Civic Intelligence

Ash Registry Inc.

990 • Fiscal year 2021 • EIN 82-4218205

Jul 01, 2020 to Jun 30, 2021 • Filed on May 10, 2022

Organization ProfileWWW.ASHRESEARCHCOLLABORATIVE.ORG
2021 L Street NW No 900Washington, DC 20036

(202) 776-0544

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

100th percentile

8.44x

Higher debt load relative to assets than 100% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

99th percentile

19.33x

Higher debt load relative to revenue than 99% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

1st percentile

-565%

Higher net margin than 1% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

98th percentile

$559,950

Higher top officer pay than 98% of similar nonprofits.

Top officer pay equals 50.4% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

95th percentile

133%

Faster asset growth than 95% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

Score unavailable

No value available

A valid growth rate could not be computed from the available filing history.

Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets100th percentile

Assets

Up

$2,547,175

Up $1,455,679 (+133%) from 2020

Net Assets

Down

-$18,941,198

Down $6,276,637 (-50%) from 2020

Liabilities

Up

$21,488,373

Up $7,732,316 (+56%) from 2020

Revenue And Expenses
Liabilities / Revenue99th percentileNet Margin1st percentile

Revenue

Up

$1,111,574

Up $1,111,574 from 2020

Expenses

Down

$7,388,211

Down $1,142,219 (-13%) from 2020

Net Income

Up

-$6,276,637

Up $2,253,793 (+26%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth95th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100M$50M$0-$50MAssets 2018: $1Liabilities 2018: $02018Assets 2019: $1,466,643Liabilities 2019: $5,600,774Net Assets 2019: -$4,134,1312019Assets 2020: $1,091,496Liabilities 2020: $13,756,057Net Assets 2020: -$12,664,5612020Assets 2021: $2,547,175Liabilities 2021: $21,488,373Net Assets 2021: -$18,941,1982021Assets 2022: $1,364,727Liabilities 2022: $29,373,615Net Assets 2022: -$28,008,8882022Assets 2023: $2,680,075Liabilities 2023: $38,528,795Net Assets 2023: -$35,848,7202023Assets 2024: $2,501,839Liabilities 2024: $45,049,715Net Assets 2024: -$42,547,8762024Assets 2025: $3,937,364Liabilities 2025: $51,550,725Net Assets 2025: -$47,613,3612025

Highlighted filing

2021

Assets$2,547,175
Liabilities$21,488,373
Net Assets-$18,941,198
Open 2021 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MRevenue 2018: $0Expenses 2018: $0Net Income 2018: $02018Revenue 2019: $10,000Expenses 2019: $4,144,131Net Income 2019: -$4,134,1312019Revenue 2020: $0Expenses 2020: $8,530,430Net Income 2020: -$8,530,4302020Revenue 2021: $1,111,574Expenses 2021: $7,388,211Net Income 2021: -$6,276,6372021Revenue 2022: $1,021,874Expenses 2022: $10,089,564Net Income 2022: -$9,067,6902022Revenue 2023: $3,222,521Expenses 2023: $11,062,353Net Income 2023: -$7,839,8322023Revenue 2024: $2,978,964Expenses 2024: $9,678,120Net Income 2024: -$6,699,1562024Revenue 2025: $4,973,130Expenses 2025: $10,038,615Net Income 2025: -$5,065,4852025

Highlighted filing

2021

Revenue$1,111,574
Expenses$7,388,211
Net Income-$6,276,637
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
May 10, 2022
Return Version
2020v4.2
Gross Receipts
$1,111,574
Mission and Program Overview

Mission

The ash research collaborative (ash rc) is working to accelerate change by making it more efficient to conduct research, from increasing access to high-quality clinical data to making it easier for individuals with hematologic conditions to participate in studies.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,006,238$1,334,526▲ $328,288
Accounts Receivable-$985,573-
Land, Buildings, and Equipment, Net$0$225,558▲ $225,558
Prepaid Expenses and Deferred Charges$85,258$1,518▼ $83,740
Total Assets$1,091,496$2,547,175▲ $1,455,679
Liabilities
Other Liabilities$13,381,009$20,768,203▲ $7,387,194
Accounts Payable and Accrued Expenses$375,048$720,170▲ $345,122
Total Liabilities$13,756,057$21,488,373▲ $7,732,316
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$-12,664,561$-18,941,198▼ $6,276,637
Total Net Assets Fund Balance$-12,664,561$-18,941,198▼ $6,276,637
Total Liabilities and Net Assets / Fund Balance$1,091,496$2,547,175▲ $1,455,679

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$225,558$24,477$250,035
Compensation and Service Providers
Top Officer Pay98th percentile

Employees

NameTitleOtherTotal
Robert a BrodskySec. to Vice Pres. (eff. 01/21)$12,423$12,423
Stephanie LeePresident (through 12/20)$11,205$11,205
Joseph MikhaelCouncillor$9,000$9,000
Martin S TallmanPres.-elect to Pres. (eff 01/21)$1,000$1,000

Board Members and Trustees

NameTitle
Michelle WalserDeputy Director, Operations Ash Rc
Matthew GertzogDeputy Executive Director
Kathleen HewittDirector, Data Hub
Robert PlovnickChief Medical Quality Officer
Charles ChessonChief Prof. Dev & Diversity Officer
Agnes LeeCouncillor
Allison LorenCouncillor
Arnold GanserCouncillor
Belinda AvalosCouncillor
Bob LowenbergCouncillor
Betty PaceCouncillor (beg. 01/21)
Jamile M ShammoCouncillor (beg. 01/21)
John C ByrdCouncillor (through 12/20)
Cynthia E DunbarCouncillor to Sec. (eff. 01/21)
Louis GrueSr. Manager, Clinical Trials Op.
Mark CrowtherTreasurer
Jane N WinterVP to Pres.-elect (eff. 01/21)

Highest Paid Contractors

ContractorServicesLocationCompensation
Prometheus ResearchSoftware Development And Data ManagementPO BOX 41125, San Jose, CA 95160$1,926,864
GeekhiveIt Consulting28 CHURCH ST SUITE 2A, Warwick, NY 10990$498,750
Breakthrough HealthcareData Info./analytics & Grant Mgmt3005 WESTCHESTER AVE, Ellicot City, MD 21043$231,500
Mary Ann FallonClinical Trials Operations Expert6 LITCHFORD ROAD, Chapel Hill, NC 27514$167,138
Powers Pyles Sutter & VervilleLegal Services1501 M STREET NW 7TH FLOOR, Washington, DC 20005$143,265
Revenue and Support

Revenue Composition

Contributions and Grants
$631,333
Program Service Revenue
$500,000
Investment Income
$0
Other Revenue
$-19,759
All Other Contributions
$200,000
Change in Net Assets
$-6,276,637

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,111,574
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$1,111,574
Total Revenue per Form 990
$1,111,574
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$5,333,290
Salaries, Compensation, and Employee Benefits$2,054,921
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$3,646,320$281,078-$3,927,398
Other Salaries and Wages$1,340,332$97,237-$1,437,569
Fees for Services Management-$980,000-$980,000
Current Officers, Directors, Trustees, and Key Employees$256,971$18,643-$275,614
Fees for Services Legal$193,595--$193,595
Other Employee Benefits$126,089$23,228-$149,317
Payroll Taxes$109,198$18,497-$127,695
Insurance$119,650--$119,650
Pension Plan Contributions$53,782$10,944-$64,726
Advertising$28,733$1,988-$30,721
Depreciation Depletion-$24,477-$24,477
Information Technology$14,230--$14,230
Fees for Services Accounting-$414-$414
Other Expenses$42$2-$44
Office Expenses$-1,553$145-$-1,408
Total Functional Expenses$5,929,063$1,459,148$0$7,388,211

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$7,388,211
Total Expenses per Audited Statements$7,388,211
Total Expenses per Form 990$7,388,211
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Ash$20,768,203
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 was prepared by the outside accountants and reviewed first by the chief financial officer, and then by the executive director. It was then sent to the entire board prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Ash rc's conflict of interest policy questionnaire is filled out electronically by all board members and officers. Before each board or committee meeting a member is put in charge of reviewing all conflict of interest statements for the members attending. Furthermore, members are asked to disclose any changes before every meeting. When an ash rc member has a conflict, s/he will not: 1. Take any action on behalf of ash concerning the subject in conflict or any issue relevant to the subject in conflict; 2. Participate in discussions on the subject without full disclosure; 3. Participate in decision-making discussions or cast a vote; 4. Imply that he/she is acting on behalf of ash rc when discussing the relevant subject with third parties; or 5. Fail to clarify with third parties with whom he/she deals on the relevant subject that he/she is not acting on behalf of ash rc.”

Form 990, Part VI, Section B, Line 15

“Ash rc relies on a related organization, the american society of hematology (ash), to determine compensation. As part of the process for determining the compensation for all of its employees, the compensation for key employees of the organization (including the executive director of ash rc) is reviewed by an outside hr group and approved by the executive director of ash.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents and financial statements are available upon request. The conflict of interest policy is located on the organization's website.”

PART VII, SECTION A - COMPENSATION OF BOARD MEMBERS:

“Board members may receive compensation related to speaking engagements or writing articles for the society.”

Filing and Contact Details

Filer

Filer Name
Ash Registry Inc
EIN
82-4218205
Phone
2027760544
Address
2021 L STREET NW NO 900, WASHINGTON, DC 20036
Doing Business As
Ash Research Collaborative

Signing Officer

Name
Matthew Gertzog
Title
Executive Director
Phone
2027760544
Signed
2022-05-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Matthew Gertzog
Formed
2017
Legal Domicile
Dc
Voting Board Members
13
Independent Board Members
12
Employees
0
Volunteers
13

Preparer

Firm
Gelman Rosenberg & Freedman
Address
4550 MONTGOMERY AVE SUITE 800N, BETHESDA, MD 20814-2930
Preparer
Richard J Locastro CPA
Phone
3019519090
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“For the years ended june 30, 2021 and 2020, the society has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the consolidated financial statements.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1654025
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1749152
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1829322
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2019024
IRS990/Form990PartVIISectionAGrp/PersonNm0STEPHANIE LEE
IRS990/Form990PartVIISectionAGrp/PersonNm1MARTIN S TALLMAN
IRS990/Form990PartVIISectionAGrp/PersonNm2JANE N WINTER
IRS990/Form990PartVIISectionAGrp/PersonNm3ROBERT A BRODSKY
IRS990/Form990PartVIISectionAGrp/PersonNm4MARK CROWTHER
IRS990/Form990PartVIISectionAGrp/PersonNm5CYNTHIA E DUNBAR
IRS990/Form990PartVIISectionAGrp/PersonNm6BETTY PACE
IRS990/Form990PartVIISectionAGrp/PersonNm7ARNOLD GANSER
IRS990/Form990PartVIISectionAGrp/PersonNm8JOHN C BYRD
IRS990/Form990PartVIISectionAGrp/PersonNm9AGNES LEE
IRS990/Form990PartVIISectionAGrp/PersonNm10JOSEPH MIKHAEL
IRS990/Form990PartVIISectionAGrp/PersonNm11BELINDA AVALOS
IRS990/Form990PartVIISectionAGrp/PersonNm12BOB LOWENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm13ALLISON LOREN
IRS990/Form990PartVIISectionAGrp/PersonNm14JAMILE M SHAMMO
IRS990/Form990PartVIISectionAGrp/PersonNm15MATTHEW GERTZOG
IRS990/Form990PartVIISectionAGrp/PersonNm16ROBERT PLOVNICK
IRS990/Form990PartVIISectionAGrp/PersonNm17CHARLES CHESSON
IRS990/Form990PartVIISectionAGrp/PersonNm18KATHLEEN HEWITT
IRS990/Form990PartVIISectionAGrp/PersonNm19MICHELLE WALSER
IRS990/Form990PartVIISectionAGrp/PersonNm20LOUIS GRUE
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt11000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt15504996
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt16399105
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt17303754
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt18302552
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt19182641
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20161845
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT (THROUGH 12/20)
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRES.-ELECT TO PRES. (EFF 01/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt2VP TO PRES.-ELECT (EFF. 01/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt3SEC. TO VICE PRES. (EFF. 01/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5COUNCILLOR TO SEC. (EFF. 01/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt6COUNCILLOR (BEG. 01/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt7COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8COUNCILLOR (THROUGH 12/20)
IRS990/Form990PartVIISectionAGrp/TitleTxt9COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13COUNCILLOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14COUNCILLOR (BEG. 01/21)
IRS990/Form990PartVIISectionAGrp/TitleTxt15DEPUTY EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF MEDICAL QUALITY OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF PROF. DEV & DIVERSITY OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR, DATA HUB
IRS990/Form990PartVIISectionAGrp/TitleTxt19DEPUTY DIRECTOR, OPERATIONS ASH RC
IRS990/Form990PartVIISectionAGrp/TitleTxt20SR. MANAGER, CLINICAL TRIALS OP.
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IRS990/FSAuditedInd01
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IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01111574
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt012
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt014230
IRS990/InformationTechnologyGrp/TotalAmt014230
IRS990/InsuranceGrp/ProgramServicesAmt0119650
IRS990/InsuranceGrp/TotalAmt0119650
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt013
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt024477
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IRS990/LandBldgEquipBasisNetGrp/EOYAmt0225558
IRS990/LandBldgEquipCostOrOtherBssAmt0250035
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IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE ASH RESEARCH COLLABORATIVE (ASH RC) WAS ESTABLISHED BY THE AMERICAN SOCIETY OF HEMATOLOGY IN 2017 TO FOSTER COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0-12664561
IRS990/NetAssetsOrFundBalancesEOYAmt0-18941198
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0-12664561
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0-18941198
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0145
IRS990/OfficeExpensesGrp/ProgramServicesAmt0-1553
IRS990/OfficeExpensesGrp/TotalAmt0-1408
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
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IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0126089
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0149317
IRS990/OtherExpensesGrp/Desc0DUES & SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc1EQUIPMENT
IRS990/OtherExpensesGrp/Desc2STAFF DEVELOPMENT
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11148
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt22
IRS990/OtherExpensesGrp/ProgramServicesAmt041674
IRS990/OtherExpensesGrp/ProgramServicesAmt142
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IRS990/OtherExpensesGrp/TotalAmt11347
IRS990/OtherExpensesGrp/TotalAmt21148
IRS990/OtherExpensesGrp/TotalAmt344
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IRS990/OtherRevenueMiscGrp/ExclusionAmt0-19759
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0-19759
IRS990/OtherRevenueTotalAmt0-19759
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt097237
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01340332
IRS990/OtherSalariesAndWagesGrp/TotalAmt01437569
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt018497
IRS990/PayrollTaxesGrp/ProgramServicesAmt0109198
IRS990/PayrollTaxesGrp/TotalAmt0127695
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt010944
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt053782
IRS990/PensionPlanContributionsGrp/TotalAmt064726
IRS990/PoliticalCampaignActyInd00
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01518
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IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0DATA ANALYSIS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0500000
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0500000
IRS990/ProgSrvcAccomActy2Grp/Desc0THE ASH RC SICKLE CELL DISEASE CLINICAL TRIALS NETWORK WAS LAUNCHED WITH THE MISSION OF IMPROVING OUTCOMES FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD) BY EXPEDITING THE DEVELOPMENT OF TREATMENTS AND FACILITATING INNOVATION IN CLINICAL TRIAL RESEARCH. THE NETWORK IS AN UNPRECEDENTED NATIONAL EFFORT TO STREAMLINE OPERATIONS AND FACILITATE DATA SHARING TO EXPEDITE THE DEVELOPMENT OF NEW TREATMENTS FOR THIS RARE DISEASE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02282194
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt00
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt06554030
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-8530430

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,547,175
Liabilities
$21,488,373
Net assets
-$18,941,198
Revenue
$1,111,574
Expenses
$7,388,211
Net income
-$6,276,637
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$3.94$51.6$47.6$4.97$10.0$5.07
2024Detailed filing. Detailed filing data is available for this year.$2.50$45.0$42.5$2.98$9.68$6.70
2023Detailed filing. Detailed filing data is available for this year.$2.68$38.5$35.8$3.22$11.1$7.84
2022Detailed filing. Detailed filing data is available for this year.$1.36$29.4$28.0$1.02$10.1$9.07
2021Detailed filing. Detailed filing data is available for this year.$2.55$21.5$18.9$1.11$7.39$6.28
2020Detailed filing. Detailed filing data is available for this year.$1.09$13.8$12.7$0.00$8.53$8.53
2019Detailed filing. Detailed filing data is available for this year.$1.47$5.60$4.13$0.01$4.14$4.13
2018Summary only. Only limited summary data is available for this year.$0.00$0.00$0.00$0.00$0.00
Peer Organizations

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