Form 990 governing body review Part VI line 11
“Prior to filing the 990, the CEO emails the 990 to the Board of Directors. The Board members have one week to review the document and ask any questions before it is finalized and filed.”
EIN 84-3343395 • 501(c)3 • South Portland, ME
Profile
Global DARE Foundations mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease by supporting research, education initiatives, awareness campaigns, and advocacy.
Scores are not available for this record yet.
Assets
Up$394,508
Up $118,186 (+43%) from 2024
Liabilities
Up$4,599
Up $4,599 from 2024
Net Assets
Up$389,909
Up $113,587 (+41%) from 2024
Revenue
Up$290,078
Up $119,073 (+70%) from 2024
Expenses
Up$176,491
Up $106,694 (+153%) from 2024
Net Income
Up$113,587
Up $12,379 (+12%) from 2024
Most recent year
2025 • Form 990Detailed filing. Detailed filing data is available for this year.
Global DARE Foundations mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease by supporting research, education initiatives, awareness campaigns, and advocacy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $276,322 | $393,083 | ▲ $116,761 |
| Accounts Receivable | - | $1,425 | - |
| Total Assets | $276,322 | $394,508 | ▲ $118,186 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $4,599 | - |
| Total Liabilities | $0 | $4,599 | ▲ $4,599 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $276,322 | $389,909 | ▲ $113,587 |
| Total Net Assets Fund Balance | $276,322 | $389,909 | ▲ $113,587 |
| Total Liabilities and Net Assets / Fund Balance | $276,322 | $394,508 | ▲ $118,186 |
| Name | Title |
|---|---|
| Kristie DeMarco | President |
| Susan Kuranoff | Vice President |
| Darrell Gunter | Director |
| Donald Samulack | Director |
| Kerstin Reichert | Director |
| Mark Liquorish | Director |
| Marissa Rossouw | Secretary |
| Heidi Page | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $116,662 |
| Grants and Similar Amounts Paid | $59,829 |
| Total Fundraising Expense | $2,133 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $69,170 | $18,576 | $2,084 | $89,830 |
| Grants to Domestic Orgs | $35,000 | - | - | $35,000 |
| Foreign Grants | $24,829 | - | - | $24,829 |
| Conferences and Meetings | $11,008 | - | - | $11,008 |
| Travel | $7,443 | - | - | $7,443 |
| Fees for Services Accounting | - | $4,447 | - | $4,447 |
| Information Technology | - | $2,507 | - | $2,507 |
| Office Expenses | $19 | $547 | $23 | $589 |
| Advertising | - | $498 | $26 | $524 |
| Fees for Services Legal | - | $200 | - | $200 |
| Other Expenses | - | $114 | - | $114 |
| Total Functional Expenses | $147,469 | $26,889 | $2,133 | $176,491 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Massachusetts General Hospital | Boston, MA | 501c3 | - | $35,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe including Iceland and Greenland | Grant making | Grantmaking | - | - | $24,829 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Prior to filing the 990, the CEO emails the 990 to the Board of Directors. The Board members have one week to review the document and ask any questions before it is finalized and filed.”
“The CEO of Global DARE Foundation reviews all grants, expenses, and received donations to ensure there are no conflicts of interest.”
“Upon Request”
“Communications Professional: $5,640 Development Director: $2,083 Scientific Director Consultant: $49,170 Marketing & Communication Support: $12,937 Training Program Consultant: $20,000”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Convening Scientific and Patient Communities: Convened scientific experts and individuals living with Adult Refsum Disease to strengthen collaboration, share research priorities, and align efforts to accelerate progress. Hosted community gatherings to foster connection, education, and engagement among affected individuals and families. |
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| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 24829 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | Grantmaking |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Europe including Iceland and Greenland |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 24829 |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 1 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 24829 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 35000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501C3 |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Massachusetts General Hospital |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 042697983 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 55 Fruit Street |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Boston |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 02114 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Prior to filing the 990, the CEO emails the 990 to the Board of Directors. The Board members have one week to review the document and ask any questions before it is finalized and filed. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The CEO of Global DARE Foundation reviews all grants, expenses, and received donations to ensure there are no conflicts of interest. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Upon Request |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Communications Professional: $5,640 Development Director: $2,083 Scientific Director Consultant: $49,170 Marketing & Communication Support: $12,937 Training Program Consultant: $20,000 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Conflict of interest policy compliance Part VI line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | List of other fees for services expenses Part IX line 11g |
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| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
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| IRS990/TotalAssetsEOYAmt | 0 | 394508 |
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| IRS990/TotalAssetsGrp/EOYAmt | 0 | 394508 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 290078 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 2133 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 26889 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 147469 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 176491 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 4599 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 4599 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 276322 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 389909 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 147469 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 290078 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 8 |
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| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 394508 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 7443 |
| IRS990/TravelGrp/TotalAmt | 0 | 7443 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 443 Western Ave Ste 1054 |
| IRS990/USAddress/CityNm | 0 | South Portland |
| IRS990/USAddress/StateAbbreviationCd | 0 | ME |
| IRS990/USAddress/ZIPCd | 0 | 04106 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 8 |
| IRS990/VotingMembersIndependentCnt | 0 | 8 |
| IRS990/WebsiteAddressTxt | 0 | www.defeatadultrefsumeverywhere.org |
| IRS990/WhistleblowerPolicyInd | 0 | false |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | KRISTIE DEMARCO |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 2075900299 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2026-03-17 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | Global DARE Foundation |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | GLOB |
| ReturnHeader/Filer/EIN | 0 | 843343395 |
| ReturnHeader/Filer/InCareOfNm | 0 | % Kristie DeMarco |
| ReturnHeader/Filer/PhoneNum | 0 | 2075900299 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 443 Western Ave STE 1054 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | South Portland |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | ME |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 04106 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 474306215 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | Mullins PC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 7625 Wisconsin Avenue |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | Bethesda |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | MD |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 20814 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 2027706371 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2026-03-17 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | JOHN MULLINS |
| ReturnHeader/ReturnTs | 0 | 2026-03-17T10:41:46-06:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2025-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2025-12-31 |
| ReturnHeader/TaxYr | 0 | 2025 |
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