Civic Intelligence

Ash Registry Inc.

990 • Fiscal year 2020 • EIN 82-4218205

Jul 01, 2019 to Jun 30, 2020 • Filed on Apr 08, 2021

Organization ProfileWWW.ASHRESEARCHCOLLABORATIVE.ORG
2021 L Street NW No 900Washington, DC 20036

(202) 776-0544

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

100th percentile

12.60x

Higher debt load relative to assets than 100% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2020

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2020

Top Officer Pay

97th percentile

$485,407

Higher top officer pay than 97% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

3rd percentile

-26%

Faster asset growth than 3% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

1st percentile

-100%

Faster revenue growth than 1% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets100th percentile

Assets

Down

$1,091,496

Down $375,147 (-26%) from 2019

Net Assets

Down

-$12,664,561

Down $8,530,430 (-206%) from 2019

Liabilities

Up

$13,756,057

Up $8,155,283 (+146%) from 2019

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

Down

$0

Down $10,000 (-100%) from 2019

Expenses

Up

$8,530,430

Up $4,386,299 (+106%) from 2019

Net Income

Down

-$8,530,430

Down $4,396,299 (-106%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth3rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100M$50M$0-$50MAssets 2018: $1Liabilities 2018: $02018Assets 2019: $1,466,643Liabilities 2019: $5,600,774Net Assets 2019: -$4,134,1312019Assets 2020: $1,091,496Liabilities 2020: $13,756,057Net Assets 2020: -$12,664,5612020Assets 2021: $2,547,175Liabilities 2021: $21,488,373Net Assets 2021: -$18,941,1982021Assets 2022: $1,364,727Liabilities 2022: $29,373,615Net Assets 2022: -$28,008,8882022Assets 2023: $2,680,075Liabilities 2023: $38,528,795Net Assets 2023: -$35,848,7202023Assets 2024: $2,501,839Liabilities 2024: $45,049,715Net Assets 2024: -$42,547,8762024Assets 2025: $3,937,364Liabilities 2025: $51,550,725Net Assets 2025: -$47,613,3612025

Highlighted filing

2020

Assets$1,091,496
Liabilities$13,756,057
Net Assets-$12,664,561
Open 2020 Filing

Operations Trend

Revenue Growth1st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MRevenue 2018: $0Expenses 2018: $0Net Income 2018: $02018Revenue 2019: $10,000Expenses 2019: $4,144,131Net Income 2019: -$4,134,1312019Revenue 2020: $0Expenses 2020: $8,530,430Net Income 2020: -$8,530,4302020Revenue 2021: $1,111,574Expenses 2021: $7,388,211Net Income 2021: -$6,276,6372021Revenue 2022: $1,021,874Expenses 2022: $10,089,564Net Income 2022: -$9,067,6902022Revenue 2023: $3,222,521Expenses 2023: $11,062,353Net Income 2023: -$7,839,8322023Revenue 2024: $2,978,964Expenses 2024: $9,678,120Net Income 2024: -$6,699,1562024Revenue 2025: $4,973,130Expenses 2025: $10,038,615Net Income 2025: -$5,065,4852025

Highlighted filing

2020

Revenue$0
Expenses$8,530,430
Net Income-$8,530,430
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
Apr 8, 2021
Return Version
2019v5.2
Gross Receipts
$0
Mission and Program Overview

Mission

The ash research collaborative (ash rc) is working to accelerate change by making it more efficient to conduct research, from increasing access to high-quality clinical data to making it easier for individuals with hematologic conditions to participate in studies.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,378,507$1,006,238▼ $372,269
Prepaid Expenses and Deferred Charges$88,136$85,258▼ $2,878
Total Assets$1,466,643$1,091,496▼ $375,147
Liabilities
Other Liabilities$5,290,440$13,381,009▲ $8,090,569
Accounts Payable and Accrued Expenses$310,334$375,048▲ $64,714
Total Liabilities$5,600,774$13,756,057▲ $8,155,283
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$-4,134,131$-12,664,561▼ $8,530,430
Total Net Assets Fund Balance$-4,134,131$-12,664,561▼ $8,530,430
Total Liabilities and Net Assets / Fund Balance$1,466,643$1,091,496▼ $375,147
Compensation and Service Providers
Top Officer Pay97th percentile

Employees

NameTitleOtherTotal
John C Byrd See Sch OBoard Member$20,000$20,000
Roy Silverstein See Sch OPresident (through 12/19)$15,721$15,721
Robert a Brodsky See Sch OSecretary$12,175$12,175
Stephanie Lee See Sch OPres-elect to Pres (eff. 01/20)$4,683$4,683
Cynthia E Dunbar See Sch OBoard Member$2,500$2,500
Martin S Tallman See Sch OVP to Pres.-elect (eff. 01/20)$1,500$1,500

Board Members and Trustees

NameTitle
Agnes LeeBoard Member
Arnold GanserBoard Member
Belinda AvalosBoard Member
Joseph MikhaelBoard Member
Allison LorenBoard Member (beg. 01/20)
Bob LowenbergBoard Member (beg. 01/20)
Steven AllenBoard Member (through 12/31/19)
Jane N WinterBoard Member to VP (eff. 01/20)
Matthew GertzogExecutive Director
Robert PlovnickChief Medical Quality Officer
Charles Chesson-dir Sickle CellDisease Clinical Trial Network
Uchenna OnyeachomSr. Manager, Data Hub Informatics
Mark CrowtherTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Prometheus ResearchSoftware Development And Data ManagementPO BOX 41125, San Jose, CA 95160$4,072,119
GeekhiveIt Consulting28 CHURCH ST SUITE 2A, Warwick, NY 10990$340,560
CiscrpCommunity-centric Research DesignONE LIBERTY SQUARE SUITE 1100, Boston, MA 02109$232,426
Mary Ann FallonClinical Trials Operations Expert6 LITCHFORD ROAD, Chapel Hill, NC 27514$150,333
Nelson Mulllins Riley & ScarboroughLegal ServicesPO BOX 11070, Columbia, SC 29211$113,474
Revenue and Support

Revenue Composition

Contributions and Grants
$0
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
Change in Net Assets
$-8,530,430

Audited Revenue Reconciliation

Revenue per Audited Statements
$0
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$0
Total Revenue per Form 990
$0
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$6,554,030
Salaries, Compensation, and Employee Benefits$1,976,400
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$5,023,593$382,626-$5,406,219
Other Salaries and Wages$1,288,808$64,740-$1,353,548
Current Officers, Directors, Trustees, and Key Employees$287,533$14,444-$301,977
Occupancy$246,256--$246,256
Fees for Services Legal$205,707--$205,707
Insurance$154,420--$154,420
Travel$140,578--$140,578
Conferences and Meetings$135,666--$135,666
Other Employee Benefits$120,815$9,412-$130,227
Payroll Taxes$97,045$3,530-$100,575
Pension Plan Contributions$83,538$6,535-$90,073
Advertising$85,036--$85,036
Depreciation Depletion$71,132--$71,132
Information Technology$29,702--$29,702
Office Expenses$26,560$2,406-$28,966
Other Expenses$1,578--$1,578
Fees for Services Accounting-$1,562-$1,562
Total Functional Expenses$8,045,175$485,255$0$8,530,430

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$8,530,430
Total Expenses per Audited Statements$8,530,430
Total Expenses per Form 990$8,530,430
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Ash$13,381,009
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 was prepared by the outside accountants and reviewed first by the chief financial officer, and then by the executive director. It was then sent to the entire board prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Ash rc's conflict of interest policy questionnaire is filled out electronically by all board members and officers. Before each board or committee meeting a member is put in charge of reviewing all conflict of interest statements for the members attending. Furthermore, members are asked to disclose any changes before every meeting. When an ash rc member has a conflict, s/he will not: 1. Take any action on behalf of ash concerning the subject in conflict or any issue relevant to the subject in conflict; 2. Participate in discussions on the subject without full disclosure; 3. Participate in decision-making discussions or cast a vote; 4. Imply that he/she is acting on behalf of ash rc when discussing the relevant subject with third parties; or 5. Fail to clarify with third parties with whom he/she deals on the relevant subject that he/she is not acting on behalf of ash rc.”

Form 990, Part VI, Section B, Line 15A

“Ash rc relies on a related organization, the american society of hematology (ash), to determine compensation. As part of the process for determining the compensation for all of its employees, the compensation for key employees of the organization (including the executive director of ash rc) is reviewed by an outside hr group and approved by the executive director of ash.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents and financial statements are available upon request. The conflict of interest policy is located on the organization's website.”

PART VII, SECTION A - COMPENSATION OF BOARD MEMBERS:

“Board members may receive compensation related to speaking engagements or writing articles for the society.”

Filing and Contact Details

Filer

Filer Name
Ash Registry Inc
EIN
82-4218205
Phone
2027760544
Address
2021 L STREET NW NO 900, WASHINGTON, DC 20036
Doing Business As
Ash Research Collaborative

Signing Officer

Name
Matthew Gertzog
Title
Executive Director
Phone
2027760544
Signed
2021-04-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Matthew Gertzog
Formed
2017
Legal Domicile
Dc
Voting Board Members
13
Independent Board Members
10
Employees
0
Volunteers
13

Preparer

Firm
Gelman Rosenberg & Freedman
Address
4550 MONTGOMERY AVE SUITE 800N, BETHESDA, MD 20814-2930
Preparer
Richard J Locastro CPA
Phone
3019519090
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Ash registry consultants: program service expenses 5,023,593. Management and general expenses 382,626. Fundraising expenses 0. Total expenses 5,406,219.”

Financial Statement Notes

PART X, LINE 2:

“For the years ended june 30, 2020 and 2019, the society has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the consolidated financial statements.”

Raw XML AppendixShowing 400 of 630 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm3MARTIN S TALLMAN SEE SCH O
IRS990/Form990PartVIISectionAGrp/PersonNm4ROBERT A BRODSKY SEE SCH O
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK CROWTHER
IRS990/Form990PartVIISectionAGrp/PersonNm6STEVEN ALLEN
IRS990/Form990PartVIISectionAGrp/PersonNm7ARNOLD GANSER
IRS990/Form990PartVIISectionAGrp/PersonNm8CYNTHIA E DUNBAR SEE SCH O
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN C BYRD SEE SCH O
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IRS990/Form990PartVIISectionAGrp/PersonNm11JOSEPH MIKHAEL
IRS990/Form990PartVIISectionAGrp/PersonNm12BELINDA AVALOS
IRS990/Form990PartVIISectionAGrp/PersonNm13BOB LOWENBERG
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IRS990/Form990PartVIISectionAGrp/PersonNm15MATTHEW GERTZOG
IRS990/Form990PartVIISectionAGrp/PersonNm16ROBERT PLOVNICK
IRS990/Form990PartVIISectionAGrp/PersonNm17CHARLES CHESSON-DIR SICKLE CELL
IRS990/Form990PartVIISectionAGrp/PersonNm18UCHENNA ONYEACHOM
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
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IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER TO VP (EFF. 01/20)
IRS990/Form990PartVIISectionAGrp/TitleTxt3VP TO PRES.-ELECT (EFF. 01/20)
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER (THROUGH 12/31/19)
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER (BEG. 01/20)
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER (BEG. 01/20)
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF MEDICAL QUALITY OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt17DISEASE CLINICAL TRIAL NETWORK
IRS990/Form990PartVIISectionAGrp/TitleTxt18SR. MANAGER, DATA HUB INFORMATICS
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IRS990/MissionDesc0THE ASH RESEARCH COLLABORATIVE (ASH RC) WAS ESTABLISHED BY THE AMERICAN SOCIETY OF HEMATOLOGY IN 2017 TO FOSTER COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE.
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Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,091,496
Liabilities
$13,756,057
Net assets
-$12,664,561
Revenue
$0
Expenses
$8,530,430
Net income
-$8,530,430
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$3.94$51.6$47.6$4.97$10.0$5.07
2024Detailed filing. Detailed filing data is available for this year.$2.50$45.0$42.5$2.98$9.68$6.70
2023Detailed filing. Detailed filing data is available for this year.$2.68$38.5$35.8$3.22$11.1$7.84
2022Detailed filing. Detailed filing data is available for this year.$1.36$29.4$28.0$1.02$10.1$9.07
2021Detailed filing. Detailed filing data is available for this year.$2.55$21.5$18.9$1.11$7.39$6.28
2020Detailed filing. Detailed filing data is available for this year.$1.09$13.8$12.7$0.00$8.53$8.53
2019Detailed filing. Detailed filing data is available for this year.$1.47$5.60$4.13$0.01$4.14$4.13
2018Summary only. Only limited summary data is available for this year.$0.00$0.00$0.00$0.00$0.00
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2020 filings • 501(c)3 • $1M-$5M nonprofits