Civic Intelligence

Ash Registry Inc.

990 • Fiscal year 2024 • EIN 82-4218205

Jul 01, 2023 to Jun 30, 2024 • Filed on Apr 23, 2025

2021 L Street NW 900Washington, DC 20036

(202) 776-0544

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

100th percentile

18.01x

Higher debt load relative to assets than 100% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

99th percentile

15.12x

Higher debt load relative to revenue than 99% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

1st percentile

-225%

Higher net margin than 1% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

98th percentile

$669,670

Higher top officer pay than 98% of similar nonprofits.

Top officer pay equals 22.5% of source-year revenue.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

19th percentile

-6.7%

Faster asset growth than 19% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

24th percentile

-7.6%

Faster revenue growth than 24% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Down

$2,501,839

Down $178,236 (-6.7%) from 2023

Net Assets

Down

-$42,547,876

Down $6,699,156 (-19%) from 2023

Liabilities

Up

$45,049,715

Up $6,520,920 (+17%) from 2023

Revenue

Down

$2,978,964

Down $243,557 (-7.6%) from 2023

Expenses

Down

$9,678,120

Down $1,384,233 (-13%) from 2023

Net Income

Up

-$6,699,156

Up $1,140,676 (+15%) from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100M$50M$0-$50MAssets 2018: $1Liabilities 2018: $02018Assets 2019: $1,466,643Liabilities 2019: $5,600,774Net Assets 2019: -$4,134,1312019Assets 2020: $1,091,496Liabilities 2020: $13,756,057Net Assets 2020: -$12,664,5612020Assets 2021: $2,547,175Liabilities 2021: $21,488,373Net Assets 2021: -$18,941,1982021Assets 2022: $1,364,727Liabilities 2022: $29,373,615Net Assets 2022: -$28,008,8882022Assets 2023: $2,680,075Liabilities 2023: $38,528,795Net Assets 2023: -$35,848,7202023Assets 2024: $2,501,839Liabilities 2024: $45,049,715Net Assets 2024: -$42,547,8762024Assets 2025: $3,937,364Liabilities 2025: $51,550,725Net Assets 2025: -$47,613,3612025

Highlighted filing

2024

Assets$2,501,839
Liabilities$45,049,715
Net Assets-$42,547,876

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MRevenue 2018: $0Expenses 2018: $0Net Income 2018: $02018Revenue 2019: $10,000Expenses 2019: $4,144,131Net Income 2019: -$4,134,1312019Revenue 2020: $0Expenses 2020: $8,530,430Net Income 2020: -$8,530,4302020Revenue 2021: $1,111,574Expenses 2021: $7,388,211Net Income 2021: -$6,276,6372021Revenue 2022: $1,021,874Expenses 2022: $10,089,564Net Income 2022: -$9,067,6902022Revenue 2023: $3,222,521Expenses 2023: $11,062,353Net Income 2023: -$7,839,8322023Revenue 2024: $2,978,964Expenses 2024: $9,678,120Net Income 2024: -$6,699,1562024Revenue 2025: $4,973,130Expenses 2025: $10,038,615Net Income 2025: -$5,065,4852025

Highlighted filing

2024

Revenue$2,978,964
Expenses$9,678,120
Net Income-$6,699,156
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
Apr 23, 2025
Return Version
2023v6.0
Gross Receipts
$2,978,964
Mission and Program Overview

Mission

The ash research collaborative (ash rc) is working to accelerate change by making it more efficient to conduct research, from increasing access to high-quality clinical data to making it easier for individuals with hematologic conditions to participate in studies.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$2,106,696$1,813,209▼ $293,487
Cash and Non-Interest-Bearing Accounts$437,491$515,987▲ $78,496
Land, Buildings, and Equipment, Net$133,888$121,143▼ $12,745
Prepaid Expenses and Deferred Charges$2,000$51,500▲ $49,500
Total Assets$2,680,075$2,501,839▼ $178,236
Liabilities
Other Liabilities$37,621,622$44,798,572▲ $7,176,950
Accounts Payable and Accrued Expenses$907,173$251,143▼ $656,030
Total Liabilities$38,528,795$45,049,715▲ $6,520,920
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,813,279$1,046▼ $1,812,233
Net Assets Without Donor Restrictions$-37,661,999$-42,548,922▼ $4,886,923
Total Net Assets Fund Balance$-35,848,720$-42,547,876▼ $6,699,156
Total Liabilities and Net Assets / Fund Balance$2,680,075$2,501,839▼ $178,236

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$121,143$186,077$307,220
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kathleen HewittSenior Director, Data HubFT$371,104$63,361$434,465
Matthew GertzogExecutive DirectorPT$259,474$75,362$334,836
Christopher DowdDeputy Dir., Business DevelopmentFT$227,225$67,328$294,553
Michelle WalserDeputy Director, OperationsFT$212,816$59,124$271,940
Robert Plovnick Chief MedicalQuality Officer - Until 2/2024PT$74,433$195,163$269,596
Susan Rogers Senior ManagerLearning Community ProgramsFT$171,746$27,981$199,727
Robert a Brodsky MdPresident - Until 12/2023--$27,000$27,000
Cynthia E Dunbar MdSecretary - Until 12/2023--$13,500$13,500
Joseph Mikhael Md MedTreasurer - Until 12/2023--$13,500$13,500
Mohandas NarladscPresident-elect - Until 12/2023--$13,500$13,500
Belinda Avalos MdVice President - Until 12/2023--$6,750$6,750

Board Members and Trustees

NameTitle
Mark CrowthermdmscfrcpcfrscBoard Chair - as of 1/2024
Andrew Evens Do Mba MscDirector
Bob Lowenberg Md PhdDirector
Christopher Boone Phd Fache FhimssDirector
Helen Burstin Md MphDirector
Marc Ginsky JdDirector
Alison LorenCouncillor - Until 12/2023
Betty Pace MdCouncillor - Until 12/2023
Bob Lowenberg Md PhdCouncillor - Until 12/2023
Charlotte Marie Niemeyer MdCouncillor - Until 12/2023
Christopher R Flowers Md MscCouncillor - Until 12/2023
Jamile M Shammo MdCouncillor - Until 12/2023
SARAH H O'BRIEN MD MSCCouncillor - Until 12/2023
Wendy Stock MdCouncillor - Until 12/2023
Linda Burns MdLiaison to Ash Ec
Roy Silverstein MdLiaison to Ash Ec
Gary ShillerSecretary/treasurer - as of 1/2024

Highest Paid Contractors

ContractorServicesLocationCompensation
Iqvia Rds INCData Aggregation/data Mgmt4820 EMPEROR BLVD, Durham, NC 27703$2,492,560
Breakthrough HealthcareData Info./analytics & Grant Mgmt2803 MANHATTAN AVENUE, Baltimore, MD 21215$340,920
Strategic Research SolutionsProgram Mgmt Support/consulting108 S PINE STREET, Fenton, MI 48430$263,250
Wcg ConsultingLegal Services212 CARNEGIE CENTER SUITE 301, Princeton, NJ 08540$125,200
Powers Pyles Sutler & Verville PCLegal Services1250 CONNECTICUT AVE NW 8TH FL, Washington, DC 20036$115,599
Revenue and Support

Revenue Composition

Contributions and Grants
$2,596,845
Program Service Revenue
$382,119
Investment Income
$0
Other Revenue
$0
All Other Contributions
$2,522,425
Change in Net Assets
$-6,699,156

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,978,964
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$2,978,964
Total Revenue per Form 990
$2,978,964
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$6,559,437
Salaries, Compensation, and Employee Benefits$2,355,405
Grants and Similar Amounts Paid$763,278
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$3,526,230$187,677-$3,713,907
Other Salaries and Wages$1,003,858$555,233-$1,559,091
Grants to Domestic Orgs$763,278--$763,278
Current Officers, Directors, Trustees, and Key Employees$308,614$34,290-$342,904
Insurance$291,975--$291,975
Fees for Services Legal$211,265$9,243-$220,508
Other Expenses$198,505$11,956-$198,505
Other Employee Benefits$126,378$64,122-$190,500
Pension Plan Contributions$88,583$45,924-$134,507
Payroll Taxes$88,068$40,335-$128,403
All Other Expenses$112,931$3,939-$116,870
Depreciation Depletion-$58,010-$58,010
Travel$33,976$14,463-$48,439
Advertising$43,788--$43,788
Conferences and Meetings$26,022$11,078-$37,100
Office Expenses$1,907$6,027-$7,934
Fees for Services Accounting$3,976$174-$4,150
Total Functional Expenses$7,655,649$2,022,471$0$9,678,120

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$9,678,120
Total Expenses per Audited Statements$9,678,120
Total Expenses per Form 990$9,678,120
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of California - San FranciscoLos Angeles, CA501(c)(3)Site Coordinator/investigator$116,666
Emory UniversityAtlanta, GA501(c)(3)Site Coordinator$75,000
Newark Beth Israel Medical CenterNewark, NJ501(c)(3)Site Coordinator$75,000
University of Alabama at BirminghamBirmingham, AL501(c)(3)Site Coordinator$74,997
The Regents of the University of California San FranciscoSan Francisco, CA501(c)(3)Site Coordinator$66,666
Duke UniversityCharlotte, NC501(c)(3)Site Coordinator$62,784
Montefiore Medical CenterBronx, NY501(c)(3)Site Coordinator$58,311
Baylor College of MedicineDallas, TX501(c)(3)Site Coordinator$51,318
University of North Carolina at Chapel HillChapel Hill, NC501(c)(3)Site Coordinator/investigator$50,000
Washington UniversityClayton, MO501(c)(3)Site Coordinator/investigator/site Stipend$43,933
New York City Health & Hospital CorporationNew York, NY501(c)(3)Site Coordinator$40,393
Medical College of WisconsinMilwaukee, WI501(c)(3)Site Coordinator$33,354
CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)(3)Site Coordinator/investigator$9,856
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Related Party$44,798,572
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 4

During the year ended june 30, 2024, ash rc amended its bylaws with the following changes: - changes to the rights reserved to the initial member, american society of hematology, inc. - changes to the number and composition of the voting members and board officers - changes to the functions of the board of directors and the executive committee

Form 990, Part VI, Section B, Line 11B

The form 990 was prepared by the outside accountants and reviewed first by the chief financial officer, and then by the executive director. It was then sent to the entire board prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

Ash rc's conflict of interest policy questionnaire is filled out electronically by all board members and officers. Before each board or committee meeting a member is put in charge of reviewing all conflict of interest statements for the members attending. Furthermore, members are asked to disclose any changes before every meeting. When an ash rc member has a conflict, s/he will not: 1. Take any action on behalf of ash concerning the subject in conflict or any issue relevant to the subject in conflict; 2. Participate in discussions on the subject without full disclosure; 3. Participate in decision-making discussions or cast a vote; 4. Imply that he/she is acting on behalf of ash rc when discussing the relevant subject with third parties; or 5. Fail to clarify with third parties with whom he/she deals on the relevant subject that he/she is not acting on behalf of ash rc.

Form 990, Part VI, Section B, Line 15

Ash rc relies on a related organization, ash, to determine compensation. As part of the process for determining the compensation for all of its employees, the compensation for key employees of the organization (including the executive director of ash rc) is reviewed by an outside hr group and approved by the executive director of ash.

Form 990, Part VI, Section C, Line 19

The organization's governing documents and financial statements are available upon request. The conflict of interest policy is located on the organization's website.

Filing and Contact Details

Filer

Filer Name
Ash Registry Inc
EIN
82-4218205
Phone
2027760544
Address
2021 L STREET NW 900, WASHINGTON, DC 20036
Doing Business As
Ash Research Collaborative

Signing Officer

Name
Matthew Gertzog
Title
Executive Director
Phone
2027760544
Signed
2025-04-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Matthew Gertzog
Formed
2017
Legal Domicile
Dc
Voting Board Members
9
Independent Board Members
9
Employees
0
Volunteers
85

Preparer

Firm
Cbiz Advisors LLC
Address
1899 L STREET NW SUITE 850, WASHINGTON, DC 20036
Preparer
Aaron M Fox
Phone
2022274000
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Consultants: program service expenses 2,989,894. Management and general expenses 164,211. Fundraising expenses 0. Total expenses 3,154,105. Site coordinators: program service expenses 494,968. Management and general expenses 21,656. Fundraising expenses 0. Total expenses 516,624. Other professional fees: program service expenses 14,155. Management and general expenses 619. Fundraising expenses 0. Total expenses 14,774. Temporary support: program service expenses 27,213. Management and general expenses 1,191. Fundraising expenses 0. Total expenses 28,404.

Financial Statement Notes

PART X, LINE 2:

The society evaluated its uncertainty in income taxes for the year ended june 30, 2024, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status; and there are currently no examinations pending or in progress.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1QUALITY OFFICER - UNTIL 2/2024
IRS990/Form990PartVIISectionAGrp/TitleTxt2SENIOR DIRECTOR, DATA HUB
IRS990/Form990PartVIISectionAGrp/TitleTxt3DEPUTY DIR., BUSINESS DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4DEPUTY DIRECTOR, OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt5LEARNING COMMUNITY PROGRAMS
IRS990/Form990PartVIISectionAGrp/TitleTxt6PRESIDENT - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt7PRESIDENT-ELECT - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt8SECRETARY - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt9TREASURER - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt10VICE PRESIDENT - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD CHAIR - AS OF 1/2024
IRS990/Form990PartVIISectionAGrp/TitleTxt12SECRETARY/TREASURER - AS OF 1/2024
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IRS990/Form990PartVIISectionAGrp/TitleTxt14LIAISON TO ASH EC
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt21COUNCILLOR - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt22COUNCILLOR - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt23COUNCILLOR - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt24COUNCILLOR - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt25COUNCILLOR - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt26COUNCILLOR - UNTIL 12/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt27COUNCILLOR - UNTIL 12/2023
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IRS990/MissionDesc0COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE.
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