Civic Intelligence

Lupus Research Alliance Inc

EIN 58-2492929 • 501(c)3 • New York, NY

Profile

Putting people with lupus at the center of all we do, the lupus research alliance drives the discovery & development of next generation lupus diagnostics and curative treatments through innovative research & collaborations.

270 Madison Avenue Suite 300New York, NY 10016

lupusresearch.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

64th percentile

0.40x

Higher debt load relative to assets than 64% of similar nonprofits.

501(c)3 • $50M-$100M nonprofits • Source year 2024

Liabilities / Revenue

85th percentile

2.02x

Higher debt load relative to revenue than 85% of similar nonprofits.

501(c)3 • $50M-$100M nonprofits • Source year 2024

Net Margin

2nd percentile

-106%

Higher net margin than 2% of similar nonprofits.

501(c)3 • $50M-$100M nonprofits • Source year 2024

Top Officer Pay

70th percentile

$520,114

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 2.8% of source-year revenue.

501(c)3 • $50M-$100M nonprofits • Source year 2024

Asset Growth

5th percentile

-17%

Faster asset growth than 5% of similar nonprofits.

501(c)3 • $50M-$100M nonprofits • Annualized from 2023 to 2024

Revenue Growth

2nd percentile

-64%

Faster revenue growth than 2% of similar nonprofits.

501(c)3 • $50M-$100M nonprofits • Annualized from 2023 to 2024

Assets

Down

$93,254,416

Down $18,692,714 (-17%) from 2023

Liabilities

Up

$37,541,841

Up $908,355 (+2.5%) from 2023

Net Assets

Down

$55,712,575

Down $19,601,069 (-26%) from 2023

Revenue

Down

$18,554,982

Down $32,306,515 (-64%) from 2023

Expenses

Up

$38,175,432

Up $2,770,181 (+7.8%) from 2023

Net Income

Down

-$19,620,450

Down $35,076,696 (-227%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$150M$100M$50M$0Assets 2011: $49,323,929Liabilities 2011: $8,402,057Net Assets 2011: $40,921,8722011Assets 2012: $53,990,813Liabilities 2012: $12,257,318Net Assets 2012: $41,733,4952012Assets 2013: $59,870,295Liabilities 2013: $12,828,688Net Assets 2013: $47,041,6072013Assets 2014: $64,157,288Liabilities 2014: $14,643,187Net Assets 2014: $49,514,1012014Assets 2015: $63,114,028Liabilities 2015: $14,893,239Net Assets 2015: $48,220,7892015Assets 2016: $67,639,535Liabilities 2016: $22,480,616Net Assets 2016: $45,158,9192016Assets 2017: $77,005,974Liabilities 2017: $26,522,326Net Assets 2017: $50,483,6482017Assets 2018: $65,079,955Liabilities 2018: $23,818,659Net Assets 2018: $41,261,2962018Assets 2019: $71,431,718Liabilities 2019: $26,661,517Net Assets 2019: $44,770,2012019Assets 2020: $103,408,141Liabilities 2020: $41,851,086Net Assets 2020: $61,557,0552020Assets 2021: $110,909,946Liabilities 2021: $41,423,828Net Assets 2021: $69,486,1182021Assets 2022: $98,907,292Liabilities 2022: $35,375,707Net Assets 2022: $63,531,5852022Assets 2023: $111,947,130Liabilities 2023: $36,633,486Net Assets 2023: $75,313,6442023Assets 2024: $93,254,416Liabilities 2024: $37,541,841Net Assets 2024: $55,712,5752024

Highlighted filing

2024

Assets$93,254,416
Liabilities$37,541,841
Net Assets$55,712,575

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$60M$40M$20M$0-$20MExpenses 2011: $11,495,7472011Expenses 2012: $12,932,0412012Revenue 2013: $11,608,212Expenses 2013: $12,085,751Net Income 2013: -$477,5392013Revenue 2014: $14,705,963Expenses 2014: $13,704,978Net Income 2014: $1,000,9852014Revenue 2015: $18,798,865Expenses 2015: $15,182,411Net Income 2015: $3,616,4542015Revenue 2016: $18,270,127Expenses 2016: $27,101,903Net Income 2016: -$8,831,7762016Revenue 2017: $25,685,124Expenses 2017: $28,260,250Net Income 2017: -$2,575,1262017Revenue 2018: $19,027,496Expenses 2018: $22,863,628Net Income 2018: -$3,836,1322018Revenue 2019: $21,058,692Expenses 2019: $26,811,042Net Income 2019: -$5,752,3502019Revenue 2020: $44,790,052Expenses 2020: $34,266,813Net Income 2020: $10,523,2392020Revenue 2021: $23,780,030Expenses 2021: $26,772,083Net Income 2021: -$2,992,0532021Revenue 2022: $22,699,491Expenses 2022: $32,373,925Net Income 2022: -$9,674,4342022Revenue 2023: $50,861,497Expenses 2023: $35,405,251Net Income 2023: $15,456,2462023Revenue 2024: $18,554,982Expenses 2024: $38,175,432Net Income 2024: -$19,620,4502024

Highlighted filing

2024

Revenue$18,554,982
Expenses$38,175,432
Net Income-$19,620,450

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Summary only. Only limited summary data is available for this year.$93.3$37.5$55.7$18.6$38.2$19.6
2023Summary only. Only limited summary data is available for this year.$112$36.6$75.3$50.9$35.4$15.5
2022Summary only. Only limited summary data is available for this year.$98.9$35.4$63.5$22.7$32.4$9.67
2021Summary only. Only limited summary data is available for this year.$111$41.4$69.5$23.8$26.8$2.99
2020Summary only. Only limited summary data is available for this year.$103$41.9$61.6$44.8$34.3$10.5
2019Summary only. Only limited summary data is available for this year.$71.4$26.7$44.8$21.1$26.8$5.75
2018Summary only. Only limited summary data is available for this year.$65.1$23.8$41.3$19.0$22.9$3.84
2017Summary only. Only limited summary data is available for this year.$77.0$26.5$50.5$25.7$28.3$2.58
2016Summary only. Only limited summary data is available for this year.$67.6$22.5$45.2$18.3$27.1$8.83
2015Summary only. Only limited summary data is available for this year.$63.1$14.9$48.2$18.8$15.2$3.62
2014Summary only. Only limited summary data is available for this year.$64.2$14.6$49.5$14.7$13.7$1.00
2013Summary only. Only limited summary data is available for this year.$59.9$12.8$47.0$11.6$12.1$0.48
2012Summary only. Only limited summary data is available for this year.$54.0$12.3$41.7$12.9
2011Summary only. Only limited summary data is available for this year.$49.3$8.40$40.9$11.5
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 11, 2025
Return Version
2024v5.2
Gross Receipts
$31,453,401
Mission and Program Overview

Mission

The lupus research alliance leads the world in transforming the lives of people affected with lupus by using the power of science to drive new treatments, prevent disease progression, and find a cure.

Freeing the world of lupus.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$80,913,435$73,055,389▼ $7,858,046
Pledges and Grants Receivable$21,589,284$13,309,587▼ $8,279,697
Cash and Non-Interest-Bearing Accounts$4,319,024$3,033,725▼ $1,285,299
Prepaid Expenses and Deferred Charges$826,852$635,827▼ $191,025
Investments Other Securities$855,454$598,131▼ $257,323
Accounts Receivable$336,389$281,210▼ $55,179
Savings and Temporary Cash Investments$255,096$259,307▲ $4,211
Land, Buildings, and Equipment, Net$262,745$182,047▼ $80,698
Total Assets$111,947,130$93,254,416▼ $18,692,714
Other Assets Total$2,588,851$1,899,193▼ $689,658
Liabilities
Grants Payable$31,537,305$32,647,877▲ $1,110,572
Other Liabilities$3,733,812$2,580,654▼ $1,153,158
Accounts Payable and Accrued Expenses$1,362,369$2,313,310▲ $950,941
Total Liabilities$36,633,486$37,541,841▲ $908,355
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$47,936,256$34,833,646▼ $13,102,610
Net Assets With Donor Restrictions$27,377,388$20,878,929▼ $6,498,459
Total Net Assets Fund Balance$75,313,644$55,712,575▼ $19,601,069
Total Liabilities and Net Assets / Fund Balance$111,947,130$93,254,416▼ $18,692,714

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$182,047$892,185$1,074,232

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$51,925,078-▲ $2,690,242$4,009,849$50,605,471
2023$53,986,019-▲ $1,956,112$4,017,053$51,925,078
2022$61,314,537-▼ $3,669,040$3,659,722$53,986,019
2021$56,586,437-▲ $7,839,333$3,111,233$61,314,537
2020$51,813,456-▲ $6,226,708$1,453,727$56,586,437
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Albert RoyCEO and PresidentFT$350,397$169,717$520,114
Teodora StaevaChief Scientific OfficerFT$273,255$133,768$407,023
Kenneth M FaberFormer CEO & PresidentFT$375,000-$375,000
Stacie Bell PhdChief Clinical Research OfficerFT$258,500$93,595$352,095
Debra RoseChief Financal OfficerFT$231,519$112,443$343,962
ANDREA O'NEILLVP, DevelopmentFT$245,128$47,805$292,933
Luke EasleyVP of Hr & AdministrationFT$197,917$78,715$276,632
Devon KellyLupus Nexus DirectorFT$214,360$58,534$272,894
Penelope MitchellVP of CommunicationsFT$185,884$72,125$258,009
Jennifer MeriwetherClin Ops Director, LtFT$197,838$41,065$238,903
Dorey NeilingerSenior Director of PhilanthropyFT$179,953$56,701$236,654
Hoang NguyenDirector of Scientific PartnershipFT$157,990$49,289$207,279
Jonathan MarksDirector of Corporate DevelopmentFT$146,437$53,693$200,130

Board Members and Trustees

Highest Paid Contractors

ContractorServicesLocationCompensation
Eg&a Cirp Dba Mcs Healthcare PrPublic Relations Consultant110 ALLEN ROAD SUITE 300, Basking Ridge, NJ 07921$337,767
Schaner & Lubitz PllcLife Sciences Attorney4550 MONTGOMERY AVE SUITE 1100 N, Bethesda, MD 20814$236,624
Kdh Research And Communication INCChange Consultant145 15TH STREET NE SUITE 831, Atlanta, GA 30309$221,900
Decision Information Resources INCChange Consultant3900 ESSEX LANE SUITE 900, Houston, TX 77027$200,000
Lautman Maska Neil And CoDirect Response Consultant1703 RHODE ISLAND AVE NW STE 301, Washington, DC 20036$161,000
Revenue and Support

Revenue Composition

Contributions and Grants
$11,172,604
Program Service Revenue
$1,874,491
Investment Income
$4,937,822
Other Revenue
$570,065
All Other Contributions
$7,384,454
Change in Net Assets
$-19,620,450

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded8$166,624Avg Stock Value
Total Noncash Contributions8$166,624-

Audited Revenue Reconciliation

Revenue per Audited Statements
$18,381,852
Revenue Not Reported on Financial Statements
$173,130
Revenue Not Reported on Form 990
$19,381
Total Revenue per Audited Statements
$18,401,233
Total Revenue per Form 990
$18,554,982
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$15,491,102
Other Expenses$11,322,100
Salaries, Compensation, and Employee Benefits$11,287,230
Total Fundraising Expense$4,204,298
Professional Fundraising Fees$75,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$12,646,443--$12,646,443
Other Salaries and Wages$3,994,959$1,016,399$1,255,433$6,266,791
Foreign Grants$2,844,659--$2,844,659
Fees for Services Other$1,432,005$440,411$782,698$2,655,114
Current Officers, Directors, Trustees, and Key Employees$1,462,319$485,262$534,988$2,482,569
Information Technology$1,933,319$188,519$145,988$2,267,826
Conferences and Meetings$1,373,398$136,533$25,352$1,535,283
Other Employee Benefits$932,484$234,951$299,998$1,467,433
Occupancy$204,189$576,376$67,844$848,409
Travel$436,974$163,243$92,690$692,907
Payroll Taxes$400,273$108,162$130,775$639,210
Pension Plan Contributions$278,018$65,163$88,046$431,227
All Other Expenses$84,613$30,481$207,387$322,481
Fees for Services Legal$197,306$40,970$12,766$251,042
Fees for Services Lobbying$180,399--$180,399
Office Expenses$115,012$41,102$19,363$175,477
Fees for Service Investment Mgmnt Fees-$173,130-$173,130
Other Expenses$34,649$84,833$976$120,458
Depreciation Depletion$71,561$19,987$23,534$115,082
Insurance$57,290$13,636$16,234$87,160
Fees for Services Accounting-$78,240-$78,240
Fees for Services Professional Fundraising--$75,000$75,000
Total Functional Expenses$30,004,328$3,966,806$4,204,298$38,175,432

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$38,175,432
Expenses per Audited Statements$38,002,302
Total Expenses per Audited Statements$38,002,302
Expenses Not Reported on Financial Statements$173,130
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Emory UniversityAtlanta, GA501(c)(3)Lupus Research$1,287,995
Hospital for Special SurgeryNew York, NY501(c)(3)Lupus Research$973,154
BRIGHAM AND WOMEN'S HOSPITALBoston, MA501(c)(3)Lupus Research$935,996
BOSTON CHILDREN'S HOSPTIALBoston, MA501(c)(3)Lupus Research$919,988
Medical University of South CarolinaCharleston, SCSection 115 - Sc StaLupus Research$798,495
SEATTLE CHILDREN'S HOSPITALSeattle, WA501(c)(3)Lupus Research$769,121
University of PittsburghPittsburgh, PA501(c)(3)Lupus Research$768,000
University of HoustonHouston, TX501(c)(3)Lupus Research$600,000
La Jolla Institute for ImmunologyLa Jolla, CA501(c)(3)Lupus Research$449,814
Feinstein Institute for Medical ResearchManhasset, NY501(c)(3)Lupus Research$368,535
Trustees of the University of PennsylvaniaPhiladelphia, PA501(c)(3)Lupus Research$343,842
Stanford UniversityPalo Alto, CA501(c)(3)Lupus Research$319,671
Fred Hutchinson Cancer CenterSeattle, WA501(c)(3)Lupus Research$300,000
Memorial Sloan-kettering Cancer CenterNew York, NY501(c)(3)Lupus Research$300,000
Case Western Reserve UniversityCleveland, OH501(c)(3)Lupus Research$298,598
The University of ChicagoChicago, IL501(c)(3)Lupus Research$186,154
University of Massachusetts Medical SchoolWorcester, MAMa State GovernmentLupus Research$185,223
The University of North Carolina at Chapel HillCollege Park, GA501(c)(3)Lupus Research$182,114
University of California San FranciscoBerkeley, CA501(c)(3)Lupus Research$164,938
New York University School of MedicineNew York, NY501(c)(3)Lupus Research$142,715
University of RochesterRochester, NY501(c)(3)Lupus Research$134,000
The Ohio State UniversityColumbus, OHSection 115 - Oh StaLupus Research$127,170
University of MichiganAnn Arbor, MI501(c)(3)Lupus Research$122,959
Foundation for the National Institutes of Health IncBethesda, MD501(c)(3)Lupus Research$100,000
University of Tennessee Health Sci CenterMemphis, TNSection 115 - Tn StaLupus Research$100,000
Columbia University Medical CenterNew York, NY501(c)(3)Lupus Research$97,762
University of Alabama at BirminghamBirmingham, AL501(c)(3)Lupus Research$92,869
Yale UniversityNew Haven, CT501(c)(3)Lupus Research$87,232
University of Colorado Anschutz Medical CampusBoulder, CO501(c)(3)Lupus Research$80,498
University of Maryland BaltimoreBaltimore, MDSection 115 - Md StaLupus Research$72,612
Regents of the University of California San DiegoLa Jolla, CA501(c)(3)Lupus Research$61,175
Oklahoma Medical Research FoundationOklahoma City, OK501(c)(3)Lupus Research$50,087
University of Nebraska Medical CenterOmaha, NE501(c)(3)Lupus Research$49,000
Regents of the University of California Los AngelesLos Angeles, CA501(c)(3)Lupus Research$48,441
Ut Southwestern Medical CenterDallas, TXTX State GovernmentLupus Research$47,819
Northwell Health - Division of RheumatologyWestbury, NY501(c)(3)Lupus Research$40,960
Northwestern UniversityEvanston, IL501(c)(3)Lupus Research$38,847
Wallace Rheumatic Studies Center LLCW Hollywood, CA501(c)(3)Lupus Research$38,373
Wake Forest University Health SciencesWinstonsalem, NC501(c)(3)Lupus Research$38,000
University of Arizona College of Medicine TucsonTucson, AZAz State GovernmentLupus Research$37,953
Rush University Medical CenterChicago, IL501(c)(3)Lupus Research$32,392
Univeristy of Southern CaliforniaLos Angeles, CA501(c)(3)Lupus Research$32,000
The Metrohealth SystemCleveland, OHSection 115 - Oh StaLupus Research$31,314
Mayo ClinicRochester, MN501(c)(3)Lupus Research$30,453
Washington University School of Medicine MissouriSt Louis, MO501(c)(3)Lupus Research$30,239
Regents of the University of California IrvineIrvine, CA501(c)(3)Lupus Research$30,027
Rilite FoundationCharlottesville, VA501(c)(3)Lupus Research$30,000
Tulane University Aka the Tulane Educational FundNew Orleans, LA501(c)(3)Lupus Research$30,000
Albert Einstein College of MedicineBronx, NY501(c)(3)Lupus Research$28,743
Vanderbilt University Medical CenterNashville, TN501(c)(3)Lupus Research$28,241
Massachusetts General HospitalBoston, MA501(c)(3)Lupus Research$25,729
Beth Israel Deaconess Medical CenterBoston, MA501(c)(3)Lupus Research$25,525
University of Nevada Las VegasLas Vegas, NVNv State GovernmentLupus Research$24,000
State University of Ny at Stony BrookSyracuse, NY501(c)(3)Lupus Research$23,000
Pennsylvania State UniversityUniversity Park, PA501(c)(3)Lupus Research$21,678
University of FloridaGainseville, FLFl State GovernmentLupus Research$21,000
University of Kansas Medical Center Research InstituteKansas City, KS501(c)(3)Lupus Research$18,000
University of MiamiCoral Gables, FL501(c)(3)Lupus Research$18,000
University of WashingtonSeattle, WAWa State GovernmentLupus Research$16,112
The Jackson LaboratoryBar Harbor, ME501(c)(3)Lupus Research$15,000
Cedars-sinai Medical CenterLos Angeles, CA501(c)(3)Lupus Research$10,000
Georgetown University Medical CenterWashington, DC501(c)(3)Lupus Research$10,000
Leland Stanford Junior UniversityEast Lansing, MI501(c)(3)Lupus Research$10,000

International Summary

Offices
0
Employees
0
Spending
$2,844,659

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrants to Recipients-00$1,308,684
East Asia and the PacificGrants to Recipients-00$851,280
North America - Canada and Mexico, But Not the United StatesGrants to Recipients-00$684,695
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$692,418
Fundraising Gross Income$692,418
Professional Fundraising Fees$75,000

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala Celebration$3,487,331$653,326$239,134$414,192
Walk-a-thons$993,237$39,092$17,966$21,126
Total Events$4,480,568$692,418$692,418$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liabilities$2,580,654
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

Executive committee is comprised of the board co-chairs, president, board secretary and one additional voting board member. The executive committee approves details of programs already approved by the board, staff compensation and large contract negotiations.

Form 990, Part VI, Section A, Line 2

Ira akselrad and robert wood johnson, iv (past chairman of the board), have a business relationship. Richard k. Descherer (co-chair) and jennie descherer have a family relationship.

Form 990, Part VI, Section B, Line 11B

After preparation of form 990 by lra's auditor, lutz and carr, the 990 is reviewed by the lra's executive officers, the chief financial officer and the president. The finance and audit committee of the board then meets to review the 990 before filing and approves for filing with any noted changes. A draft of the 990 is then sent out to the full board for comment prior to filing with the irs. The final form 990 is presented to the full board at the next scheduled meeting.

Form 990, Part VI, Section B, Line 12C

The executive committee of the board is responsible for monitoring conflicts of interest. An annual conflict of interest disclosure form is required to be filled out each year by board members, officers and key employees.

Form 990, Part VI, Section B, Line 15

The compensation committee of the board of directors assisted the board in fulfilling its oversight responsibilities relating to the compensation and benefits of the president and other executive officers; and provided recommendations regarding management successors. Annually the committee reviews and recommends to the board the salary for the president and other officers/key employees. In 2023, the committee reviewed and approved base salaries, 2024 compensation plan including the 2023 year-end bonus pool for all staff and the 403b non-elective employer contribution to all eligible staff.

Form 990, Part VI, Section C, Line 19

The organization's governing documents are available upon request, the conflict of interest policy and financial statements are also available upon request and are on the financials page of our website and on guidestar.org

Filing and Contact Details

Filer

Filer Name
Lupus Research Alliance Inc
EIN
58-2492929
Phone
6468846000
Address
270 MADISON AVENUE SUITE 300, NEW YORK, NY 10016

Signing Officer

Name
Debra Rose
Title
Chief Financial Officer
Phone
2122182840
Signed
2025-09-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Albert T Roy
Formed
1999
Legal Domicile
Ny
Voting Board Members
25
Independent Board Members
25
Employees
72
Volunteers
500

Preparer

Firm
Lutz and Carr Cpas Llp
Address
551 FIFTH AVENUE SUITE 400, NEW YORK, NY 10176
Preparer
Jennifer Coates
Phone
2126972299
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Cancelled grants 308,341.

Form 990, Part V, Question 2A

The lra contracts with trinet, a professional employer organization (peo), to provide payroll and benefits as a co-employer with the lra. Lra payroll and benefits are administered by trinet as approved by lra officers. Lra payroll is therefore under the trinet ein: 13-3867443 and w-2's are prepared under that ein by trinet.

Financial Statement Notes

PART V, LINE 4:

Board designated (quasi) endowment fund income to be used for supporting operations and the research program. Principal to remain intact unless high priority lupus research projects need to be funded that could not be funded otherwise.

Raw XML AppendixShowing 400 of 1,921 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/AccountsPayableAccrExpnssGrp/EOYAmt02313310
IRS990/AccountsReceivableGrp/BOYAmt0336389
IRS990/AccountsReceivableGrp/EOYAmt0281210
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0FREEING THE WORLD OF LUPUS.
IRS990/AllOtherContributionsAmt07384454
IRS990/AllOtherExpensesGrp/FundraisingAmt0207387
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt030481
IRS990/AllOtherExpensesGrp/ProgramServicesAmt084613
IRS990/AllOtherExpensesGrp/TotalAmt0322481
IRS990/AnnualDisclosureCoveredPrsnInd01
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IRS990/Desc0THE LUPUS RESEARCH ALLIANCE (LRA), THE LARGEST NON-GOVERNMENTAL, PRIVATE FUNDER OF LUPUS RESEARCH WORLDWIDE: FUNDS INNOVATIVE RESEARCH THAT SPANS THE SPECTRUM FROM FOUNDATIONAL TO CLINICAL RESEARCH. FOSTERS DIVERSE SCIENTIFIC TALENT, STIMULATES COLLABORATIONS, AND DRIVES DISCOVERIES TO TRANSFORM TREATMENT WHILE ADVANCING TOWARD A CURE. HAS INVESTED NEARLY $272 MILLION IN LUPUS RESEARCH INCLUDING 620+ RESEARCH GRANTS LRA-FUNDED RESEARCH PAVED THE WAY FOR THE ONLY TWO BIOLOGIC DRUGS CURRENTLY APPROVED FOR LUPUS, AND THE LRA IS INVOLVED IN NUMEROUS ONGOING PHASE 3 TRIALS. FURTHER, LRA RESEARCH INVESTMENTS HAVE CONTRIBUTED TO THE IDENTIFICATION OR FURTHER VALIDATION OF TWO DOZEN DISEASE PATHWAYS IN LUPUS AND HAVE ENABLED THE DISCOVERY, PROOF OF CONCEPT, OR DEVELOPMENT OF MORE THAN A DOZEN DIFFERENT NEW THERAPIES FOR LUPUS. SINCE THE FORMATION OF THE LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN), LRA HAS DEDICATED $34 MILLION TO BOLSTER LUPUS CLINICAL RESEARCH INFRASTRUCTURE AND QUALITY.THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORY BOARD INCLUDES TOP SCIENTIFIC EXPERTS, AND KEY LAY MEMBERS OF THE LRA'S BOARD OF DIRECTORS, WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA.IN 2024 ALONE, OVER $12 MILLION WAS AWARDED IN GRANTS FOR 38 HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS AND THUS LEAD TO A CURE. BELOW IS A SUMMARY OF RESEARCH GRANTS AND PROGRAMS FUNDED BY THE LRA IN 2024: 1) 11 LUPUS INNOVATION AWARD GRANTS WERE AWARDED TOTALING ALMOST $4 MILLION OVER TWO YEARS, THIS PROGRAM SUPPORTS PIONEERING, HIGH-RISK, HIGH-REWARD PROJECTS ADDRESSING MAJOR CHALLENGES IN LUPUS RESEARCH. EARLY-STAGE INVESTIGATORS ARE GIVEN SPECIAL CONSIDERATION DURING THE REVIEW PROCESS AND ARE ELIGIBLE FOR A THIRD YEAR OF FUNDING; 2) 6 ADMINISTRATIVE LUPUS RESEARCH SUPPLEMENT GRANTS WERE AWARDED TOTALING $90,000. THIS PROGRAM SUPPORTS PROMISING TRAINEES WHO ARE WORKING WITH LRA-FUNDED RESEARCHERS OR INVESTIGATORS FOCUSED ON AUTOIMMUNITY SUPPORTED BY THE NATIONAL INSTITUTES OF HEALTH (NIH), DEPARTMENT OF DEFENSE (DOD), OR EQUIVALENT GRANTS IN GOOD STANDING. 3) 3 GRANTS TOTALING APPROXIMATELY $1.8 MILLION WERE AWARDED TO RESEARCHERS IN THE CAREER DEVELOPMENT AWARD PROGRAM THAT AIMS TO SUPPORT EARLY CAREER INVESTIGATORS FOR THE PERIOD BETWEEN THE COMPLETION OF POST-DOCTORATE FELLOWSHIP TRAINING AND ESTABLISHMENT AS AN INDEPENDENT INVESTIGATOR. THE PROGRAM PROVIDES UP TO $600,000 OVER FOUR YEARS. 4) 2 POSTDOCTORAL GRANTS FELLOWSHIP GRANTS AWARDED, THIS GRANT IS DESIGNED TO FUND PROMISING RESEARCH FELLOWS AND PROVIDES THEM WITH UP TO $170,000 OVER TWO YEARS TO SUPPORT THE GENERATION OF DATA, UNIQUE RESEARCH IDEAS AND PROGRESS TO TRANSITION TO AN INDEPENDENT RESEARCH ROLES FOCUSED ON LUPUS RESEARCH. 5) 5 TRANSLATIONAL BRIDGE AWARDS FUNDED TOTALING APPROXIMATELY $2.2 MILLION. THIS PROGRAM PROVIDES UP TO $450,000 OVER TWO YEARS, WITH A GOAL TO BRIDGE THE GAP BETWEEN POST-DISCOVERY AND PRE-COMMERCIAL DEVELOPMENT WITH AN AIM TO ACCELERATE THE PACE AT WHICH PROMISING LRA-FUNDED FOUNDATIONAL RESEARCH DISCOVERIES ARE TRANSLATED INTO CLINICAL EVALUATION AND TRANSITIONED TO A VIABLE PRODUCT THAT WILL IMPACT PATIENTS DIRECTLY. 6) 11 TARGETED RESEARCH PROGRAM ON ENGINEERED CELL THERAPIES FOR LUPUS GRANTS TOTALING OVER $4 MILLION. THIS PROGRAM ADVANCES THE DEVELOPMENT OF NEXT GENERATION ENGINEERED CELL THERAPIES WITH A CLEAR AND DIRECT RELEVANCE TO PEOPLE WITH LUPUS.7) THE LUPUS INSIGHT PRIZE WAS AWARDED $200,000. THIS AWARD RECOGNIZED TWO LEADING RESEARCHERS WHO HAVE MADE A MAJOR CONTRIBUTION RELEVANT TO LUPUS, AS PART THE LRA'S COMMITMENT TO COLLABORATION, THE LRA WORKS WITH A VARIETY OF PARTNERS ACROSS SECTORS AIMED AT ACCELERATING RESEARCH DISCOVERIES, LEVERAGING RESOURCES, AND EXPEDITING THE DRUG DEVELOPMENT PROCESS TO IMPROVE THE QUALITY OF LIFE OF PEOPLE LIVING WITH LUPUS BRINGING TOGETHER THE KEY PLAYERS IN THE FIGHT AGAINST LUPUS --
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IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25CEO AND PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt26CHIEF CLINICAL RESEARCH OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt27CHIEF FINANCAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt28CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt29VP, DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt30VP OF COMMUNICATIONS

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