Liabilities / Assets
71st percentile
Higher debt load relative to assets than 71% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
71st percentile
Higher debt load relative to assets than 71% of similar nonprofits.
Liabilities / Revenue
71st percentile
Higher debt load relative to revenue than 71% of similar nonprofits.
Net Margin
13th percentile
Higher net margin than 13% of similar nonprofits.
Top Officer Pay
67th percentile
Higher top officer pay than 67% of similar nonprofits.
Top officer pay equals 6.4% of source-year revenue.
Asset Growth
10th percentile
Faster asset growth than 10% of similar nonprofits.
Revenue Growth
88th percentile
Faster revenue growth than 88% of similar nonprofits.
Assets
Flat$712,390
Flat from 2023
Net Assets
Flat$610,490
Flat from 2023
Liabilities
Flat$101,900
Flat from 2023
Revenue
Flat$772,336
Flat from 2023
Expenses
Flat$966,416
Flat from 2023
Net Income
Flat-$194,080
Flat from 2023
Seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next generation biomedical technologies such as gene transfer therapy and immunontherapy
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $796,470 | $602,390 | ▼ $194,080 |
| Investments Program Related | $110,000 | $110,000 | → $0 |
| Total Assets | $906,470 | $712,390 | ▼ $194,080 |
| Liabilities | |||
| Unsecured Notes Loans Payable | $101,900 | $101,900 | → $0 |
| Total Liabilities | $101,900 | $101,900 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $804,570 | $610,490 | ▼ $194,080 |
| Total Net Assets Fund Balance | $804,570 | $610,490 | ▼ $194,080 |
| Total Liabilities and Net Assets / Fund Balance | $906,470 | $712,390 | ▼ $194,080 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Investment Program Related Org | $110,000 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Nicole Henwood | President | PT | $49,600 | $49,600 |
| Gilles Atlan | Vice President | PT | $16,000 | $16,000 |
| Name | Title |
|---|---|
| Amy Williams | Director |
| Brian Clay | Director |
| Chantelle Nobis | Director |
| Chris Serle | Director |
| Mary Sell | Director |
| Penny Henwood | Director |
| Terri Rausch | Director |
| Vito Grasso | Director |
| Jill Velez | Secretary |
| Deian Owen | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $735,156 |
| Other Expenses | $231,260 |
| Total Fundraising Expense | $2,493 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $735,156 | - | - | $735,156 |
| Fees for Services Management | $127,265 | - | - | $127,265 |
| Fees for Services Legal | - | $65,329 | - | $65,329 |
| Fees for Services Accounting | - | $9,700 | - | $9,700 |
| Interest | - | $6,432 | - | $6,432 |
| Other Expenses | $1,153 | $5,032 | - | $5,032 |
| Office Expenses | - | $4,995 | - | $4,995 |
| Advertising | - | $1,380 | $2,493 | $3,873 |
| Fees for Services Other | $3,438 | - | - | $3,438 |
| Travel | - | $2,856 | - | $2,856 |
| Insurance | - | $1,148 | - | $1,148 |
| Information Technology | $39 | - | - | $39 |
| Total Functional Expenses | $867,051 | $96,872 | $2,493 | $966,416 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Cell Culture Company LLC | Minneapolis, MN | 501c3 | research | $521,000 |
| CHOP Research Institute | Philadelphia, PA | 501c3 | developing a tumor biobank for NF2 | $60,512 |
| University of California | Los Angeles, CA | 501c3 | research | $47,007 |
| Mass Gen Development Office | Boston, MA | 501c3 | development of bacteriotherapy for NF2 | $36,351 |
| Institute for Cancer Research | Philadelphia, PA | 501c3 | research | $35,436 |
| Research Institute at Nationwide Ch | Columbus, OH | - | research | $30,200 |
| Indiana University Research | Bloomington, IN | 501c3 | research | $1,838 |
| William Cancer Institute PC | Beverly Hills, CA | 501c3 | research | $1,000 |
| Yale University | New Haven, CT | 501c3 | tumor imaging model | $812 |
| Merlin Therapeutics | King Of Prussia, PA | - | - | - |
| Mulberry Therapeutics | Wellesley Hills, MA | - | research | - |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $18,535 |
| Fundraising Direct Expenses | $5,984 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Give Butter | $18,535 | $18,535 | - | $18,535 |
| Total Events | $18,535 | $18,535 | $5,984 | $12,551 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Nicole Henwood | President member Board of Director | salary | No | $49,600 |
| Gilles Atlan | Vice-Pres member Board Directors | salary | No | $16,000 |
“Chris Serla and Nicole Henwood are siblings; Penny Henwood is Nicole Henwoods mother-in-law.”
“Form 990 is reviewed by the executive committee.”
“Nicole Henwood, President & CEO9 Lian DriveWest Chester, PA [email protected](610) 304-3617”
“Board members sign a memorandum of understanding delineating the need to follow the policies of the organization.”
“Governing documents are available upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next generation biomedical technologies such as gene transfer therapy and immunontherapy |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 2493 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1380 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 3873 |
| IRS990/AllOtherContributionsAmt | 0 | 759785 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Dr Nicole Menwood |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6103043617 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 9 Lian Drive |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | West Chester |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 19382 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | true |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 796470 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 602390 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 759785 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 735156 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 231260 |
| IRS990/CYOtherRevenueAmt | 0 | 12551 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -194080 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 966416 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 2493 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 772336 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | The organization is funding research into a cure for NF2. The organization arranged a consortium in 2019, which was attended by leading experts in the fields of NF2 research and gene therapy. From this consortium the organization identified laboratories which are working on different approaches that may lead to a cure or improved treatment for NF2. The organization is now providing support to these laboratories, and is organizing another consortium to seek additional laboritories to support. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | false |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 867051 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 9700 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 9700 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 65329 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 65329 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 127265 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 127265 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 3438 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 3438 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Nicole Henwood |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Gilles Atlan |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Brian Clay |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Penny Henwood |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Amy Williams |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Terri Rausch |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Chantelle Nobis |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Vito Grasso |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Chris Serle |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Deian Owen |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Mary Sell |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Jill Velez |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 49600 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 16000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Secretary |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2018 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 5984 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 18535 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 13 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 735156 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 735156 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 778320 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 0 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 39 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 39 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1148 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1148 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 6432 |
| IRS990/InterestGrp/TotalAmt | 0 | 6432 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 110000 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 110000 |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next generation biomedical technologies such as gene transfer therapy and immunontherapy |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 804570 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 610490 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 12551 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 12551 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 804570 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 610490 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4995 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4995 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | program expenses |
| IRS990/OtherExpensesGrp/Desc | 1 | bank fees & charges |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5032 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1153 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1153 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 5032 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 378532 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 166085 |
| IRS990/PYOtherExpensesAmt | 0 | 141858 |
| IRS990/PYOtherRevenueAmt | 0 | 40088 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 110283 |
| IRS990/PYTotalExpensesAmt | 0 | 308337 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 394 |
| IRS990/PYTotalRevenueAmt | 0 | 418620 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -194080 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | true |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 759785 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 378532 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 546158 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 708384 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 449651 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2842510 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.82320 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2340033 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 502477 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 759785 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 378532 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 546158 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 708384 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 449651 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2842510 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2842510 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 0 | 110000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 0 | investment in Mulberry |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 0 | C |
| IRS990ScheduleD/TotalBookValueProgramRltdAmt | 0 | 110000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 5984 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 5984 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 5984 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Give Butter |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 18535 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 18535 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 18535 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 18535 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 12551 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 60512 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 36351 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 812 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 47007 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 35436 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 5 | 1838 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 6 | 1000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 7 | 521000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 8 | 30200 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 5 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 6 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 7 | 501c3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | developing a tumor biobank for NF2 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | development of bacteriotherapy for NF2 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | tumor imaging model |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 5 | research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 6 | research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 7 | research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 8 | research |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 9 | research |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | CHOP Research Institute |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Mass Gen Development Office |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | Yale University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | University of California |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | Institute for Cancer Research |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 5 | Indiana University Research |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 6 | William Cancer Institute PC |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 7 | Cell Culture Company LLC |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 8 | Research Institute at Nationwide Ch |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 9 | Mulberry Therapeutics |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 10 | Merlin Therapeutics |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 232237932 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 043167352 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 060646973 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 943067788 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 236296135 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 5 | 356001673 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 6 | 851161231 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 7 | 316056230 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 3615 Civic Center Blvd |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 125 Nashua Street Suite 540 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | New Haven |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | LA |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 333 Cottman Avenue |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 5 | 509 E 3rd Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 6 | 9777 Wilshire Blvd 1004 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 7 | 8500 Evergreen Blvd NW |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 8 | 700 Chidrens Drive |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 9 | 40 Walnut Street Suite 301 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 10 | Innovation 411 411 Swedeland Rd |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Philadelphia |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Boston |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | New Haven |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | Los Angeles |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | Philadelphia |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 5 | Bloomington |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 6 | Beverly Hills |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 7 | Minneapolis |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 8 | Columbus |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 9 | Wellesley Hills |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 10 | King Of Prussia |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | CT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 5 | IN |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 6 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 7 | MN |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 8 | OH |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 9 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 10 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 19104 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 02114 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 06520 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 90095 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 19111 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 5 | 47401 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 6 | 90212 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 7 | 55433 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 8 | 43205 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 9 | 02481 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 10 | 19406 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 0 | Nicole Henwood |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 1 | Gilles Atlan |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | President member Board of Director |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 1 | Vice-Pres member Board Directors |
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Displayed year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.