Liabilities / Assets
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2015 • EIN 91-2047580
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
99th percentile
Higher net margin than 99% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 42.7% of source-year revenue.
Asset Growth
89th percentile
Faster asset growth than 89% of similar nonprofits.
Revenue Growth
4th percentile
Faster revenue growth than 4% of similar nonprofits.
Assets
Up$46,380
Up $20,860 (+82%) from 2014
Net Assets
Up$46,380
Up $20,860 (+82%) from 2014
Liabilities
Flat$0
Flat from 2014
Revenue
Down$33,343
Down $123,305 (-79%) from 2014
Expenses
Down$925
Down $44,797 (-98%) from 2014
Net Income
Down$32,418
Down $78,508 (-71%) from 2014
Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $25,520 | $46,380 | ▲ $20,860 |
| Total Assets | $25,520 | $46,380 | ▲ $20,860 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $25,520 | $46,380 | ▲ $20,860 |
| Total Net Assets Fund Balance | $25,520 | $46,380 | ▲ $20,860 |
| Total Liabilities and Net Assets / Fund Balance | $25,520 | $46,380 | ▲ $20,860 |
| Name | Title | Full / Part Time | Other | Total |
|---|---|---|---|---|
| Daniel O Hayden | Interim Exec | PT | $14,250 | $14,250 |
| Name | Title |
|---|---|
| Joseph Slay | Chair |
| Terry Griffin | Vice Chair |
| Bill Strong | Director |
| Kathy Tompkins | Director |
| Martha Slay | Director |
| Michael Calise | Director |
| Rod Adams | Director |
| Shawn Lacey | Director |
| Tracy Lacey | Director |
| Elise Finkner | Secretary |
| Deanna Griffin | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $925 |
| Total Fundraising Expense | $65 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Office Expenses | $154 | $247 | $65 | $466 |
| Other Expenses | $115 | $344 | - | $459 |
| Total Functional Expenses | $269 | $591 | $65 | $925 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Martha slay joseph slay director chair spouses terry griffin deanna griffin vice-chair treasurer spouses shawn lacey tracy lacey director director spouses”
“A copy of the form 990 was made available to the board members and was carefully reviewed prior to filing.”
“The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year the members of the board must disclose any possible conflict of interest and the remaining board members will determine how the situation should be addressed.”
“The organization does not directly pay any compensation. The executive director's salary (which is determined by the board of directors) is paid by the parent organization.”
“AVAILABLE UPON REQUEST.”
“Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.”
“Net asset transfers to parent -11,558 total -11,558”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 0 | FIGHT SMA INC ILLINOIS CHAPTER |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 1 | FIGHT SMA INC CORINNA'S ANGELS CHAPTER |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 2 | FIGHT SMA INC DESIREE'S BUDDIES |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 3 | FIGHT SMA INC NEW YORK CHAPTER |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 4 | FIGHT SMA INC JOSHUA'S BUDDIES |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 5 | FIGHT SMA INC HANNAH'S BUDDIES |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 6 | FIGHT SMA INC MORGAN'S BUDDIES |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 7 | FIGHT SMA INC FIGHT SMA HANOVER |
| AffiliateListing/AffiliateListingGrp/BusinessName/BusinessNameLine1Txt | 8 | FIGHT SMA INC BIRMINGHAM |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 0 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 1 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 2 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 3 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 4 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 5 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 6 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 7 | FIGH |
| AffiliateListing/AffiliateListingGrp/BusinessNameControlTxt | 8 | FIGH |
| AffiliateListing/AffiliateListingGrp/EIN | 0 | 311557150 |
| AffiliateListing/AffiliateListingGrp/EIN | 1 | 050518799 |
| AffiliateListing/AffiliateListingGrp/EIN | 2 | 113713393 |
| AffiliateListing/AffiliateListingGrp/EIN | 3 | 134046963 |
| AffiliateListing/AffiliateListingGrp/EIN | 4 | 383537413 |
| AffiliateListing/AffiliateListingGrp/EIN | 5 | 593527816 |
| AffiliateListing/AffiliateListingGrp/EIN | 6 | 200525891 |
| AffiliateListing/AffiliateListingGrp/EIN | 7 | 454766522 |
| AffiliateListing/AffiliateListingGrp/EIN | 8 | 541610701 |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 0 | 125 COLONY DR |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 1 | 14 ASHLEY ST |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 2 | PO BOX 1133 |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 3 | 300 E 51ST ST |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 4 | 120 HAMPSHIRE |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 5 | 719 ORLEANS AV |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 6 | PO BOX 5235 |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 7 | 7247 PLACIDA CR |
| AffiliateListing/AffiliateListingGrp/USAddress/AddressLine1Txt | 8 | 8016 STAPLES MILL ROAD |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 0 | INVERNESS |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 1 | CRANSTON |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 2 | BERNALILLO |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 3 | NEW YORK |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 4 | TROY |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 5 | TAMPA |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 6 | VIRGINIA BEACH |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 7 | MECHANICSVILLE |
| AffiliateListing/AffiliateListingGrp/USAddress/CityNm | 8 | RICHMOND |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 0 | IL |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 1 | RI |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 2 | NM |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 3 | NY |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 4 | MI |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 5 | FL |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 6 | VA |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 7 | VA |
| AffiliateListing/AffiliateListingGrp/USAddress/StateAbbreviationCd | 8 | VA |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 0 | 60010 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 1 | 02920 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 2 | 87004 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 3 | 10022 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 4 | 48085 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 5 | 33606 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 6 | 23471 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 7 | 23116 |
| AffiliateListing/AffiliateListingGrp/USAddress/ZIPCd | 8 | 23228 |
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS. |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 33343 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | NET 30 INC |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8047169070 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 8016 STAPLES MILL ROAD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | RICHMOND |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 23228 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 25520 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 46380 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | true |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 33343 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 925 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 32418 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 925 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 65 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 33343 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | RAISED PUBLIC AWARENESS REGARDING SPINAL MUSCULAR ATROPHY AND FUNDS FOR RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 269 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 24.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DANIEL O HAYDEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JOSEPH SLAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | TERRY GRIFFIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DEANNA GRIFFIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ELISE FINKNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | ROD ADAMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MICHAEL CALISE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | SHAWN LACEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | TRACY LACEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | MARTHA SLAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | BILL STRONG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | KATHY TOMPKINS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 14250 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | INTERIM EXEC |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1991 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 33343 |
| IRS990/GroupExemptionNum | 0 | 8117 |
| IRS990/GroupReturnForAffiliatesInd | 0 | true |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 25520 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 46380 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 65 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 247 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 154 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 466 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -11558 |
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| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 115 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 459 |
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| IRS990/PrincipalOfficerNm | 0 | DEANNA GRIFFIN |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | MARTHA SLAY JOSEPH SLAY DIRECTOR CHAIR SPOUSES TERRY GRIFFIN DEANNA GRIFFIN VICE-CHAIR TREASURER SPOUSES SHAWN LACEY TRACY LACEY DIRECTOR DIRECTOR SPOUSES |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | A COPY OF THE FORM 990 WAS MADE AVAILABLE TO THE BOARD MEMBERS AND WAS CAREFULLY REVIEWED PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE BOARD OF DIRECTORS HAS A CONFLICT OF INTEREST POLICY WHICH IS SET FORTH IN THE BYLAWS AND IS REVIEWED ANNUALLY OR WHEN THERE IS A NEED TO CONSIDER THE POSSIBLE ABSTENTION OF A BOARD MEMBER FROM THE DECISION MAKING PROCESS. EACH YEAR THE MEMBERS OF THE BOARD MUST DISCLOSE ANY POSSIBLE CONFLICT OF INTEREST AND THE REMAINING BOARD MEMBERS WILL DETERMINE HOW THE SITUATION SHOULD BE ADDRESSED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION DOES NOT DIRECTLY PAY ANY COMPENSATION. THE EXECUTIVE DIRECTOR'S SALARY (WHICH IS DETERMINED BY THE BOARD OF DIRECTORS) IS PAID BY THE PARENT ORGANIZATION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | NET ASSET TRANSFERS TO PARENT -11,558 TOTAL -11,558 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 15A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PART XI, LINE 9 |
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Displayed year
2015 • Form 990Detailed filing. Detailed filing data is available for this year.