Civic Intelligence

Krabbe Connect

990 • Fiscal year 2020 • EIN 82-2964680

Jan 01, 2020 to Dec 31, 2020 • Filed on Jul 20, 2021

PO Box 264Rosemount, MN 55068

(651) 252-4117

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

63rd percentile

0.01x

Higher debt load relative to assets than 63% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

63rd percentile

0.01x

Higher debt load relative to revenue than 63% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

75th percentile

26%

Higher net margin than 75% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

82nd percentile

$15,200

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 15.1% of source-year revenue.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

73rd percentile

31%

Faster asset growth than 73% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

40th percentile

-25%

Faster revenue growth than 40% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Assets

Up

$102,299

Up $24,141 (+31%) from 2019

Net Assets

Up

$100,892

Up $26,095 (+35%) from 2019

Liabilities

Down

$1,407

Down $1,954 (-58%) from 2019

Revenue

Down

$100,987

Down $33,105 (-25%) from 2019

Expenses

Up

$74,892

Up $1,611 (+2.2%) from 2019

Net Income

Down

$26,095

Down $34,716 (-57%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2019: $78,158Liabilities 2019: $3,361Net Assets 2019: $74,7972019Assets 2020: $102,299Liabilities 2020: $1,407Net Assets 2020: $100,8922020Assets 2021: $182,188Liabilities 2021: $2,667Net Assets 2021: $179,5212021Assets 2022: $280,117Liabilities 2022: $5,934Net Assets 2022: $274,1832022Assets 2023: $378,470Liabilities 2023: $1,447Net Assets 2023: $377,0232023Assets 2024: $507,394Liabilities 2024: $5,782Net Assets 2024: $501,6122024

Highlighted filing

2020

Assets$102,299
Liabilities$1,407
Net Assets$100,892

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$300K$200K$100K$0Revenue 2019: $134,092Expenses 2019: $73,281Net Income 2019: $60,8112019Revenue 2020: $100,987Expenses 2020: $74,892Net Income 2020: $26,0952020Revenue 2021: $149,464Expenses 2021: $70,835Net Income 2021: $78,6292021Revenue 2022: $201,297Expenses 2022: $106,635Net Income 2022: $94,6622022Revenue 2023: $295,064Expenses 2023: $192,224Net Income 2023: $102,8402023Revenue 2024: $314,070Expenses 2024: $189,329Net Income 2024: $124,7412024

Highlighted filing

2020

Revenue$100,987
Expenses$74,892
Net Income$26,095
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Jul 20, 2021
Return Version
2020v4.1
Gross Receipts
$122,050
Mission and Program Overview

Mission

Krabbeconnect will be the source of comprehensive information and access to resources for families with krabbe disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$78,159$102,299▲ $24,140
Total Assets$78,159$102,299▲ $24,140
Liabilities
Accounts Payable and Accrued Expenses$3,362$1,407▼ $1,955
Total Liabilities$3,362$1,407▼ $1,955
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$40,745$76,501▲ $35,756
Net Assets With Donor Restrictions$34,052$24,391▼ $9,661
Total Net Assets Fund Balance$74,797$100,892▲ $26,095
Total Liabilities and Net Assets / Fund Balance$78,159$102,299▲ $24,140
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Anne RugariTreasurerPT$15,200$15,200

Board Members and Trustees

NameTitle
Stacy Pike LangenfeldPresident
Carol OggDirector
David CooperDirector
Dawn LaneyDirector
Hina MalikDirector
Kevin CushmanDirector
Pat RobertsGlobal Liaison
Megan RenzeLegal Advisor
Wendy ZielenSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$112,222
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$-11,235
All Other Contributions
$17,520
Change in Net Assets
$26,095
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$74,892
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Information Technology-$6,922-$6,922
Conferences and Meetings$5,304--$5,304
Office Expenses-$2,328-$2,328
Advertising-$853-$853
Fees for Services Management-$700-$700
Other Expenses$6,735$200-$200
Total Functional Expenses$63,386$11,506$0$74,892
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$21,063
Fundraising Gross Income$9,828
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Million Dreams Gala$88,657-$8,379-
Super Bowl Challenge$4,320$4,320$378$3,942
Total Events$104,530$9,828$21,063$-11,235
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Form 990 is submitted to the full board for their review and discussion at a meeting prior to submission of the final return to the internal revenue service.

Form 990, Part VI, Section B, Line 12C

Krabbeconnect governence documents, which include a conflict of interest policy, are reviewed at an annual board meeting and retreat. Each member is required to sign an agreement that they will disclose any perceived, real, or potential conflicts that occur during the year to the board.

Form 990, Part VI, Section C, Line 19

Krabbeconnect's governing documents are made avaialble to the general public and may be obtained by written request.

Filing and Contact Details

Filer

Filer Name
Krabbeconnect
EIN
82-2964680
Phone
6512524117
Address
PO BOX 264, ROSEMOUNT, MN 55068

Signing Officer

Name
Anne Rugari
Title
Treasurer
Phone
8596401633
Signed
2021-07-20
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Anne Rugari
Formed
2017
Legal Domicile
Mn
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
21

Preparer

Firm
Soper Soper & Weinel Llp
Address
35 EAST SEVENTH STREET SUITE 505, CINCINNATI, OH 45202
Preparer
Jeff Bauer
Phone
5132415417
Raw XML Appendix380 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt03362
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt01407
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0853
IRS990/AdvertisingGrp/TotalAmt0853
IRS990/AllOtherContributionsAmt017520
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BooksInCareOfDetail/PersonNm0ANNE RUGARI
IRS990/BooksInCareOfDetail/PhoneNum08596401633
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt02531 ROYAL PINES CIRCLE UNIT 1
IRS990/BooksInCareOfDetail/USAddress/CityNm0CLEARWATER
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0FL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd033763
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt078159
IRS990/CashNonInterestBearingGrp/EOYAmt0102299
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt05304
IRS990/ConferencesMeetingsGrp/TotalAmt05304
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt094702
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0112222
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt074892
IRS990/CYOtherRevenueAmt0-11235
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt026095
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt074892
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0100987
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0PATIENT ENGAGEMENT: PROVIDING INFORMATION AND RESOURCES FOR KRABBE DISEASE THROUGH KRABBECONNECT WEBSITE, FACEBOOK, AND SOCIAL MEDIAL CHANNELS. ENGAGEMENT WITH FAMILIES AFFECTED BY THE DISEASE BY OFFERING SUPPORT AND CONNECTIONS FOR MANAGING CARE OF THE PATIENTS. RESOURCES INCLUDE CONTACT INFORMATION FOR CLINICAL EXPERTS, EXPERTS IN RESEARCH, CURRENT RESEARCH LITERATURE VIA THE RESOURCE LIBRARY, AND OPPORTUNITIES FOR CLINICAL TRIALS IN THE DISEASE SPACE. KRABBECONNECT ALSO INTERACTS WITH THE COMMUNITY THROUGH OUR INTERNATIONAL LIAISON, OUTREACH DIRECTOR AND PATIENT ENGAGEMENT MANAGER.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd01
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt034052
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt024391
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt06735
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt0700
IRS990/FeesForServicesManagementGrp/TotalAmt0700
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt10.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt30.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt40.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt710.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt810.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0MEGAN RENZE
IRS990/Form990PartVIISectionAGrp/PersonNm1PAT ROBERTS
IRS990/Form990PartVIISectionAGrp/PersonNm2DAVID COOPER
IRS990/Form990PartVIISectionAGrp/PersonNm3DAWN LANEY
IRS990/Form990PartVIISectionAGrp/PersonNm4HINA MALIK
IRS990/Form990PartVIISectionAGrp/PersonNm5CAROL OGG
IRS990/Form990PartVIISectionAGrp/PersonNm6KEVIN CUSHMAN
IRS990/Form990PartVIISectionAGrp/PersonNm7STACY PIKE LANGENFELD
IRS990/Form990PartVIISectionAGrp/PersonNm8ANNE RUGARI
IRS990/Form990PartVIISectionAGrp/PersonNm9WENDY ZIELEN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt815200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0LEGAL ADVISOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1GLOBAL LIAISON
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt9SECRETARY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02017
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt094702
IRS990/FundraisingDirectExpensesAmt021063
IRS990/FundraisingGrossIncomeAmt09828
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0122050
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt06922
IRS990/InformationTechnologyGrp/TotalAmt06922
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MN
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt074797
IRS990/NetAssetsOrFundBalancesEOYAmt0100892
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-11235
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-11235
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt040745
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt076501
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02328
IRS990/OfficeExpensesGrp/TotalAmt02328
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0RESEARCH
IRS990/OtherExpensesGrp/Desc1PATIENT ENGAGEMENT AND
IRS990/OtherExpensesGrp/Desc2INSURANCE
IRS990/OtherExpensesGrp/Desc3DUES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0503
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1200
IRS990/OtherExpensesGrp/ProgramServicesAmt051347
IRS990/OtherExpensesGrp/ProgramServicesAmt16735
IRS990/OtherExpensesGrp/TotalAmt051347
IRS990/OtherExpensesGrp/TotalAmt16735
IRS990/OtherExpensesGrp/TotalAmt2503
IRS990/OtherExpensesGrp/TotalAmt3200
IRS990/PartialLiquidationInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0ANNE RUGARI
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT ADVOCACY AND ADVANCEMENT: BOARD MEMBERS ROUTINELY ATTEND CONFERENCES AND MEETINGS THAT INVOLVE THE RARE DISEASE COMMUNITY TO SUPPORT THE NEEDS OF THE KRABBE PATIENTS AND THEIR FAMILIES. KRABBECONNECT ALSO PARTICIPATES IN NETWORKING OPPORTUNITIES WITH OTHER ADVOCACY FOUNDATIONS JOINING TOGETHER TO HAVE A VOICE FOR THE PATIENTS. KRABBECONNECT MAINTAINS MEMBERSHIP WITH SEVERAL LARGE ORGANIZATIONS, I.E. NORD, GLOBAL GENES, ULF, WORLD LYSOSOMAL STORAGE DISEASE TO ENHANCE THE ADVOCACY AND EDUCATION OF KRABBE DISEASE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt05304
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH AND DEVELOPMENT: KRABBECONNECT PRODUCED A POSTER TO DISCUSS THE PATIENT BURDEN OF KRABBE DISEASE. RESEARCH CONDUCTED TO COLLECT DATA FROM PATIENTS TO CAPTURE THE UNMET NEEDS IN THE KRABBE COMMUNITY. THE RESEARCH WILL SERVE AS A TOOL TO CLINICIANS, SCIENTISTS, RESEARCHERS, AND INDUSTRY TO HELP WITH THE ADVANCEMENT OF NEW NOVEL TREATMENTS IN THE KRABBE DISEASE SPACE. KRABBECONNECT IS WORKING TO CREATE A PATIENT REGISTRY AND PATIENT FOCUSED DRUG DEVELOPMENT MEETING WITH THE FDA TO SUPPORET RESEARCH AND ADVANCEMENTS IN TREATING KRABBE DISESASE.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt051347
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0166890
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt062462
IRS990/PYOtherRevenueAmt0-30615
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt073813
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt062462
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0136275
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt026095
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/First5Years509Ind0X
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0122050
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0166890
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0288940
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportTotal509Amt0288940
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0122050
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0166890
IRS990ScheduleA/Total509Grp/TotalAmt0288940
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0122050
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0166890
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0288940
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DisclosedForCharitablePrpsInd00
IRS990ScheduleD/DisclosedOrgLegCtrlInd00
IRS990ScheduleD/DonorAdvisedFundsContriAmt06045
IRS990ScheduleD/DonorAdvisedFundsGrantsAmt015706
IRS990ScheduleD/DonorAdvisedFundsHeldCnt02
IRS990ScheduleD/DonorAdvisedFundsVlEOYAmt024391
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt094702
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt088657
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt06045
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt021063
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0MILLION DREAMS GALA
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0SUPER BOWL CHALLENGE
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt088657
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt04320
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt011553
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0104530
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt04320
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt05508
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt09828
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-11235
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt02216
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt010973
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt08379
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt0378
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt05
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt010090
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt010090
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 IS SUBMITTED TO THE FULL BOARD FOR THEIR REVIEW AND DISCUSSION AT A MEETING PRIOR TO SUBMISSION OF THE FINAL RETURN TO THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1KRABBECONNECT GOVERNENCE DOCUMENTS, WHICH INCLUDE A CONFLICT OF INTEREST POLICY, ARE REVIEWED AT AN ANNUAL BOARD MEETING AND RETREAT. EACH MEMBER IS REQUIRED TO SIGN AN AGREEMENT THAT THEY WILL DISCLOSE ANY PERCEIVED, REAL, OR POTENTIAL CONFLICTS THAT OCCUR DURING THE YEAR TO THE BOARD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2KRABBECONNECT'S GOVERNING DOCUMENTS ARE MADE AVAIALBLE TO THE GENERAL PUBLIC AND MAY BE OBTAINED BY WRITTEN REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt078159
IRS990/TotalAssetsEOYAmt0102299
IRS990/TotalAssetsGrp/BOYAmt078159
IRS990/TotalAssetsGrp/EOYAmt0102299
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0112222
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt011506
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt063386
IRS990/TotalFunctionalExpensesGrp/TotalAmt074892
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt03362
IRS990/TotalLiabilitiesEOYAmt01407
IRS990/TotalLiabilitiesGrp/BOYAmt03362
IRS990/TotalLiabilitiesGrp/EOYAmt01407
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt074797
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0100892
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt063386
IRS990/TotalReportableCompFromOrgAmt015200
IRS990/TotalRevenueGrp/ExclusionAmt0-11235
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0100987
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt021
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt078159
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0102299
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt02531 ROYAL PINES CIRCLE UNIT 1
IRS990/USAddress/CityNm0CLEARWATER
IRS990/USAddress/StateAbbreviationCd0FL
IRS990/USAddress/ZIPCd033763
IRS990/VotingMembersGoverningBodyCnt010
IRS990/VotingMembersIndependentCnt010
IRS990/WebsiteAddressTxt0WWW.KRABBECONNECT.ORG
IRS990/WhistleblowerPolicyInd01
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd00
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0ANNE RUGARI
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum08596401633
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-07-20
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0KRABBECONNECT
ReturnHeader/Filer/BusinessNameControlTxt0KRAB
ReturnHeader/Filer/EIN0822964680
ReturnHeader/Filer/PhoneNum06512524117
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 264
ReturnHeader/Filer/USAddress/CityNm0ROSEMOUNT
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MN
ReturnHeader/Filer/USAddress/ZIPCd055068
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0311222293
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0SOPER SOPER & WEINEL LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt035 EAST SEVENTH STREET SUITE 505
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0CINCINNATI
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd045202
ReturnHeader/PreparerPersonGrp/PhoneNum05132415417
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JEFF BAUER
ReturnHeader/ReturnTs02021-07-20T15:45:21-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0ANNE
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0RUGARI
ReturnHeader/TaxPeriodBeginDt02020-01-01
ReturnHeader/TaxPeriodEndDt02020-12-31
ReturnHeader/TaxYr02020

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings