Civic Intelligence

Rare by Design Inc.

990EZ • Fiscal year 2025 • EIN 86-2990471

Jan 01, 2025 to Dec 31, 2025 • Filed on Apr 19, 2026

Organization Profilewww.rarebydesign.org
4701 S Shields AveSioux Falls, SD 57103

(605) 670-9000

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2025 filings • 501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

63rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2025 filings • 501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

87th percentile

35%

Higher net margin than 87% of similar nonprofits.

2025 filings • 501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

82nd percentile

$0

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2025 filings • 501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

83rd percentile

38%

Faster asset growth than 83% of similar nonprofits.

2025 filings • 501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Revenue Growth

67th percentile

15%

Faster revenue growth than 67% of similar nonprofits.

2025 filings • 501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Up

$142,305

Up $39,028 (+38%) from 2024

Net Assets

Up

$142,305

Up $39,028 (+38%) from 2024

Liabilities

Flat

$0

Flat from 2024

Revenue And Expenses
Liabilities / Revenue63rd percentileNet Margin87th percentile

Revenue

Up

$111,998

Up $14,690 (+15%) from 2024

Expenses

Up

$72,970

Up $2,669 (+3.8%) from 2024

Net Income

Up

$39,028

Up $12,021 (+45%) from 2024

Historical Trend

Balance Sheet Trend

Asset Growth83rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$150K$100K$50K$0Assets 2022: $62,900Liabilities 2022: $0Net Assets 2022: $62,9002022Assets 2023: $76,270Liabilities 2023: $0Net Assets 2023: $76,2702023Assets 2024: $103,277Liabilities 2024: $0Net Assets 2024: $103,2772024Assets 2025: $142,305Liabilities 2025: $0Net Assets 2025: $142,3052025

Highlighted filing

2025

Assets$142,305
Liabilities$0
Net Assets$142,305
Open 2025 Filing

Operations Trend

Revenue Growth67th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0Revenue 2022: $81,307Expenses 2022: $41,085Net Income 2022: $40,2222022Revenue 2023: $74,409Expenses 2023: $61,039Net Income 2023: $13,3702023Revenue 2024: $97,308Expenses 2024: $70,301Net Income 2024: $27,0072024Revenue 2025: $111,998Expenses 2025: $72,970Net Income 2025: $39,0282025

Highlighted filing

2025

Revenue$111,998
Expenses$72,970
Net Income$39,028
Open 2025 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Apr 19, 2026
Return Version
2025v4.0
Gross Receipts
$114,165
Mission and Program Overview

Mission

Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families.

Program Services

DescriptionGrantsExpenses
The Style Show: A Runway to Empower supports the efforts of Rare by Design by demonstrating what true diversity looks like in our community and giving voice to all through representation. 252 people attended this event, where we featured models of various abilities, ages, genders (LGBTQIA), races and diverse body types. The Style Show: A Runway to Empower is an evening to raise awareness and financial support for Rare by Design.$0$61,974
The Film Festival was a local film festival ran by people with disabilities for people with disabilities. We sought films from all over the world to showcase the talents of people with physical and developmental disabilities and tell their stories. For films to have a chance at being screened, a person with a disability/rare disease had to have a major role in the production process either in front of or behind the camera. We accepted both short films (between 1 and 10 minutes) and feature-length films (between 10 - 30 minutes) to be screened at The Film Festival. Films could cover any subject matter and be any genre: Drama, Comedy, Documentary, etc. Anything, as long as people with disabilities/rare diseases were expressing themselves! 80 people attended this event.$0$5,404
Disability Awareness Month Billboard Campaign - Rare by Design aimed to break the stigma and create exposure through our 2025 "Inclusion Is Always In" billboard campaign, utilizing visual representation. We used the billboard campaign to shine a light on the progress we have made since the signing of the American's with Disabilities Act, and normalize a future where all individuals with disabilities and rare diseases are seen, heard and valued. This billboard campaign had an estimated 186,000 impressions.$0$5,263
Refocus was an art exhibit featuring photography of individuals with visible disabilities. The core mission of Refocus was to bridge the gap between initial perceptions and the rich human experiences that lie beneath visible disabilities. People with visible disabilities often face immediate assumptions and judgments due to their conditions, a reality they cannot conceal. We challenged these preconceived notions through the powerful medium of photography, with the aim of telling unique stories, dismantling stigmas and challenging misconceptions. 150 people attended this exhibit over the course of a month.$0$0
Compensation and Service Providers
Top Officer Pay82nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kendra GottslebenCEO & PresidentPT$0--
Colette ManningSecretary & Treasurer-$0--
Filing and Contact Details

Filer

Filer Name
Rare by Design Inc
EIN
86-2990471
Phone
6056709000
Address
4701 S Shields Ave, Sioux Falls, SD 57103

Signing Officer

Name
Kendra Gottsleben
Title
CEO & President
Phone
6056709000
Signed
2026-04-19
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Special Event Insurance Cost = $460”

Raw XML Appendix187 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0Sioux Falls
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Secretary & Treasurer
IRS990EZ/OperateHospitalInd00
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IRS990EZ/PrimaryExemptPurposeTxt0Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families.
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IRS990EZ/ProgramServiceRevenueAmt013315
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0The Style Show: A Runway to Empower supports the efforts of Rare by Design by demonstrating what true diversity looks like in our community and giving voice to all through representation. 252 people attended this event, where we featured models of various abilities, ages, genders (LGBTQIA), races and diverse body types. The Style Show: A Runway to Empower is an evening to raise awareness and financial support for Rare by Design.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1Refocus was an art exhibit featuring photography of individuals with visible disabilities. The core mission of Refocus was to bridge the gap between initial perceptions and the rich human experiences that lie beneath visible disabilities. People with visible disabilities often face immediate assumptions and judgments due to their conditions, a reality they cannot conceal. We challenged these preconceived notions through the powerful medium of photography, with the aim of telling unique stories, dismantling stigmas and challenging misconceptions. 150 people attended this exhibit over the course of a month.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2Disability Awareness Month Billboard Campaign - Rare by Design aimed to break the stigma and create exposure through our 2025 "Inclusion Is Always In" billboard campaign, utilizing visual representation. We used the billboard campaign to shine a light on the progress we have made since the signing of the American's with Disabilities Act, and normalize a future where all individuals with disabilities and rare diseases are seen, heard and valued. This billboard campaign had an estimated 186,000 impressions.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt3The Film Festival was a local film festival ran by people with disabilities for people with disabilities. We sought films from all over the world to showcase the talents of people with physical and developmental disabilities and tell their stories. For films to have a chance at being screened, a person with a disability/rare disease had to have a major role in the production process either in front of or behind the camera. We accepted both short films (between 1 and 10 minutes) and feature-length films (between 10 - 30 minutes) to be screened at The Film Festival. Films could cover any subject matter and be any genre: Drama, Comedy, Documentary, etc. Anything, as long as people with disabilities/rare diseases were expressing themselves! 80 people attended this event.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt10
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt20
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt30
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IRS990EZ/WebsiteAddressTxt0www.rarebydesign.org
IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0Ticket Sales for The Style Show ($12015); Ticket Sales for The Film Festival ($1300)
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt073031
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IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/CurrentTaxYearMinus3YearsAmt00
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IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
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IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Special Event Insurance Cost = $460
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Kendra Gottsleben
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CEO & President
ReturnHeader/BusinessOfficerGrp/PhoneNum06056709000
ReturnHeader/BusinessOfficerGrp/SignatureDt02026-04-19
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0RARE BY DESIGN INC
ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0862990471
ReturnHeader/Filer/PhoneNum06056709000
ReturnHeader/Filer/USAddress/AddressLine1Txt04701 S Shields Ave
ReturnHeader/Filer/USAddress/CityNm0Sioux Falls
ReturnHeader/Filer/USAddress/StateAbbreviationCd0SD
ReturnHeader/Filer/USAddress/ZIPCd057103
ReturnHeader/ReturnTs02026-04-19T12:34:32-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02025-01-01
ReturnHeader/TaxPeriodEndDt02025-12-31
ReturnHeader/TaxYr02025

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$142,305
Liabilities
$0
Net assets
$142,305
Revenue
$111,998
Expenses
$72,970
Net income
$39,028
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.42$0.00$1.42$1.12$0.73$0.39
2024Detailed filing. Detailed filing data is available for this year.$1.03$0.00$1.03$0.97$0.70$0.27
2023Detailed filing. Detailed filing data is available for this year.$0.76$0.00$0.76$0.74$0.61$0.13
2022Detailed filing. Detailed filing data is available for this year.$0.63$0.00$0.63$0.81$0.41$0.40