Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Liabilities / Revenue
48th percentile
Higher debt load relative to revenue than 48% of similar nonprofits.
Net Margin
84th percentile
Higher net margin than 84% of similar nonprofits.
Top Officer Pay
58th percentile
Higher top officer pay than 58% of similar nonprofits.
Top officer pay equals 2.5% of source-year revenue.
Asset Growth
84th percentile
Faster asset growth than 84% of similar nonprofits.
Revenue Growth
50th percentile
Faster revenue growth than 50% of similar nonprofits.
Assets
Up$716,502
Up $193,878 (+37%) from 2023
Net Assets
Up$709,490
Up $186,866 (+36%) from 2023
Liabilities
Up$7,012
Up $7,012 from 2023
Revenue
Up$531,003
Up $39,173 (+8.0%) from 2023
Expenses
Down$344,137
Down $181,536 (-35%) from 2023
Net Income
Up$186,866
Up $220,709 (+652%) from 2023
Cdg care is a nonprofit organization founded by parents seeking information and support for a group of medical disorders known as congenital disorders of glycosylation (cdg). Our mission is to promote greater awareness and understanding of cdg, to provide information and support to families affected by gdg, and to advocate for scientific research to advance the diagnosis and treatment of cdg.
To promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for and fund scientific research to advance treatments for all CDGs.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | - | $373,774 | - |
| Investments in Publicly Traded Securities | $497,624 | $337,257 | ▼ $160,367 |
| Prepaid Expenses and Deferred Charges | $25,000 | - | - |
| Pledges and Grants Receivable | - | $5,471 | - |
| Total Assets | $522,624 | $716,502 | ▲ $193,878 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $7,012 | - |
| Total Liabilities | $0 | $7,012 | ▲ $7,012 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $321,034 | $526,490 | ▲ $205,456 |
| Net Assets Without Donor Restrictions | $201,590 | $183,000 | ▼ $18,590 |
| Total Net Assets Fund Balance | $522,624 | $709,490 | ▲ $186,866 |
| Total Liabilities and Net Assets / Fund Balance | $522,624 | $716,502 | ▲ $193,878 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Andrea Miller | Executive Director | FT | $13,462 | $13,462 |
| Name | Title |
|---|---|
| Karen Morici | Chair |
| Kara Berasi | Vice Chair |
| Amy Dann | Director |
| Ashleigh Linthicum | Director |
| Heather Conneran | Director |
| Karen Oosterhous | Director |
| Lewis Franklin | Director |
| Meral Omurtag | Director |
| Christa Thoma | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $189,412 |
| Other Expenses | $137,688 |
| Salaries, Compensation, and Employee Benefits | $17,037 |
| Total Fundraising Expense | $13,884 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $152,100 | - | - | $152,100 |
| Conferences and Meetings | $96,538 | - | - | $96,538 |
| Grants to Domestic Individuals | $37,312 | - | - | $37,312 |
| Fees for Services Accounting | - | $13,500 | - | $13,500 |
| Current Officers, Directors, Trustees, and Key Employees | $10,097 | $3,365 | - | $13,462 |
| Fees for Services Other | $829 | $569 | $9,731 | $11,129 |
| Office Expenses | $609 | $3,408 | $3,917 | $7,934 |
| Information Technology | $3,064 | $2,509 | $236 | $5,809 |
| Payroll Taxes | $2,681 | $894 | - | $3,575 |
| Insurance | - | $1,423 | - | $1,423 |
| Travel | $1,355 | - | - | $1,355 |
| Total Functional Expenses | $304,585 | $25,668 | $13,884 | $344,137 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Perlara | Berkeley, CA | - | Research Projects | $68,048 |
| Nationwide Childrens Research Ctr | Columbus, OH | - | Research Grant | $63,615 |
| Washington University in St Louis | Saint Louis, MO | - | Research Grant | $19,500 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Documentation of meetings of each committee to act of behalf of the governing body. While CDG Care has many committees comprised of volunteer board of director members and medical advisory members, the committees are not granted authority to act of behalf of the governing body (Board of Directors). Each decision recommendation made by the individual committees is sent out to The Board of Directors (the governing body) for final review and approval.”
“The Treasurer and President of CDG Care work together to complete the draft of form 990 to prepare for filing by an external accountant. At each quarterly Board of Director meeting, the treasurer provides an update to the board members, keeping them informed of organizational revenues and letting them know which specific tax forms will be filed for the current year, as well as if an extension has been requested. At the quarterly Board of Directors meeting following the form 990 and tax filing, the treasurer informed the Board members that the taxes have been completed to share a copy of the form 990 with members who would like to review it.”
“CDG Care requires all board members to acknowledge conflict of interest policy upon joining The Board of Directors.”
“CDG Care maintains all governing documents, conflict of interest policy records and financial statements with the presidents record keeping and filings. All documents are available to the public upon requests but are not shared publicly in any emails or on internet pages or platforms. All documents and tax filing information are submitted to guidestar to apply for CDG Cares seal of transparency each year. Through this service and accreditation, CDG Cares form 990 and form 990 ez from prior years is available to the public as well.”
“No change from prior year”
“The Organization is exempt from federal income taxes under Section 501(c)(3) of The Internal Revenue Code (The Code), except on net income derived from unrelated business activities as defined in the code. Accordingly, The Organization files as a tax exempt organization. The Organization follows guidance issued by the FASB on accounting for income taxes and has evaluated its tax positions, expiring statutes of limitations, audits, proposed settlements, changes in tax law and new authoritative rulings, and believes that no provision for income taxes is necessary to cover any uncertain tax positions. The Organizations returns for tax years 2021 and later remain subject to examination by taxing authorities.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 7012 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for and fund scientific research to advance treatments for all CDGs. |
| IRS990/AllOtherContributionsAmt | 0 | 501763 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | The Organization |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3142494060 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO Box 38832 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Colorado Springs |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 80937 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 373774 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 3365 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 10097 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 13462 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 96538 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 96538 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 501763 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 189412 |
| IRS990/CYInvestmentIncomeAmt | 0 | 16985 |
| IRS990/CYOtherExpensesAmt | 0 | 137688 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 12255 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 186866 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 17037 |
| IRS990/CYTotalExpensesAmt | 0 | 344137 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 13884 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 531003 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | Research and Development: In 2024, CDG CARE continued and expanded its 2022 patient-driven research initiative which involves contracting for direct research of drug repurposing on several CDG types. These contracts were made with Washington University in St. Louis to advance ALG8-CDG treatment modalities via the research model using zebrafish and Nationwide Childrens Hospital Research Center to advance in vivo models for gene therapy model development in PIGA-CDG. In addition, CDG CARE supported individual research projects contracted through Perlara PBC and are ongoing to advance drug repurposing research for GMPPA-CDG, ALG8-CDG, ALG13-CDG, ALG1-CDG, PMM2-CDG, PIGA-CDG, PIGN-CDG, PIGW-CDG and PIGS-CDG. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 321034 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 526490 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 167374 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 13500 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 13500 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 9731 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 569 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 829 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 11129 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Andrea Miller |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Meral Omurtag |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Heather Conneran |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Lewis Franklin |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Karen Oosterhous |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Ashleigh Linthicum |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Amy Dann |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Christa Thoma |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Karen Morici |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Kara Berasi |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 13462 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Chair |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Vice Chair |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 2014 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantAmt | 0 | 152100 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 37312 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 37312 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 152100 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 152100 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 531003 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 236 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 2509 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 3064 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 5809 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1423 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1423 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 16985 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 16985 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 497624 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 337257 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CO |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for and fund scientific research to advance treatments for all CDGs. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 522624 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 709490 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 201590 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 183000 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 3917 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 3408 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 609 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 7934 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 894 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 2681 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 3575 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 5471 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 25000 |
| IRS990/PrincipalOfficerNm | 0 | Andrea Miller |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Conference Registration |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 12255 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 12255 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | CDG Biennial Conference: In 2024, CDG CARE hosted the 5th biennial professional and educational conference on CDG. While many preliminary expenses were incurred in 2023, the majority of expenses are paid out during the event, which was in March 2024. The conference hosted 330 professionals and family members who participated in a 3-day educational conference to advance CDG education, information and opportunities to develop treatments in the future. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 99065 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 12255 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Patient/Family Travel & Equipment Grant Program: In 2024, CDG CARE continued to support a program that provides financial support to patients and families to obtain much needed therapeutic/medical equipmen4 and provide funding support for families to travel to specialty medical centers to receive consultation and medical guidance from experts in CDG. Through the therapeutic/medical equipment grant program, 14 patients received equipment grants and 16 families received travel support through the family grant program. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 38146 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 37312 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 486633 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 471944 |
| IRS990/PYInvestmentIncomeAmt | 0 | 5197 |
| IRS990/PYOtherExpensesAmt | 0 | 53729 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -33843 |
| IRS990/PYTotalExpensesAmt | 0 | 525673 |
| IRS990/PYTotalRevenueAmt | 0 | 491830 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 186866 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
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| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization is exempt from federal income taxes under Section 501(c)(3) of The Internal Revenue Code (The Code), except on net income derived from unrelated business activities as defined in the code. Accordingly, The Organization files as a tax exempt organization. The Organization follows guidance issued by the FASB on accounting for income taxes and has evaluated its tax positions, expiring statutes of limitations, audits, proposed settlements, changes in tax law and new authoritative rulings, and believes that no provision for income taxes is necessary to cover any uncertain tax positions. The Organizations returns for tax years 2021 and later remain subject to examination by taxing authorities. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) |
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| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | RESEARCH GRANT |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | RESEARCH GRANT |
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| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Nationwide Childrens Research Ctr |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | Washington University in St Louis |
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| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 316056230 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 430653611 |
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| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 700 Childrens Dr |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 1 Brookings Drive St |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Berkeley |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Columbus |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | Saint Louis |
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| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | OH |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | MO |
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| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | CDG Care accepts applications from research institutions and patients/families for funding support through grants. CDG Care has established a research committee made up of volunteer board of director members and medical advisory members who oversee the research grant program. Applications are received once each year, reviewed, and discussed by an interdisciplinary review team, and presented to The Board of Directors for funding. All research grants are for the duration of 12 months. Grantees are required to submit periodic progress and expense reports and final reports to CDG Care at the end of the grant term. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Monitoring procedures (Part I, line 2) |
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| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Documentation of meetings of each committee to act of behalf of the governing body. While CDG Care has many committees comprised of volunteer board of director members and medical advisory members, the committees are not granted authority to act of behalf of the governing body (Board of Directors). Each decision recommendation made by the individual committees is sent out to The Board of Directors (the governing body) for final review and approval. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The Treasurer and President of CDG Care work together to complete the draft of form 990 to prepare for filing by an external accountant. At each quarterly Board of Director meeting, the treasurer provides an update to the board members, keeping them informed of organizational revenues and letting them know which specific tax forms will be filed for the current year, as well as if an extension has been requested. At the quarterly Board of Directors meeting following the form 990 and tax filing, the treasurer informed the Board members that the taxes have been completed to share a copy of the form 990 with members who would like to review it. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | CDG Care requires all board members to acknowledge conflict of interest policy upon joining The Board of Directors. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | CDG Care maintains all governing documents, conflict of interest policy records and financial statements with the presidents record keeping and filings. All documents are available to the public upon requests but are not shared publicly in any emails or on internet pages or platforms. All documents and tax filing information are submitted to guidestar to apply for CDG Cares seal of transparency each year. Through this service and accreditation, CDG Cares form 990 and form 990 ez from prior years is available to the public as well. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | No change from prior year |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Committee meeting documentation Part VI line 8b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Conflict of interest policy compliance Part VI line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Not undergone required audits or steps for audit part XII line 3b |
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| IRS990/USAddress/CityNm | 0 | Colorado Springs |
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| IRS990/WebsiteAddressTxt | 0 | www.cdgcare.org |
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| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | ANDREA MILLER |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Executive Director |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 3142494060 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-11-06 |
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Displayed year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.