Liabilities / Assets
64th percentile
Higher debt load relative to assets than 64% of similar nonprofits.
EIN 58-2492929 • 501(c)3 • New York, NY
Profile
Putting people with lupus at the center of all we do, the lupus research alliance drives the discovery & development of next generation lupus diagnostics and curative treatments through innovative research & collaborations.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
64th percentile
Higher debt load relative to assets than 64% of similar nonprofits.
Liabilities / Revenue
85th percentile
Higher debt load relative to revenue than 85% of similar nonprofits.
Net Margin
2nd percentile
Higher net margin than 2% of similar nonprofits.
Top Officer Pay
70th percentile
Higher top officer pay than 70% of similar nonprofits.
Top officer pay equals 2.8% of source-year revenue.
Asset Growth
5th percentile
Faster asset growth than 5% of similar nonprofits.
Revenue Growth
2nd percentile
Faster revenue growth than 2% of similar nonprofits.
Assets
Down$93,254,416
Down $18,692,714 (-17%) from 2023
Liabilities
Up$37,541,841
Up $908,355 (+2.5%) from 2023
Net Assets
Down$55,712,575
Down $19,601,069 (-26%) from 2023
Revenue
Down$18,554,982
Down $32,306,515 (-64%) from 2023
Expenses
Up$38,175,432
Up $2,770,181 (+7.8%) from 2023
Net Income
Down-$19,620,450
Down $35,076,696 (-227%) from 2023
Most recent year
2024 • Form 990Summary only. Only limited summary data is available for this year.
The lupus research alliance leads the world in transforming the lives of people affected with lupus by using the power of science to drive new treatments, prevent disease progression, and find a cure.
Freeing the world of lupus.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $80,913,435 | $73,055,389 | ▼ $7,858,046 |
| Pledges and Grants Receivable | $21,589,284 | $13,309,587 | ▼ $8,279,697 |
| Cash and Non-Interest-Bearing Accounts | $4,319,024 | $3,033,725 | ▼ $1,285,299 |
| Prepaid Expenses and Deferred Charges | $826,852 | $635,827 | ▼ $191,025 |
| Investments Other Securities | $855,454 | $598,131 | ▼ $257,323 |
| Accounts Receivable | $336,389 | $281,210 | ▼ $55,179 |
| Savings and Temporary Cash Investments | $255,096 | $259,307 | ▲ $4,211 |
| Land, Buildings, and Equipment, Net | $262,745 | $182,047 | ▼ $80,698 |
| Total Assets | $111,947,130 | $93,254,416 | ▼ $18,692,714 |
| Other Assets Total | $2,588,851 | $1,899,193 | ▼ $689,658 |
| Liabilities | |||
| Grants Payable | $31,537,305 | $32,647,877 | ▲ $1,110,572 |
| Other Liabilities | $3,733,812 | $2,580,654 | ▼ $1,153,158 |
| Accounts Payable and Accrued Expenses | $1,362,369 | $2,313,310 | ▲ $950,941 |
| Total Liabilities | $36,633,486 | $37,541,841 | ▲ $908,355 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $47,936,256 | $34,833,646 | ▼ $13,102,610 |
| Net Assets With Donor Restrictions | $27,377,388 | $20,878,929 | ▼ $6,498,459 |
| Total Net Assets Fund Balance | $75,313,644 | $55,712,575 | ▼ $19,601,069 |
| Total Liabilities and Net Assets / Fund Balance | $111,947,130 | $93,254,416 | ▼ $18,692,714 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $182,047 | $892,185 | $1,074,232 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2024 | $51,925,078 | - | ▲ $2,690,242 | $4,009,849 | $50,605,471 |
| 2023 | $53,986,019 | - | ▲ $1,956,112 | $4,017,053 | $51,925,078 |
| 2022 | $61,314,537 | - | ▼ $3,669,040 | $3,659,722 | $53,986,019 |
| 2021 | $56,586,437 | - | ▲ $7,839,333 | $3,111,233 | $61,314,537 |
| 2020 | $51,813,456 | - | ▲ $6,226,708 | $1,453,727 | $56,586,437 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Albert Roy | CEO and President | FT | $350,397 | $169,717 | $520,114 |
| Teodora Staeva | Chief Scientific Officer | FT | $273,255 | $133,768 | $407,023 |
| Kenneth M Faber | Former CEO & President | FT | $375,000 | - | $375,000 |
| Stacie Bell Phd | Chief Clinical Research Officer | FT | $258,500 | $93,595 | $352,095 |
| Debra Rose | Chief Financal Officer | FT | $231,519 | $112,443 | $343,962 |
| ANDREA O'NEILL | VP, Development | FT | $245,128 | $47,805 | $292,933 |
| Luke Easley | VP of Hr & Administration | FT | $197,917 | $78,715 | $276,632 |
| Devon Kelly | Lupus Nexus Director | FT | $214,360 | $58,534 | $272,894 |
| Penelope Mitchell | VP of Communications | FT | $185,884 | $72,125 | $258,009 |
| Jennifer Meriwether | Clin Ops Director, Lt | FT | $197,838 | $41,065 | $238,903 |
| Dorey Neilinger | Senior Director of Philanthropy | FT | $179,953 | $56,701 | $236,654 |
| Hoang Nguyen | Director of Scientific Partnership | FT | $157,990 | $49,289 | $207,279 |
| Jonathan Marks | Director of Corporate Development | FT | $146,437 | $53,693 | $200,130 |
| Name | Title |
|---|---|
| Ira Akselrad | Chair |
| Andrew C Chan | Director |
| Bishop Rudy V Carlton | Director |
| Daniel J Wallace | Director |
| Daniel Lavecchia | Director |
| David Kies | Director |
| Gary Koretsky | Director |
| James Andrew | Director |
| Jennie Descherer | Director |
| Jennifer Dakin | Director |
| Joe Germanotta | Director |
| Julius Williams | Director |
| Katey Driscoll | Director |
| Moti Ferder | Director |
| Nadeem Meghji | Director |
| Nidhi Patel | Director |
| Robert Seder Md | Director |
| Spencer Zwick | Director |
| Veronica Vargas Lupo | Director |
| William J Mulvihill | Director |
| William Wolfe | Director |
| Willie Colon | Director |
| Xavier Gross | Director |
| Anna Fisch | Secretary |
| Joseph Mauriello | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Eg&a Cirp Dba Mcs Healthcare Pr | Public Relations Consultant | 110 ALLEN ROAD SUITE 300, Basking Ridge, NJ 07921 | $337,767 |
| Schaner & Lubitz Pllc | Life Sciences Attorney | 4550 MONTGOMERY AVE SUITE 1100 N, Bethesda, MD 20814 | $236,624 |
| Kdh Research And Communication INC | Change Consultant | 145 15TH STREET NE SUITE 831, Atlanta, GA 30309 | $221,900 |
| Decision Information Resources INC | Change Consultant | 3900 ESSEX LANE SUITE 900, Houston, TX 77027 | $200,000 |
| Lautman Maska Neil And Co | Direct Response Consultant | 1703 RHODE ISLAND AVE NW STE 301, Washington, DC 20036 | $161,000 |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 8 | $166,624 | Avg Stock Value |
| Total Noncash Contributions | 8 | $166,624 | - |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $15,491,102 |
| Other Expenses | $11,322,100 |
| Salaries, Compensation, and Employee Benefits | $11,287,230 |
| Total Fundraising Expense | $4,204,298 |
| Professional Fundraising Fees | $75,000 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $12,646,443 | - | - | $12,646,443 |
| Other Salaries and Wages | $3,994,959 | $1,016,399 | $1,255,433 | $6,266,791 |
| Foreign Grants | $2,844,659 | - | - | $2,844,659 |
| Fees for Services Other | $1,432,005 | $440,411 | $782,698 | $2,655,114 |
| Current Officers, Directors, Trustees, and Key Employees | $1,462,319 | $485,262 | $534,988 | $2,482,569 |
| Information Technology | $1,933,319 | $188,519 | $145,988 | $2,267,826 |
| Conferences and Meetings | $1,373,398 | $136,533 | $25,352 | $1,535,283 |
| Other Employee Benefits | $932,484 | $234,951 | $299,998 | $1,467,433 |
| Occupancy | $204,189 | $576,376 | $67,844 | $848,409 |
| Travel | $436,974 | $163,243 | $92,690 | $692,907 |
| Payroll Taxes | $400,273 | $108,162 | $130,775 | $639,210 |
| Pension Plan Contributions | $278,018 | $65,163 | $88,046 | $431,227 |
| All Other Expenses | $84,613 | $30,481 | $207,387 | $322,481 |
| Fees for Services Legal | $197,306 | $40,970 | $12,766 | $251,042 |
| Fees for Services Lobbying | $180,399 | - | - | $180,399 |
| Office Expenses | $115,012 | $41,102 | $19,363 | $175,477 |
| Fees for Service Investment Mgmnt Fees | - | $173,130 | - | $173,130 |
| Other Expenses | $34,649 | $84,833 | $976 | $120,458 |
| Depreciation Depletion | $71,561 | $19,987 | $23,534 | $115,082 |
| Insurance | $57,290 | $13,636 | $16,234 | $87,160 |
| Fees for Services Accounting | - | $78,240 | - | $78,240 |
| Fees for Services Professional Fundraising | - | - | $75,000 | $75,000 |
| Total Functional Expenses | $30,004,328 | $3,966,806 | $4,204,298 | $38,175,432 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $38,175,432 |
| Expenses per Audited Statements | $38,002,302 |
| Total Expenses per Audited Statements | $38,002,302 |
| Expenses Not Reported on Financial Statements | $173,130 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Emory University | Atlanta, GA | 501(c)(3) | Lupus Research | $1,287,995 |
| Hospital for Special Surgery | New York, NY | 501(c)(3) | Lupus Research | $973,154 |
| BRIGHAM AND WOMEN'S HOSPITAL | Boston, MA | 501(c)(3) | Lupus Research | $935,996 |
| BOSTON CHILDREN'S HOSPTIAL | Boston, MA | 501(c)(3) | Lupus Research | $919,988 |
| Medical University of South Carolina | Charleston, SC | Section 115 - Sc Sta | Lupus Research | $798,495 |
| SEATTLE CHILDREN'S HOSPITAL | Seattle, WA | 501(c)(3) | Lupus Research | $769,121 |
| University of Pittsburgh | Pittsburgh, PA | 501(c)(3) | Lupus Research | $768,000 |
| University of Houston | Houston, TX | 501(c)(3) | Lupus Research | $600,000 |
| La Jolla Institute for Immunology | La Jolla, CA | 501(c)(3) | Lupus Research | $449,814 |
| Feinstein Institute for Medical Research | Manhasset, NY | 501(c)(3) | Lupus Research | $368,535 |
| Trustees of the University of Pennsylvania | Philadelphia, PA | 501(c)(3) | Lupus Research | $343,842 |
| Stanford University | Palo Alto, CA | 501(c)(3) | Lupus Research | $319,671 |
| Fred Hutchinson Cancer Center | Seattle, WA | 501(c)(3) | Lupus Research | $300,000 |
| Memorial Sloan-kettering Cancer Center | New York, NY | 501(c)(3) | Lupus Research | $300,000 |
| Case Western Reserve University | Cleveland, OH | 501(c)(3) | Lupus Research | $298,598 |
| The University of Chicago | Chicago, IL | 501(c)(3) | Lupus Research | $186,154 |
| University of Massachusetts Medical School | Worcester, MA | Ma State Government | Lupus Research | $185,223 |
| The University of North Carolina at Chapel Hill | College Park, GA | 501(c)(3) | Lupus Research | $182,114 |
| University of California San Francisco | Berkeley, CA | 501(c)(3) | Lupus Research | $164,938 |
| New York University School of Medicine | New York, NY | 501(c)(3) | Lupus Research | $142,715 |
| University of Rochester | Rochester, NY | 501(c)(3) | Lupus Research | $134,000 |
| The Ohio State University | Columbus, OH | Section 115 - Oh Sta | Lupus Research | $127,170 |
| University of Michigan | Ann Arbor, MI | 501(c)(3) | Lupus Research | $122,959 |
| Foundation for the National Institutes of Health Inc | Bethesda, MD | 501(c)(3) | Lupus Research | $100,000 |
| University of Tennessee Health Sci Center | Memphis, TN | Section 115 - Tn Sta | Lupus Research | $100,000 |
| Columbia University Medical Center | New York, NY | 501(c)(3) | Lupus Research | $97,762 |
| University of Alabama at Birmingham | Birmingham, AL | 501(c)(3) | Lupus Research | $92,869 |
| Yale University | New Haven, CT | 501(c)(3) | Lupus Research | $87,232 |
| University of Colorado Anschutz Medical Campus | Boulder, CO | 501(c)(3) | Lupus Research | $80,498 |
| University of Maryland Baltimore | Baltimore, MD | Section 115 - Md Sta | Lupus Research | $72,612 |
| Regents of the University of California San Diego | La Jolla, CA | 501(c)(3) | Lupus Research | $61,175 |
| Oklahoma Medical Research Foundation | Oklahoma City, OK | 501(c)(3) | Lupus Research | $50,087 |
| University of Nebraska Medical Center | Omaha, NE | 501(c)(3) | Lupus Research | $49,000 |
| Regents of the University of California Los Angeles | Los Angeles, CA | 501(c)(3) | Lupus Research | $48,441 |
| Ut Southwestern Medical Center | Dallas, TX | TX State Government | Lupus Research | $47,819 |
| Northwell Health - Division of Rheumatology | Westbury, NY | 501(c)(3) | Lupus Research | $40,960 |
| Northwestern University | Evanston, IL | 501(c)(3) | Lupus Research | $38,847 |
| Wallace Rheumatic Studies Center LLC | W Hollywood, CA | 501(c)(3) | Lupus Research | $38,373 |
| Wake Forest University Health Sciences | Winstonsalem, NC | 501(c)(3) | Lupus Research | $38,000 |
| University of Arizona College of Medicine Tucson | Tucson, AZ | Az State Government | Lupus Research | $37,953 |
| Rush University Medical Center | Chicago, IL | 501(c)(3) | Lupus Research | $32,392 |
| Univeristy of Southern California | Los Angeles, CA | 501(c)(3) | Lupus Research | $32,000 |
| The Metrohealth System | Cleveland, OH | Section 115 - Oh Sta | Lupus Research | $31,314 |
| Mayo Clinic | Rochester, MN | 501(c)(3) | Lupus Research | $30,453 |
| Washington University School of Medicine Missouri | St Louis, MO | 501(c)(3) | Lupus Research | $30,239 |
| Regents of the University of California Irvine | Irvine, CA | 501(c)(3) | Lupus Research | $30,027 |
| Rilite Foundation | Charlottesville, VA | 501(c)(3) | Lupus Research | $30,000 |
| Tulane University Aka the Tulane Educational Fund | New Orleans, LA | 501(c)(3) | Lupus Research | $30,000 |
| Albert Einstein College of Medicine | Bronx, NY | 501(c)(3) | Lupus Research | $28,743 |
| Vanderbilt University Medical Center | Nashville, TN | 501(c)(3) | Lupus Research | $28,241 |
| Massachusetts General Hospital | Boston, MA | 501(c)(3) | Lupus Research | $25,729 |
| Beth Israel Deaconess Medical Center | Boston, MA | 501(c)(3) | Lupus Research | $25,525 |
| University of Nevada Las Vegas | Las Vegas, NV | Nv State Government | Lupus Research | $24,000 |
| State University of Ny at Stony Brook | Syracuse, NY | 501(c)(3) | Lupus Research | $23,000 |
| Pennsylvania State University | University Park, PA | 501(c)(3) | Lupus Research | $21,678 |
| University of Florida | Gainseville, FL | Fl State Government | Lupus Research | $21,000 |
| University of Kansas Medical Center Research Institute | Kansas City, KS | 501(c)(3) | Lupus Research | $18,000 |
| University of Miami | Coral Gables, FL | 501(c)(3) | Lupus Research | $18,000 |
| University of Washington | Seattle, WA | Wa State Government | Lupus Research | $16,112 |
| The Jackson Laboratory | Bar Harbor, ME | 501(c)(3) | Lupus Research | $15,000 |
| Cedars-sinai Medical Center | Los Angeles, CA | 501(c)(3) | Lupus Research | $10,000 |
| Georgetown University Medical Center | Washington, DC | 501(c)(3) | Lupus Research | $10,000 |
| Leland Stanford Junior University | East Lansing, MI | 501(c)(3) | Lupus Research | $10,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe (including Iceland & Greenland) - Albania, Andorra, Austria, Belgium | Grants to Recipients | - | 0 | 0 | $1,308,684 |
| East Asia and the Pacific | Grants to Recipients | - | 0 | 0 | $851,280 |
| North America - Canada and Mexico, But Not the United States | Grants to Recipients | - | 0 | 0 | $684,695 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $692,418 |
| Fundraising Gross Income | $692,418 |
| Professional Fundraising Fees | $75,000 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala Celebration | $3,487,331 | $653,326 | $239,134 | $414,192 |
| Walk-a-thons | $993,237 | $39,092 | $17,966 | $21,126 |
| Total Events | $4,480,568 | $692,418 | $692,418 | $0 |
| Liability | Amount |
|---|---|
| Operating Lease Liabilities | $2,580,654 |
“Executive committee is comprised of the board co-chairs, president, board secretary and one additional voting board member. The executive committee approves details of programs already approved by the board, staff compensation and large contract negotiations.”
“Ira akselrad and robert wood johnson, iv (past chairman of the board), have a business relationship. Richard k. Descherer (co-chair) and jennie descherer have a family relationship.”
“After preparation of form 990 by lra's auditor, lutz and carr, the 990 is reviewed by the lra's executive officers, the chief financial officer and the president. The finance and audit committee of the board then meets to review the 990 before filing and approves for filing with any noted changes. A draft of the 990 is then sent out to the full board for comment prior to filing with the irs. The final form 990 is presented to the full board at the next scheduled meeting.”
“The executive committee of the board is responsible for monitoring conflicts of interest. An annual conflict of interest disclosure form is required to be filled out each year by board members, officers and key employees.”
“The compensation committee of the board of directors assisted the board in fulfilling its oversight responsibilities relating to the compensation and benefits of the president and other executive officers; and provided recommendations regarding management successors. Annually the committee reviews and recommends to the board the salary for the president and other officers/key employees. In 2023, the committee reviewed and approved base salaries, 2024 compensation plan including the 2023 year-end bonus pool for all staff and the 403b non-elective employer contribution to all eligible staff.”
“The organization's governing documents are available upon request, the conflict of interest policy and financial statements are also available upon request and are on the financials page of our website and on guidestar.org”
“Cancelled grants 308,341.”
“The lra contracts with trinet, a professional employer organization (peo), to provide payroll and benefits as a co-employer with the lra. Lra payroll and benefits are administered by trinet as approved by lra officers. Lra payroll is therefore under the trinet ein: 13-3867443 and w-2's are prepared under that ein by trinet.”
“Board designated (quasi) endowment fund income to be used for supporting operations and the research program. Principal to remain intact unless high priority lupus research projects need to be funded that could not be funded otherwise.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 1362369 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 2313310 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 336389 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 281210 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | FREEING THE WORLD OF LUPUS. |
| IRS990/AllOtherContributionsAmt | 0 | 7384454 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 207387 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 30481 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 84613 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 322481 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | DEBRA ROSE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6468846000 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 270 MADISON AVE SUITE 300 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10016 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 4319024 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 3033725 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 10 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 534988 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 485262 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 1462319 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 2482569 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 25352 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 136533 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1373398 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1535283 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 1 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 337767 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 236624 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 221900 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 3 | 200000 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 4 | 161000 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 110 ALLEN ROAD SUITE 300 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 4550 MONTGOMERY AVE SUITE 1100 N |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 145 15TH STREET NE SUITE 831 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 3 | 3900 ESSEX LANE SUITE 900 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 4 | 1703 RHODE ISLAND AVE NW STE 301 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | BASKING RIDGE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | BETHESDA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | ATLANTA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 3 | HOUSTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 4 | WASHINGTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | NJ |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | MD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | GA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 3 | TX |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 4 | DC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 07921 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 20814 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 30309 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 3 | 77027 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 4 | 20036 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | EG&A CIRP DBA MCS HEALTHCARE PR |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | SCHANER & LUBITZ PLLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | KDH RESEARCH AND COMMUNICATION INC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 3 | DECISION INFORMATION RESOURCES INC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 4 | LAUTMAN MASKA NEIL AND CO |
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| IRS990/Desc | 0 | THE LUPUS RESEARCH ALLIANCE (LRA), THE LARGEST NON-GOVERNMENTAL, PRIVATE FUNDER OF LUPUS RESEARCH WORLDWIDE: FUNDS INNOVATIVE RESEARCH THAT SPANS THE SPECTRUM FROM FOUNDATIONAL TO CLINICAL RESEARCH. FOSTERS DIVERSE SCIENTIFIC TALENT, STIMULATES COLLABORATIONS, AND DRIVES DISCOVERIES TO TRANSFORM TREATMENT WHILE ADVANCING TOWARD A CURE. HAS INVESTED NEARLY $272 MILLION IN LUPUS RESEARCH INCLUDING 620+ RESEARCH GRANTS LRA-FUNDED RESEARCH PAVED THE WAY FOR THE ONLY TWO BIOLOGIC DRUGS CURRENTLY APPROVED FOR LUPUS, AND THE LRA IS INVOLVED IN NUMEROUS ONGOING PHASE 3 TRIALS. FURTHER, LRA RESEARCH INVESTMENTS HAVE CONTRIBUTED TO THE IDENTIFICATION OR FURTHER VALIDATION OF TWO DOZEN DISEASE PATHWAYS IN LUPUS AND HAVE ENABLED THE DISCOVERY, PROOF OF CONCEPT, OR DEVELOPMENT OF MORE THAN A DOZEN DIFFERENT NEW THERAPIES FOR LUPUS. SINCE THE FORMATION OF THE LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN), LRA HAS DEDICATED $34 MILLION TO BOLSTER LUPUS CLINICAL RESEARCH INFRASTRUCTURE AND QUALITY.THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORY BOARD INCLUDES TOP SCIENTIFIC EXPERTS, AND KEY LAY MEMBERS OF THE LRA'S BOARD OF DIRECTORS, WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA.IN 2024 ALONE, OVER $12 MILLION WAS AWARDED IN GRANTS FOR 38 HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS AND THUS LEAD TO A CURE. BELOW IS A SUMMARY OF RESEARCH GRANTS AND PROGRAMS FUNDED BY THE LRA IN 2024: 1) 11 LUPUS INNOVATION AWARD GRANTS WERE AWARDED TOTALING ALMOST $4 MILLION OVER TWO YEARS, THIS PROGRAM SUPPORTS PIONEERING, HIGH-RISK, HIGH-REWARD PROJECTS ADDRESSING MAJOR CHALLENGES IN LUPUS RESEARCH. EARLY-STAGE INVESTIGATORS ARE GIVEN SPECIAL CONSIDERATION DURING THE REVIEW PROCESS AND ARE ELIGIBLE FOR A THIRD YEAR OF FUNDING; 2) 6 ADMINISTRATIVE LUPUS RESEARCH SUPPLEMENT GRANTS WERE AWARDED TOTALING $90,000. THIS PROGRAM SUPPORTS PROMISING TRAINEES WHO ARE WORKING WITH LRA-FUNDED RESEARCHERS OR INVESTIGATORS FOCUSED ON AUTOIMMUNITY SUPPORTED BY THE NATIONAL INSTITUTES OF HEALTH (NIH), DEPARTMENT OF DEFENSE (DOD), OR EQUIVALENT GRANTS IN GOOD STANDING. 3) 3 GRANTS TOTALING APPROXIMATELY $1.8 MILLION WERE AWARDED TO RESEARCHERS IN THE CAREER DEVELOPMENT AWARD PROGRAM THAT AIMS TO SUPPORT EARLY CAREER INVESTIGATORS FOR THE PERIOD BETWEEN THE COMPLETION OF POST-DOCTORATE FELLOWSHIP TRAINING AND ESTABLISHMENT AS AN INDEPENDENT INVESTIGATOR. THE PROGRAM PROVIDES UP TO $600,000 OVER FOUR YEARS. 4) 2 POSTDOCTORAL GRANTS FELLOWSHIP GRANTS AWARDED, THIS GRANT IS DESIGNED TO FUND PROMISING RESEARCH FELLOWS AND PROVIDES THEM WITH UP TO $170,000 OVER TWO YEARS TO SUPPORT THE GENERATION OF DATA, UNIQUE RESEARCH IDEAS AND PROGRESS TO TRANSITION TO AN INDEPENDENT RESEARCH ROLES FOCUSED ON LUPUS RESEARCH. 5) 5 TRANSLATIONAL BRIDGE AWARDS FUNDED TOTALING APPROXIMATELY $2.2 MILLION. THIS PROGRAM PROVIDES UP TO $450,000 OVER TWO YEARS, WITH A GOAL TO BRIDGE THE GAP BETWEEN POST-DISCOVERY AND PRE-COMMERCIAL DEVELOPMENT WITH AN AIM TO ACCELERATE THE PACE AT WHICH PROMISING LRA-FUNDED FOUNDATIONAL RESEARCH DISCOVERIES ARE TRANSLATED INTO CLINICAL EVALUATION AND TRANSITIONED TO A VIABLE PRODUCT THAT WILL IMPACT PATIENTS DIRECTLY. 6) 11 TARGETED RESEARCH PROGRAM ON ENGINEERED CELL THERAPIES FOR LUPUS GRANTS TOTALING OVER $4 MILLION. THIS PROGRAM ADVANCES THE DEVELOPMENT OF NEXT GENERATION ENGINEERED CELL THERAPIES WITH A CLEAR AND DIRECT RELEVANCE TO PEOPLE WITH LUPUS.7) THE LUPUS INSIGHT PRIZE WAS AWARDED $200,000. THIS AWARD RECOGNIZED TWO LEADING RESEARCHERS WHO HAVE MADE A MAJOR CONTRIBUTION RELEVANT TO LUPUS, AS PART THE LRA'S COMMITMENT TO COLLABORATION, THE LRA WORKS WITH A VARIETY OF PARTNERS ACROSS SECTORS AIMED AT ACCELERATING RESEARCH DISCOVERIES, LEVERAGING RESOURCES, AND EXPEDITING THE DRUG DEVELOPMENT PROCESS TO IMPROVE THE QUALITY OF LIFE OF PEOPLE LIVING WITH LUPUS BRINGING TOGETHER THE KEY PLAYERS IN THE FIGHT AGAINST LUPUS -- |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 29 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 30 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 31 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 32 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 33 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 34 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 35 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 36 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 37 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | CEO AND PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | CHIEF CLINICAL RESEARCH OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 27 | CHIEF FINANCAL OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 28 | CHIEF SCIENTIFIC OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 29 | VP, DEVELOPMENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 30 | VP OF COMMUNICATIONS |
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