Civic Intelligence

Rare by Design Inc

EIN 86-2990471 • 501(c)3 • Sioux Falls, SD

Profile

Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families.

4701 S Shields AveSioux Falls, SD 57103

www.rarebydesign.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

84th percentile

35%

Higher net margin than 84% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

83rd percentile

38%

Faster asset growth than 83% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Revenue Growth

68th percentile

15%

Faster revenue growth than 68% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$103,277

Up $27,007 (+35%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$103,277

Up $27,007 (+35%) from 2023

Operations
Liabilities / Revenue62nd percentileNet Margin84th percentile

Revenue

Up

$97,308

Up $22,899 (+31%) from 2023

Expenses

Up

$70,301

Up $9,262 (+15%) from 2023

Net Income

Up

$27,007

Up $13,637 (+102%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth83rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$150K$100K$50K$0Assets 2022: $62,900Liabilities 2022: $0Net Assets 2022: $62,9002022Assets 2023: $76,270Liabilities 2023: $0Net Assets 2023: $76,2702023Assets 2024: $103,277Liabilities 2024: $0Net Assets 2024: $103,2772024

Highlighted filing

2024

Assets$103,277
Liabilities$0
Net Assets$103,277
Open 2024 Filing

Operations Trend

Revenue Growth68th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$100K$50K$0Revenue 2022: $81,307Expenses 2022: $41,085Net Income 2022: $40,2222022Revenue 2023: $74,409Expenses 2023: $61,039Net Income 2023: $13,3702023Revenue 2024: $97,308Expenses 2024: $70,301Net Income 2024: $27,0072024

Highlighted filing

2024

Revenue$97,308
Expenses$70,301
Net Income$27,007
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$103,277
Liabilities
$0
Net assets
$103,277
Revenue
$97,308
Expenses
$70,301
Net income
$27,007
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.03$0.00$1.03$0.97$0.70$0.27
2023Detailed filing. Detailed filing data is available for this year.$0.76$0.00$0.76$0.74$0.61$0.13
2022Detailed filing. Detailed filing data is available for this year.$0.63$0.00$0.63$0.81$0.41$0.40
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Mar 29, 2025
Return Version
2024v5.0
Gross Receipts
$99,108
Mission and Program Overview

Mission

Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families.

Program Services

DescriptionGrantsExpenses
The Style Show: A Runway to Empower supports the efforts of Rare by Design by demonstrating what true diversity looks like in our community and giving voice to all through representation. 200 people attend this event where we featured models of various abilities, ages, genders (LGBTQIA), races and diverse body types. The Style Show: A Runway to Empower is an evening to raise awareness and financial support for Rare by Design.$0$62,638
The Film Festival was South Dakota's first-ever local film festival ran by people with disabilities for people with disabilities. We sought films from all over the world to showcase the talents of people with physical and developmental disabilities and tell their stories. For films to have a chance at being screened, a person with a disability/rare disease had to have a major role in the production process either in front of or behind the camera. We accepted both short films (between 1 and 10 minutes) and feature-length films (between 10 - 30 minutes) to be screened at The Film Festival. Films could cover any subject matter and be any genre: Drama, Comedy, Documentary, etc. Anything, as long as people with disabilities/rare diseases were expressing themselves! 80 people attended this event.$6,000$6,139
Disability Awareness Month Billboard Campaign - Rare by Design aimed to break the stigma and create exposure through our 2024 "Inclusion Is Always In" billboard campaign, utilizing visual representation. We used the billboard campaign to shine a light on the progress we have made since the signing of the American's with Disabilities Act, and normalize a future where all individuals with disabilities and rare diseases are seen, heard and valued. This billboard campaign had an estimated 186,000 impressions.$0$2,195
Accessibility Panel Event was a local event with panelists discussing ways they break down stereotypes and dismantle misconceptions about accessibility and visibility of people with disabilities through the work they do, their advertising strategies, and inclusion efforts. This was a safe space where attendees can comfortably ask questions and engage in meaningful dialogue. 35 people attended this event.$0$983
Refocus was an art exhibit featuring photography of individuals with visible disabilities. The core mission of Refocus was to bridge the gap between initial perceptions and the rich human experiences that lie beneath visible disabilities. People with visible disabilities often face immediate assumptions and judgments due to their conditions, a reality they cannot conceal. We challenged these preconceived notions through the powerful medium of photography, with the aim of telling unique stories, dismantling stigmas and challenging misconceptions. 50 people attended this event.$0$30
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kendra GottslebenCEO & PresidentPT$0--
Colette ManningSecretary & Treasurer-$0--
Filing and Contact Details

Filer

Filer Name
Rare by Design Inc
EIN
86-2990471
Phone
6056709000
Address
4701 S Shields Ave, Sioux Falls, SD 57103

Signing Officer

Name
Kendra Gottsleben
Title
CEO & President
Phone
6056709000
Signed
2025-03-29
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Special Event Insurance Cost = $460”

Raw XML Appendix185 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0The Style Show: A Runway to Empower supports the efforts of Rare by Design by demonstrating what true diversity looks like in our community and giving voice to all through representation. 200 people attend this event where we featured models of various abilities, ages, genders (LGBTQIA), races and diverse body types. The Style Show: A Runway to Empower is an evening to raise awareness and financial support for Rare by Design.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1Refocus was an art exhibit featuring photography of individuals with visible disabilities. The core mission of Refocus was to bridge the gap between initial perceptions and the rich human experiences that lie beneath visible disabilities. People with visible disabilities often face immediate assumptions and judgments due to their conditions, a reality they cannot conceal. We challenged these preconceived notions through the powerful medium of photography, with the aim of telling unique stories, dismantling stigmas and challenging misconceptions. 50 people attended this event.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2Disability Awareness Month Billboard Campaign - Rare by Design aimed to break the stigma and create exposure through our 2024 "Inclusion Is Always In" billboard campaign, utilizing visual representation. We used the billboard campaign to shine a light on the progress we have made since the signing of the American's with Disabilities Act, and normalize a future where all individuals with disabilities and rare diseases are seen, heard and valued. This billboard campaign had an estimated 186,000 impressions.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt3The Film Festival was South Dakota's first-ever local film festival ran by people with disabilities for people with disabilities. We sought films from all over the world to showcase the talents of people with physical and developmental disabilities and tell their stories. For films to have a chance at being screened, a person with a disability/rare disease had to have a major role in the production process either in front of or behind the camera. We accepted both short films (between 1 and 10 minutes) and feature-length films (between 10 - 30 minutes) to be screened at The Film Festival. Films could cover any subject matter and be any genre: Drama, Comedy, Documentary, etc. Anything, as long as people with disabilities/rare diseases were expressing themselves! 80 people attended this event.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt4Accessibility Panel Event was a local event with panelists discussing ways they break down stereotypes and dismantle misconceptions about accessibility and visibility of people with disabilities through the work they do, their advertising strategies, and inclusion efforts. This was a safe space where attendees can comfortably ask questions and engage in meaningful dialogue. 35 people attended this event.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt10
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt20
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt36000
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IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0Ticket Sales for The Style Show ($8305); Ticket Sales for The Film Festival ($1950); Ticket Sales for The Accessibility Panel ($240)
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Special Event Insurance Cost = $460
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Kendra Gottsleben
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CEO & President
ReturnHeader/BusinessOfficerGrp/PhoneNum06056709000
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-03-29
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0RARE BY DESIGN INC
ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0862990471
ReturnHeader/Filer/PhoneNum06056709000
ReturnHeader/Filer/USAddress/AddressLine1Txt04701 S Shields Ave
ReturnHeader/Filer/USAddress/CityNm0Sioux Falls
ReturnHeader/Filer/USAddress/StateAbbreviationCd0SD
ReturnHeader/Filer/USAddress/ZIPCd057103
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/ReturnTs02025-03-29T12:29:30-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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