Civic Intelligence

The Bleeding Disorder Foundation of Washington

990 • Fiscal year 2016 • EIN 91-6068857

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 10, 2017

Organization Profilewww.bdfwa.org
9639 Firdale AvenueEdmonds, WA 98020

(206) 533-1660

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

73rd percentile

0.05x

Higher debt load relative to assets than 73% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

76th percentile

0.05x

Higher debt load relative to revenue than 76% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

25th percentile

-8.8%

Higher net margin than 25% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

97th percentile

$83,561

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 22.3% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

31st percentile

-8.4%

Faster asset growth than 31% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

53rd percentile

2.4%

Faster revenue growth than 53% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets73rd percentile

Assets

Down

$355,581

Down $32,686 (-8.4%) from 2015

Net Assets

Down

$336,697

Down $32,956 (-8.9%) from 2015

Liabilities

Up

$18,884

Up $270 (+1.5%) from 2015

Revenue And Expenses
Liabilities / Revenue76th percentileNet Margin25th percentile

Revenue

Up

$373,927

Up $8,748 (+2.4%) from 2015

Expenses

Down

$406,883

Down $8,353 (-2.0%) from 2015

Net Income

Up

-$32,956

Up $17,101 (+34%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth31st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $126,864Liabilities 2011: $1,0882011Assets 2012: $212,168Liabilities 2012: $3,118Net Assets 2012: $209,0502012Assets 2013: $264,477Liabilities 2013: $28,366Net Assets 2013: $236,1112013Assets 2014: $442,214Liabilities 2014: $22,504Net Assets 2014: $419,7102014Assets 2015: $388,267Liabilities 2015: $18,614Net Assets 2015: $369,6532015Assets 2016: $355,581Liabilities 2016: $18,884Net Assets 2016: $336,6972016Assets 2017: $369,457Liabilities 2017: $14,345Net Assets 2017: $355,1122017Assets 2018: $512,662Liabilities 2018: $9,918Net Assets 2018: $502,7442018Assets 2019: $604,266Liabilities 2019: $21,789Net Assets 2019: $582,4772019Assets 2020: $823,099Liabilities 2020: $76,556Net Assets 2020: $746,5432020Assets 2021: $766,503Liabilities 2021: $60,152Net Assets 2021: $706,3512021Assets 2022: $603,485Liabilities 2022: $11,311Net Assets 2022: $592,1742022Assets 2023: $413,904Liabilities 2023: $15,581Net Assets 2023: $398,3232023Assets 2024: $256,878Liabilities 2024: $16,497Net Assets 2024: $240,3812024

Highlighted filing

2016

Assets$355,581
Liabilities$18,884
Net Assets$336,697
Open 2016 Filing

Operations Trend

Revenue Growth53rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2011: $199,922Expenses 2011: $224,948Net Income 2011: -$25,0262011Revenue 2012: $293,637Expenses 2012: $228,989Net Income 2012: $64,6482012Revenue 2013: $356,869Expenses 2013: $290,078Net Income 2013: $66,7912013Revenue 2014: $572,343Expenses 2014: $388,744Net Income 2014: $183,5992014Revenue 2015: $365,179Expenses 2015: $415,236Net Income 2015: -$50,0572015Revenue 2016: $373,927Expenses 2016: $406,883Net Income 2016: -$32,9562016Revenue 2017: $430,916Expenses 2017: $412,501Net Income 2017: $18,4152017Revenue 2018: $573,266Expenses 2018: $433,482Net Income 2018: $139,7842018Revenue 2019: $547,671Expenses 2019: $467,938Net Income 2019: $79,7332019Revenue 2020: $553,736Expenses 2020: $390,642Net Income 2020: $163,0942020Revenue 2021: $446,212Expenses 2021: $437,679Net Income 2021: $8,5332021Revenue 2022: $493,323Expenses 2022: $506,639Net Income 2022: -$13,3162022Revenue 2023: $376,812Expenses 2023: $570,663Net Income 2023: -$193,8512023Revenue 2024: $374,037Expenses 2024: $522,065Net Income 2024: -$148,0282024

Highlighted filing

2016

Revenue$373,927
Expenses$406,883
Net Income-$32,956
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 10, 2017
Return Version
2016v3.0
Gross Receipts
$394,637
Mission and Program Overview

Mission

The Bleeding Disorder Foundation of Washington (BDFW) empowers and advocates for people affected by the challenges of hemophilia, Von Willebrand disease, and other bleeding disorders, while supporting research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$136,767$136,840▲ $73
Cash and Non-Interest-Bearing Accounts$77,229$121,475▲ $44,246
Pledges and Grants Receivable$171,000$94,000▼ $77,000
Prepaid Expenses and Deferred Charges$3,271$3,266▼ $5
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$388,267$355,581▼ $32,686
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$18,614$18,884▲ $270
Total Liabilities$18,614$18,884▲ $270
Net Assets / Fund Balance
Unrestricted Net Assets$151,559$203,250▲ $51,691
Temporarily Rstr Net Assets$212,594$127,947▼ $84,647
Permanently Rstr Net Assets$5,500$5,500→ $0
Total Net Assets Fund Balance$369,653$336,697▼ $32,956
Total Liabilities and Net Assets / Fund Balance$388,267$355,581▼ $32,686

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$5,777-▲ $6-$5,783
2015$5,766-▲ $11-$5,777
2014$5,754-▲ $12-$5,766
2013$5,737-▲ $17-$5,754
2012$5,708-▲ $29-$5,737
Compensation and Service Providers
Top Officer Pay97th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Stephanie SimpsonExecutive DirectorFT$77,561$6,000$83,561

Board Members and Trustees

NameTitle
Heidi ForresterPresident
Eric ValpeyVice President
Allie RitceyBoard Member
Chris BucholzBoard Member
Danielle MacomberBoard Member
Jessica WhitakerBoard Member
Katie DawdyBoard Member
Nicollete EtsellSecretary
Michael BirminghamTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$366,594
Program Service Revenue
$1,300
Investment Income
$73
Other Revenue
$5,960
All Other Contributions
$201,415
Change in Net Assets
$-32,956
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$221,910
Other Expenses$184,973
Total Fundraising Expense$56,200
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$69,297$7,913$32,803$110,013
Current Officers, Directors, Trustees, and Key Employees$65,271$10,209$8,081$83,561
Fees for Services Lobbying$24,000--$24,000
Payroll Taxes$10,089$1,335$3,412$14,836
Other Employee Benefits$7,555$900$5,045$13,500
Occupancy$5,652$579$1,512$7,743
Fees for Services Accounting-$6,938-$6,938
All Other Expenses$515$5,895$336$6,746
Other Expenses$4,770$268$597$5,635
Travel-$4,736-$4,736
Office Expenses$2,086$868$1,688$4,642
Information Technology$40$4,075-$4,115
Insurance$3,306$337-$3,643
Conferences and Meetings$318$299$402$1,019
Payments to Affiliates-$1,000$10$1,010
Total Functional Expenses$303,902$46,781$56,200$406,883
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$20,710
Fundraising Gross Income$17,420
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Bloody Fun Run$163,674-$7,409-
Trivia$18,925$17,420-$17,420
Total Events$182,599$17,420$20,710$-3,290
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 6: Explanation of Classes of Members or Shareholder

“The members elect the governing board and are given the opportunity to approve and provide feedback on major decisions including new members, the executive team, and the annual report.”

Form 990, Part VI, Line 7A: How Members or Shareholders Elect Governing Body

“Members at large vote to approve board members.”

Form 990, Part VI, Line 7B: Describe Decisions of Governing Body Approval by Members or Shareholders

“Each member shall be entitled to one vote upon each issue submitted to the members by the Board.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The Form 990 is provided to board members.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The Executive Committee reviews the compensation of the Executive Director at the end of each year using comparable salaries in the Snohomish County area.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Governing documents and financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
The Bleeding Disorder Foundation
EIN
91-6068857
Phone
2065331660
Address
9639 Firdale Avenue, Edmonds, WA 98020

Signing Officer

Name
Heidi Forrester
Title
President
Signed
2017-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stephanie Simpson
Formed
1989
Legal Domicile
Wa
Voting Board Members
9
Independent Board Members
9
Employees
4
Volunteers
100

Preparer

Firm
Jones & Associates LLC CPAS
Address
1701 NE 104th Street, Seattle, WA 98125-7646
Preparer
Judy C Jones CPA
Phone
2065255170
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“OTHER PROGRAM SERVICES 4: Constituent services consist of a medical assistance program and management and support services. The medical assistance program provides financial assistance to individuals that are experiencing financial hardship but have medical needs such as help with travel and/or lodging for medical appointments, medical equipment that is not covered by insurance and assistance for families while a child is in the hospital. Constituent management and support services provide professional staff assistance to members of the community to help them manage the challenges of their chronic condition including insurance navigation, schooling options, managing stress and personal advocacy for their healthcare needs.”

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

“Endowment funds are held in certificates of deposit and once accumulated earnings reach a suitable amount, are used for supporting and education surrounding bleeding disorder related programs.”

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IRS990/MissionDesc0The Bleeding Disorder Foundation of Washington (BDFW) empowers and advocates for people affected by the challenges of hemophilia, Von Willebrand disease, and other bleeding disorders, while supporting research for a cure.
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IRS990/OtherExpensesGrp/FundraisingAmt1597
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IRS990/OtherExpensesGrp/TotalAmt26801
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IRS990/OtherRevenueMiscGrp/Desc0Mailing Advertising
IRS990/OtherRevenueMiscGrp/Desc1Newsletter Advertising
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt04250
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt15000
IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt04250
IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt15000
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IRS990/OtherSalariesAndWagesGrp/FundraisingAmt032803
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt07913
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IRS990/PaymentsToAffiliatesGrp/FundraisingAmt010
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt01000
IRS990/PaymentsToAffiliatesGrp/TotalAmt01010
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IRS990/PayrollTaxesGrp/FundraisingAmt03412
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01335
IRS990/PayrollTaxesGrp/ProgramServicesAmt010089
IRS990/PayrollTaxesGrp/TotalAmt014836
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IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0171000
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03266
IRS990/PrincipalOfficerNm0Stephanie Simpson
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IRS990/ProgSrvcAccomActy2Grp/Desc0Advocacy: The Bleeding Disorder Foundation of Washington advocates for access to medical care and products for those with bleeding disorders. On average, 40% of the bleeding disorder community receive their medical care through state or federally funded insurance programs. Access to medical care is critical for individuals with bleeding disorders.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt068226
IRS990/ProgSrvcAccomActy3Grp/Desc0Educational Outreach: Educational outreach is a key component of the Bleeding Disorder of Washington mission. Due to the rarity of bleeding disorders, educational seminars are challenging to come across. The Bleeding Disorder of Washington educational programs in 2015 provided information on over 30 topics including: emergency management, going to school with a bleeding disorder, sibling issues, insurance challenges, affordable care act implications, physical therapy, how to be active, and many more. Our educational events reach all demographics of the community from the newly diagnosed, to the older population. In addition, we provide educational events on both the east and west side of the mountains to ensure all those with bleeding disorders have the opportunity to receive the critical information they need.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt064079
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IRS990/PYInvestmentIncomeAmt080
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$355,581
Liabilities
$18,884
Net assets
$336,697
Revenue
$373,927
Expenses
$406,883
Net income
-$32,956
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.57$0.16$2.40$3.74$5.22$1.48
2023Summary only. Only limited summary data is available for this year.$4.14$0.16$3.98$3.77$5.71$1.94
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.03$0.11$5.92$4.93$5.07$0.13
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.67$0.60$7.06$4.46$4.38$0.09
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.23$0.77$7.47$5.54$3.91$1.63
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.04$0.22$5.82$5.48$4.68$0.80
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.13$0.10$5.03$5.73$4.33$1.40
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.69$0.14$3.55$4.31$4.13$0.18
2016Detailed filing. Detailed filing data is available for this year.$3.56$0.19$3.37$3.74$4.07$0.33
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.88$0.19$3.70$3.65$4.15$0.50
2014Detailed filing. Detailed filing data is available for this year.$4.42$0.23$4.20$5.72$3.89$1.84
2013Summary only. Only limited summary data is available for this year.$2.64$0.28$2.36$3.57$2.90$0.67
2012Summary only. Only limited summary data is available for this year.$2.12$0.03$2.09$2.94$2.29$0.65
2011Summary only. Only limited summary data is available for this year.$1.27$0.01$2.00$2.25$0.25