Liabilities / Assets
76th percentile
Higher debt load relative to assets than 76% of similar nonprofits.
EIN 91-6068857 • 501(c)3 • Shoreline, WA
Profile
The Bleeding Disorder Foundation of Washington (BDFW) empowers and advocates for people affected by the challenges of hemophilia, Von Willebrand disease, and other bleeding disorders, while supporting research for a cure.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
76th percentile
Higher debt load relative to assets than 76% of similar nonprofits.
Liabilities / Revenue
78th percentile
Higher debt load relative to revenue than 78% of similar nonprofits.
Net Margin
16th percentile
Higher net margin than 16% of similar nonprofits.
Top Officer Pay
99th percentile
Higher top officer pay than 99% of similar nonprofits.
Top officer pay equals 44.4% of source-year revenue.
Asset Growth
23rd percentile
Faster asset growth than 23% of similar nonprofits.
Revenue Growth
52nd percentile
Faster revenue growth than 52% of similar nonprofits.
Assets
Down$256,878
Down $157,026 (-38%) from 2023
Liabilities
Up$16,497
Up $916 (+5.9%) from 2023
Net Assets
Down$240,381
Down $157,942 (-40%) from 2023
Revenue
Down$374,037
Down $2,775 (-0.7%) from 2023
Expenses
Down$522,065
Down $48,598 (-8.5%) from 2023
Net Income
Up-$148,028
Up $45,823 (+24%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
The Bleeding Disorder Foundation of Washington (BDFW) empowers and advocates for people affected by the challenges of hemophilia, Von Willebrand disease, and other bleeding disorders, while supporting research for a cure.
The Bleeding Disorder Foundation of Washington mission: The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $85,881 | $186,789 | ▲ $100,908 |
| Savings and Temporary Cash Investments | $187,002 | $30,638 | ▼ $156,364 |
| Accounts Receivable | $126,570 | $25,000 | ▼ $101,570 |
| Investments in Publicly Traded Securities | $10,000 | $10,000 | → $0 |
| Prepaid Expenses and Deferred Charges | $4,451 | $4,451 | → $0 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $413,904 | $256,878 | ▼ $157,026 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $15,581 | $16,496 | ▲ $915 |
| Other Liabilities | - | $1 | - |
| Total Liabilities | $15,581 | $16,497 | ▲ $916 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $345,376 | $187,434 | ▼ $157,942 |
| Net Assets With Donor Restrictions | $52,947 | $52,947 | → $0 |
| Total Net Assets Fund Balance | $398,323 | $240,381 | ▼ $157,942 |
| Total Liabilities and Net Assets / Fund Balance | $413,904 | $256,878 | ▼ $157,026 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Stephanie Simpson | Executive Director | FT | $160,000 | $6,000 | $166,000 |
| Name | Title |
|---|---|
| Allison Yena | President |
| Chyna Lockart | Vice President |
| Gautham Mudambi | Director |
| Joseph Liberman | Director |
| Laynee Newkirk | Director |
| Chris Bucholz | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $362,700 |
| Other Expenses | $159,365 |
| Total Fundraising Expense | $36,964 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $128,865 | $38,629 | $16,556 | $184,050 |
| Current Officers, Directors, Trustees, and Key Employees | $101,656 | $30,735 | $12,162 | $144,553 |
| Payroll Taxes | $18,197 | $3,900 | $3,900 | $25,997 |
| Fees for Services Lobbying | $23,265 | - | - | $23,265 |
| Fees for Services Other | $22,735 | - | - | $22,735 |
| Conferences and Meetings | $16,883 | - | - | $16,883 |
| Information Technology | $9,222 | $1,153 | $1,153 | $11,528 |
| Other Employee Benefits | $5,700 | $1,680 | $720 | $8,100 |
| Office Expenses | $6,194 | $774 | $774 | $7,742 |
| Occupancy | $5,885 | $736 | $735 | $7,356 |
| Insurance | $5,634 | $705 | $704 | $7,043 |
| Other Expenses | $24,819 | $2,915 | - | $2,915 |
| Advertising | $2,078 | $260 | $260 | $2,598 |
| Fees for Services Accounting | - | $2,495 | - | $2,495 |
| Total Functional Expenses | $401,119 | $83,982 | $36,964 | $522,065 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Rounding | $1 |
“The members elect the governing board and are given the opportunity to approve and provide feedback on major decisions including new members, the executive team and the annual report.”
“Members at large vote to approve board members.”
“Members at large vote to approve board members.”
“The Board President reviews the Form 990, followed by a review by the full board.”
“Asks and pays attention to social media and employment.”
“Evaluate the market of salaries for employees in Washington State with the experience of staff.”
“Governing documents and financial statements are made available to the public upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 25000 |
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| IRS990/ActivityOrMissionDesc | 0 | The Bleeding Disorder Foundation of Washington mission: The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases. |
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| IRS990/CYOtherRevenueAmt | 0 | 12000 |
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| IRS990/CYRevenuesLessExpensesAmt | 0 | -148028 |
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| IRS990/CYTotalFundraisingExpenseAmt | 0 | 36964 |
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| IRS990/Desc | 0 | Educate those living with bleeding disorders and how to manage their complicated healthcare condition of bleeding disorder. Bleeding disorders are lifelong conditions that require education at each stage of life. With advancements in science the BDFW has had to revamp and update all our educate material to meet the needs of the community. This is creating education for each subset of age and gender while making sure it is culturally and socioeconomically appropriate. Due to the cost of bleeding disorders this education also includes how to manage our health care and insurance navigation. With medication for severe hemophilia costing $1 million per year the need for understanding health insurance is critical to accessing the lifesaving medication and care. This program directly serves over 500 direct in-person education encounters and provides online education to be accessed by over $70,000 living with bleeding disorder in Washington State. |
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| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1680 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 5700 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 8100 |
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| IRS990/OtherExpensesGrp/Desc | 1 | Patient Support Service |
| IRS990/OtherExpensesGrp/Desc | 2 | Other |
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| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 29986 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 24819 |
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| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2915 |
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| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3900 |
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| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 25997 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 4451 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 4451 |
| IRS990/PrincipalOfficerNm | 0 | Allison Yena |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | -9914 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Patient assistance has been a growing area of support provided by the BDFW to serve those living with bleeding disorders directly. These direct services programs were expanded during COVID but have been maintained since due to the need. These services provide medical ID bracelets to over 250 children per year, back-to-school supplies, winter clothes, and shoes for safe play to reduce bleeding episodes. These services also include gap food support, transportation to medical visits pertaining to their bleeding disorder, lodging for doctor visits and hospital stays, and supportive devices not covered by insurance. Bleeding disorders have a large percentage of patients on Medicaid and Medicare due to the cost of the care creating decades of institutional poverty. Direct patient assistance is critical for patients to manage their condition. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 128358 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Access to care advocacy and empowerment services focus on navigation of insurance, education on insurance, and access to coverage of bleeding disorder treatment on public and private insurance plans. Hemophilia is a bleeding disorder, that has some of the most expensive treatments in the country. The BDFW advocates for access to these treatments and all treatments for rare diseases through this program. We work with bleeding disorders and rare disease patients on how to advocate for themselves with elected officials, employers, school, and medical providers. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 76212 |
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| IRS990/PYContributionsGrantsAmt | 0 | 373421 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 2038 |
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| IRS990/PYOtherExpensesAmt | 0 | 196691 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 1353 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -193851 |
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| IRS990/PYTotalExpensesAmt | 0 | 570663 |
| IRS990/PYTotalRevenueAmt | 0 | 376812 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
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| IRS990/ReconcilationRevenueExpnssAmt | 0 | -148028 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
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| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 30638 |
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| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 42 |
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| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm | 0 | Stephanie Simpson |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt | 0 | Executive Dir. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | The members elect the governing board and are given the opportunity to approve and provide feedback on major decisions including new members, the executive team and the annual report. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Members at large vote to approve board members. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Members at large vote to approve board members. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | The Board President reviews the Form 990, followed by a review by the full board. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Asks and pays attention to social media and employment. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | Evaluate the market of salaries for employees in Washington State with the experience of staff. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | Governing documents and financial statements are made available to the public upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section A, Line 6 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section A, Line 7a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section A, Line 7b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Form 990, Part VI, Section B, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Form 990, Part VI, Section B, Line 15b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | Form 990, Part VI, Section C, Line 19 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
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| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | WA |
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| IRS990/SubjectToProxyTaxInd | 0 | false |
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| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 413904 |
| IRS990/TotalAssetsEOYAmt | 0 | 256878 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 413904 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 256878 |
| IRS990/TotalCompGreaterThan150KInd | 0 | true |
| IRS990/TotalContributionsAmt | 0 | 351970 |
| IRS990/TotalEmployeeCnt | 0 | 3 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 36964 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 83982 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 401119 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 522065 |
| IRS990/TotalGrossUBIAmt | 0 | 12000 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 15581 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 16497 |
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