Civic Intelligence

Nf2 Biosolutions

990 • Fiscal year 2022 • EIN 83-0940046

Jan 01, 2022 to Dec 31, 2022 • Filed on Oct 10, 2023

Organization Profilewww.nf2biosolutions.org
9 Lian DriveWest Chester, PA 19382-6891

(610) 304-3617

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

69th percentile

0.11x

Higher debt load relative to assets than 69% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Liabilities / Revenue

78th percentile

0.24x

Higher debt load relative to revenue than 78% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Net Margin

76th percentile

26%

Higher net margin than 76% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Top Officer Pay

70th percentile

$56,800

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 13.6% of source-year revenue.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Asset Growth

69th percentile

14%

Faster asset growth than 69% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Revenue Growth

17th percentile

-23%

Faster revenue growth than 17% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets69th percentile

Assets

Up

$906,470

Up $110,283 (+14%) from 2021

Net Assets

Up

$804,570

Up $110,283 (+16%) from 2021

Liabilities

Flat

$101,900

Flat from 2021

Revenue And Expenses
Liabilities / Revenue78th percentileNet Margin76th percentile

Revenue

Down

$418,620

Down $125,624 (-23%) from 2021

Expenses

Down

$308,337

Down $77,897 (-20%) from 2021

Net Income

Down

$110,283

Down $47,727 (-30%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth69th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2018: $121,602Liabilities 2018: $0Net Assets 2018: $121,6022018Assets 2019: $365,085Liabilities 2019: $0Net Assets 2019: $365,0852019Assets 2020: $638,177Liabilities 2020: $101,900Net Assets 2020: $536,2772020Assets 2021: $796,187Liabilities 2021: $101,900Net Assets 2021: $694,2872021Assets 2022: $906,470Liabilities 2022: $101,900Net Assets 2022: $804,5702022Assets 2023: $712,390Liabilities 2023: $101,900Net Assets 2023: $610,4902023Assets 2024: $621,589Liabilities 2024: $101,900Net Assets 2024: $519,6892024

Highlighted filing

2022

Assets$906,470
Liabilities$101,900
Net Assets$804,570
Open 2022 Filing

Operations Trend

Revenue Growth17th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2018: $129,439Expenses 2018: $7,837Net Income 2018: $121,6022018Revenue 2019: $449,651Expenses 2019: $206,168Net Income 2019: $243,4832019Revenue 2020: $708,384Expenses 2020: $537,191Net Income 2020: $171,1932020Revenue 2021: $544,244Expenses 2021: $386,234Net Income 2021: $158,0102021Revenue 2022: $418,620Expenses 2022: $308,337Net Income 2022: $110,2832022Revenue 2023: $772,336Expenses 2023: $966,416Net Income 2023: -$194,0802023Revenue 2024: $226,008Expenses 2024: $316,809Net Income 2024: -$90,8012024

Highlighted filing

2022

Revenue$418,620
Expenses$308,337
Net Income$110,283
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Oct 10, 2023
Return Version
2022v5.0
Gross Receipts
$429,820
Mission and Program Overview

Mission

Seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next generation biomedical technologies such as gene transfer therapy and immunontherapy

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$696,187$796,470▲ $100,283
Investments Program Related$100,000$110,000▲ $10,000
Total Assets$796,187$906,470▲ $110,283
Liabilities
Unsecured Notes Loans Payable$101,900$101,900→ $0
Total Liabilities$101,900$101,900→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$694,287$804,570▲ $110,283
Total Net Assets Fund Balance$694,287$804,570▲ $110,283
Total Liabilities and Net Assets / Fund Balance$796,187$906,470▲ $110,283

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$110,000--
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Nicole HenwoodPresidentPT-$56,800$56,800
Gilles AtlanVice PresidentPT$30,400-$30,400

Board Members and Trustees

NameTitle
Clare GoddardChair of UK Registered Charit
Amy WilliamsDirector
Brian ClayDirector
Chantelle NobisDirector
Chris SerleDirector
Mary SellDirector
Penny HenwoodDirector
Terri RauschDirector
Vito GrassoDirector
Jill VelezSecretary
Deian OwenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$378,532
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$40,088
All Other Contributions
$378,532
Change in Net Assets
$110,283
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$166,085
Other Expenses$141,858
Total Fundraising Expense$10,279
Professional Fundraising Fees$394
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$166,085--$166,085
Fees for Services Management-$100,600-$100,600
Fees for Services Accounting-$12,235-$12,235
Information Technology-$7,814-$7,814
Advertising-$659$5,118$5,777
Other Expenses-$4,400$4,767$4,400
Office Expenses-$1,673-$1,673
Fees for Services Other$1,303--$1,303
Travel-$1,274-$1,274
Interest-$1,172-$1,172
Insurance-$843-$843
Fees for Services Professional Fundraising--$394$394
Total Functional Expenses$167,388$130,670$10,279$308,337
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Yale UniversityNew Haven, CT501c3tumor imaging model$72,702
Institute for Cancer ResearchPhiladelphia, PA501c3research$37,500
Mass Gen Development OfficeBoston, MA501c3development of bacteriotherapy for NF2$20,000
CHOP Research InstitutePhiladelphia, PA501c3developing a tumor biobank for NF2$7,983
University of CaliforniaLos Angeles, CA501c3research$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$51,288
Fundraising Direct Expenses$11,200
Professional Fundraising Fees$394

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
gold outing$51,288$51,288-$51,288
Total Events$51,288$51,288$11,200$40,088
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Nicole HenwoodPresident member Board of DirectorsalaryNo$56,800
Gilles AtlanVice-Pres member Board of DirectosalaryNo$30,400
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Chris Serla and Nicole Henwood are siblings; Penny Henwood is Nicole Henwoods mother-in-law.”

Form 990 governing body review Part VI line 11

“Form 990 is reviewed by the executive committee.”

Officer director etc mailing address Part VI line 9

“Nicole Henwood, President & CEO9 Lian DriveWest Chester, PA [email protected](610) 304-3617”

Conflict of interest policy compliance Part VI line 12C

“Board members sign a memorandum of understanding delineating the need to follow the policies of the organization.”

Governing documents etc available to public Part VI line 19

“Governing documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
NF2 Biosolutions
EIN
83-0940046
Address
9 Lian Drive, West Chester, PA 19382-6891

Signing Officer

Name
Deian Owen
Title
Treasurer
Phone
6103043617
Signed
2023-10-10
Discuss with paid preparer
No

Organization Details

Formed
2018
Legal Domicile
Pa
Voting Board Members
13
Independent Board Members
0
Employees
0

Preparer

Firm
Peterson Fieo Co LLP
Address
103 Chesley Drive Suite 102, Media, PA 19063-1757
Preparer
George Fieo CPA
Phone
6105656307
Raw XML AppendixShowing 400 of 464 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0true
IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0Seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next generation biomedical technologies such as gene transfer therapy and immunontherapy
IRS990/AdvertisingGrp/FundraisingAmt05118
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0659
IRS990/AdvertisingGrp/TotalAmt05777
IRS990/AllOtherContributionsAmt0378532
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0Dr Nicole Menwood
IRS990/BooksInCareOfDetail/PhoneNum06103043617
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt09 Lian Drive
IRS990/BooksInCareOfDetail/USAddress/CityNm0West Chester
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0PA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd019382
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0true
IRS990/CashNonInterestBearingGrp/BOYAmt0696187
IRS990/CashNonInterestBearingGrp/EOYAmt0796470
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0378532
IRS990/CYGrantsAndSimilarPaidAmt0166085
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0141858
IRS990/CYOtherRevenueAmt040088
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0110283
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0308337
IRS990/CYTotalFundraisingExpenseAmt010279
IRS990/CYTotalProfFndrsngExpnsAmt0394
IRS990/CYTotalRevenueAmt0418620
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0The organization is funding research into a cure for NF2. The organization arranged a consortium in 2019, which was attended by leading experts in the fields of NF2 research and gene therapy. From this consortium the organization identified laboratories which are working on different approaches that may lead to a cure or improved treatment for NF2. The organization is now providing support to these laboratories, and is organizing another consortium to seek additional laboritories to support.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EmploymentTaxReturnsFiledInd0false
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0167388
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt012235
IRS990/FeesForServicesAccountingGrp/TotalAmt012235
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt0100600
IRS990/FeesForServicesManagementGrp/TotalAmt0100600
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt01303
IRS990/FeesForServicesOtherGrp/TotalAmt01303
IRS990/FeesForServicesProfFundraising/FundraisingAmt0394
IRS990/FeesForServicesProfFundraising/TotalAmt0394
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt020.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt45.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt65.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt105.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt115.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt125.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/PersonNm0Nicole Henwood
IRS990/Form990PartVIISectionAGrp/PersonNm1Gilles Atlan
IRS990/Form990PartVIISectionAGrp/PersonNm2Amy Williams
IRS990/Form990PartVIISectionAGrp/PersonNm3Brian Clay
IRS990/Form990PartVIISectionAGrp/PersonNm4Chantelle Nobis
IRS990/Form990PartVIISectionAGrp/PersonNm5Clare Goddard
IRS990/Form990PartVIISectionAGrp/PersonNm6Terri Rausch
IRS990/Form990PartVIISectionAGrp/PersonNm7Penny Henwood
IRS990/Form990PartVIISectionAGrp/PersonNm8Vito Grasso
IRS990/Form990PartVIISectionAGrp/PersonNm9Chris Serle
IRS990/Form990PartVIISectionAGrp/PersonNm10Deian Owen
IRS990/Form990PartVIISectionAGrp/PersonNm11Mary Sell
IRS990/Form990PartVIISectionAGrp/PersonNm12Jill Velez
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130400
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt056800
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Chair of UK Registered Charit
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Secretary
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/FormationYr02018
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingDirectExpensesAmt011200
IRS990/FundraisingGrossIncomeAmt051288
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0166085
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0166085
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0429820
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt00
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt07814
IRS990/InformationTechnologyGrp/TotalAmt07814
IRS990/InsuranceGrp/ManagementAndGeneralAmt0843
IRS990/InsuranceGrp/TotalAmt0843
IRS990/InterestGrp/ManagementAndGeneralAmt01172
IRS990/InterestGrp/TotalAmt01172
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsProgramRelatedGrp/BOYAmt0100000
IRS990/InvestmentsProgramRelatedGrp/EOYAmt0110000
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0PA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0Seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next generation biomedical technologies such as gene transfer therapy and immunontherapy
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0694287
IRS990/NetAssetsOrFundBalancesEOYAmt0804570
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt040088
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt040088
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0694287
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0804570
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01673
IRS990/OfficeExpensesGrp/TotalAmt01673
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0fundraising expenses
IRS990/OtherExpensesGrp/Desc1bank fees & charges
IRS990/OtherExpensesGrp/FundraisingAmt04767
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04400
IRS990/OtherExpensesGrp/TotalAmt04767
IRS990/OtherExpensesGrp/TotalAmt14400
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0546158
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0241485
IRS990/PYOtherExpensesAmt0144749
IRS990/PYOtherRevenueAmt0-1914
IRS990/PYRevenuesLessExpensesAmt0158010
IRS990/PYTotalExpensesAmt0386234
IRS990/PYTotalRevenueAmt0544244
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0110283
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0true
IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0378532
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0546158
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0708384
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0449651
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0129439
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02212164
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportTotal170Amt01967409
IRS990ScheduleA/SubstantialContributorsTotAmt0244755
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0378532
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0546158
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0708384
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0449651
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0129439
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02212164
IRS990ScheduleA/TotalSupportAmt02212164
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt0110000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0investment in Mulberry
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0C
IRS990ScheduleD/TotalBookValueProgramRltdAmt0110000
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt011200
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt011200
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt011200
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0gold outing
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt051288
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt051288
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt051288
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt051288
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt040088
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt07983
IRS990ScheduleI/RecipientTable/CashGrantAmt120000
IRS990ScheduleI/RecipientTable/CashGrantAmt272702
IRS990ScheduleI/RecipientTable/CashGrantAmt35000
IRS990ScheduleI/RecipientTable/CashGrantAmt437500
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501c3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0developing a tumor biobank for NF2
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1development of bacteriotherapy for NF2
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2tumor imaging model
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CHOP Research Institute
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1Mass Gen Development Office
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2Yale University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3University of California
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Institute for Cancer Research
IRS990ScheduleI/RecipientTable/RecipientEIN0232237932
IRS990ScheduleI/RecipientTable/RecipientEIN1043167352
IRS990ScheduleI/RecipientTable/RecipientEIN2060646973
IRS990ScheduleI/RecipientTable/RecipientEIN3943067788
IRS990ScheduleI/RecipientTable/RecipientEIN4236296135
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt03615 Civic Center Blvd
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1125 Nashua Street Suite 540
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2New Haven
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3LA
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4333 Cottman Avenue
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Philadelphia
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm2New Haven
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Los Angeles
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Philadelphia
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0PA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2CT
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4PA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd019104
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd102114
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd206520
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd390095
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd419111
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Nicole Henwood
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm1Gilles Atlan
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0President member Board of Director
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt1Vice-Pres member Board of Directo
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd1false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt056800
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt130400
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0salary
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc1salary
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Chris Serla and Nicole Henwood are siblings; Penny Henwood is Nicole Henwoods mother-in-law.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Form 990 is reviewed by the executive committee.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Nicole Henwood, President & CEO9 Lian DriveWest Chester, PA [email protected](610) 304-3617
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Board members sign a memorandum of understanding delineating the need to follow the policies of the organization.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Governing documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Officer director etc mailing address Part VI line 9
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Governing documents etc available to public Part VI line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0PA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0796187
IRS990/TotalAssetsEOYAmt0906470
IRS990/TotalAssetsGrp/BOYAmt0796187
IRS990/TotalAssetsGrp/EOYAmt0906470
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0378532
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt010279
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0130670
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0167388
IRS990/TotalFunctionalExpensesGrp/TotalAmt0308337

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$906,470
Liabilities
$101,900
Net assets
$804,570
Revenue
$418,620
Expenses
$308,337
Net income
$110,283
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.22$1.02$5.20$2.26$3.17$0.91
2023Summary only. Only limited summary data is available for this year.$7.12$1.02$6.10$7.72$9.66$1.94
2022Detailed filing. Detailed filing data is available for this year.$9.06$1.02$8.05$4.19$3.08$1.10
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.96$1.02$6.94$5.44$3.86$1.58
2020Summary only. Only limited summary data is available for this year.$6.38$1.02$5.36$7.08$5.37$1.71
2019Summary only. Only limited summary data is available for this year.$3.65$0.00$3.65$4.50$2.06$2.43
2018Summary only. Only limited summary data is available for this year.$1.22$0.00$1.22$1.29$0.08$1.22
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2022 filings • 501(c)3 • $500k-$1M nonprofits