Civic Intelligence

Alliance for Lupus Research Inc

990 • Fiscal year 2013 • EIN 58-2492929

Jan 01, 2013 to Dec 31, 2013 • Filed on Aug 26, 2014

Organization ProfileLUPUSRESEARCH.ORG

View Organization Page

28 West 44th Street No 50110036

(212) 218-2840

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

37th percentile

0.21x

Higher debt load relative to assets than 37% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Liabilities / Revenue

72nd percentile

1.11x

Higher debt load relative to revenue than 72% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Net Margin

18th percentile

-4.1%

Higher net margin than 18% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Top Officer Pay

41st percentile

$273,900

Higher top officer pay than 41% of similar nonprofits.

Top officer pay equals 2.4% of source-year revenue.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Source year 2013

Asset Growth

71st percentile

11%

Faster asset growth than 71% of similar nonprofits.

2013 filings • 501(c)3 • $50M-$100M nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets37th percentile

Assets

Up

$59,870,295

Up $5,879,482 (+11%) from 2012

Net Assets

Up

$47,041,607

Up $5,308,112 (+13%) from 2012

Liabilities

Up

$12,828,688

Up $571,370 (+4.7%) from 2012

Revenue And Expenses
Liabilities / Revenue72nd percentileNet Margin18th percentile

Revenue

$11,608,212

No earlier filing loaded for comparison.

Expenses

Down

$12,085,751

Down $846,290 (-6.5%) from 2012

Net Income

-$477,539

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth71st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$150M$100M$50M$0Assets 2011: $49,323,929Liabilities 2011: $8,402,057Net Assets 2011: $40,921,8722011Assets 2012: $53,990,813Liabilities 2012: $12,257,318Net Assets 2012: $41,733,4952012Assets 2013: $59,870,295Liabilities 2013: $12,828,688Net Assets 2013: $47,041,6072013Assets 2014: $64,157,288Liabilities 2014: $14,643,187Net Assets 2014: $49,514,1012014Assets 2015: $63,114,028Liabilities 2015: $14,893,239Net Assets 2015: $48,220,7892015Assets 2016: $67,639,535Liabilities 2016: $22,480,616Net Assets 2016: $45,158,9192016Assets 2017: $77,005,974Liabilities 2017: $26,522,326Net Assets 2017: $50,483,6482017Assets 2018: $65,079,955Liabilities 2018: $23,818,659Net Assets 2018: $41,261,2962018Assets 2019: $71,431,718Liabilities 2019: $26,661,517Net Assets 2019: $44,770,2012019Assets 2020: $103,408,141Liabilities 2020: $41,851,086Net Assets 2020: $61,557,0552020Assets 2021: $110,909,946Liabilities 2021: $41,423,828Net Assets 2021: $69,486,1182021Assets 2022: $98,907,292Liabilities 2022: $35,375,707Net Assets 2022: $63,531,5852022Assets 2023: $111,947,130Liabilities 2023: $36,633,486Net Assets 2023: $75,313,6442023Assets 2024: $93,254,416Liabilities 2024: $37,541,841Net Assets 2024: $55,712,5752024

Highlighted filing

2013

Assets$59,870,295
Liabilities$12,828,688
Net Assets$47,041,607
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$60M$40M$20M$0-$20MExpenses 2011: $11,495,7472011Expenses 2012: $12,932,0412012Revenue 2013: $11,608,212Expenses 2013: $12,085,751Net Income 2013: -$477,5392013Revenue 2014: $14,705,963Expenses 2014: $13,704,978Net Income 2014: $1,000,9852014Revenue 2015: $18,798,865Expenses 2015: $15,182,411Net Income 2015: $3,616,4542015Revenue 2016: $18,270,127Expenses 2016: $27,101,903Net Income 2016: -$8,831,7762016Revenue 2017: $25,685,124Expenses 2017: $28,260,250Net Income 2017: -$2,575,1262017Revenue 2018: $19,027,496Expenses 2018: $22,863,628Net Income 2018: -$3,836,1322018Revenue 2019: $21,058,692Expenses 2019: $26,811,042Net Income 2019: -$5,752,3502019Revenue 2020: $44,790,052Expenses 2020: $34,266,813Net Income 2020: $10,523,2392020Revenue 2021: $23,780,030Expenses 2021: $26,772,083Net Income 2021: -$2,992,0532021Revenue 2022: $22,699,491Expenses 2022: $32,373,925Net Income 2022: -$9,674,4342022Revenue 2023: $50,861,497Expenses 2023: $35,405,251Net Income 2023: $15,456,2462023Revenue 2024: $18,554,982Expenses 2024: $38,175,432Net Income 2024: -$19,620,4502024

Highlighted filing

2013

Revenue$11,608,212
Expenses$12,085,751
Net Income-$477,539
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Aug 26, 2014
Return Version
2013v3.0
Gross Receipts
$26,195,820
Mission and Program Overview

Mission

The lupus research alliance leads the world in transforming the lives of people affected with lupus by using the power of science to drive new treatments, prevent disease progression, and find a cure.

To support research to prevent, treat and cure lupus. The mission of the alliance for lupus research (alr) is to support bio-medical research to prevent, treat and cure lupus.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$42,169,685$50,164,508▲ $7,994,823
Savings and Temporary Cash Investments$5,398,665$4,714,220▼ $684,445
Cash and Non-Interest-Bearing Accounts$3,957,910$2,315,005▼ $1,642,905
Land, Buildings, and Equipment, Net$1,680,987$1,677,620▼ $3,367
Pledges and Grants Receivable$631,800$741,831▲ $110,031
Prepaid Expenses and Deferred Charges$58,358$163,703▲ $105,345
Total Assets$53,990,813$59,870,295▲ $5,879,482
Other Assets Total$93,408$93,408→ $0
Liabilities
Grants Payable$11,943,397$12,588,188▲ $644,791
Accounts Payable and Accrued Expenses$287,806$227,825▼ $59,981
Other Liabilities$26,115$12,675▼ $13,440
Total Liabilities$12,257,318$12,828,688▲ $571,370
Net Assets / Fund Balance
Unrestricted Net Assets$31,215,005$47,021,607▲ $15,806,602
Temporarily Rstr Net Assets$10,518,490$20,000▼ $10,498,490
Total Net Assets Fund Balance$41,733,495$47,041,607▲ $5,308,112
Total Liabilities and Net Assets / Fund Balance$53,990,813$59,870,295▲ $5,879,482

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$56,065$238,213$294,278
Leasehold Improvements$21,555$20,574$42,129
Buildings$0--
Other Land Buildings$0--
Land$1,600,000--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2013$31,218,383$10,000,000▲ $8,816,260$3,081,606$46,953,037
2012$18,416,644$10,000,000▲ $4,761,791$1,960,052$31,218,383
2011$8,416,644$10,000,000▲ $1,899,035$-1,899,035$18,416,644
2010-$10,000,000▼ $278,316$-1,305,040$8,416,644
Compensation and Service Providers
Top Officer Pay41st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kenneth M FarberPresidentPT$273,900-$273,900
Debra RoseChief Operating OfficerFT$121,241$35,561$156,802
Robert D HinnenNAT'L BUS. DEV. DIRECTORFT$114,446$19,301$133,747

Board Members and Trustees

NameTitle
Robert Wood Johnson IvChairman of the Board
Alison HarmelinDirector
Charles J Huebner MdDirector
Daniel LavecchiaDirector
James P AndrewDirector
Keith C WoldDirector
Michelle Y LeeDirector
Neil J BurmeisterDirector
Robert W PittmanDirector
William J MulvihillDirector
Ira AkselradSecretary
Joseph MaurielloTresurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Mouth INCCommunications Agency-$121,500
Kim Kaiser & Associates LLCPharma Consultant-$113,063
Revenue and Support

Revenue Composition

Contributions and Grants
$8,223,868
Program Service Revenue
$0
Investment Income
$3,090,321
Other Revenue
$294,023
All Other Contributions
$4,776,215
Change in Net Assets
$-477,539

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded3$40,158Avg Stock Value
Total Noncash Contributions3$40,158-

Audited Revenue Reconciliation

Revenue per Audited Statements
$11,488,088
Revenue Not Reported on Financial Statements
$120,124
Revenue Not Reported on Form 990
$5,785,651
Other Revenue Adjustments
$69,265
Total Revenue per Audited Statements
$17,273,739
Total Revenue per Form 990
$11,608,212
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$7,710,350
Other Expenses$2,253,959
Salaries, Compensation, and Employee Benefits$2,072,442
Total Fundraising Expense$1,960,073
Professional Fundraising Fees$49,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$7,148,120--$7,148,120
Other Salaries and Wages$428,058$182,826$611,824$1,222,708
Foreign Grants$562,230--$562,230
Occupancy$159,288$84,745$204,674$448,707
Current Officers, Directors, Trustees, and Key Employees$228,650$87,107$116,519$432,276
Fees for Services Other$54,447$172,547$201,881$428,875
Conferences and Meetings$243,462$9,905$8,662$262,029
Information Technology$114,356$53,823$57,153$225,332
Other Employee Benefits$75,838$35,898$103,566$215,302
Travel$52,382$37,574$104,906$194,862
Payroll Taxes$38,351$20,404$49,279$108,034
Pension Plan Contributions$32,873$13,447$47,802$94,122
Other Expenses$14,669$20,538$23,434$58,641
All Other Expenses$16,353$22,806$17,374$56,533
Fees for Service Investment Mgmnt Fees-$50,859-$50,859
Fees for Services Professional Fundraising--$49,000$49,000
Fees for Services Accounting-$42,659-$42,659
Office Expenses$679$23,865$10,363$34,907
Depreciation Depletion$11,092$5,900$14,252$31,244
Insurance$8,759$4,660$11,255$24,674
Fees for Services Legal-$4,660-$4,660
Total Functional Expenses$40,331$0$161,325$201,656

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$12,085,751
Expenses per Audited Statements$11,965,627
Total Expenses per Audited Statements$11,965,627
Expenses Not Reported on Financial Statements$120,124
Other Expense Adjustments$69,265
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
13-1624135-501(c)(3)Lupus Research$1,046,377
59-6002052-TX State GovernmentLupus Research$936,975
74-6000203-TX State GovernmentLupus Research$569,914
56-0532129-501(c)(3)Lupus Research$564,122
95-1642394-TX State GovernmentLupus Research$560,820
54-6001796-501(c)(3)Lupus Research$554,039
23-1365971-501(c)(3)Lupus Research$553,789
74-6000203-501(c)(3)Lupus Research$549,615
41-6007513-501(c)(3)Lupus Research$548,937
23-1352166-501(c)(3)Lupus Research$358,458
13-6171197-501(c)(3)Lupus Research$250,000
43-2300350-501(c)(3)Lupus Research$246,132
74-6001399-Mn State GovernmentLupus Research$192,289
25-0965591-501(c)(3)Lupus Research$66,667
46-3230076-501(c)(3)Lupus Research$28,175
04-2312909-501(c)(3)Lupus Research$14,993
11-2673595-501(c)(3)Lupus Research$13,649
95-6006144-501(c)(3)Lupus Research$13,543
84-6000555-Fl State GovernmentLupus Research$13,383
22-3849199-501(c)(3)Lupus Research$13,250
13-1623978-501(c)(3)Lupus Research$12,850
56-6001393-501(c)(3)Lupus Research$9,991
54-6001796--Lupus Research$7,918
94-1156365-501(c)(3)Lupus Research$7,513
23-1352685-501(c)(3)Lupus Research$7,490
75-1921898-501(c)(3)Lupus Research$7,231

International Summary

Offices
0
Employees
0
Spending
$562,230

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrant Awarded to Institution in the RegionGrant Awarded00$554,751
North AmericaGrant Awarded to Institution in the RegionGrant Awarded00$7,479
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$244,003
Fundraising Gross Income$244,003
Professional Fundraising Fees$49,000

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$901,725$215,187$215,187$0
Event 2$2,789,931$28,816$28,816$0
Total Events$3,691,656$244,003$244,003$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Security Deposit Payable$12,675
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“1. Neil j. Burmeister, ira akselrad (secretary of the board) and robert wood johnson, iv's, (chairman of the board), have a business relationship. 2. Robert wood johnson iv (chair) and robert pittman (director) have a business relationship.”

Form 990, Part VI, Section B, Line 11

“After preparation of form 990 by alr's auditor, lutz and carr, the 990 is reviewed by the alr's senior officers, the chief operating officer and the president. The finance and audit committee of the board then meets to review the 990 before filing and approves for filing with any noted changes. A draft of the 990 is then sent out to the full board for comment prior to filing with the irs. The final form 990 is presented to the full board at the september meeting.”

Form 990, Part VI, Section B, Line 12C

“The governance committee of the board is responsible for monitoring conflicts of interest. An annual conflict of interest disclosure form is required to be filled out each year by board members, officers and key employees.”

Form 990, Part VI, Section B, Line 15

“The compensation committee of the board of directors assisted the board in fulfilling its oversight responsibilities relating to the compensation and benefits of the president and other executive officers; and provided recommendations regarding management successors. Annually the committee reviews and recommends to the board the salary for the president and other officers/key employees. In 2013, the committee reviewed and approved base salaries and annual merit adjustments for all staff with special attention to the chief operating officer and president.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, conflict of interest policy and financial statements are available upon request and on guidestar.org”

Filing and Contact Details

Filer

EIN
58-2492929
Phone
2122182840

Signing Officer

Name
Debra Rose
Title
Chief Operating Officer
Phone
2122182840
Signed
2014-08-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kenneth M Farber
Formed
1999
Legal Domicile
Ny
Voting Board Members
10
Independent Board Members
10
Employees
27
Volunteers
500

Preparer

Preparer
Lauren Cresci
Phone
2126972299
Supplemental Narrative

Additional Explanations

Form 990, Part V, Question 2A

“The alr contracts with ambrose employer group, llc, a professional employer organization (peo), to provide payroll and benefits as a co-employer with the alr. Alr payroll and benefits are administered by ambrose group as approved by alr officers. Alr payroll is therefore under the ambrose group ein: 13-3867443 and w-2's are prepared under that ein by ambrose.”

Financial Statement Notes

PART V, LINE 4:

“Board designated (quasi) endowment fund income to be used for research program grants. Principal to remain intact unless high priority lupus research projects need to be funded that could not be funded otherwise.”

PART X, LINE 2:

“Management evaluated all income tax positions, including the position that the organization is exempt from income taxes or not subject to income taxes on unrelated business income, and concluded that no disclosures relating to uncertain tax positions were required in the financial statements.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“RETURN OF GRANT”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“RETURN OF GRANT”

Part XI, Line 4B and Part XII, Line 4B

“Unused portions of grants returned to alr that were paid in previous years in the amount of $40,970 and adjustments to outstanding grants in the amount of 28,295. These amounts are reconciling items between the revenue and expenses from the audited financial statements and those reported on form 990.”

Schedule D Part VI, Line 1A - Land Held for Resale

“In december 2006, the organization received a donation of land and building currently valued at $1,600,000 which is being held for resale.”

Raw XML AppendixShowing 400 of 1,114 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO SUPPORT RESEARCH TO PREVENT, TREAT AND CURE LUPUS. THE MISSION OF THE ALLIANCE FOR LUPUS RESEARCH (ALR) IS TO SUPPORT BIO-MEDICAL RESEARCH TO PREVENT, TREAT AND CURE LUPUS.
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IRS990/Desc0RESEARCH:THE ALR ENGAGES IN ACTIVE GRANT MAKING MANAGEMENT, WORKING HAND-IN-HAND WITH INVESTIGATORS TO GUIDE AND DRIVE THE RESEARCH PROCESS. (SEE SCHEDULE O). SINCE ITS INCEPTION, THE ALR HAS COMMITTED NEARLY $89 MILLION TO FUND LUPUS RESEARCH PROJECTS. IN 2013, NEW GRANTS TOTALING APPROXIMATELY $7.6 MILLION WERE AWARDED, OF WHICH APPROXIMATELY $6.6 MILLION WENT TO 12 INVESTIGATORS WITH PROMISING NEW AVENUES OF RESEARCH UNDER THE TARGET IDENTIFICATION IN LUPUS (TIL) THREE YEAR GRANT MECHANISM AND $1 MILLION WAS AWARDED TO 4 PROJECTS UNDER THE ALR'S NEW COLLABORATION WITH CENTERS FOR THERAPEUTIC INNOVATION, AN INNOVATIVE PFIZER PROGRAM, WHICH PROVIDES A RESEARCHER UP TO $250,000 PER YEAR FOR LUPUS RESEARCH WITH THE POTENTIAL FOR A SECOND YEAR OF FUNDING BASED UPON THE SUCCESS OF THE FIRST YEAR OF STUDIES.IN 2005, THE ALR LAUNCHED A GLOBAL CONSORTIUM OF LUPUS RESEARCHERS. MEMBERS OF THE INTERNATIONAL SLE GENETICS (SLEGEN) CONSORTIUM POOLED THEIR RESOURCES AND INTELLECTS, DETERMINED TO FIND THE GENES RESPONSIBLE FOR LUPUS. THE PROJECT WAS ORIGINALLY SUPPORTED BY $2.5 MILLION IN FUNDING FROM THE ALR. IN 2010, AN ADDITIONAL $500,000 WAS AWARDED TO THE SLEGEN CONSORTIUM FOR AN IMMUNOCHIP PROCESS GEARED TOWARD UNDERSTANDING THE GENETIC BASIS OF LUPUS IN DIVERSE POPULATIONS AND WORK IS CONTINUING TO BE DONE TO ANALYZE THE CONSORTIUM'S DATA.ALR'S UNIQUE FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS IN THE NEAR FUTURE. THROUGH A COMPETITIVE PEER-REVIEW PROCESS AND AN INNOVATIVE VENTURE-CAPITALIST APPROACH, PROJECTS BY THE ALR AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE. BECAUSE THE ALR'S BOARD OF DIRECTORS FUNDS ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE ALR'S LUPUS RESEARCH PROGRAMS.
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IRS990/Form990PartVIISectionAGrp/PersonNm1JOSEPH MAURIELLO
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IRS990/Form990PartVIISectionAGrp/PersonNm3JAMES P ANDREW
IRS990/Form990PartVIISectionAGrp/PersonNm4NEIL J BURMEISTER
IRS990/Form990PartVIISectionAGrp/PersonNm5ALISON HARMELIN
IRS990/Form990PartVIISectionAGrp/PersonNm6CHARLES J HUEBNER MD
IRS990/Form990PartVIISectionAGrp/PersonNm7DANIEL LAVECCHIA
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IRS990/Form990PartVIISectionAGrp/PersonNm9WILLIAM J MULVIHILL
IRS990/Form990PartVIISectionAGrp/PersonNm10ROBERT W PITTMAN
IRS990/Form990PartVIISectionAGrp/PersonNm11KEITH C WOLD
IRS990/Form990PartVIISectionAGrp/PersonNm12KENNETH M FARBER
IRS990/Form990PartVIISectionAGrp/PersonNm13DEBRA ROSE
IRS990/Form990PartVIISectionAGrp/PersonNm14ROBERT D HINNEN
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IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
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IRS990/MissionDesc0THE MISSION OF THE ALLIANCE FOR LUPUS RESEARCH (ALR) IS TO FIND BETTER TREATMENTS AND ULTIMATELY PREVENT AND CURE SYSTEMATIC LUPUS ERYTHEMATOSUS (SLE OR LUPUS), A DEBILITATING AUTOIMMUNE DISEASE THROUGH BIO-MEDICAL RESEARCH.
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IRS990/ProgSrvcAccomActy2Grp/Desc0SCIENTIFIC PROGRAMS:THE ALR ENCOURAGES CROSS-SECTOR AND CROSS-DISCIPLINE PARTNERSHIPS TO FOSTER AN INNOVATIVE RESEARCH ENVIRONMENT. IN 2013, THERE WERE COLLABORATIVE MEETINGS FUNDED BY THE ALR WHERE RESEARCHERS WERE ENCOURAGED TO EXCHANGE IDEAS AND HELP THE ALR TARGET NEW RESEARCH OPPORTUNITIES. THIS INCLUDED SCIENTIFIC ADVISORY BOARD MEETINGS, OUT OF WHICH CAME SUPPORT FOR CONTINUING THE ALR'S TARGET IDENTIFICATION IN LUPUS GRANT PROGRAM, THE GENETIC PATHWAYS GRANT MECHANISM, CONTINUED SUPPORT FOR THE SLE GENETICS CONSORTIUM AND ENCOURAGING PARTNERSHIPS AMONG INVESTIGATORS, PHARMACEUTICAL AND BIOTECH COMPANIES AND FOR CLINICAL TRIALS. (SEE SCHEDULE O). IN 2013, THE ALR EMBARKED ON A PARTNERSHIP WITH THE LUPUS RESEARCH INSTITUTE (LRI) TO EXPLORE A NEW PROGRAM DESIGNED TO EVALUATE DRUGS ALREADY APPROVED OR VERY CLOSE TO APPROVAL FOR OTHER INDICATIONS AS POSSIBLE CANDIDATES FOR REPURPOSING FOR LUPUS. THE SCIENTIFIC ASSESSMENT CONDUCTED WAS COMPREHENSIVE AND EVIDENCE-BASED, WITH EMPHASIS PLACED ON THE CANDIDATE DRUG'S MECHANISM OF ACTION, SAFETY PROFILE AND THE FEASIBILITY OF CONDUCTING A PROOF OF CONCEPT CLINICAL TRIAL IN LUPUS PATIENTS. THE INITIAL PHASE OF THIS PROJECT IS NOW COMPLETE; APPROXIMATELY 150 CANDIDATE DRUGS THAT MAY HAVE A REASONABLE BASIS FOR EFFICACY FOR SLE, CLE, LN AND/OR CNS LUPUS HAVE BEEN IDENTIFIED. THESE CANDIDATES ARE BEING PRIORITIZED BY AN EXPERT COMMITTEE IN 2014 AS THE ALR AND LRI ARE COMMITTED TO SUPPORTING SMALL, SCIENCE-RICH, PROOF OF CONCEPT TRIALS TO ASSESS AS MANY CANDIDATES AS REASONABLY POSSIBLE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0513410
IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC POLICY:THE MAIN GOALS OF THE ALR'S PUBLIC POLICY PROGRAM ARE TO EDUCATE MEMBERS OF CONGRESS AND THE ADMINISTRATION ABOUT THE IMPORTANCE OF FUNDING LUPUS RESEARCH, TO INCREASE FEDERAL FUNDING FOR LUPUS RESEARCH BY INCREASING OVERALL NATIONAL INSTITUTES OF HEALTH (NIH) FUNDS, AND TO SECURE ADDITIONAL FUNDING FOR LUPUS RESEARCH THROUGH OTHER KEY FEDERAL AGENCIES INCLUDING THE VETERANS ADMINISTRATION AND DEPARTMENT OF DEFENSE. (SEE SCHEDULE O).THROUGH THE ALR'S PUBLIC POLICY PROGRAM EFFORTS, FUNDING FOR LUPUS RESEARCH HAS BEEN OBTAINED UNDER THE DEPARTMENT OF DEFENSE PEER REVIEWED MEDICAL RESEARCH PROGRAM. THIS IS A $50 MILLION COMPETITIVE RESEARCH GRANT PROGRAM. ONLY THOSE DISEASES LISTED IN THE DEFENSE APPROPRIATIONS COMMITTEE REPORT ARE ELIGIBLE TO RECEIVE FUNDING. ALR WAS RESPONSIBLE FOR PERSUADING CONGRESS TO INCLUDE LUPUS ON THIS VERY COMPETITIVE LIST THE PAST NINE YEARS. THROUGH THE ALR'S CONTINUED EFFORTS TO INCLUDE LUPUS ON THE LIST OF DISEASES UNDER THE PRMRP IN THE DEFENSE APPROPRIATIONS BILLS, THE DOD HAS AWARDED OVER $10 MILLION TO LUPUS RESEARCHERS SINCE 2004.IN 2013, MEMBERS OF THE LUPUS COMMUNITY GATHERED IN WASHINGTON, DC FOR THE SECOND CONGRESSIONAL BRIEFING ON LUPUS. THE MEETING OF THE CONGRESSIONAL LUPUS CAUCUS GAVE THOSE ATTENDING A CHANCE TO SHARE THEIR PERSONAL STORIES AND TO SPEAK ABOUT WHY SUPPORTING LUPUS RESEARCH AND CONSIDERING FUTURE POLICY IS VITAL FOR ADVANCING TREATMENTS AND ULTIMATELY FINDING A CURE FOR LUPUS. THE ALR PARTNERED WITH THE LUPUS RESEARCH INSTITUTE TO SUPPORT THESE EFFORTS.
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Document Assets

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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$59,870,295
Liabilities
$12,828,688
Net assets
$47,041,607
Revenue
$11,608,212
Expenses
$12,085,751
Net income
-$477,539
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Summary only. Only limited summary data is available for this year.$93.3$37.5$55.7$18.6$38.2$19.6
2023Summary only. Only limited summary data is available for this year.$112$36.6$75.3$50.9$35.4$15.5
2022Summary only. Only limited summary data is available for this year.$98.9$35.4$63.5$22.7$32.4$9.67
2021Summary only. Only limited summary data is available for this year.$111$41.4$69.5$23.8$26.8$2.99
2020Summary only. Only limited summary data is available for this year.$103$41.9$61.6$44.8$34.3$10.5
2019Summary only. Only limited summary data is available for this year.$71.4$26.7$44.8$21.1$26.8$5.75
2018Summary only. Only limited summary data is available for this year.$65.1$23.8$41.3$19.0$22.9$3.84
2017Summary only. Only limited summary data is available for this year.$77.0$26.5$50.5$25.7$28.3$2.58
2016Summary only. Only limited summary data is available for this year.$67.6$22.5$45.2$18.3$27.1$8.83
2015Summary only. Only limited summary data is available for this year.$63.1$14.9$48.2$18.8$15.2$3.62
2014Summary only. Only limited summary data is available for this year.$64.2$14.6$49.5$14.7$13.7$1.00
2013Detailed filing. Detailed filing data is available for this year.$59.9$12.8$47.0$11.6$12.1$0.48
2012Summary only. Only limited summary data is available for this year.$54.0$12.3$41.7$12.9
2011Summary only. Only limited summary data is available for this year.$49.3$8.40$40.9$11.5
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2013 filings • 501(c)3 • $50M-$100M nonprofits