Civic Intelligence

Krabbe Connect

990 • Fiscal year 2022 • EIN 82-2964680

Jan 01, 2022 to Dec 31, 2022 • Filed on Jun 14, 2023

Organization ProfileWWW.KRABBECONNECT.ORG
PO Box 264Rosemount, MN 55068

(651) 252-4117

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

70th percentile

0.02x

Higher debt load relative to assets than 70% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

74th percentile

0.03x

Higher debt load relative to revenue than 74% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

88th percentile

47%

Higher net margin than 88% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

86th percentile

$24,350

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 12.1% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

85th percentile

54%

Faster asset growth than 85% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

67th percentile

35%

Faster revenue growth than 67% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets70th percentile

Assets

Up

$280,117

Up $97,929 (+54%) from 2021

Net Assets

Up

$274,183

Up $94,662 (+53%) from 2021

Liabilities

Up

$5,934

Up $3,267 (+122%) from 2021

Revenue And Expenses
Liabilities / Revenue74th percentileNet Margin88th percentile

Revenue

Up

$201,297

Up $51,833 (+35%) from 2021

Expenses

Up

$106,635

Up $35,800 (+51%) from 2021

Net Income

Up

$94,662

Up $16,033 (+20%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth85th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2019: $78,158Liabilities 2019: $3,361Net Assets 2019: $74,7972019Assets 2020: $102,299Liabilities 2020: $1,407Net Assets 2020: $100,8922020Assets 2021: $182,188Liabilities 2021: $2,667Net Assets 2021: $179,5212021Assets 2022: $280,117Liabilities 2022: $5,934Net Assets 2022: $274,1832022Assets 2023: $378,470Liabilities 2023: $1,447Net Assets 2023: $377,0232023Assets 2024: $507,394Liabilities 2024: $5,782Net Assets 2024: $501,6122024

Highlighted filing

2022

Assets$280,117
Liabilities$5,934
Net Assets$274,183
Open 2022 Filing

Operations Trend

Revenue Growth67th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$300K$200K$100K$0Revenue 2019: $134,092Expenses 2019: $73,281Net Income 2019: $60,8112019Revenue 2020: $100,987Expenses 2020: $74,892Net Income 2020: $26,0952020Revenue 2021: $149,464Expenses 2021: $70,835Net Income 2021: $78,6292021Revenue 2022: $201,297Expenses 2022: $106,635Net Income 2022: $94,6622022Revenue 2023: $295,064Expenses 2023: $192,224Net Income 2023: $102,8402023Revenue 2024: $314,070Expenses 2024: $189,329Net Income 2024: $124,7412024

Highlighted filing

2022

Revenue$201,297
Expenses$106,635
Net Income$94,662
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Jun 14, 2023
Return Version
2022v5.0
Gross Receipts
$285,202
Mission and Program Overview

Mission

Krabbeconnect will be the source of comprehensive information and access to resources for families with krabbe disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$174,688$276,235▲ $101,547
Prepaid Expenses and Deferred Charges$7,500$3,881▼ $3,619
Total Assets$182,188$280,117▲ $97,929
Liabilities
Accounts Payable and Accrued Expenses$2,667$5,934▲ $3,267
Total Liabilities$2,667$5,934▲ $3,267
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$115,474$174,710▲ $59,236
Net Assets With Donor Restrictions$64,047$99,473▲ $35,426
Total Net Assets Fund Balance$179,521$274,183▲ $94,662
Total Liabilities and Net Assets / Fund Balance$182,188$280,117▲ $97,929
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Anne RugariVice President/treasurerPT$24,350$24,350

Board Members and Trustees

NameTitle
Stacy Pike LangenfeldPresident
Carol OggDirector
David CooperDirector
Dawn LaneyDirector
Hina MalikDirector
Kasey FeldtDirector
Lesa BrackbillDirector
Mary MeisnerDirector
Megan RenzeLegal Advisor
Wendy ZielenSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$255,296
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$-53,999
All Other Contributions
$24,272
Change in Net Assets
$94,662
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$106,635
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management-$30,950-$30,950
Conferences and Meetings$13,296$12,663-$25,959
Information Technology-$15,164-$15,164
Office Expenses-$1,943-$1,943
Fees for Services Accounting-$1,200-$1,200
Advertising-$1,000-$1,000
Other Expenses$12,255$558-$558
Travel-$245-$245
Total Functional Expenses$42,232$64,403$0$106,635
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$83,905
Fundraising Gross Income$29,906
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Million Dreams Gala$184,270-$47,522-
Super Bowl Challenge$7,485$7,485$952$6,533
Total Events$260,930$29,906$83,905$-53,999
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 is submitted to the full board for their review and discussion at a meeting prior to submission of the final return to the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“Krabbeconnect governence documents, which include a conflict of interest policy, are reviewed at an annual board meeting and retreat. Each member is required to sign an agreement that they will disclose any perceived, real, or potential conflicts that occur during the year to the board.”

Form 990, Part VI, Section C, Line 19

“Krabbeconnect's governing documents are made avaialble to the general public and may be obtained by written request.”

Filing and Contact Details

Filer

Filer Name
Krabbeconnect
EIN
82-2964680
Phone
6512524117
Address
PO BOX 264, ROSEMOUNT, MN 55068

Signing Officer

Name
Stacy Pike-lagenfeld
Title
President
Phone
6123873424
Signed
2023-06-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stacy Pike-langenfeld
Formed
2017
Legal Domicile
Mn
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
0

Preparer

Firm
Soper Soper & Weinel Llp
Address
35 EAST SEVENTH STREET SUITE 505, CINCINNATI, OH 45202
Preparer
Jeff Bauer
Phone
5132415417
Raw XML AppendixShowing 400 of 403 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt02667
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt05934
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01000
IRS990/AdvertisingGrp/TotalAmt01000
IRS990/AllOtherContributionsAmt024272
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BooksInCareOfDetail/PersonNm0STACY PIKE-LAGENFELD
IRS990/BooksInCareOfDetail/PhoneNum06512524117
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 264
IRS990/BooksInCareOfDetail/USAddress/CityNm0ROSEMOUNT
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MN
IRS990/BooksInCareOfDetail/USAddress/ZIPCd055068
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0174688
IRS990/CashNonInterestBearingGrp/EOYAmt0276235
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt012663
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt013296
IRS990/ConferencesMeetingsGrp/TotalAmt025959
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0231024
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0255296
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0106635
IRS990/CYOtherRevenueAmt0-53999
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt094662
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0106635
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0201297
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0PATIENT ENGAGEMENT: PROVIDING INFORMATION AND RESOURCES FOR KRABBE DISEASE THROUGH KRABBECONNECT WEBSITE, FACEBOOK, AND SOCIAL MEDIAL CHANNELS. ENGAGEMENT WITH FAMILIES AFFECTED BY THE DISEASE BY OFFERING SUPPORT AND CONNECTIONS FOR MANAGING CARE OF THE PATIENTS. RESOURCES INCLUDE CONTACT INFORMATION FOR CLINICAL EXPERTS, EXPERTS IN RESEARCH, CURRENT RESEARCH LITERATURE VIA THE RESOURCE LIBRARY, AND OPPORTUNITIES FOR CLINICAL TRIALS IN THE DISEASE SPACE. KRABBECONNECT ALSO INTERACTS WITH THE COMMUNITY THROUGH OUR INTERNATIONAL LIAISON, OUTREACH DIRECTOR AND PATIENT ENGAGEMENT MANAGER.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd01
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt064047
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt099473
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt016681
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt01200
IRS990/FeesForServicesAccountingGrp/TotalAmt01200
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt030950
IRS990/FeesForServicesManagementGrp/TotalAmt030950
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt02.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt13.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt53.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt814.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt99.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/PersonNm0MEGAN RENZE
IRS990/Form990PartVIISectionAGrp/PersonNm1DAVID COOPER
IRS990/Form990PartVIISectionAGrp/PersonNm2DAWN LANEY
IRS990/Form990PartVIISectionAGrp/PersonNm3HINA MALIK
IRS990/Form990PartVIISectionAGrp/PersonNm4CAROL OGG
IRS990/Form990PartVIISectionAGrp/PersonNm5MARY MEISNER
IRS990/Form990PartVIISectionAGrp/PersonNm6KASEY FELDT
IRS990/Form990PartVIISectionAGrp/PersonNm7LESA BRACKBILL
IRS990/Form990PartVIISectionAGrp/PersonNm8STACY PIKE LANGENFELD
IRS990/Form990PartVIISectionAGrp/PersonNm9ANNE RUGARI
IRS990/Form990PartVIISectionAGrp/PersonNm10WENDY ZIELEN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt924350
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0LEGAL ADVISOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9VICE PRESIDENT/TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt10SECRETARY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02017
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0231024
IRS990/FundraisingDirectExpensesAmt083905
IRS990/FundraisingGrossIncomeAmt029906
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0285202
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt015164
IRS990/InformationTechnologyGrp/TotalAmt015164
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MN
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0179521
IRS990/NetAssetsOrFundBalancesEOYAmt0274183
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-53999
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-53999
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0115474
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0174710
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01943
IRS990/OfficeExpensesGrp/TotalAmt01943
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0PATIENT ENGAGEMENT AND
IRS990/OtherExpensesGrp/Desc1RESEARCH
IRS990/OtherExpensesGrp/Desc2DUES
IRS990/OtherExpensesGrp/Desc3INSURANCE
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0680
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1558
IRS990/OtherExpensesGrp/ProgramServicesAmt016681
IRS990/OtherExpensesGrp/ProgramServicesAmt112255
IRS990/OtherExpensesGrp/TotalAmt016681
IRS990/OtherExpensesGrp/TotalAmt112255
IRS990/OtherExpensesGrp/TotalAmt2680
IRS990/OtherExpensesGrp/TotalAmt3558
IRS990/PartialLiquidationInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt07500
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03881
IRS990/PrincipalOfficerNm0STACY PIKE-LANGENFELD
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT ADVOCACY AND ADVANCEMENT: BOARD MEMBERS ROUTINELY ATTEND CONFERENCES AND MEETINGS THAT INVOLVE THE RARE DISEASE COMMUNITY TO SUPPORT THE NEEDS OF THE KRABBE PATIENTS AND THEIR FAMILIES. KRABBECONNECT ALSO PARTICIPATES IN NETWORKING OPPORTUNITIES WITH OTHER ADVOCACY FOUNDATIONS JOINING TOGETHER TO HAVE A VOICE FOR THE PATIENTS. KRABBECONNECT MAINTAINS MEMBERSHIP WITH SEVERAL LARGE ORGANIZATIONS, I.E. NORD, GLOBAL GENES, ULF, WORLD LYSOSOMAL STORAGE DISEASE TO ENHANCE THE ADVOCACY AND EDUCATION OF KRABBE DISEASE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt012040
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH AND DEVELOPMENT: KRABBECONNECT PRODUCED A POSTER TO DISCUSS THE PATIENT BURDEN OF KRABBE DISEASE. RESEARCH CONDUCTED TO COLLECT DATA FROM PATIENTS TO CAPTURE THE UNMET NEEDS IN THE KRABBE COMMUNITY. THE RESEARCH WILL SERVE AS A TOOL TO CLINICIANS, SCIENTISTS, RESEARCHERS, AND INDUSTRY TO HELP WITH THE ADVANCEMENT OF NEW NOVEL TREATMENTS IN THE KRABBE DISEASE SPACE. KRABBECONNECT IS WORKING TO CREATE A PATIENT REGISTRY AND PATIENT FOCUSED DRUG DEVELOPMENT MEETING WITH THE FDA TO SUPPORET RESEARCH AND ADVANCEMENTS IN TREATING KRABBE DISESASE.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt012255
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt01256
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0178198
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt070835
IRS990/PYOtherRevenueAmt0-28734
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt078629
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt070835
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0149464
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt094662
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0285202
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0202896
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0122050
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0166890
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0777038
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01.00000
IRS990ScheduleA/PublicSupportPY509Pct01.00000
IRS990ScheduleA/PublicSupportTotal509Amt0777038
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0285202
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0202896
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0122050
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0166890
IRS990ScheduleA/Total509Grp/TotalAmt0777038
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0285202
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0202896
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0122050
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0166890
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0777038
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DisclosedForCharitablePrpsInd00
IRS990ScheduleD/DisclosedOrgLegCtrlInd00
IRS990ScheduleD/DonorAdvisedFundsContriAmt046754
IRS990ScheduleD/DonorAdvisedFundsHeldCnt05
IRS990ScheduleD/DonorAdvisedFundsVlEOYAmt054473
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0231024
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0184270
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt046754
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt083905
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0MILLION DREAMS GALA
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0SUPER BOWL CHALLENGE
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0184270
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt07485
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt069175
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0260930
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt07485
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt022421
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt029906
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-53999
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt035431
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt083905
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt047522
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt0952
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt010
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 IS SUBMITTED TO THE FULL BOARD FOR THEIR REVIEW AND DISCUSSION AT A MEETING PRIOR TO SUBMISSION OF THE FINAL RETURN TO THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1KRABBECONNECT GOVERNENCE DOCUMENTS, WHICH INCLUDE A CONFLICT OF INTEREST POLICY, ARE REVIEWED AT AN ANNUAL BOARD MEETING AND RETREAT. EACH MEMBER IS REQUIRED TO SIGN AN AGREEMENT THAT THEY WILL DISCLOSE ANY PERCEIVED, REAL, OR POTENTIAL CONFLICTS THAT OCCUR DURING THE YEAR TO THE BOARD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2KRABBECONNECT'S GOVERNING DOCUMENTS ARE MADE AVAIALBLE TO THE GENERAL PUBLIC AND MAY BE OBTAINED BY WRITTEN REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0182188
IRS990/TotalAssetsEOYAmt0280117
IRS990/TotalAssetsGrp/BOYAmt0182188
IRS990/TotalAssetsGrp/EOYAmt0280117
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0255296
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt064403
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt042232
IRS990/TotalFunctionalExpensesGrp/TotalAmt0106635
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt02667
IRS990/TotalLiabilitiesEOYAmt05934
IRS990/TotalLiabilitiesGrp/BOYAmt02667
IRS990/TotalLiabilitiesGrp/EOYAmt05934
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0179521
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0274183
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt01256
IRS990/TotalProgramServiceExpensesAmt042232
IRS990/TotalReportableCompFromOrgAmt024350
IRS990/TotalRevenueGrp/ExclusionAmt0-53999
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0201297
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0182188
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0280117
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt0245
IRS990/TravelGrp/TotalAmt0245
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO BOX 264
IRS990/USAddress/CityNm0ROSEMOUNT
IRS990/USAddress/StateAbbreviationCd0MN
IRS990/USAddress/ZIPCd055068
IRS990/VotingMembersGoverningBodyCnt010
IRS990/VotingMembersIndependentCnt010
IRS990/WebsiteAddressTxt0WWW.KRABBECONNECT.ORG
IRS990/WhistleblowerPolicyInd01
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd02
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0STACY PIKE-LAGENFELD
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum06123873424
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-06-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0KRABBECONNECT
ReturnHeader/Filer/BusinessNameControlTxt0KRAB
ReturnHeader/Filer/EIN0822964680
ReturnHeader/Filer/PhoneNum06512524117
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 264
ReturnHeader/Filer/USAddress/CityNm0ROSEMOUNT
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MN
ReturnHeader/Filer/USAddress/ZIPCd055068
ReturnHeader/IRSResponsiblePrtyInfoCurrInd00
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0311222293
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0SOPER SOPER & WEINEL LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt035 EAST SEVENTH STREET SUITE 505
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0CINCINNATI
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd045202
ReturnHeader/PreparerPersonGrp/PhoneNum05132415417
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JEFF BAUER
ReturnHeader/ReturnTs02023-07-24T10:17:32-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0STACY
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0PIKE-LAGENFELD

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$280,117
Liabilities
$5,934
Net assets
$274,183
Revenue
$201,297
Expenses
$106,635
Net income
$94,662
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.07$0.06$5.02$3.14$1.89$1.25
2023Detailed filing. Detailed filing data is available for this year.$3.78$0.01$3.77$2.95$1.92$1.03
2022Detailed filing. Detailed filing data is available for this year.$2.80$0.06$2.74$2.01$1.07$0.95
2021Detailed filing. Detailed filing data is available for this year.$1.82$0.03$1.80$1.49$0.71$0.79
2020Detailed filing. Detailed filing data is available for this year.$1.02$0.01$1.01$1.01$0.75$0.26
2019Summary only. Only limited summary data is available for this year.$0.78$0.03$0.75$1.34$0.73$0.61