Civic Intelligence

Fightsma Inc

EIN 91-2047580 • 501(c)3 • Richmond, VA

Profile

Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.

8016 Staples Mill RoadRichmond, VA 23228

www.fightsma.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2016

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

98th percentile

97%

Higher net margin than 98% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

9th percentile

-100%

Faster asset growth than 9% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

23rd percentile

-35%

Faster revenue growth than 23% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$0

Down $46,380 (-100%) from 2015

Liabilities

Flat

$0

Flat from 2015

Net Assets

Down

$0

Down $46,380 (-100%) from 2015

Operations
Liabilities / Revenue61st percentileNet Margin98th percentile

Revenue

Down

$21,821

Down $11,522 (-35%) from 2015

Expenses

Down

$557

Down $368 (-40%) from 2015

Net Income

Down

$21,264

Down $11,154 (-34%) from 2015

Trend Graphs

Balance Sheet Trend

Asset Growth9th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$80K$60K$40K$20K$0Assets 2010: $78,269Liabilities 2010: $3,124Net Assets 2010: $75,1452010Assets 2011: $55,404Liabilities 2011: $3,375Net Assets 2011: $52,0292011Assets 2012: $45,665Liabilities 2012: $0Net Assets 2012: $45,6652012Assets 2013: $27,797Liabilities 2013: $0Net Assets 2013: $27,7972013Assets 2014: $25,520Liabilities 2014: $0Net Assets 2014: $25,5202014Assets 2015: $46,380Liabilities 2015: $0Net Assets 2015: $46,3802015Assets 2016: $0Liabilities 2016: $0Net Assets 2016: $02016

Highlighted filing

2016

Assets$0
Liabilities$0
Net Assets$0
Open 2016 Filing

Operations Trend

Revenue Growth23rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$300K$200K$100K$0-$100KRevenue 2010: $305,091Expenses 2010: $273,739Net Income 2010: $31,3522010Revenue 2011: $263,313Expenses 2011: $286,429Net Income 2011: -$23,1162011Revenue 2012: $306,712Expenses 2012: $78,209Net Income 2012: $228,5032012Revenue 2013: $160,614Expenses 2013: $57,662Net Income 2013: $102,9522013Revenue 2014: $156,648Expenses 2014: $45,722Net Income 2014: $110,9262014Revenue 2015: $33,343Expenses 2015: $925Net Income 2015: $32,4182015Revenue 2016: $21,821Expenses 2016: $557Net Income 2016: $21,2642016

Highlighted filing

2016

Revenue$21,821
Expenses$557
Net Income$21,264
Open 2016 Filing

Filings

Most recent year

2016 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$0
Liabilities
$0
Net assets
$0
Revenue
$21,821
Expenses
$557
Net income
$21,264
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.00$0.00$0.00$0.22$0.01$0.21
2015Detailed filing. Detailed filing data is available for this year.$0.46$0.00$0.46$0.33$0.01$0.32
2014Summary only. Only limited summary data is available for this year.$0.26$0.00$0.26$1.57$0.46$1.11
2013Summary only. Only limited summary data is available for this year.$0.28$0.00$0.28$1.61$0.58$1.03
2012Summary only. Only limited summary data is available for this year.$0.46$0.00$0.46$3.07$0.78$2.29
2011Summary only. Only limited summary data is available for this year.$0.55$0.03$0.52$2.63$2.86$0.23
2010Summary only. Only limited summary data is available for this year.$0.78$0.03$0.75$3.05$2.74$0.31
Latest Detailed Filing

The latest 2016 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2015 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Aug 15, 2016
Return Version
2015v2.1
Gross Receipts
$33,343
Mission and Program Overview

Mission

Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$25,520$46,380▲ $20,860
Total Assets$25,520$46,380▲ $20,860
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$25,520$46,380▲ $20,860
Total Net Assets Fund Balance$25,520$46,380▲ $20,860
Total Liabilities and Net Assets / Fund Balance$25,520$46,380▲ $20,860
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeOtherTotal
Daniel O HaydenInterim ExecPT$14,250$14,250

Board Members and Trustees

NameTitle
Joseph SlayChair
Terry GriffinVice Chair
Bill StrongDirector
Kathy TompkinsDirector
Martha SlayDirector
Michael CaliseDirector
Rod AdamsDirector
Shawn LaceyDirector
Tracy LaceyDirector
Elise FinknerSecretary
Deanna GriffinTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$33,343
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$33,343
Change in Net Assets
$32,418
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$925
Total Fundraising Expense$65
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Office Expenses$154$247$65$466
Other Expenses$115$344-$459
Total Functional Expenses$269$591$65$925
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“Martha slay joseph slay director chair spouses terry griffin deanna griffin vice-chair treasurer spouses shawn lacey tracy lacey director director spouses”

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 was made available to the board members and was carefully reviewed prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year the members of the board must disclose any possible conflict of interest and the remaining board members will determine how the situation should be addressed.”

Form 990, Page 6, Part VI, Line 15A

“The organization does not directly pay any compensation. The executive director's salary (which is determined by the board of directors) is paid by the parent organization.”

Form 990, Page 6, Part VI, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Fightsma Inc
EIN
91-2047580
Phone
7032991144
Address
8016 STAPLES MILL ROAD, RICHMOND, VA 23228

Signing Officer

Name
Deanna Griffin
Title
Treasurer
Phone
7032991144
Signed
2016-08-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deanna Griffin
Formed
1991
Legal Domicile
Va
Voting Board Members
11
Independent Board Members
10
Employees
0
Volunteers
20

Preparer

Firm
Wellscoleman
Address
3800 PATTERSON AVE, RICHMOND, VA 23221-2034
Preparer
Phyllis S Mutchnick
Phone
8043581150
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.”

Form 990, Part XI, Line 9

“Net asset transfers to parent -11,558 total -11,558”

Raw XML AppendixShowing 400 of 434 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/AuditCommitteeInd0true
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IRS990/DescribedInSection501c3Ind0true
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IRS990/MissionDesc0FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1MARTHA SLAY JOSEPH SLAY DIRECTOR CHAIR SPOUSES TERRY GRIFFIN DEANNA GRIFFIN VICE-CHAIR TREASURER SPOUSES SHAWN LACEY TRACY LACEY DIRECTOR DIRECTOR SPOUSES
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2A COPY OF THE FORM 990 WAS MADE AVAILABLE TO THE BOARD MEMBERS AND WAS CAREFULLY REVIEWED PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE BOARD OF DIRECTORS HAS A CONFLICT OF INTEREST POLICY WHICH IS SET FORTH IN THE BYLAWS AND IS REVIEWED ANNUALLY OR WHEN THERE IS A NEED TO CONSIDER THE POSSIBLE ABSTENTION OF A BOARD MEMBER FROM THE DECISION MAKING PROCESS. EACH YEAR THE MEMBERS OF THE BOARD MUST DISCLOSE ANY POSSIBLE CONFLICT OF INTEREST AND THE REMAINING BOARD MEMBERS WILL DETERMINE HOW THE SITUATION SHOULD BE ADDRESSED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION DOES NOT DIRECTLY PAY ANY COMPENSATION. THE EXECUTIVE DIRECTOR'S SALARY (WHICH IS DETERMINED BY THE BOARD OF DIRECTORS) IS PAID BY THE PARENT ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6NET ASSET TRANSFERS TO PARENT -11,558 TOTAL -11,558
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
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