Civic Intelligence

Ash Registry Inc.

990 • Fiscal year 2023 • EIN 82-4218205

Jul 01, 2022 to Jun 30, 2023 • Filed on May 03, 2024

2021 L Street NW 900Washington, DC 20036

(202) 776-0544

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

100th percentile

14.38x

Higher debt load relative to assets than 100% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

99th percentile

11.96x

Higher debt load relative to revenue than 99% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

2nd percentile

-243%

Higher net margin than 2% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

98th percentile

$636,064

Higher top officer pay than 98% of similar nonprofits.

Top officer pay equals 19.7% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

94th percentile

96%

Faster asset growth than 94% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

96th percentile

215%

Faster revenue growth than 96% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Assets

Up

$2,680,075

Up $1,315,348 (+96%) from 2022

Net Assets

Down

-$35,848,720

Down $7,839,832 (-28%) from 2022

Liabilities

Up

$38,528,795

Up $9,155,180 (+31%) from 2022

Revenue

Up

$3,222,521

Up $2,200,647 (+215%) from 2022

Expenses

Up

$11,062,353

Up $972,789 (+9.6%) from 2022

Net Income

Up

-$7,839,832

Up $1,227,858 (+14%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100M$50M$0-$50MAssets 2018: $1Liabilities 2018: $02018Assets 2019: $1,466,643Liabilities 2019: $5,600,774Net Assets 2019: -$4,134,1312019Assets 2020: $1,091,496Liabilities 2020: $13,756,057Net Assets 2020: -$12,664,5612020Assets 2021: $2,547,175Liabilities 2021: $21,488,373Net Assets 2021: -$18,941,1982021Assets 2022: $1,364,727Liabilities 2022: $29,373,615Net Assets 2022: -$28,008,8882022Assets 2023: $2,680,075Liabilities 2023: $38,528,795Net Assets 2023: -$35,848,7202023Assets 2024: $2,501,839Liabilities 2024: $45,049,715Net Assets 2024: -$42,547,8762024Assets 2025: $3,937,364Liabilities 2025: $51,550,725Net Assets 2025: -$47,613,3612025

Highlighted filing

2023

Assets$2,680,075
Liabilities$38,528,795
Net Assets-$35,848,720

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MRevenue 2018: $0Expenses 2018: $0Net Income 2018: $02018Revenue 2019: $10,000Expenses 2019: $4,144,131Net Income 2019: -$4,134,1312019Revenue 2020: $0Expenses 2020: $8,530,430Net Income 2020: -$8,530,4302020Revenue 2021: $1,111,574Expenses 2021: $7,388,211Net Income 2021: -$6,276,6372021Revenue 2022: $1,021,874Expenses 2022: $10,089,564Net Income 2022: -$9,067,6902022Revenue 2023: $3,222,521Expenses 2023: $11,062,353Net Income 2023: -$7,839,8322023Revenue 2024: $2,978,964Expenses 2024: $9,678,120Net Income 2024: -$6,699,1562024Revenue 2025: $4,973,130Expenses 2025: $10,038,615Net Income 2025: -$5,065,4852025

Highlighted filing

2023

Revenue$3,222,521
Expenses$11,062,353
Net Income-$7,839,832
Jump To
Filing Snapshot
Filing Period
Jul 1, 2022 to Jun 30, 2023
Signed
May 3, 2024
Return Version
2022v5.0
Gross Receipts
$3,222,521
Mission and Program Overview

Mission

The ash research collaborative (ash rc) is working to accelerate change by making it more efficient to conduct research, from increasing access to high-quality clinical data to making it easier for individuals with hematologic conditions to participate in studies.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$868,037$2,106,696▲ $1,238,659
Cash and Non-Interest-Bearing Accounts$305,000$437,491▲ $132,491
Land, Buildings, and Equipment, Net$186,279$133,888▼ $52,391
Prepaid Expenses and Deferred Charges$5,411$2,000▼ $3,411
Total Assets$1,364,727$2,680,075▲ $1,315,348
Liabilities
Other Liabilities$29,135,437$37,621,622▲ $8,486,185
Accounts Payable and Accrued Expenses$238,178$907,173▲ $668,995
Total Liabilities$29,373,615$38,528,795▲ $9,155,180
Net Assets / Fund Balance
Net Assets With Donor Restrictions$0$1,813,279▲ $1,813,279
Net Assets Without Donor Restrictions$-28,008,888$-37,661,999▼ $9,653,111
Total Net Assets Fund Balance$-28,008,888$-35,848,720▼ $7,839,832
Total Liabilities and Net Assets / Fund Balance$1,364,727$2,680,075▲ $1,315,348

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$133,888$128,067$261,955
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kathleen HewittSenior Director, Data HubFT$357,160$60,077$417,237
Matthew GertzogExecutive DirectorPT$247,888$70,145$318,033
Nicole MortierDirector, Scd CTN - Until 05/2023FT$256,058$40,519$296,577
Michelle WalserDeputy Director, OperationsFT$200,355$63,598$263,953
Robert PlovnickChief Medical Quality OfficerPT$209,074$47,582$256,656
Susan Rogers Senior ManagerLearning Community ProgramsFT$164,412$26,326$190,738
Wendy Stock MdCouncillor--$17,500$17,500
Mark CrowthermdmscfrcpcfrscTreasurer - Until 12/2022--$11,000$11,000
Robert a Brodsky MdPresident--$6,750$6,750
Cynthia E Dunbar MdSecretary--$3,000$3,000

Board Members and Trustees

NameTitle
Jane N Winter MdPresident - Until 12/2022
Belinda Avalos MdVice President - as of 12/2022
Alison LorenCouncillor
Betty Pace MdCouncillor
Bob Lowenberg Md PhdCouncillor
Charlotte Marie Niemeyer MdCouncillor
Christopher R Flowers Md MscCouncillor
Jamile M Shammo MdCouncillor
SARAH H O'BRIEN MD MSCCouncillor
Arnold Ganser MdCouncillor - Until 12/2022
Mohandas NarladscPresedent-elect
Joseph Mikhael Md MedTreasurer - as of 12/2022

Highest Paid Contractors

ContractorServicesLocationCompensation
Iqvia Rds INCSoftware Dev./data Managment4820 EMPEROR BLVD, Durham, NC 27703$2,754,500
Breakthrough HealthcareData Info./analytics & Grant Mgmt2803 MANHATTAN AVENUE, Baltimore, MD 21215$384,682
Strategic Research SolutionsMarketing Research108 S PINE STREET, Fenton, MI 48430$223,875
Wcg ConsultingResearch ConsultingWESTERN INSTITUTIONAL REVIEW BOARD, Hartford, CT 06115-0434$113,455
Center For Applied ResearchResearch Consulting1700 MARKET STREET SUITE 2140, Philadelphia, PA 19103$112,657
Revenue and Support

Revenue Composition

Contributions and Grants
$3,172,521
Program Service Revenue
$50,000
Investment Income
$0
Other Revenue
$0
All Other Contributions
$2,134,631
Change in Net Assets
$-7,839,832

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,222,521
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$3,222,521
Total Revenue per Form 990
$3,222,521
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$6,557,471
Salaries, Compensation, and Employee Benefits$2,490,526
Grants and Similar Amounts Paid$2,014,356
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$4,376,510$179,980-$4,556,490
Grants to Domestic Orgs$2,014,356--$2,014,356
Other Salaries and Wages$1,159,670$510,535-$1,670,205
Current Officers, Directors, Trustees, and Key Employees$300,382$33,375-$333,757
Insurance$326,637--$326,637
Other Employee Benefits$157,059$63,867-$220,926
Pension Plan Contributions$98,258$40,962-$139,220
Payroll Taxes$91,727$34,691-$126,418
Fees for Services Legal$103,772$2,990-$106,762
Travel$37,757$19,998-$57,755
Depreciation Depletion-$52,391-$52,391
Other Expenses$50,445$980,000-$50,445
Conferences and Meetings$30,102$15,944-$46,046
All Other Expenses$873$33,318-$34,191
Advertising$2,350$30,987-$33,337
Information Technology$28,112$810-$28,922
Fees for Services Accounting-$4,150-$4,150
Office Expenses$2,156$1,828-$3,984
Total Functional Expenses$9,056,527$2,005,826$0$11,062,353

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$11,062,353
Total Expenses per Audited Statements$11,062,353
Total Expenses per Form 990$11,062,353
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Alabama at BirminghamBirmingham, AL501(c)(3)Site Coordinator$174,997
University of Connecticut Health CenterFarmington, CT501(c)(3)Site Coordinator/site Stipend$167,780
Johns Hopkins University CtrChicago, IL501(c)(3)Site Coordinator/investigator$164,218
Washington UniversityClayton, MO501(c)(3)Site Coordinator/investigator/site Stipend$155,000
Prisma Health-upstateGreenville, SC501(c)(3)Site Coordinator$124,401
The Regents of the University of California San FranciscoSan Francisco, CA501(c)(3)Site Coordinator$116,666
Medical College of WisconsinMilwaukee, WI501(c)(3)Site Coordinator$112,267
CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)(3)Site Coordinator/investigator$106,720
ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGOChicago, IL501(c)(3)Site Coordinator$105,868
Augusta University Research InstituteAugusta, GA501(c)(3)Site Coordinator/site Stipend$104,999
Duke UniversityCharlotte, NC501(c)(3)Site Coordinator$100,000
Montefiore Medical CenterBronx, NY501(c)(3)Site Coordinator$100,000
Newark Beth Israel Medical CenterNewark, NJ501(c)(3)Site Coordinator$100,000
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501(c)(3)Site Coordinator$84,833
Baylor College of MedicineDallas, TX501(c)(3)Site Coordinator$83,411
University of North Carolina at Chapel HillChapel Hill, NC501(c)(3)Site Coordinator/investigator$67,500
University of California - San FranciscoLos Angeles, CA501(c)(3)Site Coordinator/investigator$50,000
CHILDREN'S NATIONAL MEDICAL CENTERWashington, DC501(c)(3)Site Coordinator$48,253
New York City Health & Hospital CorporationNew York, NY501(c)(3)Site Coordinator/site Stipend$39,292
Ut Southwestern Medical CenterDallas, TX501(c)(3)Site Coordinator$8,151
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Related Party$37,621,622
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The form 990 was prepared by the outside accountants and reviewed first by the chief financial officer, and then by the executive director. It was then sent to the entire board prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

Ash rc's conflict of interest policy questionnaire is filled out electronically by all board members and officers. Before each board or committee meeting a member is put in charge of reviewing all conflict of interest statements for the members attending. Furthermore, members are asked to disclose any changes before every meeting. When an ash rc member has a conflict, s/he will not: 1. Take any action on behalf of ash concerning the subject in conflict or any issue relevant to the subject in conflict; 2. Participate in discussions on the subject without full disclosure; 3. Participate in decision-making discussions or cast a vote; 4. Imply that he/she is acting on behalf of ash rc when discussing the relevant subject with third parties; or 5. Fail to clarify with third parties with whom he/she deals on the relevant subject that he/she is not acting on behalf of ash rc.

Form 990, Part VI, Section B, Line 15

Ash rc relies on a related organization, the american society of hematology (ash), to determine compensation. As part of the process for determining the compensation for all of its employees, the compensation for key employees of the organization (including the executive director of ash rc) is reviewed by an outside hr group and approved by the executive director of ash.

Form 990, Part VI, Section C, Line 19

The organization's governing documents and financial statements are available upon request. The conflict of interest policy is located on the organization's website.

Filing and Contact Details

Filer

Filer Name
Ash Registry Inc
EIN
82-4218205
Phone
2027760544
Address
2021 L STREET NW 900, WASHINGTON, DC 20036
Doing Business As
Ash Research Collaborative

Signing Officer

Name
Matthew Gertzog
Title
Executive Director
Phone
2027760544
Signed
2024-05-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Matthew Gertzog
Formed
2017
Legal Domicile
Dc
Voting Board Members
13
Independent Board Members
9
Employees
0
Volunteers
130

Preparer

Firm
Marcum Llp
Address
1899 L STREET NW SUITE 850, WASHINGTON, DC 20036
Preparer
Frank H Smith
Phone
2022274000
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Consultants: program service expenses 2,360,810. Management and general expenses 126,055. Fundraising expenses 0. Total expenses 2,486,865. Site coordinators: program service expenses 1,722,217. Management and general expenses 49,620. Fundraising expenses 0. Total expenses 1,771,837. Other professional fees: program service expenses 263,215. Management and general expenses 3,433. Fundraising expenses 0. Total expenses 266,648. Temporary support: program service expenses 30,268. Management and general expenses 872. Fundraising expenses 0. Total expenses 31,140.

Financial Statement Notes

PART X, LINE 2:

The society evaluated its uncertainty in income taxes for the year ended june 30, 2023, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status; and there are currently no examinations pending or in progress.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHIEF MEDICAL QUALITY OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt2SENIOR DIRECTOR, DATA HUB
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR, SCD CTN - UNTIL 05/2023
IRS990/Form990PartVIISectionAGrp/TitleTxt4DEPUTY DIRECTOR, OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt5LEARNING COMMUNITY PROGRAMS
IRS990/Form990PartVIISectionAGrp/TitleTxt6COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7TREASURER - UNTIL 12/2022
IRS990/Form990PartVIISectionAGrp/TitleTxt8PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt10PRESIDENT - UNTIL 12/2022
IRS990/Form990PartVIISectionAGrp/TitleTxt11PRESEDENT-ELECT
IRS990/Form990PartVIISectionAGrp/TitleTxt12VICE PRESIDENT - AS OF 12/2022
IRS990/Form990PartVIISectionAGrp/TitleTxt13TREASURER - AS OF 12/2022
IRS990/Form990PartVIISectionAGrp/TitleTxt14COUNCILLOR - UNTIL 12/2022
IRS990/Form990PartVIISectionAGrp/TitleTxt15COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16COUNCILLOR
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IRS990/MissionDesc0COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE.
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