The Bleeding Disorder Foundation of Washington

“The bylaws were revised to limit member voting rights for Board member elections and to update the types of governance decisions that can be submitted to membership by the Board.”

“The members elect the governing board and are given the opportunity to approve and provide feedback on major decisions including new members, the executive team, and the annual report.”

“Members at large vote to approve board members.”

“Each member shall be entitled to one vote upon each issue submitted to the members by the Board.”

“The Board receives the draft 990 and provides comments before filing of the 990.”

“The Executive Committee reviews the compensation of the Executive Director at the end of each year using comparable salaries in the Snohomish County area.”

“Governing documents and financial statements are made available to the public upon request.”

“OTHER PROGRAM SERVICES 4: Constituent Services:Constituent services consists of a medical assistant program and management and support services. The medical assistance program provides financial assistance to individuals that are experiencing financial hardship but have medical needs such as help with travel and/or lodging for medical appointments, and medical equipment that is not covered by insurance and assistance for families while a child is in the hospital. Constituent management and support services provide professional staff assistance to members of the community to help them manage the challenges of their chronic condition including insurance navigation, schooling options, managing stress and personal advocacy for their healthcare needs. OTHER PROGRAM SERVICES 5: Educational Outreach: Educational outreach is a key component of the Bleeding Disorder of Washington mission. Due to the rarity of bleeding disorders, educational seminars are challenging to come across. The Bleeding Disorder of Washington educational programs in 2014 provided information on over 30 topics including: emergency management, going to school with a bleeding disorder, sibling issues, insurance challenges, affordable care act implications, physical therapy, how to be active, and many more. Our educational events reach all demographics of the community from the newly diagnosed, to the older population. In addition, we provide educational events on both the east and west side of the mountains to ensure all those with bleeding disorders have the opportunity to receive the critical information they need. OTHER PROGRAM SERVICES 6: Other: Includes developing relationships with other bleeding disorder foundations to strengthen services provided to the community.”