Global Dare Foundation

“Activity Grants Grantee Kennedy Krieger Institute Street 716 North Broadway City, State, Zip Baltimore, MD 21205Amount 35,000”

“Description AmountWebsite 468Conferences/Meetings 200Marketing/Communications Specialist 20,897Bank Fees 88Dues & Subscriptions 150PO Box Expense 222Raising Awareness Program 11,129Taxes/Licenses 20”

“Primary Exempt Purpose:Global DARE Foundations mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease by supporting research, education initiatives, awareness campaigns, and advocacy. Program Service Accomplisments:Research Program - $35,000The Global DARE Foundation funded critical research initiatives to advance therapies for Refsum Disease. We provided $15,000 for the second phase of a pilot mouse model study grant at Kennedy Krieger Institute, which aims to further the understanding of disease mechanisms and improve therapeutic options. Additionally, we funded $20,000 for the final two installments of a research fellowship at Kennedy Krieger. This fellowship has been pivotal in conducting food testing and mouse model studies, directly contributing to the advancement of scientific knowledge about Refsum Disease. 2. Expanding Global Awareness Program - $11,128To promote earlier diagnosis of Refsum Disease, Global DARE Foundation participated in two high-impact conferences: the Association for Research in Vision and Ophthalmology (ARVO) conference and the Foundation Fighting Blindness (FFB) conference. At these events, we hosted awareness booths to educate researchers, clinicians, and the broader scientific community about the symptoms, diagnosis, and management of Refsum Disease. These efforts are critical to increasing recognition and understanding of this rare condition within the medical and research communities.”