Crush Rett Syndrome

“Activity , Grantee RETT SYNDROME RESEARCH TRUST 67 UNDER CLIFF ROAD TRUMBULL CT 06611, Cash Grant 100,000, Relationship”

“Administrative expenses 1,129”

“WEBSITE EXPENSES 255”

“INSURANCE EXPENSES 509”

“Laboratory experiments have provided proof that a cure could reverse the symptoms of rett syndrome, even in patients that have lived with these symptoms for many years. The research efforts we are supporting would allow the more than 350,000 people worldwide to live the rest of their lives without being trapped in a body that does not work. It would also allow those yet to be born with rett syndrome, one every 90 minutes, to never have to suffer from the horrible symptoms.”

“Crush rett syndrome works with other excellent rett syndrome organizations to leverage their expertise, medical specialists, and research efforts. This enables us to not use funds duplicating those efforts already being supported by others. Our efforts can be focused on funding research being done throughout the rett syndrome community without being confined to just supporting the efforts of one organization.”

“We differentiate ourselves by providing information about rett syndrome in a way that others can easily understand and share with their network. We have grown our facebook and instagram followers by 50.”

“Progress towards the first gene therapy human clinical trial has continued but was impacted by the need to re-evaluate some of the animal testing data and the fdas focus on the covid-19 efforts. We hope to still see the start of human clinical trials for a cure using a gene therapy approach from novartis/avexis in 2020.”

“In 2019, additional approaches for a cure or effective treatments has been incredible. In 2020, our goal is to raise 25 more in funds and followers than we did in 2020 without decreasing our efficiency.”