Civic Intelligence

Cure Cdkl5 Foundation

EIN 88-1224505 • 501(c)3 • Manhattan Beach, CA

Pub. 78 Eligible

Profile

Cure CDKL5 Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for CDKL5 deficiency disorder, a rare form of epilepsy caused by a mutation in the CDKL5 gene. Living with this rare disorder causes a very broad range of clinical symptoms and severity between individuals with the hallmarks being early-onset intractable seizures and neurodevelopmental delays that impact cognitive, motor, speech, and visual functional development. Our mission is to fundraise for CDKL5 specific scientific and clinical research while offering affected CDKL5 families resources to make their individual voyages for a cure more streamlined.

848 Manhattan Beach BlvdManhattan Beach, CA 90266

n/A

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2024

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.

Source year 2024

Net Margin

98th percentile

99%

Higher net margin than 98% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

92nd percentile

101%

Faster asset growth than 92% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

52nd percentile

-0.8%

Faster revenue growth than 52% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Up

$9,862

Up $4,965 (+101%) from 2023

Liabilities

-

No earlier filing loaded for comparison.

Net Assets

Up

$9,862

Up $4,965 (+101%) from 2023

Revenue

Down

$5,035

Down $43 (-0.8%) from 2023

Expenses

Down

$70

Down $1,765 (-96%) from 2023

Net Income

Up

$4,965

Up $1,722 (+53%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10K$5.0K$0Assets 2022: $1,654Liabilities 2022: $0Net Assets 2022: $1,6542022Assets 2023: $4,897Liabilities 2023: $0Net Assets 2023: $4,8972023Assets 2024: $9,862Net Assets 2024: $9,8622024

Highlighted filing

2024

Assets$9,862
Liabilities-
Net Assets$9,862

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$8.0K$6.0K$4.0K$2.0K$0Revenue 2022: $6,138Expenses 2022: $4,484Net Income 2022: $1,6542022Revenue 2023: $5,078Expenses 2023: $1,835Net Income 2023: $3,2432023Revenue 2024: $5,035Expenses 2024: $70Net Income 2024: $4,9652024

Highlighted filing

2024

Revenue$5,035
Expenses$70
Net Income$4,965

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 19, 2025
Return Version
2024v5.2
Gross Receipts
$5,035
Mission and Program Overview

Mission

Cure CDKL5 Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for CDKL5 deficiency disorder, a rare form of epilepsy caused by a mutation in the CDKL5 gene. Living with this rare disorder causes a very broad range of clinical symptoms and severity between individuals with the hallmarks being early-onset intractable seizures and neurodevelopmental delays that impact cognitive, motor, speech, and visual functional development. Our mission is to fundraise for CDKL5 specific scientific and clinical research while offering affected CDKL5 families resources to make their individual voyages for a cure more streamlined.

Program Services

DescriptionGrantsExpenses
2024 was the Second full year the foundation was in operations,-$70
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
JESSICA LINDERMANPresident & CEO-$0--
Filing and Contact Details

Filer

Filer Name
Cure Cdkl5 Foundation
EIN
88-1224505
Phone
3105455400
Address
848 MANHATTAN BEACH BLVD, MANHATTAN BEACH, CA 90266

Signing Officer

Name
Jessica Linderman
Title
President & CEO
Signed
2025-08-19
Supplemental Narrative

Additional Explanations

Form 990EA: Line A

IRS: California wildfire victims qualify for tax relief; various deadlines postponed to Oct. 15Currently, individuals and households that reside or have a business in Los Angeles County qualify for tax relief.The tax relief postpones various tax filing and payment deadlines that occurred from Jan. 7, 2025, through Oct. 15, 2025 (postponement period). As a result, affected individuals and businesses will have until Oct. 15, 2025, to file returns and pay any taxes that were originally due during this period.This means, for example, that the Oct. 15, 2025, deadline will now apply to:Individual income tax returns and payments normally due on April 15, 2025.2024 contributions to IRAs and health savings accounts for eligible taxpayers.2024 quarterly estimated income tax payments normally due on Jan. 15, 2025, and estimated tax payments normally due on April 15, June 16 and Sept. 15, 2025.Quarterly payroll and excise tax returns normally due on Jan. 31, April 30 and July 31, 2025.Calendar-year partnership and S corporation returns normally due on March 17, 2025.Calendar-year corporation and fiduciary returns and payments normally due on April 15, 2025.Calendar-year tax-exempt organization returns normally due on May 15, 2025.The IRS automatically provides filing and penalty relief to any taxpayer with an IRS address of record located in the disaster area. These taxpayers do not need to contact the agency to get this relief.It is possible an affected taxpayer may not have an IRS address of record located in the disaster area, for example, because they moved to the disaster area after filing their return. In these kinds of unique circumstances, the affected taxpayer could receive a late filing or late payment penalty notice from the IRS for the postponement period. The taxpayer should call the number on the notice to have the penalty abated.IRS Extends 1031 Exchange Deadlines for Los Angeles Wildfire Victims to October 15, 2025The relief applies to Affected Taxpayers, including individuals living or businesses operating in Los Angeles County. The location of the relinquished or replacement property doesnt mattereligibility is based on the taxpayers principal residence or business location in the disaster area.Any 45-day or 180-day deadline that falls between the Disaster Date (January 7, 2025) and October 15, 2025, is extended to October 15, 2025.FTB: Taxpayers in Los Angeles County will be granted a postponement to October 15, 2025, to file California tax returns on 2024 income and make any tax payments that would have been due January 7, 2025, through October 15, 2025. This aligns with the federal extension granted to Californias wildfire victims.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0IRS: California wildfire victims qualify for tax relief; various deadlines postponed to Oct. 15Currently, individuals and households that reside or have a business in Los Angeles County qualify for tax relief.The tax relief postpones various tax filing and payment deadlines that occurred from Jan. 7, 2025, through Oct. 15, 2025 (postponement period). As a result, affected individuals and businesses will have until Oct. 15, 2025, to file returns and pay any taxes that were originally due during this period.This means, for example, that the Oct. 15, 2025, deadline will now apply to:Individual income tax returns and payments normally due on April 15, 2025.2024 contributions to IRAs and health savings accounts for eligible taxpayers.2024 quarterly estimated income tax payments normally due on Jan. 15, 2025, and estimated tax payments normally due on April 15, June 16 and Sept. 15, 2025.Quarterly payroll and excise tax returns normally due on Jan. 31, April 30 and July 31, 2025.Calendar-year partnership and S corporation returns normally due on March 17, 2025.Calendar-year corporation and fiduciary returns and payments normally due on April 15, 2025.Calendar-year tax-exempt organization returns normally due on May 15, 2025.The IRS automatically provides filing and penalty relief to any taxpayer with an IRS address of record located in the disaster area. These taxpayers do not need to contact the agency to get this relief.It is possible an affected taxpayer may not have an IRS address of record located in the disaster area, for example, because they moved to the disaster area after filing their return. In these kinds of unique circumstances, the affected taxpayer could receive a late filing or late payment penalty notice from the IRS for the postponement period. The taxpayer should call the number on the notice to have the penalty abated.IRS Extends 1031 Exchange Deadlines for Los Angeles Wildfire Victims to October 15, 2025The relief applies to Affected Taxpayers, including individuals living or businesses operating in Los Angeles County. The location of the relinquished or replacement property doesnt mattereligibility is based on the taxpayers principal residence or business location in the disaster area.Any 45-day or 180-day deadline that falls between the Disaster Date (January 7, 2025) and October 15, 2025, is extended to October 15, 2025.FTB: Taxpayers in Los Angeles County will be granted a postponement to October 15, 2025, to file California tax returns on 2024 income and make any tax payments that would have been due January 7, 2025, through October 15, 2025. This aligns with the federal extension granted to Californias wildfire victims.
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