Civic Intelligence

VIVLI Inc.

990 • Fiscal year 2021 • EIN 81-4368586

Jan 01, 2021 to Dec 31, 2021 • Filed on Nov 04, 2022

Organization ProfileVIVLI.ORG
14 Story Street 4th FloorCambridge, MA 02138

(978) 804-4980

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.17x

Higher debt load relative to assets than 57% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Liabilities / Revenue

59th percentile

0.23x

Higher debt load relative to revenue than 59% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Net Margin

87th percentile

52%

Higher net margin than 87% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Top Officer Pay

86th percentile

$266,780

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 4.4% of source-year revenue.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Asset Growth

94th percentile

86%

Faster asset growth than 94% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Revenue Growth

90th percentile

117%

Faster revenue growth than 90% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets57th percentile

Assets

Up

$8,179,983

Up $3,781,302 (+86%) from 2020

Net Assets

Up

$6,775,160

Up $3,099,088 (+84%) from 2020

Liabilities

Up

$1,404,823

Up $682,214 (+94%) from 2020

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin87th percentile

Revenue

Up

$6,030,172

Up $3,248,530 (+117%) from 2020

Expenses

Up

$2,895,959

Up $787,169 (+37%) from 2020

Net Income

Up

$3,134,213

Up $2,461,361 (+366%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth94th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2017: $2,586,040Liabilities 2017: $171,040Net Assets 2017: $2,415,0002017Assets 2018: $3,852,276Liabilities 2018: $477,826Net Assets 2018: $3,374,4502018Assets 2019: $3,394,783Liabilities 2019: $391,563Net Assets 2019: $3,003,2202019Assets 2020: $4,398,681Liabilities 2020: $722,609Net Assets 2020: $3,676,0722020Assets 2021: $8,179,983Liabilities 2021: $1,404,823Net Assets 2021: $6,775,1602021Assets 2022: $9,263,321Liabilities 2022: $1,308,270Net Assets 2022: $7,955,0512022Assets 2023: $9,940,323Liabilities 2023: $1,567,875Net Assets 2023: $8,372,4482023Assets 2024: $10,639,471Liabilities 2024: $1,451,137Net Assets 2024: $9,188,3342024

Highlighted filing

2021

Assets$8,179,983
Liabilities$1,404,823
Net Assets$6,775,160
Open 2021 Filing

Operations Trend

Revenue Growth90th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MRevenue 2017: $3,311,980Expenses 2017: $896,980Net Income 2017: $2,415,0002017Revenue 2018: $2,077,881Expenses 2018: $1,118,431Net Income 2018: $959,4502018Revenue 2019: $1,421,923Expenses 2019: $1,793,153Net Income 2019: -$371,2302019Revenue 2020: $2,781,642Expenses 2020: $2,108,790Net Income 2020: $672,8522020Revenue 2021: $6,030,172Expenses 2021: $2,895,959Net Income 2021: $3,134,2132021Revenue 2022: $5,206,066Expenses 2022: $4,031,230Net Income 2022: $1,174,8362022Revenue 2023: $5,188,320Expenses 2023: $4,783,207Net Income 2023: $405,1132023Revenue 2024: $6,896,288Expenses 2024: $6,100,502Net Income 2024: $795,7862024

Highlighted filing

2021

Revenue$6,030,172
Expenses$2,895,959
Net Income$3,134,213
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Nov 4, 2022
Return Version
2021v4.2
Gross Receipts
$6,030,172
Mission and Program Overview

Mission

To promote, coordinate, and facilitate scientific sharing and reuse of clinical research data through the creation and implementation of a sustainable global data-sharing enterprise

Balance Sheet Detail
LineBeginningEndChange
Assets
Intangible Assets$2,124,956$3,868,106▲ $1,743,150
Savings and Temporary Cash Investments$287,846$1,688,148▲ $1,400,302
Pledges and Grants Receivable-$1,259,545-
Cash and Non-Interest-Bearing Accounts$1,617,206$1,242,654▼ $374,552
Accounts Receivable$334,593$77,398▼ $257,195
Prepaid Expenses and Deferred Charges-$35,606-
Land, Buildings, and Equipment, Net$11,239$8,526▼ $2,713
Total Assets$4,398,681$8,179,983▲ $3,781,302
Other Assets Total$22,841--
Liabilities
Accounts Payable and Accrued Expenses$241,347$742,655▲ $501,308
Deferred Revenue$481,262$662,168▲ $180,906
Total Liabilities$722,609$1,404,823▲ $682,214
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,436,692$5,579,262▲ $2,142,570
Net Assets With Donor Restrictions$239,380$1,195,898▲ $956,518
Total Net Assets Fund Balance$3,676,072$6,775,160▲ $3,099,088
Total Liabilities and Net Assets / Fund Balance$4,398,681$8,179,983▲ $3,781,302

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$8,526$8,591$17,117
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Rebecca LiExec. Dir/clerk/directorFT$252,146$14,634$266,780
Stanley NeumannDirector of Technical OperationsFT$161,297$38,709$200,006
Julie WoodDirector of Strategy & OperationsFT$167,914$9,992$177,906
CATHERINE D'ARCYProject ManagerFT$102,463$12,326$114,789
Ida SimDirector/consultant-$36,000-$36,000

Board Members and Trustees

NameTitle
Michael StebbinsBoard Chair/director
Barbara BiererDirector
Eric PerakslisDirector
Fiona Godlee Resigned 101821Director
Justin MccarthyDirector
Murray StewartTreasurer/director

Highest Paid Contractors

ContractorServicesLocationCompensation
Insight Direct USASoftware Platform Development And Suppor9 GALEN ST 300, Watertown, MA 02472$2,103,590
Barrington Wright Associates INCAccounting & Financial Management5 BRINY WAY, Rockport, MA 01966$107,695
Revenue and Support

Revenue Composition

Contributions and Grants
$4,010,527
Program Service Revenue
$2,019,294
Investment Income
$351
Other Revenue
$0
All Other Contributions
$4,010,527
Change in Net Assets
$3,134,213

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,995,047
Revenue Not Reported on Financial Statements
$35,125
Revenue Not Reported on Form 990
$190,055
Other Revenue Adjustments
$35,125
Total Revenue per Audited Statements
$6,185,102
Total Revenue per Form 990
$6,030,172
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,021,166
Salaries, Compensation, and Employee Benefits$874,793
Total Fundraising Expense$148,578
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Information Technology$834,476--$834,476
Depreciation Depletion$717,445--$717,445
Other Salaries and Wages$404,329$15,099$43,601$463,029
Current Officers, Directors, Trustees, and Key Employees$173,341$55,614$62,025$290,980
Fees for Services Accounting-$154,618-$154,618
Fees for Services Other$82,482--$82,482
Other Employee Benefits$42,947$5,089$8,177$56,213
Advertising$40,370-$15,802$56,172
Payroll Taxes$34,067$4,208$6,622$44,897
Office Expenses$37,429$2,147$3,257$42,833
Other Expenses$31,044$3,944$5,983$40,971
Pension Plan Contributions$16,864$743$2,067$19,674
Insurance$5,448$387$587$6,422
Fees for Services Legal$5,830--$5,830
Travel$365$84$457$906
Total Functional Expenses$2,505,448$241,933$148,578$2,895,959

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,086,014
Expenses per Audited Statements$2,895,959
Total Expenses per Form 990$2,895,959
Expenses Not Reported on Form 990$190,055
Expenses Not Reported on Financial Statements$0
International Activity

International Summary

Offices
0
Employees
4
Spending
$235,424

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumProgram ServicesPAYMENTS TO INDEPENDENT CONTRACTORS TO PERFORM THE FOLLWING:1) SOFTWARE PLATFORM QUALITY CONTROL SERVICES; 2) TO HAVE AN INDEPENDENT REVIEW PANEL EVALUATE REQUESTS FOR CLINICAL DATA STUDIES; 3) VENDOR RISK MANAGEMENT & ANNUAL LICENSE FEE TO MINT ID NUMBERS FOR MEMBER DATA STUDIES00$116,135
Europe (including Iceland & Greenland)FundraisingN/a00$114,789
Europe (including Iceland & Greenland)Payments to External Advisory Committee MembersN/a02$3,000
North AmericaPayments to External Advisory Committee MembersN/a01$1,500
East Asia and the PacificFundraisingN/a00-
Europe (including Iceland & Greenland)SALARY & BENEFITS PAID TO FOREIGN EMPLOYEE WHO SPENDS 100% OF TIME IN THIS REGIONN/a01-
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Ida SimDirector of the OrganizationIndependent Contractor Arrangement for Technical ServicesNo$36,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“There are no committees with authority to act on behalf of the governing body. All matters are acted upon by the full board.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the executive director, treasurer and contracted cfo. The executive director will then recommend that the board approve the 990. Once approved, it will be filed.”

Form 990, Part VI, Section B, Line 12C

“Any actual or potential conflict of interest between an employee of vivli and a competitor, supplier, distributor, or contractor to vivli, must be disclosed by the employee to their manager. If an actual or potential conflict of interest is determined to exist, vivli will take such steps as it deems necessary to reduce or eliminate this conflict.”

Form 990, Part VI, Section B, Line 15A

“The executive director's compensation is commensurate with similar positions at non-profit science organizations requiring advanced degrees and work experience. While the vivli board did not formally document comparability data for the position. The board has substantial familiarity with compensation for similar positions, reviews comparative compensation on an ongoing basis, and are confident that the package is appropriate and comparable to similar positions at other non-profit entities. The process for approval was discussed with murray stewart who is treasurer and director on the board of vivli and was supported by the chair and the board of vivli”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, conflict of interest policy, and financial statements are open to public inspection upon request.”

Form 990, Part V, Line 2A & Part VII, Line 1A

“The organization had 12 employees who were paid by a professional employer organization (peo) for the calendar year ended december 31, 2021. The peo filed payroll tax returns and w-2's for this organization under its own employer identification number and is the employer of record for tax purposes.”

Filing and Contact Details

Filer

Filer Name
Vivli Inc
EIN
81-4368586
Phone
9788044980
Address
14 STORY STREET 4TH FLOOR, CAMBRIDGE, MA 02138

Signing Officer

Name
Rebecca Li
Title
Executive Director/director
Phone
9788044980
Signed
2022-11-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Rebecca Li
Formed
2016
Legal Domicile
Ma
Voting Board Members
7
Independent Board Members
5
Employees
12
Volunteers
0

Preparer

Firm
Edelstein and Company Llp
Address
160 FEDERAL STREET 9TH FLOOR, BOSTON, MA 02110
Preparer
Eugene Borgonzi
Phone
6172276161
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Loss on uncollectibale receivable -35,125.”

Financial Statement Notes

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Loss on uncollectible receivable 35,125.”

Raw XML AppendixShowing 400 of 589 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0241347
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0742655
IRS990/AccountsReceivableGrp/BOYAmt0334593
IRS990/AccountsReceivableGrp/EOYAmt077398
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO PROMOTE, COORDINATE, AND FACILITATE SCIENTIFIC SHARING AND REUSE OF CLINICAL RESEARCH DATA THROUGH THE CREATION AND IMPLEMENTATION OF A SUSTAINABLE GLOBAL DATA-SHARING ENTERPRISE
IRS990/AdvertisingGrp/FundraisingAmt015802
IRS990/AdvertisingGrp/ProgramServicesAmt040370
IRS990/AdvertisingGrp/TotalAmt056172
IRS990/AllOtherContributionsAmt04010527
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BooksInCareOfDetail/PersonNm0REBECCA LI
IRS990/BooksInCareOfDetail/PhoneNum09788044980
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt014 STORY STREET 4TH FLOOR
IRS990/BooksInCareOfDetail/USAddress/CityNm0CAMBRIDGE
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd002138
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd01
IRS990/CashNonInterestBearingGrp/BOYAmt01617206
IRS990/CashNonInterestBearingGrp/EOYAmt01242654
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt02
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt062025
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt055614
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0173341
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0290980
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd00
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContractorCompensationGrp/CompensationAmt02103590
IRS990/ContractorCompensationGrp/CompensationAmt1107695
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt09 GALEN ST 300
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt15 BRINY WAY
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm0WATERTOWN
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm1ROCKPORT
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd0MA
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd1MA
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd002472
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd101966
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt0INSIGHT DIRECT USA
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt1BARRINGTON WRIGHT ASSOCIATES INC
IRS990/ContractorCompensationGrp/ServicesDesc0SOFTWARE PLATFORM DEVELOPMENT AND SUPPOR
IRS990/ContractorCompensationGrp/ServicesDesc1ACCOUNTING & FINANCIAL MANAGEMENT
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt04010527
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt0351
IRS990/CYOtherExpensesAmt02021166
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt02019294
IRS990/CYRevenuesLessExpensesAmt03134213
IRS990/CYSalariesCompEmpBnftPaidAmt0874793
IRS990/CYTotalExpensesAmt02895959
IRS990/CYTotalFundraisingExpenseAmt0148578
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt06030172
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt0481262
IRS990/DeferredRevenueGrp/EOYAmt0662168
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ProgramServicesAmt0717445
IRS990/DepreciationDepletionGrp/TotalAmt0717445
IRS990/Desc0THE ORGANIZATION HAS ESTABLISHED AND LAUNCHED AN INDEPENDENT DATA REPOSITORY ANALYTICS PLATFORM AND AN IN-DEPTH SEARCH ENGINE THROUGH WHICH INDIVIDUAL PARTICIPANT-LEVEL DATA (IPD) AND METADATA FROM CLINICAL TRIALS CONDUCTED BY RESEARCHERS IN ACADEMIA, INDUSTRY, FOUNDATION, AND NON-PROFIT ENTITIES CAN BE IDENTIFIED, HOSTED, SHARED, AND ANALYZED. THE ORGANIZATION DERIVES ITS PRIMARY REVENUE FROM SUBSCRIPTION FEES AND ALSO IS SUPPORTED FROM GRANTS AND CONTRIBUTIONS FROM MEMBERS AND PRIVATE FOUNDATIONS.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0239380
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt01195898
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt012
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt02505448
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt0154618
IRS990/FeesForServicesAccountingGrp/TotalAmt0154618
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt05830
IRS990/FeesForServicesLegalGrp/TotalAmt05830
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt082482
IRS990/FeesForServicesOtherGrp/TotalAmt082482
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd01
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt840.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt940.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1040.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt113860
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt89812
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt935001
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1012326
IRS990/Form990PartVIISectionAGrp/PersonNm0BARBARA BIERER
IRS990/Form990PartVIISectionAGrp/PersonNm1REBECCA LI
IRS990/Form990PartVIISectionAGrp/PersonNm2MICHAEL STEBBINS
IRS990/Form990PartVIISectionAGrp/PersonNm3MURRAY STEWART
IRS990/Form990PartVIISectionAGrp/PersonNm4ERIC PERAKSLIS
IRS990/Form990PartVIISectionAGrp/PersonNm5JUSTIN MCCARTHY
IRS990/Form990PartVIISectionAGrp/PersonNm6IDA SIM
IRS990/Form990PartVIISectionAGrp/PersonNm7FIONA GODLEE RESIGNED 101821
IRS990/Form990PartVIISectionAGrp/PersonNm8JULIE WOOD
IRS990/Form990PartVIISectionAGrp/PersonNm9STANLEY NEUMANN
IRS990/Form990PartVIISectionAGrp/PersonNm10CATHERINE D'ARCY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1252920
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt636000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8168094
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt9165005
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10102463
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1EXEC. DIR/CLERK/DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD CHAIR/DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER/DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR/CONSULTANT
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR OF STRATEGY & OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR OF TECHNICAL OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt10PROJECT MANAGER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02016
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GrantAmt00
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt06030172
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt05
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt0834476
IRS990/InformationTechnologyGrp/TotalAmt0834476
IRS990/InsuranceGrp/FundraisingAmt0587
IRS990/InsuranceGrp/ManagementAndGeneralAmt0387
IRS990/InsuranceGrp/ProgramServicesAmt05448
IRS990/InsuranceGrp/TotalAmt06422
IRS990/IntangibleAssetsGrp/BOYAmt02124956
IRS990/IntangibleAssetsGrp/EOYAmt03868106
IRS990/InvestmentIncomeGrp/ExclusionAmt0351
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0351
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt08591
IRS990/LandBldgEquipBasisNetGrp/BOYAmt011239
IRS990/LandBldgEquipBasisNetGrp/EOYAmt08526
IRS990/LandBldgEquipCostOrOtherBssAmt017117
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO PROMOTE, COORDINATE, AND FACILITATE SCIENTIFIC SHARING AND REUSE OF CLINICAL RESEARCH DATA THROUGH THE CREATION AND IMPLEMENTATION OF A SUSTAINABLE GLOBAL DATA-SHARING ENTERPRISE
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt03676072
IRS990/NetAssetsOrFundBalancesEOYAmt06775160
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt03436692
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt05579262
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt03257
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02147
IRS990/OfficeExpensesGrp/ProgramServicesAmt037429
IRS990/OfficeExpensesGrp/TotalAmt042833
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt022841
IRS990/OtherChangesInNetAssetsAmt0-35125
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt08177
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt05089
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt042947
IRS990/OtherEmployeeBenefitsGrp/TotalAmt056213
IRS990/OtherExpensesGrp/Desc0RECRUITING EXPENSE
IRS990/OtherExpensesGrp/Desc1DATA LICENSES
IRS990/OtherExpensesGrp/FundraisingAmt05983
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03944
IRS990/OtherExpensesGrp/ProgramServicesAmt079011
IRS990/OtherExpensesGrp/ProgramServicesAmt131044
IRS990/OtherExpensesGrp/TotalAmt079011
IRS990/OtherExpensesGrp/TotalAmt140971
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt043601
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt015099
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0404329
IRS990/OtherSalariesAndWagesGrp/TotalAmt0463029
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt06622
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04208
IRS990/PayrollTaxesGrp/ProgramServicesAmt034067
IRS990/PayrollTaxesGrp/TotalAmt044897
IRS990/PensionPlanContributionsGrp/FundraisingAmt02067
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0743
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt016864
IRS990/PensionPlanContributionsGrp/TotalAmt019674
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt01259545
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt035606
IRS990/PrincipalOfficerNm0REBECCA LI
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0MEMBERSHIP DUES
IRS990/ProgramServiceRevenueGrp/Desc1MEMBERSHIP SERVICE FEE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01869032
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1150262
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01869032
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1150262
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01415135
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt01485
IRS990/PYOtherExpensesAmt01236649
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt01365022
IRS990/PYRevenuesLessExpensesAmt0672852
IRS990/PYSalariesCompEmpBnftPaidAmt0872141
IRS990/PYTotalExpensesAmt02108790
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02781642
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt03134213
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt02019294
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0287846
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01688148
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt04010527
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01415135
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0809832
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01900000
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03311980
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt011447474
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0351
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01485
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt011911
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt04549
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt018296
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt04122397
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.37880
IRS990ScheduleA/PublicSupportPY170Pct00.30820
IRS990ScheduleA/PublicSupportTotal170Amt04343422
IRS990ScheduleA/SubstantialContributorsTotAmt07104052
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt04010527
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01415135
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0809832
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01900000
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt03311980
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt011447474
IRS990ScheduleA/TotalSupportAmt011465770
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0190055
IRS990ScheduleD/DonatedServicesUseFcltsAmt0190055
IRS990ScheduleD/EquipmentGrp/BookValueAmt08526
IRS990ScheduleD/EquipmentGrp/DepreciationAmt08591
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt017117
IRS990ScheduleD/ExpensesNotReportedAmt0190055
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt02895959
IRS990ScheduleD/OtherRevenuesNotIncludedAmt035125
IRS990ScheduleD/RevenueNotReportedAmt0190055
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt035125
IRS990ScheduleD/RevenueSubtotalAmt05995047
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0LOSS ON UNCOLLECTIBLE RECEIVABLE 35,125.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART XI, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt08526
IRS990ScheduleD/TotalExpensesPerForm990Amt02895959
IRS990ScheduleD/TotalRevenuePerForm990Amt06030172
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt06185102
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt03086014
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt12
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt21
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt30
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt40
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt51
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt20
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt30
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt40
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt50
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt0116135
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt13000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt21500
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt3114789
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt2NORTH AMERICA
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt3EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt4EAST ASIA AND THE PACIFIC
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt5EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0PAYMENTS TO INDEPENDENT CONTRACTORS TO PERFORM THE FOLLWING:1) SOFTWARE PLATFORM QUALITY CONTROL SERVICES; 2) TO HAVE AN INDEPENDENT REVIEW PANEL EVALUATE REQUESTS FOR CLINICAL DATA STUDIES; 3) VENDOR RISK MANAGEMENT & ANNUAL LICENSE FEE TO MINT ID NUMBERS FOR MEMBER DATA STUDIES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1N/A
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt2N/A
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt3N/A
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt4N/A
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt5N/A
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1PAYMENTS TO EXTERNAL ADVISORY COMMITTEE MEMBERS
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt2PAYMENTS TO EXTERNAL ADVISORY COMMITTEE MEMBERS
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt3FUNDRAISING
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt4FUNDRAISING
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt5SALARY & BENEFITS PAID TO FOREIGN EMPLOYEE WHO SPENDS 100% OF TIME IN THIS REGION
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,179,983
Liabilities
$1,404,823
Net assets
$6,775,160
Revenue
$6,030,172
Expenses
$2,895,959
Net income
$3,134,213
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.45$9.19$6.90$6.10$0.80
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.94$1.57$8.37$5.19$4.78$0.41
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.26$1.31$7.96$5.21$4.03$1.17
2021Detailed filing. Detailed filing data is available for this year.$8.18$1.40$6.78$6.03$2.90$3.13
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.40$0.72$3.68$2.78$2.11$0.67
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.39$0.39$3.00$1.42$1.79$0.37
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.85$0.48$3.37$2.08$1.12$0.96
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.59$0.17$2.42$3.31$0.90$2.42