Civic Intelligence

Cdg Care

990 • Fiscal year 2023 • EIN 81-0769799

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 01, 2024

Organization ProfileWWW.CDGCARE.ORG
PO Box 38832Colorado Springs, CO 80937

(314) 249-4060

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

32nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Liabilities / Revenue

32nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Net Margin

28th percentile

-6.9%

Higher net margin than 28% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Top Officer Pay

54th percentile

$0

Higher top officer pay than 54% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2023

Asset Growth

16th percentile

-13%

Faster asset growth than 16% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Revenue Growth

12th percentile

-31%

Faster revenue growth than 12% of similar nonprofits.

2023 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets32nd percentile

Assets

Flat

$522,624

Flat from 2023

Net Assets

Flat

$522,624

Flat from 2023

Liabilities

Flat

$0

Flat from 2023

Revenue And Expenses
Liabilities / Revenue32nd percentileNet Margin28th percentile

Revenue

Flat

$491,830

Flat from 2023

Expenses

Flat

$525,673

Flat from 2023

Net Income

Flat

-$33,843

Flat from 2023

Historical Trend

Balance Sheet Trend

Asset Growth16th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2018: $72,509Liabilities 2018: $02018Assets 2019: $103,205Liabilities 2019: $02019Assets 2020: $129,903Net Assets 2020: $129,9032020Assets 2021: $269,968Liabilities 2021: $0Net Assets 2021: $269,9682021Assets 2022: $598,467Liabilities 2022: $0Net Assets 2022: $598,4672022Assets 2023: $522,624Liabilities 2023: $0Net Assets 2023: $522,6242023Assets 2023: $522,624Liabilities 2023: $0Net Assets 2023: $522,6242023Assets 2024: $716,502Liabilities 2024: $7,012Net Assets 2024: $709,4902024

Highlighted filing

2023

Assets$522,624
Liabilities$0
Net Assets$522,624
Open 2023 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2018: $125,025Expenses 2018: $61,205Net Income 2018: $63,8202018Revenue 2019: $113,035Expenses 2019: $82,339Net Income 2019: $30,6962019Revenue 2020: $91,332Expenses 2020: $64,634Net Income 2020: $26,6982020Revenue 2021: $266,136Expenses 2021: $126,071Net Income 2021: $140,0652021Revenue 2022: $715,053Expenses 2022: $396,616Net Income 2022: $318,4372022Revenue 2023: $491,830Expenses 2023: $525,673Net Income 2023: -$33,8432023Revenue 2023: $491,830Expenses 2023: $525,673Net Income 2023: -$33,8432023Revenue 2024: $531,003Expenses 2024: $344,137Net Income 2024: $186,8662024

Highlighted filing

2023

Revenue$491,830
Expenses$525,673
Net Income-$33,843
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 1, 2024
Return Version
2023v5.1
Gross Receipts
$491,830
Mission and Program Overview

Mission

Cdg care is a nonprofit organization founded by parents seeking information and support for a group of medical disorders known as congenital disorders of glycosylation (cdg). Our mission is to promote greater awareness and understanding of cdg, to provide information and support to families affected by gdg, and to advocate for scientific research to advance the diagnosis and treatment of cdg.

To promote greater awareness and understanding of cdg, to provide information and support to families affected by cdg, and to advocate for and fund scientific research to advance treatments for all cdgs.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$598,467$497,624▼ $100,843
Prepaid Expenses and Deferred Charges-$25,000-
Cash and Non-Interest-Bearing Accounts-$0-
Total Assets$598,467$522,624▼ $75,843
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets With Donor Restrictions$408,072$321,034▼ $87,038
Net Assets Without Donor Restrictions$190,395$201,590▲ $11,195
Total Net Assets Fund Balance$598,467$522,624▼ $75,843
Total Liabilities and Net Assets / Fund Balance$598,467$522,624▼ $75,843
Compensation and Service Providers
Top Officer Pay54th percentile

Board Members and Trustees

NameTitle
Andrea MillerPresident
Amy DannBoard Member
Ashleigh LinthicumBoard Member
Heather ConneranBoard Member
Kara BerasiBoard Member
Karen MoriciBoard Member
Karen OosterhousBoard Member
Lewis FranklinBoard Member
Meral OmurtagBoard Member
Christa ThomaTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$486,633
Program Service Revenue
$0
Investment Income
$5,197
Other Revenue
$0
All Other Contributions
$486,633
Change in Net Assets
$-33,843
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$471,944
Other Expenses$53,729
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$438,617--$438,617
Fees for Services Accounting$19,800--$19,800
Foreign Grants$19,133--$19,133
Grants to Domestic Individuals$14,194--$14,194
Fees for Services Legal$6,903--$6,903
Information Technology$4,415--$4,415
Insurance-$1,423-$1,423
Office Expenses$324--$324
Other Expenses$10$220-$230
Conferences and Meetings$146--$146
All Other Expenses-$10-$10
Total Functional Expenses$524,020$1,653$0$525,673
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Nationwide Childrens ResearchColumbus, OH-Research Grant$0
Perlara PbcBerkeley, CA-Research Projects$0
Washington University of St LouisSt Louis, MO-Research Grant$0

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“Documentation of meetings of each committee to act of behalf of the governing body. While cdg care has many committees comprised of volunteer board of director members and medical advisory members, the committees are not granted authority to act of behalf of the governing body (board of directors). Each decision recommendation made by the individual committees is sent out to the board of directors (the governing body) for final review and approval.”

Form 990, Part VI, Section B, Line 11B

“The treasurer and president of cdg care work together to complete the draft of form 990 to prepare for filing by an external accountant. At each quarterly board of director meeting, the treasurer provides an update to the board members, keeping them informed of organizational revenues and letting them know which specific tax forms will be filed for the current year, as well as if an extension has been requested. At the quarterly board of directors meeting following the form 990 and tax filing, the treasurer informed the board members that the taxes have been completed to share a copy of the form 990 with members who would like to review it.”

Form 990, Part VI, Section B, Line 12C

“Cdg care requires all board members to acknowledge conflict of interest policy upon joining the board of directors.”

Form 990, Part VI, Section C, Line 19

“Cdg care maintains all governing documents, conflict of interest policy records and financial statements with the president's record keeping and filings. All documents are available to the public upon requests but are not shared publicly in any emails or on internet pages or platforms. All documents and tax filing information are submitted to guidestar to apply for cdg care's seal of transparency each year. Through this service and accreditation, cdg care's form 990 and form 990 ez from prior years is available to the public as well.”

Filing and Contact Details

Filer

Filer Name
Cdg Care
EIN
81-0769799
Phone
3142494060
Address
PO BOX 38832, COLORADO SPRINGS, CO 80937

Signing Officer

Name
Andrea Miller
Title
President
Phone
3142494060
Signed
2024-11-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andrea Miller
Formed
2014
Legal Domicile
Co
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
0

Preparer

Firm
Anders Minkler Huber & Helm Llp
Address
800 MARKET STREET SUITE 500, ST LOUIS, MO 63101-2501
Preparer
Jeanne Dee
Phone
3146555500
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“No change from prior year”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code (the "code"), except on net income derived from unrelated business activities as defined in the code. Accordingly, the organization files as a tax exempt organization. The organization follows guidance issued by the fasb on accounting for income taxes and has evaluated its tax positions, expiring statutes of limitations, audits, proposed settlements, changes in tax law and new authoritative rulings, and believes that no provision for income taxes is necessary to cover any uncertain tax positions. The organization's returns for tax years 2020 and later remain subject to examination by taxing authorities.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0RESEARCH AND DEVELOPMENT - IN 2023, CDG CARE FUNDED 2 RESEARCH GRANTS AND 6 RESEARCH PROJECTS. THE FIRST GRANT WAS PAID TO WASHINGTON UNIVERSITY OF ST. LOUIS. THIS GRANT WAS $50,000 AND SUPPORTED RESEARCH TO INVESTIGATE THE VIABILITY OF TREATMENT OPTIONS IN CDG ZEBRAFISH MODELS. THE SECOND GRANT WAS PAID TO NATIONWIDE CHILDREN'S RESEARCH CENTER. THIS GRANT WAS $105,655 AND SUPPORTED RESEARCH TO DEVELOP IN VITRO MODELLING FOR GENE THERAPY IN GMPPA-CDG ORGANOIDS. IN ADDITION TO THESE ABOVE 2 GRANT AWARDS, CDG CARE CONTINUED AND EXPANDED IT'S 2022 PATIENT-DRIVEN RESEARCH INITIATIVE WHICH INVOLVES CONTRACTING FOR DIRECT RESEARCH OF DRUG REPURPOSING ON SEVERAL CDG TYPES. THESE CONTRACTS WERE MADE WITH THE WASHINGTON UNIVERSITY IN ST. LOUIS TO ADVANCE ALG8-CDG TREATMENT MODALITIES VIA THE RESEARCH MODEL USING ZEBRAFISH IN THE AMONG OF $35,000 AND SUPPORT FOR AN ADDITIONAL 5 RESEARCH PROJECTS WERE CONTRACTED THROUGH PERLARA PBC AND ARE ONGOING TO ADVANCE DRUG REPURPOSING RESEARCH FOR PIGA-CDG, PIGN-CDG, PIGW-CDG, GMPPA-CDG AND PIGS-CDG.
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IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt046455
IRS990/ProgSrvcAccomActy2Grp/GrantAmt033327
IRS990/ProgSrvcAccomActy3Grp/Desc0CDG BIENNIAL CONFERENCE - IN 2023, CDG CARE BEGAN PREPARATIONS TO HOST THE UPCOMING 5TH BIENNIAL PROFESSIONAL AND EDUCATIONAL CONFERENCE ON CDG TO BE HELD IN MARCH 2024. THROUGH THESE PREPARATIONS, AN EVENT VENUE DEPOSIT WAS PAID OUT IN 2023, AND THE REMAINING CONFERENCE EXPENSES WILL BE PAID OUT AFTER THE EVENT IN MARCH, 2024. THE CONFERENCE PLANNING PREPARED TO HOST 300+ PROFESSIONALS AND FAMILY MEMBERS TO PARTICIPATE IN A 3-DAY EDUCATIONAL CONFERENCE TO ADVANCE CDG EDUCATION, INFORMATION AND OPPORTUNITIES TO DEVELOP TREATMENTS IN THE FUTURE.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt010380
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt00
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0715024
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0344083
IRS990/PYInvestmentIncomeAmt029
IRS990/PYOtherExpensesAmt052533
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0318437
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0396616
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0715053
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-33843
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0486368
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0715022
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0266117
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt091297
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0112968
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01671772
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt06895
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt029
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt019
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt035
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt067
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt07045
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99580
IRS990ScheduleA/PublicSupportPY170Pct00.99990
IRS990ScheduleA/PublicSupportTotal170Amt01671772
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0486368
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0715022
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0266117
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt091297
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0112968
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01671772
IRS990ScheduleA/TotalSupportAmt01678817
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE "CODE"), EXCEPT ON NET INCOME DERIVED FROM UNRELATED BUSINESS ACTIVITIES AS DEFINED IN THE CODE. ACCORDINGLY, THE ORGANIZATION FILES AS A TAX EXEMPT ORGANIZATION. THE ORGANIZATION FOLLOWS GUIDANCE ISSUED BY THE FASB ON ACCOUNTING FOR INCOME TAXES AND HAS EVALUATED ITS TAX POSITIONS, EXPIRING STATUTES OF LIMITATIONS, AUDITS, PROPOSED SETTLEMENTS, CHANGES IN TAX LAW AND NEW AUTHORITATIVE RULINGS, AND BELIEVES THAT NO PROVISION FOR INCOME TAXES IS NECESSARY TO COVER ANY UNCERTAIN TAX POSITIONS. THE ORGANIZATION'S RETURNS FOR TAX YEARS 2020 AND LATER REMAIN SUBJECT TO EXAMINATION BY TAXING AUTHORITIES.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt019133
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt010
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt0NORTH AMERICA, CENTRAL
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt0EQUIPMENT/TRAVEL SUPPORT
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc0INVOICE/RECEIPTS
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd00
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0CDG CARE ACCEPTS APPLICATIONS FROM PATIENTS/FAMILIES TO REQUEST MEDICAL/THERAPEUTIC EQUIPMENT SUPPORT AND/OR TRAVEL SUPPORT TO SEEK EXPERT MEDICAL CONSULTATION OR TO ATTEND THE CDG EDUCATIONAL CONFERENCES THAT ARE HELD IN THE USA. BOTH OF THESE APPLICATIONS ARE ACCEPTED ON A ROLLING BASIS. CDG CARE HAS ESTABLISHED A FAMILY GRANT ASSISTANCE COMMITTEE MADE UP OF VOLUNTEER BOARD OF DIRECTOR MEMBERS AND MEDICAL ADVISORY MEMBERS WHO OVERSEE THIS GRANT PROGRAM. APPLICATIONS ARE REVIEWED BY THE COMMITTEE AND APPROVED UP TO LIMITS ESTABLISHED IN THE GRANT PROGRAM POLICIES. FUNDS ARE EITHER PAID DIRECTLY TO VENDORS, OR FAMILIES ARE REIMBURSED FOR EXPENSES INCURRED ONCE RECEIPTS HAVE BEEN SUBMITTED TO CDG CARE.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART III 1 (G)
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt01820
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt110218
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0MEDICAL TRAVEL GRANTS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt1TRAVEL AND MEDICAL/THERAPEUTIC EQUIPMENT
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt02
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt15
IRS990ScheduleI/RecipientTable/CashGrantAmt00
IRS990ScheduleI/RecipientTable/CashGrantAmt10
IRS990ScheduleI/RecipientTable/CashGrantAmt20
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt0244962
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt185000
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt2108655
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH PROJECTS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH GRANT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2RESEARCH GRANT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0PERLARA PBC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1WASHINGTON UNIVERSITY OF ST LOUIS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2NATIONWIDE CHILDRENS RESEARCH
IRS990ScheduleI/RecipientTable/RecipientEIN0465080858
IRS990ScheduleI/RecipientTable/RecipientEIN1430653611
IRS990ScheduleI/RecipientTable/RecipientEIN2316056230
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt02625 ALCATRAZ AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1700 ROSEDALE AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2700 CHILDRENS DR
IRS990ScheduleI/RecipientTable/USAddress/CityNm0BERKELEY
IRS990ScheduleI/RecipientTable/USAddress/CityNm1ST LOUIS
IRS990ScheduleI/RecipientTable/USAddress/CityNm2COLUMBUS
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MO
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2OH
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd0947052702
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd163110
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd243205
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0CDG CARE ACCEPTS APPLICATIONS FROM RESEARCH INSTITUTIONS AND PATIENTS/FAMILIES FOR FUNDING SUPPORT THROUGH GRANTS. CDG CARE HAS ESTABLISHED A RESEARCH COMMITTEE MADE UP OF VOLUNTEER BOARD OF DIRECTOR MEMBERS AND MEDICAL ADVISORY MEMBERS WHO OVERSEE THE RESEARCH GRANT PROGRAM. APPLICATIONS ARE RECEIVED ONCE EACH YEAR, REVIEWED, AND DISCUSSED BY AN INTERDISCIPLINARY REVIEW TEAM, AND PRESENTED TO THE BOARD OF DIRECTORS FOR FUNDING. ALL RESEARCH GRANTS ARE FOR THE DURATION OF 12 MONTHS. GRANTEES ARE REQUIRED TO SUBMIT PERIODIC PROGRESS AND EXPENSE REPORTS AND FINAL REPORTS TO CDG CARE AT THE END OF THE GRANT TERM.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE I PART II
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0DOCUMENTATION OF MEETINGS OF EACH COMMITTEE TO ACT OF BEHALF OF THE GOVERNING BODY. WHILE CDG CARE HAS MANY COMMITTEES COMPRISED OF VOLUNTEER BOARD OF DIRECTOR MEMBERS AND MEDICAL ADVISORY MEMBERS, THE COMMITTEES ARE NOT GRANTED AUTHORITY TO ACT OF BEHALF OF THE GOVERNING BODY (BOARD OF DIRECTORS). EACH DECISION RECOMMENDATION MADE BY THE INDIVIDUAL COMMITTEES IS SENT OUT TO THE BOARD OF DIRECTORS (THE GOVERNING BODY) FOR FINAL REVIEW AND APPROVAL.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE TREASURER AND PRESIDENT OF CDG CARE WORK TOGETHER TO COMPLETE THE DRAFT OF FORM 990 TO PREPARE FOR FILING BY AN EXTERNAL ACCOUNTANT. AT EACH QUARTERLY BOARD OF DIRECTOR MEETING, THE TREASURER PROVIDES AN UPDATE TO THE BOARD MEMBERS, KEEPING THEM INFORMED OF ORGANIZATIONAL REVENUES AND LETTING THEM KNOW WHICH SPECIFIC TAX FORMS WILL BE FILED FOR THE CURRENT YEAR, AS WELL AS IF AN EXTENSION HAS BEEN REQUESTED. AT THE QUARTERLY BOARD OF DIRECTORS MEETING FOLLOWING THE FORM 990 AND TAX FILING, THE TREASURER INFORMED THE BOARD MEMBERS THAT THE TAXES HAVE BEEN COMPLETED TO SHARE A COPY OF THE FORM 990 WITH MEMBERS WHO WOULD LIKE TO REVIEW IT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2CDG CARE REQUIRES ALL BOARD MEMBERS TO ACKNOWLEDGE CONFLICT OF INTEREST POLICY UPON JOINING THE BOARD OF DIRECTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3CDG CARE MAINTAINS ALL GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY RECORDS AND FINANCIAL STATEMENTS WITH THE PRESIDENT'S RECORD KEEPING AND FILINGS. ALL DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUESTS BUT ARE NOT SHARED PUBLICLY IN ANY EMAILS OR ON INTERNET PAGES OR PLATFORMS. ALL DOCUMENTS AND TAX FILING INFORMATION ARE SUBMITTED TO GUIDESTAR TO APPLY FOR CDG CARE'S SEAL OF TRANSPARENCY EACH YEAR. THROUGH THIS SERVICE AND ACCREDITATION, CDG CARE'S FORM 990 AND FORM 990 EZ FROM PRIOR YEARS IS AVAILABLE TO THE PUBLIC AS WELL.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4NO CHANGE FROM PRIOR YEAR
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 8B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART XII, LINE 2C:
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0CO
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0598467
IRS990/TotalAssetsEOYAmt0522624
IRS990/TotalAssetsGrp/BOYAmt0598467
IRS990/TotalAssetsGrp/EOYAmt0522624
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0486633
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt01653
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0524020
IRS990/TotalFunctionalExpensesGrp/TotalAmt0525673
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0598467
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0522624
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0524020
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt05197
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0491830

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$522,624
Liabilities
$0
Net assets
$522,624
Revenue
$491,830
Expenses
$525,673
Net income
-$33,843
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.17$0.07$7.09$5.31$3.44$1.87
2023Detailed filing. Detailed filing data is available for this year.$5.23$0.00$5.23$4.92$5.26$0.34
2023Summary only. Only limited summary data is available for this year.$5.23$0.00$5.23$4.92$5.26$0.34
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.98$0.00$5.98$7.15$3.97$3.18
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.70$0.00$2.70$2.66$1.26$1.40
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.30$1.30$0.91$0.65$0.27
2019Summary only. Only limited summary data is available for this year.$1.03$0.00$1.13$0.82$0.31
2018Summary only. Only limited summary data is available for this year.$0.73$0.00$1.25$0.61$0.64