
2023Summary only. Only limited summary data is available for this year.$4.14$0.16$3.98$3.77$5.71$1.94
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.03$0.11$5.92$4.93$5.07$0.13
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.67$0.60$7.06$4.46$4.38$0.09
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.23$0.77$7.47$5.54$3.91$1.63
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.04$0.22$5.82$5.48$4.68$0.80
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.13$0.10$5.03$5.73$4.33$1.40
2017Detailed filing. Detailed filing data is available for this year.$3.69$0.14$3.55$4.31$4.13$0.18
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.56$0.19$3.37$3.74$4.07$0.33
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.88$0.19$3.70$3.65$4.15$0.50
2014Detailed filing. Detailed filing data is available for this year.$4.42$0.23$4.20$5.72$3.89$1.84
2013Summary only. Only limited summary data is available for this year.$2.64$0.28$2.36$3.57$2.90$0.67
2012Summary only. Only limited summary data is available for this year.$2.12$0.03$2.09$2.94$2.29$0.65
2011Summary only. Only limited summary data is available for this year.$1.27$0.01$2.00$2.25$0.25
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2017 filings • 501(c)3 • <$500k nonprofits