Liabilities / Assets
58th percentile
Tied with the lowest-debt nonprofits in its peer group.
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
94th percentile
Higher net margin than 94% of similar nonprofits.
Top Officer Pay
78th percentile
Higher top officer pay than 78% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
95th percentile
Faster asset growth than 95% of similar nonprofits.
Revenue Growth
27th percentile
Faster revenue growth than 27% of similar nonprofits.
Balance Sheet
Assets
Up$4,897
Up $3,243 (+196%) from 2022
Net Assets
Up$4,897
Up $3,243 (+196%) from 2022
Liabilities
Flat$0
Flat from 2022
Revenue And Expenses
Revenue
Down$5,078
Down $1,060 (-17%) from 2022
Expenses
Down$1,835
Down $2,649 (-59%) from 2022
Net Income
Up$3,243
Up $1,589 (+96%) from 2022
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2023 to Dec 31, 2023
- Signed
- May 8, 2024
- Return Version
- 2023v5.0
- Gross Receipts
- $5,078
Mission and Program Overview
Mission
Cure CDKL5 Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for CDKL5 deficiency disorder, a rare form of epilepsy caused by a mutation in the CDKL5 gene. Living with this rare disorder causes a very broad range of clinical symptoms and severity between individuals with the hallmarks being early-onset intractable seizures and neurodevelopmental delays that impact cognitive, motor, speech, and visual functional development. Our mission is to fundraise for CDKL5 specific scientific and clinical research while offering affected CDKL5 families resources to make their individual voyages for a cure more streamlined.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| 2023 was the first full year the foundation was in operations, | - | $1,835 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| JESSICA LINDERMAN | President & CEO | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Cure Cdkl5 Foundation
- EIN
- 88-1224505
- Phone
- 3105455400
- Address
- 848 MANHATTAN BEACH BLVD, MANHATTAN BEACH, CA 90266
Signing Officer
- Name
- Jessica Linderman
- Title
- President & CEO
- Signed
- 2024-05-08
Raw XML Appendix113 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990EZ/BooksInCareOfDetail/PersonNm | 0 | JESSICA LINDERMAN |
| IRS990EZ/BooksInCareOfDetail/PhoneNum | 0 | 3105455400 |
| IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 848 MANHATTAN BEACH BLVD |
| IRS990EZ/BooksInCareOfDetail/USAddress/CityNm | 0 | MANHATTAN BEACH |
| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 90266 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt | 0 | 1654 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt | 0 | 4897 |
| IRS990EZ/ChgMadeToOrgnzngDocNotRptInd | 0 | false |
| IRS990EZ/ContributionsGiftsGrantsEtcAmt | 0 | 5078 |
| IRS990EZ/CostOfGoodsSoldAmt | 0 | 0 |
| IRS990EZ/CostOrOtherBasisExpenseSaleAmt | 0 | 0 |
| IRS990EZ/DonorAdvisedFndsInd | 0 | false |
| IRS990EZ/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990EZ/ExcessOrDeficitForYearAmt | 0 | 3243 |
| IRS990EZ/FeesAndOtherPymtToIndCntrctAmt | 0 | 1835 |
| IRS990EZ/FiledScheduleAInd | 0 | true |
| IRS990EZ/ForeignFinancialAccountInd | 0 | false |
| IRS990EZ/ForeignOfficeInd | 0 | false |
| IRS990EZ/Form1120PolFiledInd | 0 | false |
| IRS990EZ/Form990TotalAssetsGrp/BOYAmt | 0 | 1654 |
| IRS990EZ/Form990TotalAssetsGrp/EOYAmt | 0 | 4897 |
| IRS990EZ/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990EZ/GrossReceiptsAmt | 0 | 5078 |
| IRS990EZ/LobbyingActivitiesInd | 0 | false |
| IRS990EZ/MadeLoansToFromOfficersInd | 0 | false |
| IRS990EZ/MethodOfAccountingCashInd | 0 | X |
| IRS990EZ/NetAssetsOrFundBalancesBOYAmt | 0 | 1654 |
| IRS990EZ/NetAssetsOrFundBalancesEOYAmt | 0 | 4897 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt | 0 | 1654 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt | 0 | 4897 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 0 | JESSICA LINDERMAN |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | President & CEO |
| IRS990EZ/OperateHospitalInd | 0 | false |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | false |
| IRS990EZ/OrganizationHadUBIInd | 0 | false |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | false |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | Cure CDKL5 Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for CDKL5 deficiency disorder, a rare form of epilepsy caused by a mutation in the CDKL5 gene. Living with this rare disorder causes a very broad range of clinical symptoms and severity between individuals with the hallmarks being early-onset intractable seizures and neurodevelopmental delays that impact cognitive, motor, speech, and visual functional development. Our mission is to fundraise for CDKL5 specific scientific and clinical research while offering affected CDKL5 families resources to make their individual voyages for a cure more streamlined. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | 2023 was the first full year the foundation was in operations, |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 1835 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990EZ/ScheduleBNotRequiredInd | 0 | X |
| IRS990EZ/SchoolOperatingInd | 0 | false |
| IRS990EZ/SpecialEventsDirectExpensesAmt | 0 | 0 |
| IRS990EZ/SubjectToProxyTaxInd | 0 | false |
| IRS990EZ/TanningServicesProvidedInd | 0 | false |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 1835 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 1835 |
| IRS990EZ/TotalRevenueAmt | 0 | 5078 |
| IRS990EZ/TransactionWithControlEntInd | 0 | false |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | N/A |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/First5Years509Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 5078 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 6138 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 11216 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.00000 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 11216 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 5078 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 6138 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 11216 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 5078 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 6138 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 11216 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd | 0 | AAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/FederatedAssuranceLevelCd | 0 | FAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 2 |
| ReturnHeader/BuildTS | 0 | 2023-04-26 12:10:37Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JESSICA LINDERMAN |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President & CEO |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2024-05-08 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | CURE CDKL5 FOUNDATION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | CURE |
| ReturnHeader/Filer/EIN | 0 | 881224505 |
| ReturnHeader/Filer/PhoneNum | 0 | 3105455400 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 848 MANHATTAN BEACH BLVD |
| ReturnHeader/Filer/USAddress/CityNm | 0 | MANHATTAN BEACH |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 90266 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | true |
| ReturnHeader/ReturnTs | 0 | 2024-05-08T18:49:37-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm | 0 | JESSICA |
| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | LINDERMAN |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2023-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2023-12-31 |
| ReturnHeader/TaxYr | 0 | 2023 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2023 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $4,897
- Liabilities
- $0
- Net assets
- $4,897
- Revenue
- $5,078
- Expenses
- $1,835
- Net income
- $3,243
| Balance Sheet | Operations | |||||
|---|---|---|---|---|---|---|
| Year | Assets | Liabilities | Net Assets | Revenue | Expenses | Net Income |
| 2024Detailed filing. Detailed filing data is available for this year. | $9,862 | $9,862 | $5,035 | $70 | $4,965 | |
| 2023Detailed filing. Detailed filing data is available for this year. | $4,897 | $0 | $4,897 | $5,078 | $1,835 | $3,243 |
| 2022Detailed filing. Detailed filing data is available for this year. | $1,654 | $0 | $1,654 | $6,138 | $4,484 | $1,654 |