Crush Rett Syndrome

“Activity , Grantee Rett Syndrome Research Trust 67 Under Cliff Rd Trumbull CT 06611, Cash Grant 100,000, Relationship”

“Operations Expenses 25”

“Insurance 533”

“We provided 100,000 to important genetic research again this year. We are excited about the progress being made through the first two human clinical trials for a potential gene therapy cure. The preliminary results show very good tolerance for most but one participant had a fatal immune response to the virus used to carry the genetic material. We are supporting research to find an alternative carrier in order to eliminate the risk of the immune response that comes with the use of this or any virus.”

“We will continue to be focused on research that will contribute to the development of a cure for Rett Syndrome. Laboratory experiments have provided proof that a cure could reverse the symptoms of Rett Syndrome, even in patients that have lived with these symptoms for many years. The research efforts we are supporting would allow the more than 350,000 people worldwide to live the rest of their lives without being trapped in a body that does not work. It would also allow those yet to be born with Rett Syndrome, one every 90 minutes, to never have to suffer from the horrible symptoms.”

“Crush Rett Syndrome works with other excellent Rett Syndrome organizations to leverage their expertise, medical specialists, and research efforts. This enables us to not use funds duplicating those efforts already being supported by others. Our efforts can be focused on funding research being done throughout the Rett Syndrome community without being confined to just supporting the efforts of one organization. We differentiate ourselves by providing information about Rett syndrome in a way that others can easily understand and share with their network. We continue to grow our Facebook and Instagram followers which helps us to raise awareness and motivate fundraising efforts worldwide.”